Poll on Sentinel Node Biopsy Pain

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  • KeepingtheFaith
    KeepingtheFaith Member Posts: 60
    edited July 2010

    LuvRVing   First of all Hello. We aren't that far from each other, in fact I think I will probably have my radiation in Olathe. My surgery is Thursday the day after yours and we got our diagnosis on the same day. I don't have all the information about mine yet. I didn't see the path report from my core need biopsy and the doctor didn't tell me much. I am going to ask for a copy of the biopsy after my surgery.

    I went Monday for my pre-op and at that time talked to a nurse. I was very glad I had read so much about the sentinal node localization on here because otherwise I wouldn't have known to tell the nurse that I was frightened by it. She said I will not have anything to ease the pain except the cream. Because she could see how worried I was she called the doctor and asked him if I could get some valium and he said yes. So they will give me some valium to relax me.

    I will be anxious to hear how yours went. Deb

    PS My niece lives in Blue Springs and is a teacher at an elementary school.

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited July 2010

    Hi everyone! Sitting here in the hospital waiting for surgery.  Just had the tracer dye injections for the sentinel node biopys.  I didn't feel a thing - it did not hurt at all!  Woohoo for Menorah Medical Center.  I did ask for the numbing cream which  was applied about 45 minutes before they took me down.  The needles were really tiny, they inject only a tiny amount of dye with a numbing agent and I really didn't feel the dye being injected.

    I suggest anyone should have a talk with Nuclear Medicine before undergoing the test.  Make sure they are doing it using the most current protocols and you will be just fine.

    Surgery in an hour or so...

    Michelle

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited July 2010

    Saying prayers for you Michelle! You can do it! Let us know how it went!

  • kira1234
    kira1234 Member Posts: 3,091
    edited July 2010

    Michelle,

    Great to know, now prayers are going up for you. Let us know how it went when you're feeling up for it.

    Karen

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited July 2010

    Just wanted to post this link that Hehewuti posted on this topic.  This study recommends adding lidocain to the tracer to reduce pain.

    http://www.breastcancer.org/treatment/surgery/new_research/20090806.jsp 

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited July 2010

    Hi everyone!  We got home a little more than an hour ago.  I feel amazingly well.  Of course, that could be from the morphine they gave me in Recovery - at about 4:00.  I've got my pain meds and antibiotic right by my chair and a 48-ounce BubbaKeg of water.  I did not have any nausea at all thanks to the Patch I use to prevent motion sickness.  I had some left over from a cruise we took in January and the anesthesiologist told me yesterday that I could use it, so I put it on last night.

    The Sentinel Node showed no sign of cancer cells in the pathology during surgery.  The tumor is just at 3 cm so I will be able to do Mammosite radiation and the placeholders are installed.  

    I could not have asked for better results at this point.  Of course, the full pathology report will tell the rest of the story, along with the Oncotype score.

    A big thanks to all of you who were keeping me in your thoughts and prayers! 

    Deb - ask to talk to Nuclear Medicine and ask them these questions:

    1.  what is the size of the needles used for the injections?  Mine were tiny like what's used for insulin.

    2.  do they mix lidocaine with the tracer dye?  If they say 'no', then tell them to call Menorah's Nuclear Med department and get educated.

    3.  What volume do they inject?  They used just about 3 cc's in my needles.  Apparently, they "used" to inject much more and now it's just a tiny amount.

    I hope you get the right answers (which will reassure you) and that all goes well tomorrow.  I will be sending positive thoughts to the southwest!  We might have to get together for lunch in a few weeks!

    Cancer has been evicted....yeahhhh!!!

    Michelle

  • NSWTD
    NSWTD Member Posts: 210
    edited July 2010

    I had a topical cream to put on, then cover wtih plastic wrap about one hour before. I was really scared it would hurt, but I had 3 really cool docs....one's job was solely to distract me and he kept cracking jokes, he also held my hand the whole time. It was over before I knew it.  There were a few pricks sort of like someone poking you with a straight pin...but really not bad, and yes it was short lived. 

  • worldwatcher
    worldwatcher Member Posts: 205
    edited August 2010

    I am nearly three weeks post lumpectomy and my nipple is still tender, sore and aching.  I think it's from the tracer shots that were so painful.  The surgeon brushed aside the situation, saying, "The nerves all go toward the nipple, so any discomfort is focused there."  What?

    Has anyone else had this after surgery in  the nipple?

  • ninamat
    ninamat Member Posts: 2
    edited August 2010

    Just to add my two cents worth.  I have a high pain threshold...but this procedure was the most painful experience in my life.  I had to have both breasts/sentinel nodes checked since it was an hour or two before a bilateral mastectomy.  I am really happy some women have very little pain.  It was excruciating...they even gave me conscious sedation because I had a hard time getting through the core needle biopsies to diagnose the cancer.  I screamed and moaned and lost control...I could not maintain any semblance of composure.  The hospital said they couldn't do it after I was under for the mastectomy because the equipment to read the dye was not in the operating room.  This needs to change for all hospitals.....Nobody should have to go through this pain!!!! 

  • Nbb1032
    Nbb1032 Member Posts: 74
    edited August 2010

    Ninamat - Sorry you had so much pain.  Because of reading this thread - I asked in advance (more like insisted) that Lidocaine was put in the tracer shot.  I also slathered 4% Lidocaine on my boob and wrapped it in saran wrap an hour before. I also took a few  Ativans to relax me.   As a result my pain was more likely a 4 or 5 rather than a nine or ten.  Did you do any of this?  I've found that we need to ASK about everything.  No one is going to suggest we do this or that.   It is ultimately up to us.  I am really sorry you (or any of us) has to go through such a barbaric practice. 

  • ChattaChick
    ChattaChick Member Posts: 21
    edited August 2010

    I just had my tracer injection and surgery on Thursday (8/12), and I took a copy of the study re-posted by Cowgirl with me to Radiology.  I asked the technician (a very nice worman) if she was familiar with the study and if she could add Lidocaine to the injection.  She said she couldn't add anything unless it was ordered by my physician, but she asked if she could make a copy of the study.  She explained to me how she does the injection, and it sounded much better than what some of you have had to endure, so I decided to go ahead with it.  She did a single small injection, fairly shallow, about an inch or two away from the nipple (towards my side).  It really wasn;t bad at all.  She says she's read about other hospitals that do multiple deep injections, and she thinks it's barbaric and totally unnecessary.  Sure enough, when they checked me several hours later, they found a single very clear sentinal node. I saw the same tech at that time, and she told me she found the article very interesting, but she couldn't believe that in the study they injected a full milliliter of tracer, since she gets good results with just 0.2 milliliters.  She said a full milliliter would definitely feel like fire in the breast.

    One caution, though--they did send me to my room with the wrong film at first, which my DH discovered when he saw the wrong name on the film!  They corrected that with many apologies, but then they had to figure out which film had been given to the other woman!  So always double check films and lab reports to be sure they really are yours.

  • marjie
    marjie Member Posts: 1,134
    edited August 2010

    I had three shots to inject the tracer fluid the night before my surgery.  Not going to lie - it was horrible and I didn't expect it to be so bad.  I knew it would be uncomfortable but really thought I could handle it.  It's funny how it seems to be so different for everyone.

    Saddest thing to me was how I was feeling so up and positive about my surgery and this procedure just kind of broke me down, made me feel not as strong as I thought I was....like maybe I couldn't fight this battle.  Well your mind is a powerful thing ladies....I just focussed on mind-over-matter and sucked it up.  Feeling fine now, still a little sore from surgery, but just as strong :)

    I would suggest that everyone ask for some numbing medication or a light tranquilizer.

  • SuzanneP
    SuzanneP Member Posts: 21
    edited August 2010

    The pre-op nurse offered me a valium and some lidocaine lotion an hour before the injections.  I asked her for some more cream a half hour before and reapplied it.  That seemed to do the trick - it was uncomfortable but not bad.  The tech did say that most people cry when she does the injections.  The nurse said she was going to try the the reapplication step with other patients, too.

  • FireKracker
    FireKracker Member Posts: 8,046
    edited August 2010

    i must put my 2 cents in here...i had the sentinel node removed and went to sleep.felt nothing.unfortunately the dr did not do the right thing as i have to do it again.by another dr.BUT again i am going to sleep...I am a chicken...i did not see any posts about anyone sleeping through this nightmare.WHAT AM I MISSING HERE????????????

  • FireKracker
    FireKracker Member Posts: 8,046
    edited August 2010

    TODAY IS NATIONAL CANCER DAY.LETS PRAY TOGETHER.I PRAY FOR A CURE FOR CANCER.AMEN.

  • DiamondGirl
    DiamondGirl Member Posts: 1,046
    edited August 2010

    Wow, I wished I had read this thread before I had my surgery on 7/28.  I have a high pain tolerance but I almost lost it when the radiologist was injecting the radioactive stuff.  They also had to put a wire through.  So I think altogether 5 or 6 pricks.  It was very very painful for me and I asked him why is he struggling with my skin?  He said that because of my age, the skin is tougher (I'm 48).  After he was done, they had to cover it with a gauze and I could see that it was bleeding.  The pain went away an hour later. They never numbed me :(

    I had lumpectomy and 1 lymph node out (out patient surgery).  I was given percocet but did not require to take any.  I have 2 incisions and they are about 2.5 inches each. 

    It is 4.5 weeks post surgery, scar healing nicely but the nipple is a little swollen and it is very tender to the touch.  My breast is a bit stiff too.  Will see BS tomorrow so will see what he said.

    BTW, one week post surgery, I have developed ringing in the ears and mild fever, under 100.2 and I will find out more tomorrow.  Will keep you guys updated.

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited August 2010

    Grannydukes,

    I don't think you're missing anything.  My injections did not hurt at all.  I think if the Nuclear Meds folks are doing this "right", no one would feel much of anything.  The nurses should routinely numb the area with Emla cream before the procedure, and the injections should be tiny using tiny needles (similar to insulin needles).  There should be lidocaine mixed in with the radioactive tracer dye and they should be using just a tiny amount.

    I watched the Radiologist inject me (about 5 injections) and honestly it did not hurt at all. 

    Michelle

  • mikita5
    mikita5 Member Posts: 373
    edited August 2010

    Ok. I'm one who breezed thr my SN biopsy. My sis asked before I went down to surgery if this was a painful surgery and the nurse told her yes.  I had it done, went home and back to work the next day.

    Yes, we are all very different.

  • lago
    lago Member Posts: 17,186
    edited September 2010

    They injected me before surgery. 8 shots! I was like "WHAT!" then they explained that the first 4 were lydercane (sp) that they injected around the areola.  Next 4 was the radioactive stuff. Little stinging from the first 4, last 4 felt nothing.

    I was so scared about the pain and didn't need to be. Boy do I wish I knew what they were going to do ahead of time.

  • perky
    perky Member Posts: 241
    edited September 2010

    I don't remember the pain being too much, (it wasn't more than I expected) when the dye was injected hours before my mastectomy. I mostly remember how wierd it was when the assistant was holding my breast steady for the injections and wondering why I was feeling so modest about it since  it is a medical setting and the breast was a goner anyway . It was very surreal.

    When you woke up after surgery, did you have electric shock sensations where the removed nodes were? That hurt!

  • lago
    lago Member Posts: 17,186
    edited September 2010

    I have yet to have any electric shock sensations. I've been lucky. I'm just bit sore and stiff. I also have some numbness under my arms but the feelings are starting to come back. Of course my boob area is numb.

  • worldwatcher
    worldwatcher Member Posts: 205
    edited September 2010

    I wish they had injected the lidocaine for me...the shots without it were really painful.

  • TifJ
    TifJ Member Posts: 1,568
    edited September 2010

    LuvRVing - I live in Harrisonville and will be having my surgery tomorrow the 15th at Menorah. Who is your BS? I will be having a BMX with TE and a left side lift with SNB of course.

  • Scampi
    Scampi Member Posts: 2
    edited September 2010

    I'm a newbie here and just had to post.  1 week ago today I had a lumpectomy with SNB and I am furious at how painful the radioactive injection was and at how uncaring the staff appeared to be.  I'm scheduled to have my follow-up & test results tomorrow.  I'm hoping for clear margins and no node involvement!!!

    I love my BS but if I have to have any more procedures, I think I will have to switch to a different hospital and give up my BS.

    I've had numerous surgeries over the years and this hospital was the absolute worst and I refuse to ever go there again in my life!

    I will make it my life's mission to inform women to not allow themselves to be subjected to unnecessary pain!

  • TifJ
    TifJ Member Posts: 1,568
    edited September 2010

    Michelle, i was scared to death of the SNB injections until i read your post. i too had mine done at Menorah in Overland Park. 4 little stings and that was it. Much better than I thought. My surgeon is Dr. Amie Jew and my Plastic surgeon is Dr. John Quinn. Love them both. Have you seen an oncologist yet?

  • riley702
    riley702 Member Posts: 1,600
    edited September 2010

     My SNB wasn't painful, just a little weird with everyone's attention focused on my boob!

    I didn't get the dye, just the radioactive tracer the day before my surgery. I can't remember whether it was 6 or 8 shots total (I started to look down and check! LOL), but it was mixed with lidocaine and the first couple stung a little. They put a heat pack inside my bra and told me to come back in 3 hrs for the scan itself, and to massage the breast for at least 5 minutes, preferably sooner rather than later. I went back home to finish uploading my vacation pics to Facebook. I felt very silly massaging my breast and watching the clock. Five minutes can be a long time!

    When I went back in, the first view showed one node lit up, but the tech doing it said that there can be more than one SN sometimes, so she did a lateral view and up popped 2 more! One was brighter than the other 2 and she said that could just be my body processing the dye faster than expected and it had had time to go beyond the 'true' SN, or there could be more than one and that it would be the surgeon's decision the next day.

    He ended up taking 2 (the one that lit up the brightest, and the next closest one that was marked). They were both negative, so he didn't feel the need to take the third one, too.

  • riley702
    riley702 Member Posts: 1,600
    edited October 2010
  • Halah
    Halah Member Posts: 352
    edited October 2010

    They put me under before the bilateral SNB so I consider myself lucky.

  • FireKracker
    FireKracker Member Posts: 8,046
    edited October 2010

    you can demand to be put to sleep.its your body and your choice. I DID.if they dont want to do it CHANGE DR AND OR HOSPITAL.

  • Kristian
    Kristian Member Posts: 68
    edited October 2010

    I feel the need to say that if you have the opportunity to use the numbing agent, I would.  I was not given a choice, and I found the injection to be very painful.  With everything I have been through since Dec 2008, when I look back I definitely think this was the most pain I have ever experienced.  It was very quick, but the intensity of the pain in such a short period of time made me scream then cry.  Someone was holding my hand, unfortunately I don't think that helps unless the person volunteers to take the needle for you! 

    I find it amazing how it effects everyone differently.  Hopefully the pain is less for most people.

    Kristi :)

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