Just Diagnosed w/ DCIS- Have Qs

Hello, DMS.

I hope that you are doing well and that I'm not too late to make a few suggestions.  Ask for copies of your of all of your test results.  I think that most of us like to have our own copies for our own files.  Hopefully, the surgeon will have results from your MRI, so also ask for those results.  I would want confirmation from the MRI that the DCIS is confined to the area shown on the mammogram.  If the surgeon recommends one specific type of surgery, I'd also like to know their reasoning for recommending that particular surgery.  Also, what do they think will be the next type of treatment.  Do they think radiation or Tamoxifen would be beneficial after surgery?

Goodness.  I may have tossed out alot of suggestions, but these were some things that I thought about.  Consider writing your questions and the answers from the doctor.  Or, if possible, bring someone with you to serve as a second set of ears.

Best wishes.  Let us know how the appointment goes.  We can probably help you with some questions and opinions, too.

Hi DMS

Yes, you are in a good place.  I learned so much here.  I agree--get your reports and have questions ready. 

Initially it was recommended that I have lumpectomy and then wait to decide on radiation and/or medication.  I appreciated that my BS was not pushing me in any direction until after the lumpectomy and the pathology report.  There is no rush to treatment and I think it is important that patients stay calm and don't jump to a decision.

One question I would ask is if after lumpectomy the lesion is smaller or larger than thought what would recommendations be in either case?  The pathology report from a lumpectomy surgery would tell you exactly the size of the lesion and the margins.  This is important for informed decision.

If radiation is a possibility you may want to ask for an appointment with a radiation oncologist to find out options for your particular situation.

I did this and I also consulted with a plastic surgeon just to know what options were available to me.

I did not have an MRI--my radiology path report stated that DCIS is "underestimated on MRI". I wonder what other person's experiences are with MRI.  It was not recommended for me.  I am being treated at Mayo. 

I have been told that the treatments women get for DCIS depend on their particular situation, personal wishes and the area of the country they live. 

Just want to say I am almost eight years out from DCIS diagnosis and treatment.  Single 4cm. tumor.  Lumpectomy, rads, and five years of tamoxifen.  I am fine today.  None the worse for wear.  Wish the same for you and everyone.

Dear Janet:  I hope you are recovering comfortably.  I'm still having moments of anxiety, as I await my pathology report.  I will know late today or tomorrow.  I keep thinking positive and family and friends have been amazing.  I'm back to work, driving, etc., and feel great.  I wish you a speedy recovery and clear margins!