Has anyone had micro fat grafting?
Comments
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Hi jseda,
Actually, I live in NJ - I only got "Miami" expenses because I flew down there. As I mentioned before, there is a surgeon in NY who has done fat grafting for years. While it would have been far more convenient for me be there (only 50 miles from me), his fees were astronomical. Also, it seemed like his experience wias more in augmentation (and fat grafting to other parts of the body), while Dr. Khouri's was both augmentation and reconstruction. Also, since Dr. Khouri is the inventor of BRAVA (originally designed for augmentation on its own, many years prior to being used as part of the fat transfer procedure), and the pioneer of this procedure, I wanted to go directly to him.
From pictures I've seen of other lumpectomies, mine wasn't as drastic and damaging as most, but worse than many others.
Something else that might be of interest to you all, that I never thought to ask him exactly how he did it, was that he "de-tethered" (I have no idea what the correct terminology should be) the flesh that was down to the bone, also with no incisions. It was done strictly thru the needle injection sites. Except for the scar of the lumpectomy incision/stitches (which the appearance of is improving still), you would never know there was any deformity there.
(I was just reading earlier pages of this thread that I hadn't seen before. Someone mentioned stitches at the lipo sites. Dr. Khouri does not stitch them closed. It was explained to me that by leaving them open, they drain better and it reduces swelling. It is kind of messy for a day or two, but you can't really see any of those sites on my legs, thighs and knees anymore.)
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Ladies,
YOU LADIES ARE THE BEST....Far better then a family member, husband or sister. Not that they aren't supportive. Just can't talk to them like we can communicate among each other and ask questions that no one else would even dream of it not on this so called journey.
Make it a great day,
Hope
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The man who invented the new procedure for microfat transfers to the breast is in Miami. His partner in the project is in Verona, Italy. Unfortunately for me I found out about him too late (after I had implants put in). But now I am telling the world about what he does. He is Dr. Roger Khouri at the Miami Breast Center. He rebuilds entire breasts from fat...WITHOUT cutting you open. No more scars or major surgeries. It's amazing. He does removing of fat as an outpatient procedure then injects tiny bits of it into the breast area to create the breasts. I've met some of his patients and they worship the ground he walks on. They keep sensation in their breasts with this process. AMAZING. From what I understand the reason this is so breakthrough is because in the past, fat in the breast died. But he used this external expander (instead of the one I had which was inside the breast). It's called Brava and it used to be used for breast augmentations, but now he uses it to expand the skin, tissue, etc...from the outside for a few weeks...THEN he injects fat and it lives! Check out his site: www.MiamiBreastCenter.com
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Hi Nedeza, I sent you a private message regarding your situation. I too have experienced the exact same thing that you have. If you can help me, it would be much appreciated.
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Glad I stumbled across this post. I am going for my touch-up planning appt soon. I too have a small divot on rt breast...I had a SIEA flap procedure. I am glad to know it can be filled in.
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Obviously, I'm very new here. I was diagnosed with bilateral bc in May. After the initial flush of seemingly non-stop visits with new doctors on the "team", and, initially, accepting what I was told was my only "choice" (interesting oxymoron, there), I settled in to do my own research.
The proposal is/was bilateral mastectomy with immediate expanders. NO ONE mentioned that they were going to cut the pectoral muscles! (Are they nuts?) I'm 61, a SCUBA diver, computer programmer, quilter, gardener ... I need to retain all of the upper body strength that I can, in other words. (Good plan for any one.)
Last weekend, I literally stumbled on to the Miami Breast Center site and became fascinated with Dr. Khouri's work. Yesterday morning, I found this thread and have just finished reading all 244+ posts. (They kept multiplying, as I read.) You all have amazing stories and, of course, are way ahead of me, in this "game". Since I am fortunate to live about an hour and a half from Miami, it seems like a "no brainer" to go see him, before submitting to such a drastic "choice".
I have so many questions. I'll try not to ask them all at once. While I believe in the essence of "you don't know what you've got 'til it's gone", I can't get my brain around caring about having breasts. I know that is very weird. And, I don't mean to sound insensitive to or critical of the efforts and pain that many of you have gone through to achieve a result that will be satisfactory to you. But, no one has actually asked me if I care about getting them back. The assumption is that all women want breasts and want them big. I have, literally, hated having to deal with them ... every day ... for over 50 years. In the 60's, when the fems were burning their bras, it was kind of humorous, as none of them seemed to have breasts to speak of any way. I was always self-conscious of boys/men leering at mine. Then, as I aged and they started to head south, I've had to cope with finding 34-DD bras. (Even the bra sales ladies laugh at me and "wish me luck".) Can anyone shed some light on this? I'm guessing that the essence is that everyone, ultimately, just wants to "look normal". My husband seems more focused on this than I am. (Is that DH? ... A whole new field of TLAs, as usual with a new subject.)
Sorry for rambling. Keep up the positive attitudes, ladies. I have sensed so much strength in all of you. Thanks.
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Jupmm: I TOTALLY get it about the big breasts thing! I had 34 FFs or something like that, it was ridiculous!!! I am probably in the tiny minority of women here who went down, WAY down in size after my bilateral mastectomy. I am now around a C cup or so!! I LOVE it. However, I had my exchange surgery two summers ago and I have had some REALLY ugly folds and dimples, so I asked for a revision which brings me to my post (there is a point here!) I just had my surgery two days ago and I am guessing this is what I had? They sucked out some tummy fat (OUCH!!) and used it to fill in all the places that needed help. I looked at it today and it looks great! I am so pleased. I can finally get those tatoo nipples and feel completed. I am in a fair amount of pain, but mostly in the abdomen area. I will let you all know how it looks once all the bruising, etc goes away but I gotta tell you, at this point, I am quite pleased!
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jupmm,
I'm the exact same age as you and felt the same way you do when I learned I needed a mastectomy four years ago. That was my second breast cancer diagnosis -- I'd had bc in my other breast and had a lumpectomy and radiation three years earlier. After the second diagnosis, I had a bilateral mastectomy. I did explore plastic surgery but decided I really didn't want reconstruction. Fortunately, my doctors were all very supportive of my choice. I felt, though, that many women don't get information about non-reconstruction as a positive alternative to reconstruction, so I started BreastFree.org (http://breastfree.org). The BreastFree website provides Personal Stories (many contributed by women I met here at breastcancer.org), Photographs, and information about bras, breast forms, and other aspects of living breast-free.
I realize this is the reconstruction forum. As I've said here before, I absolutely understand that many women want reconstruction and I'm glad there are a number of options available to them. If you want to read more from women who have opted not to have reconstruction, in addition to BreastFree, check out the "Breast Prostheses and Reconstruction Alternatives" forum right here at bc.org.
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Thanks, Anne and Erica. I realize that this is a reconstruction forum. And, I certainly haven't decided against having one done, ultimately, nor do I object to any decision that any woman makes about her own breasts. But, I feel that, for all well intended reasons, I have not been told about all the alternatives and the personal costs involved with the expanders, extra recovery time, the additional damage to healthy tissue, etc.. I also didn't like them not listening to what I said that I wanted. I said, "I want a reduction." He said, "They'll be about the same size as they are now. They'll just be 'higher and facing forward'." That was "cute", but, didn't indicate that he had "heard me".
I think that what we've ALL gone through or, in my case about to go through, has been ugly enough and that we ALL deserve to have the outcome that we want. Not just what the "average woman" (whoever she is) wants. I plan to take my time with my decision, until I make the choice and find the doctor that will give me what I ask for.
I wish for the best outcomes possible for everyone here. This is just such a personal decision.
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I am just blown away with the comment by your doctor's comment of just exactly how YOUR breasts will be! NO NO NO!!! This is NOT okay!!! Find another doctor!! This is YOUR decision. If you decide you want a reduction, it is totally doable. Take it from me!! And also from MANY other women both on this site and off. A good friend of mine also had a reduction and she is thrilled with the results. I have silicone implants and now with this revision surgery, I am so happy!!! Please don't take this doctor's answer as final. That is wrong and just makes my blood boil!!! Please PM me anytime for more info!!
Anne
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Okay, I've finally combed through the entire thread and I think I understand it now. Can someone correct any of this if I have it wrong (summarizing what I've picked up on this thread)?
- Dr. Khouri's procedure uses your own breast tissue (what little is left after mx) + the Brava device to suction it for several months + fat that is liposuctioned from another part of your body.
- It doesn't require implants, tissue expanders, cutting into muscle, or taking muscle tissue from another part of your body.
- It allows your breast to retain sensation.
- It can be done with nipple-sparing mastectomy.
- It can be done after your mx, without coordination with your breast surgeon.
- The fat transfer is done in 2-3 procedures (is that right? and over how long of a period of time?)
Did I get any of that wrong? I honestly can't see a down side of this. The whole reason I've dreaded mastectomy is the loss of sensation. This procedure would make all the difference. I don't need a big cup size (a good full B is plenty for me) and I have PLENTY of thigh/butt fat he could use (LOL!). I haven't had radiation so that wouldn't be an issue. I don't mind sleeping in bizarre contraptions.
Is there a down side for someone in my situation??
Well, other than the fact that I'm in Atlanta and would need to fly to Miami however many times (unless someone at Emory University has latched onto this procedure and is now doing it).
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The only thing I think you got slightly wrong is that you hopefully have virtually no breast tissue left after mastectomy. The Brava system doesn't require it. Although originally designed for breast augmentation, apparently, it can expand and act on fat or other tissue in the chest even when breast tissue has been removed.
Still, this is one thing I worried about when considering this procedure. If I do have any breast tissue left, the last thing I want is for it to grow! The reason I had a mastectomy was to get rid of it. However, I've come to understand that expansion with a tissue expander involves somewhat the same process, so maybe I overreacted.
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Thank you so much, Barbara/Erica! Your posts on the rest of this thread have been very helpful too and I can understand the concern about having breast tissue left (I personally would mainly want to make sure they got all the ducts, at least, even if there is necessarily a bit of breast tissue remaining). No one procedure is right for everybody, certainly... I'm excited to realize that it sounds like exactly what I've been waiting for! Thank you again for your thoughts!
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I would just like to add that as far as I know, Dr. Khouri requires everyone to have an MRI prior to beginning to even wear BRAVA (as well as another 6 mos after the surgery). I know I had my annual mammo and ultra-sound just a month before my consult, but I still had to have the MRI. (Before reading this thread, I hadn't even considered the expanding, or causing growth to existing breast tissue when there had previously been a malignancy.)
Anyway, maybe the MRI would help any of the ladies not wanting to do the procedure if any remaining breast tissue and/or ducts were still present, to make their decision.
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Just had a bilateral mastectomy 6/28. Found I had DCIS in left breast where 17 years ago I had stage I infiltrating ductal CA. This time, learned I am BRCA2, so had the right breast removed too. All lymph nodes under my left arm were removed and I had radiation during my first cancer.
Prior to surgery, researched my reconstruction options. Went to Johns Hopkins and Georgetown to check out flap possibilities. I had already been told I would be a good implant candidate since I am petite and do not have a lot of fat. I rejected this option because I didn't want any foreign bodies and did not want to face any potential problems that some have with implants. At JH and Georgetown, found that I could have flap surgery, but it would have to be from two different donor sites. The surgeries and the potential for flap failure seemed very unappealing. I checked out the BreastFree website (thanks, Erica), too. I really liked what I saw there.
During my research I did come across Dr. Khouri's website. Sounded too good to be true. Did some further research and found the clinical trial, but no results were posted yet. While at JH and Georgetown, I mentioned Dr. Khouri and his approach, both were familiar with his procedure and both said this would be an option. This made me feel more confident that it was a legitimate procedure. At any rate, I was almost going to settle for being breast free, but then my husband suggested that I make an appointment with Dr. Khouri. We flew to Miami (I live in the mid-Atlantic). He spent about 2 hours with us explaining everything and answering all of our questions...he has a very busy practice and I felt privileged to receive this much time from him. He is a very compassionate person and really encouraged me. Before I left his office, I was able to meet a woman who had her first grafting session a few days prior. She looked great and had two nicely shaped mounds or breasts already! I then talked with 3 other women who had either completed their reconstruction or were in the process and I was encouraged by their comments.
I decided to to have my mastectomies by the surgeon I used 17 years ago..he had done a wonderful job on my lumpectomy. I mentioned Dr. K's work to him and he was not familiar with it. He wanted to talk with him. They did talk and discussed the best approach for the mastectomies (as far as skin looseness...etc...left the skin slightly loose). My surgeon also ran Dr. K's name by a few of his PS friends and there were no red flags. I was delighted after my surgery to find my surgeon preserved the cleavage line and also the breast fold (under the breast). With the post-op swelling it looked like I had a bit of cleavage and breast, but he assured me all the breast tissue was removed!.
I have just started wearing the BRAVAs...they pair you up with a coach who walks you through the wear and care, etc. I admit, looking at the BRAVAs (I am using a med./wide...Dr. Khouri wants as much area as possible to be expanded), I was intimidated! But Dr. Khouri said start wearing for a couple of hours...to get used to them. I wore them 2 hours yesterday and it wasn't bad. The left side was a bit uncomfortable, since I did have radiation on that side and all nodes removed, leaving nothing but skin and bones. But I found that by adjusting the soft silicone lip, I could find a comfortable spot. When I took them off, the breast area looked a bit purple....but that all went away in a half hour or so. This is probably due to the blood supply being pulled forward. Dr. Khouri told me also, that after fat grafting there would probably be a return of sensation/feeling where it is still numb from the previous cancer treatment. There is another clinical trial that I came across, where they are treating irradiated breasts with fat prior to implants...as this is thought to rejuvenate the skin and tissue. At any rate, I will see if I notice any difference after I have my first fat graft. All in all....this type of reconstruction does take some time and dedication from the patient, but when I was looking at the flap surgery, I would have had to spend several weeks recuperating after each surgery and I was going to have at least two surgeries. So, from my perspective, this process is better...I don't have to have a foreign body implanted, when I reach standard BRAVA wear time, I will have 12-14 hours a day where I don't have to wear it, and the downtime after the fat grafts will be MUCH shorter than after a flap surgery.
If anyone is interested, I will continue to post my progress. Good luck to all of you out there who are facing reconstruction or are in the process...whichever type you choose. And...if you choose to go breastfree...enjoy this too....I think it is so great that we are alive and that we have so many options to choose from!
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I am a long-time "lurker" of this board, along w/many other BC sites. I have never posted on any of them, but realized how much you guys have helped me....and I hope I can give a little insight regarding Dr. Khouri. Abbreviated version of "me"....2002-DCIS w/microinvasion, lumpectomy, radiation. "100% cured" NOT. 2009-reoccurence in 1 lymph node (no primary tumor), mod. radical mast., A/C & Taxol & Abraxane/Avastin chemo. Lat flap.
I have had numerous issues (haven't we all?) -3 tissue expanders, 1 failed implant. "Radiation recall" during chemo. All of this left me w/very little in the way of viable options. I was thrilled to run across Dr. Khouri. I finished chemo about 8 mos. ago & due to my very thin, radiated skin, he did not think the Brava system was a good choice. He actually suggested a very small implant (to hold the pocket open) and fat injections. I had surgery yesterday, rather, last night....with mixed results. My main objective was to get the tissue expander OUT, as it looked as though, it was going to come through at any time. So, that was done. He was unable to put in even a small implant. He said my skin was like cardboard & would not support an implant. So, he did the fat grafting, but wasn't even able to do as much as anticipated, again due to my unforgiving skin. He is hopeful that what was transferred will take root and that I'll be able to try again soon. He told me up front that it does not look good:(
Now for the actual surgery part, I have to say that last night I was in some pain & today too. However, I discovered that if I just take the Percocet I can tolerate it! I think I am the typical women, who doesn't like to take pain meds, rather tough it out....I am slowly realizing this is stupid:) The worst part is the compression garment! I have one on from just below my breast all the way to my knees. Ughhhh, puncture holes everywhere....so multiple sites of pain, not just one area. The breast doesn't hurt at all, I suppose b/c there really isn't one there, lol (gotta laugh). The other thing I was not aware of is that since there are no stitches, there is ALOT of drainage. I mean alot. Be prepared to have plenty of towels or a waterproof mattress cover. Today it has subsided. I also have the dreaded drain, since my expander was removed & nothing put back in that pocket. I can already tell that I am going to be very bruised, another thing I didn't really think about....I think I was so thrilled w/this procedure that I just didn't care about the aftermath. I see Dr. Khouri on Monday, when he will change the dressings/garments and I will see my very tiny, "half" a breast. I think I am mentally prepared:( That's another thing I am unsure of....how long are these compression garments required???
Now, regarding Dr. Khouri/staff/hospital. I found him to be very attentive, very compassionate. I have emailed him several times & he always answers. He is direct, which I like, he doesn't beat around the bush. I have had PS's in the past that I felt were not being up front w/me. I am very happy w/Dr. Khouri, Monday I will see where his skills lie. Now, for his staff-yes, they are a mess. He actually apologized for them, saying they were going through a transition w/some of his key staff members. Rosie was great w/me....however, they seem to be very disorganized & you do wait forever. The wait is uncalled for, I think I waited almost two hours for my consult. This leads me to the hospital. Palmetto General. I thought it was awful, I would never go back there again. I am from the area, and had all of my surgeries in Ft. Lauderdale or Miami. There were so many things that went wrong w/the clerical staff & the nurses, too much to even list. Simply put, not ONE of them could effectively communicate w/me (and again, I am from the area). They also lost my belongings, gave the worst recovery care....and I have never complained about a hospital but they were terrible.
So, that's my story:) If I can answer any questions, I certainly will. Take care, ladies. Kim
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Hi Kim...
So sorry to hear about your experiences towards full reconstruction. Really appreciated hearing about your surgery and experience with Dr. Khouri. I had heard about the punctures and drainage..apparently they inject some kind of fluid as they are collecting the fat and this has to drain out..leaving the holes open with some compression helps to drain faster and then you apparently have a faster recovery, from what I have read on the internet. My surgery is going to be at Kendall Regional, but thanks for the tips about the other hospital. I would love to talk with you off line if you want. I was trying to find out how we can exchange e-mail info or phone numbers privately. Do you know? psf
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Kim and psf, THANK YOU for sharing your experience! psf, I'm so glad to hear you're happy with everything so far! I take it you live in or near Miami? Have you met any other patients? I'm curious to know how many people travel to Dr. K versus live in the area. Kim, I hope everything goes great from this point forward and you surpass Dr. K's expectations! Please keep us posted!
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Hi Kim,
Thanks so much for posting your story. It really helps to read about experiences like yours. I hope your appointment today with Dr. Khouri goes well. Please let us know what happens.
I also had the same impression as you about Dr. Khouri's office and staff. I had a 6 p.m. appointment. No one was in the reception area, either upstairs or downstairs, so I had no idea where to even wait. When I finally found someone, they seemed kind of confused. I had to wait almost an hour. Once I met Dr. Khouri, I felt somewhat reassured. He seemed compassionate and knowledgeable. But the examining rooms and other areas were disorganized and the staff, while pleasant enough, seemed clueless.
Those impressions are part of the reason why I decided not to go forward with the Brava technique. I do believe that Dr. Khouri may be something of a genius and that he's really on the cutting edge of reconstruction techniques. But his support system falls short. I'm sorry you had such a bad hospital experience. I spend time in Miami and I know there are lots of Miami hospitals where treatment would be better than what you described.
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My Brava Bra system is on order and when arrives, will watch the video and call their coach for further information/instructions. I will be the first case at the U of Wash by Dr. Peter Neligan so will keep you posted as to how it all goes. I'm excited to go thru the experience. I had L Mx/immediate DIEP which had a lot of necrotic tissue post op and turned out quite a bit smaller than other side. I knew I was a borderline candidate for the DIEP secondary to not having a lot of fat, but wanted to go that route vs an implant. Dr. Neligan said that he has been to Dr. Khouri's office and definitely thinks this procedure is the way treatment is going. It makes sense and if you can gain extra room, it allows the surgeons that much more room to implant the fat. Basically, it causes an inflammatory response in the tissue/cells which causes them to swell over time. AFter X amount of time wearing the Brava bra, you then go in, have liposuction and fat/lipid injections. You lose approx 30% so in some cases, will need to do the liposuction/injections again. Also depends on size etc so no common denominator for everyone in regards to how many times you have to do this. WE all have to realize that we are all unique and we all heal differently so results do depend on a lot of factors. Eating healthy and exercising are 2 factors we can all do and will help in the long run. Good luck to all trying this and I personally think it will be a great option for women.
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Thanks again, Erica, and jseda, I'm excited to follow your progress! When I first read about this, it seemed clear to me too that this is the future of reconstruction... just being able to preserve sensation alone is a biggie, plus not having to take tissue from other areas of the body, not having a foreign object, etc.
I asked this via their website and one of their staff is supposed to get back to me (haven't heard back yet), but does anyone know of any Atlanta area doctors that Dr. Khouri has worked with on this technique?
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They (Brava system) are in the process of applying for FDA approval etc so are in a silent period until all is said and done.This is most likely why you haven't heard back from Dr. Khouli's office. Jus be patient as I'm sure when they can communicate, they will. Try the Brava system website and look for list. I'm not sure if there is one as I haven't looked for one myself.
In response to the sensiivity issue, I'm not sure you will have this if you don't have the nipple sparing mastectomy. Does anyone know?
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To CrunchyPoodleMama...I live in Virginia, so it is a trip for me each time. It will be interesting to see how it goes with my first surgery in Sept. I've never had out of town surgery. I have met 3 or 4 others who have done the procedure and they are from out of town. He tries to do the surgeries on a Friday or Sat, so it cuts down on the time (days off from work).
jseda: When I talked with Dr. K, he is referring to regaining sensitivity in the breast without the nipple. Just like you would feel touch on other parts of your body. Good luck! I'll be interested in hearing how it goes with your Brava wear. I'm still trying to get used to them, but am doing better each day.
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What do you like or dislike about the brava bra? ARe you having bilat. reconstructive procedures or bilateral and how long are you wearing the bra before your procedure? How's your skin holding up and are you using the skin treatment kit they recommended? Lots of questions I know but I'm curious as what to expect.
Thanks
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Another heads up that I learned about the Brava bra at this point in time, in regards to insurance coverage. In the state of Wash., they are denying the bra at this time and I feel that this is only until they get their FDA/AMA acceptance. PS is highly recommending not submitting the bra to your insurance at this time, but hanging onto the receipt and submitting after they achieve their acceptance. I know of a gal in Wash St who submitted a preapproval for her Brava Bra, which was denied and shut down her liposuction/lipid injections as well. What a game!
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I am so sad...I feel absolutely helpless. I want this procedure desperately. It's the closest thing to having a 'real' breast anyone can get. It's the least invasive procedure available. Along with our diagnosis of cancer treatment choices we also have reconstruction choices to make as well. Basically it comes down to one of 3 choices-no reconstruction, implant, or sacrifice another body part. This new Brava system that Dr. Khouri has invented offers us all a new choice, a better less damaging choice, with better results to boot! It's also a fraction- @ 1/4 of the cost of implant surgery. But alas, I have insurance provided by the county I live in-it's for poor people. They will not cover me out of the county I live in. My PS went to one of Dr. Khori's seminars and he told me that he was going to start doing the procedure in his office. When I asked what the cost would be he quoted me a cost three times that of what Dr. Khouri is charging! And Dr. Khouri is the one with the expertise. After the mistakes my PS has made I'm reluctant to use him again. He lacks experience in breast reconstruction. Unfortunetly I found this out after my surgery. I would work for Dr. Khouri for free to be able to get this procedure done.
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Hi makingway,
Did you ask Dr. Khouri if there might be anyone else in your county who has trained with him? On an implant forum I posted about this in, one of the ladies said she lives in San Diego and couldn't go to Miaimi. She said that Dr. Khouri gave her the name of someone in SD who is doing this. I looked at that dr's site tho, and there wasn't anything on it about it. At any rate, maybe he can recommend someone in your county....? Just a thought...
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Does anybody know if there if it's possibly for your natural size breasts to be too big for this procedure? Mine are 34DDD and I would like to keep them that way. I am likely having a unilateral mastectomy (I hope skin and nipple sparing) and this sounds like an amazing type of reconstruction. I am even willing to wake up without a breast and then do this (rather than DIEP and waking up with a breast, which also sounded good).
But the idea of having a breast with some feeling is very important to me if it is possible. I wonder if it will work with big breasts. I am willing to go down to DD if need be (and have other reduced to match).
Thanks for any help and advice.
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I agree with Alexandra. Contact Dr. Khouri or Brava bra systems. Tell him your situation and maybe he'll or his company will be able to help you. You can always order the bra from them and the cost is around $1000. with extra domes. If it were me, I'd look for someone else. There is someone out there, you just have to keep looking and not give up.
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Again, contact Brava Bra systems website and ask away. Go right to the horses mouth, especially since this procedure is so new and not many PS are introducing it yet.
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