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lisa2010
lisa2010 Member Posts: 2

I had my surgery (Lumpectomy) before I started my chemo.. but I have just met a lady that has TNBC also they are doing the Chemo before the the Surgery... they are telling her that they are giving her the chemo to see if the tumor will shrink... Now to me those doctors are using her as a Ginnie pig. This my tumor grew quickly my doctor did my surgery immediately. She is very scared... I thought the tumor had to be removed first especially knowing she is Triple Negative...

 Has anyone one else had chemo before the removal of the tumor? Please let me know....

Thank you so much,

Comments

  • hrf
    hrf Member Posts: 3,225
    edited July 2010

    I had surgery before chemo - just like you

  • lisa2010
    lisa2010 Member Posts: 2
    edited July 2010

    Thank you hrf... this is so strange to me that they are doing this... seems to me they are just using her as a ginnie pig... I told her the tumor has to be removed this cancer is aggressive and travels quickly... She just has to get a second opinion asap I am so worried about her, but at the same time i don't want to scare her more than she already is... know what I mean?

  • Scooter-12
    Scooter-12 Member Posts: 33,398
    edited July 2010

    Lisa... Check out Treatment for Triple-Negative Breast Cancer on this website.  Plenty of women with TN get neoadjuvant therapy. Best wishes.

  • Cathy-CA
    Cathy-CA Member Posts: 686
    edited July 2010

    There are several reasons to do chemo first.  One is that it may allow for a lumpectomy if that is what the patient wants.  By shrinking the tumor, you can get better cosmetic results.  Another reason is it is a way of seeing if the chemo works.  As someone who had surgery first followed by chemo and was Stage IV in just over a year after finishing treatment, I'm sorry I didn't have chemo first.  I will always wonder whether the six rounds of chemo did anything.  If there was a tumor to monitor, you can change or adjust the chemo.  The oncologist had suggested doing chemo first, but the surgeon felt surgery was a better option and I went with the surgeon's recommendation.  These are good things to discuss with the surgeon and oncologist and get all the pluses and minuses.

  • jenn3
    jenn3 Member Posts: 3,316
    edited July 2010

    I had chemo first, but have heard of several women who had surgery first - not sure of the reasoning, but I have heard of surgery first.

  • justpayton1
    justpayton1 Member Posts: 786
    edited July 2010

    I had chemo first, i had a 7cm tumor and lymph node invovlement. I believe my node involvement was the reason for the immediate chemo at least in my situation.

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited July 2010

    I had surgery first.

  • sandy_2124
    sandy_2124 Member Posts: 23
    edited July 2010

    I am Triple Negative, my tumor was between 4-5 cm. I am doing Chemo first. The tumor is already smaller, which  gives me the option  for a Lumpectomy. The first surgeon I went to said Mastecomy, Chemo, Rads. I went for a 2nd opinion at a Cancer Center and they  gave me lots more information and options. I feel good about my decision, I think we are going to see more and more of this as we see advances made in Breast Cancer.

    Best of Luck!

    Sandy

  • Luah
    Luah Member Posts: 1,541
    edited July 2010

    I did surgery first - it seems pretty typical in Canada.  However, as there is no hormonal therapy for triple negative BC, the chemo has to do the systemic job, and doing it first does allow the oncs to see if the tumour is shrinking or another regimen should be tried.  I would have liked the option, though I'm not sure what I would have decided.  

  • Titan
    Titan Member Posts: 2,956
    edited July 2010

    I had surgery first also...then chemo 6 weeks later..it would have been nice to have it first to see if it was working but then again I was glad to have the lump out so quickly.   I don't know..I think either way is fine....I do think that it depends on the size and what type of surgery and node involvement also.even though I hated chemo it was good to know it was going through my entire body and not just the tumor area.

  • MBJ
    MBJ Member Posts: 4,352
    edited July 2010

    I had chemo prior to surgery and it's the only reason I am still here!  I had two tumors, one looked easy to get to but was starting to grow towards my chest wall and the other was directly under my nipple and both were growing rapidly.  They were both well defined tumors and typically these don't respond well to chemo, however, the biopsy punctured the outside allowing it to grow outside itself but it also allowed the chemo to get in.  I was told after my MX that the chemo had done it's job--my tumors were 95% aggressive cancer and they were 100% dead.  Just a big, spongy dead mass.  The good news? My prognosis is good; I went from a stage 3 to a stage 2; there wasn't any cancer in my sentinal nodes.  Because TN tumors grow so rapidly, doing chemo first makes it possible for some of us to not only do less surgery but to survive.  I was told I was going to die by my first OS!  Luckily for me, I changed dr's and I feel strongly that I am not going to die.  Maybe you would call this denial, but it's all I have to continue on.

  • kmartin
    kmartin Member Posts: 78
    edited July 2010

    I have read that the usual rationale is for tumors over 2 cm chemotherapy is given first, for those less than 2 cm in size the tumor is removed, then chemo is given. I had my surgery first (1.7 cm tumor), but sort of wish I could know how my cells responded to chemo.

    Kathy

  • Titan
    Titan Member Posts: 2,956
    edited July 2010

    II agree Kathy..it is kind of scary isn't it..but don't you think that having a clean mammogram after a good indication?  At my last Onc. appt. in May..he said..yes..you have a great report from your mammo....however (and there is always that freaking however)..he said I still need to watch for abnormal aches and pains..so I am...and we all know to do that anyway...(from here!)

  • kmartin
    kmartin Member Posts: 78
    edited July 2010

    Hi Titan,

    Yes, I have had three clean mammograms now ~ one at one year, one at two years then they wanted a 6 month, which was this month and it was "c/w changes considered to be benign." Just don't like that wording. I had my annual breast MRI on the 8th of July and am still waiting for those results. I have my annual appt. with the rad. onc. tomorrow so I will make sure she has those results. No news is good news ~ right??

    Kathy

  • Titan
    Titan Member Posts: 2,956
    edited July 2010

    Kathy..what does c/w change mean?  And you really had only 1 mammo per year after your treatments?   That is what my dr's are saying but I'm not sure about this.

    I'm sorry Lisa..don't mean to get away from your thread..hopefully you are finding the info you need..but it looks like..from reading on here..that chemo before surgery is quite common..it must depend on the size of the tumor...so they can operate...you have to trust in your doctors..or get more opinions....we are here..all though we have all been through the dreaded cancer experience..not professionals....everyone is here to help you and give you knowledge of what we have all been through..but bottom line..it is the men/women in the medical field that will help you the most...or they should!

  • kmartin
    kmartin Member Posts: 78
    edited July 2010

    Hi Titan,

    "c/w" is consistent with, sorry. I saw my rad. onc. today and the MRI was unchanged from 1 yr. ago...only changes due to the lumpectomy. I had an annual mammogram in 1/2009 then 1/2010. This past January they wanted a 6 mo. follow up and it was "unchanged, consistent with benign findings." A few microcalcifications and surgical changes. I just want it to say NORMAL!

    Guess it won't ever say that : (

    So now next mammogram is 1/2011. May not need any more breast MRI's, which I am fine with. Too many false positives with that test, in my humble opinion.

    Have a great day everyone! It's a very hot one today in Maryland.

    Kathy

  • cmksocal
    cmksocal Member Posts: 247
    edited July 2010

    Hi,

    I am doing neo-adjuvant chemo before breast surgery. If the turmor shrinks, I will be a candidate for a lumpectomy.  Because I am TN, I did the SNB as a separate surgery before starting chemo.  If the nodes were not clear, I would have a 3 drug chemo treatment, but they were clear (as was expected based on physical examination and ultrasound images).  I am doing TC 4x@3 weeks.  I go for my second treatment next week.

    Colleen

  • hope2
    hope2 Member Posts: 73
    edited July 2010

    Survival rates for both are the same, whether it is before or after surgery the chemo is administered, there are advantages of both treatments, i had surgery first but the surgion had to argue for it, she was afraid that chemo would not work as tumour was acting so strangely and was so quick growing, i had two lumps but turned out to be a large tumour that had grown along the chest wall, the scans showed nodal envolvment and one tumour of over 2cm and the other of about 6 cm and it turned out to be one large tumour over 8 cm, if i had the chemo first i would never have know that my nodes were clear as they were enlarged probally from infection.

    the advantages of chemo first as i see it are that they know if that particular chemo works for you, it is also easier to get clear margins if the tumour shrinks and you are facing chemo before the trauma of surgery so are fresh going into it. the advantages of chemo after, is that physicology you know you have the first big step completed, the cancer in the main part is gone out of your body (hopefully), you may need less chemo as they will be definite about nodal status etc. you also wont feel like crap from the chemo going for surgery and healing ability wont be impaired.

  • angelsabove
    angelsabove Member Posts: 363
    edited July 2010

    I had surgery first. I do recall asking my surgeon about doing chemo first. Her exacts words to me.....Well that is for really bad cancers. Well MINE WAS REALLY BAD. I had a double mastectomy 5/21/2009. 4.7 cm tumour with 3 out of 13 nodes positive. I started chemo June 2009 ended chemo on November 2009. I recall asking my Oncologist during treatment....IS THIS STUFF WORKING? She would say well we just dont know. THe cancer has been cut out so we have nothing to go on. I am now stage IV.....It returned about 10 weeks after radiation ended in Feb, 2010. I believe with hard to treat cancers one should NOT do surgery first. That way if it is not responding then chemo can be changed to one that just may work. If I could safe just one lady from crossing over to stage IV I would do anything. I say ASK QUESTIONS. IF YOU ARENT SATISFIED THEN CHANGE DOCTORS........

    May God Bless Us All

  • Titan
    Titan Member Posts: 2,956
    edited July 2010

    Hey Angels..I've missed you!  Good to hear from you but it sucks about the stage 4...what kind of treatments are you doing now?

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