Raloxifene--do you take it or did you say "no way"?
I read through the thread "To Tamoxifen or not to Tamoxifen" and really appreciated the posts from women there. I just had an appt with an oncologist at the center where my DCIS was treated. I have had my uterus/ovaries removed due to other problems (but my mom died of ovarian cancer and I have two aunts who had BC). The oncologist recommended raloxifene (Evista) since I am in menopause (I am 51 and was headed there at the time of my hysterectomy/BSO).
I'd love to hear from those of you who are on this medication and those who said "no". I'd love to know why you made your decision and if you are taking it or were taking it, what kinds of SEs did you have?
Also anyone out there have any good scholarly articles about studies with this drug?
Thanks...
Comments
-
I have taken both tamoxifen (5 years) and evista (currently have been on it about a year and a half now); fortunately I tolerate both meds pretty well overall. Have you considered genetic testing since you have a family history of both ovarian and breast cancer? It might help with your decision making. Tamoxifen does have more risk of serious SEs (but they are low, less than 1%), but is known to be more effective than evista overall at preventing bc.
anne
-
Hi Anne
Thanks for your post. Yes, I had the genetic testing...I am negative but the geneticist said that does not rule out any other genetic mutation, only the BRCA.
-
Hi speech529. I finished my mammosite HDR on 6/11/2010. My last big decision was tamoxifen. I am 51 and on my way to menopause, 3 periods over the last year. My husband and I opted to consult with a hematologist. Both my surgeon and radiation oncologist said they would recommend it, but the final decision would be mine. The consultation was very helpful. He explained the pros and cons and then specifically looked at my case and said the most he would do is "softly recommend" it. Meaning that statistically it would not offer a huge advantage for me. He then listened to my side. I explained that I have tried to keep myself healthy through diet and exercise. I very rarely take more than 1 motrin when I have aches and pains from working out. I have never been on any medication. I added that I didn't feel comfortable taking a drug that with potentially serious SEs. I think mentally it would drive me crazy. All that being said I am saying no to tamoxifen and getting on with my life. I too have a daughter and will have the genetic testing at some point. Good luck with your decision.
-
dcchef thanks for your input--it makes sense what you say. It sounds very similar to me. I am in menopause (surgical) and I try to live a very healthy lifestyle.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team