Is the 5 Year Mark a Milestone?

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Ohbother
Ohbother Member Posts: 34
edited June 2014 in Life After Breast Cancer

I will be 5 years out in Oct 2010 from Stage II B IDC -

My Mother is an ovarian cancer patient.. We do NOT have the gene ... In discussing my diagnosis with my Mom's Oncologist, he informed me that 5 years is NOT a milestone with women having the Pathology I had.  His opinion is that I have to go 8 to 10 years and even then, my risk of recurrence is "3 times" greater... (greater than what?  I did not go that far into it w/ him so I don't know)..

Fast forward - just had my 6 Month check up with My Oncologist.. Asked her the question.. Is 5 years a milestone?.. She says YES... Young women, I was 40, typically have a more aggressive form of cancer. Making it 5 years  NED is most certainly a milestone and my chance for recurrence will go definitely be decreased...

 So.. which do you believe?.. I of course will go with My ONC opinion but wonder if anyone else has an opinion...

 Thanks

Comments

  • rilkespanther
    rilkespanther Member Posts: 5
    edited July 2010

    Not if you are ER positive according to presentation I heard at YSC conference. I've also known other ER + women to reoccur 10 years out. I find this information very stressful.

  • gsg
    gsg Member Posts: 3,386
    edited July 2010

    I agree with Rikespanther.  For me, personally, I've lost all confidence in statistics since being diagnosed.  I want to say, "Yes, it's a wonderful milestone!"  and it is wonderful to be free of cancer for five years (congrats!),  but I know too many women who recur after the 5-year mark to have any confidence in statistics or supposed milestones.  Statistically, I shouldn't have gotten cancer in the first place and yet I did.

  • Pure
    Pure Member Posts: 1,796
    edited July 2010

    Your greastest chance is in he first 2 years. I think it's like 70% of those tht will reoccur it will be in the first 2 years after treatment ends. With that said your chances go down but yes the chance is always there. With that said.... If we go 10 years there will be atleast a controller. I think the predicition right now is 8 years but there is always hope of a sooner discovery. That is what happened with testicular cancer-literally overnight they had the cure for even stage 4.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited July 2010

    There is a recent article floating around somewhere, that gives the % reoccurance after 5 years. It is something like 7% Stage 1, 11% Stage 2 and 13% Stage 3. So, although it is not Zero, it is quite low.

  • Jenniferz
    Jenniferz Member Posts: 541
    edited July 2010

    Interesting. I will be seeing my oncologist next week, and I will be asking her about this. Her take should be even more interesting as she is a bc survivor herself.

    Jennifer

  • eileenr56
    eileenr56 Member Posts: 135
    edited July 2010

    All I have to say is CONGRATS.

  • leaf
    leaf Member Posts: 8,188
    edited July 2010

    It depends on what you mean as a milestone.  A 5 year  milestone doesn't mean it can't come back, same as 10 year milestone.

    Here is documentation about a locoregional recurrance after 40 years.  She was treated initially by a modified radical mastectomy with no adjunctive therapy. Of course, they didn't do hormone or HER2+ receptor testing 40 years ago. It doesn't talk about her node status in the abstract. http://www.ncbi.nlm.nih.gov/pubmed/14627268  They point out in the abstract this is the longest recurrance under these circumstances they can find in the literature.

    But, I certainly agree with Madalyn-if you have a more aggressive cancer, **if** it was to recurr, it would tend to recurr earlier.

    There are different goalposts of certainty.  We could be killed by a meteor, but we don't count on that.  Some of us (specifically me) need more help with dealing with uncertainty than others. But we can only take care of ourselves the best we can, and try to live our lives the best way we can.

  • otter
    otter Member Posts: 6,099
    edited July 2010

    What SherriG said is what I've read.  If you have triple-negative BC, or I guess even ER-/PR- HER2+ BC, the 5-year mark is significant, because most recurrences will have happened by then ... or even earlier -- within 2 years, as Pure said. 

    Unfortunately, that's not the case with ER+ BC.  Ours can recur at any time after 5 years.  In fact, if we're on tamoxifen or an AI for those 5 years, it's possible that we're more protected from recurrence then than we will be after we stop taking those anti-estrogen drugs.  I've read that the AI's can protect for several years after they're discontinued; but maybe that just reflects the slow-growing nature of ER+ tumors.  (It could take several years for the cells to get going again after being suppressed by estrogen blockade.)

    So, not to be philosophical or anything, but I think every year is a milestone.  Two years, 4 years, 5 years, 7 years...  if we have invasive ER+ breast cancer, we can't ever really be considered "cured".  But every year is, well, ...  one more year.

    otter

  • mmm5
    mmm5 Member Posts: 1,470
    edited July 2010

    I had a long talk with my Onc about this especially being triple positive, Both Onc's state that Her2 trumps ER/PR positive, and with finishing a year of Herceptin the first 3 years are the most important. THey state they will even most likely discontinue the hormone therapy at that time because of the miracles of Herceptin. That being said I had a very weak estrogen score so that may play into it, but they did say Her2 trumps the ER PR positive score and it is so aggressive that the first 3 years are important.

  • orange1
    orange1 Member Posts: 930
    edited July 2010

    I recently read something that agrees with leaf's, Madalyn's and mmm5's posts (from a link on these boards, but of coarse I can't remember where) that it depends on grade.  After the first few years grade 3 has the lowest recurrence rates, followed by grade 2 and then grade 1.  This makes sense when you think about it -  grade 3 grows so fast that if its going to metastisize, it shows up relatively quickly, slow growing cancers may take many years to rear their ugly heads again.

  • Texgirl
    Texgirl Member Posts: 211
    edited July 2010

    Had this very conversation with my Onc. a few weeks ago at my 5 1/2 yr check up....I said..So...that's it ? I mean what do I do now ?( besides continue my AI) Well,I guess I expected more enthusiasm or excitement .H..that was how I felt !!! He said that in some cancers the 5 yr. mark was a real milestone..and that although 5 yrs was good when I got to 10 years we'd really have something to talk about.....granted I didn't want him to jump up and down but I was the one who had lived in terror for months and then slowly realized I was not going to die tomorrow......sometime we just need a little positive enforcement . I guess we are the only ones who really "get it ".

    In my book it is a major milestone..and in 4 1/2 years I will expect a little jumping up and down from him !

  • nebraskagrandma6
    nebraskagrandma6 Member Posts: 1
    edited August 2010

    I was first diagnosed w/invasive ductal carcinoma in Sept of 1998.  I went through 4 rounds of chemo and 37 radiation treatments.  When I got the 5 yr mark, my family had a celebration for me.  Boy was I relieved, 5 yrs. I'm cancer free!  A day after my 65th birthday this year, I had my yearly mammo.  Cancer was diagnosed in the other breast.  Diagnosis: invasive mucenous carcinoma.  Very, very early stage, BUT still CANCER.

     There went my feeling of being cancer free.  I did have another mastectomy and am in the reconstructive process  I now have that unsettling feeling about any ache or pain.  When do you call the doctor about a problem and who do you call, your primary dr. or your oncologist?

    I have talked to other bc women, through our church, and can give them great bible passages to read and little sayings to help them, but do you think I can apply them to myself, no!!  Undecided

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