How uncomfortable is a port@

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How uncomfortable is a port@

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  • sptmm62
    sptmm62 Member Posts: 665
    edited July 2010

    I am going to the oncologist on Monday and his treatment plan almost certainly is going to be chemotherapy.  I have resigned myself to this and I am okay with it.  However, I just found out that they often place a port in you, that remains there for several months, when you have chemo.  I have good veins and never have trouble with blood draws or anything.  I have had two surgeries already in the past two months from which I have recovered well.  But I am terrified of this port being placed.  I have heard it is painful and the idea that it is in there, I know will drive me nuts mentally.  For all you ladies out there who have had them, how bad are they really?

  • hrf
    hrf Member Posts: 3,225
    edited July 2010

    It really wasn't so bad and much easier than doing everything in the veins.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited July 2010

    I really, really hated my port and found it uncomfortable and creepy. But in retrospect, I am glad I had it. I had a friend who didn't have one and her veins really got fried and now she has trouble with blood draws, IVs etc. From now on, you will want all blood draws etc. from your 'good' arm, so I think you will want to protect the integrity of that arm as much as possible. (ie get the port, and anytime you want to swear about it, PM me and I will join in!!!) The placement isn't painful as you are knocked out......hang in there! Ruth

  • FLlady
    FLlady Member Posts: 29
    edited July 2010

    I don't think it is bad at all.  I agree with hrf

  • MeredithK02
    MeredithK02 Member Posts: 86
    edited July 2010

    It wasn't too bad at all.  My port site got infected after the surgery, which the doctor said was very rare, but even that wasn't too painful and cleared up with antibiotics. I was under when they put it in, and the area was tender for a few days.  Getting it out was a breeze, especially compared with everything else you have to go through!

    I really was glad to have it during those long chemo sessions--some days I'd be hooked up for 4-6 hours, and not having an IV in my arm was great.  It was a little weird to be able to see it pressing against my skin.  I have a little scar there and if I contort my neck/chest just the right way, I can see a line where the tube used to be, but that's filling in.

  • TexasRose
    TexasRose Member Posts: 740
    edited July 2010

    For me, the port was one of the worst things about chemo. I know a lot of people have them and are fine, but mine was uncomfortable for the whole time I had it. Actually getting it was nothing. They put it in during my mastectomy in April. But after it was in, it was just so uncomfortable. I think mostly because of where my BS put it. There was no padding over it and it just irritated me. I finished chemo on October 6th and had it taken out a few weeks later. I couldn't wait another minute and insisted it be removed as soon after chemo as I could schedule it.

    That being said, I wouldn't have done AC without it. In fact, my cancer center WON'T do AC without one. It's too hard on your veins. It was great for that. I got the EMLA creme. Blood draws and chemo day were a piece of cake with it.  

    I think most people don't even notice them. Even my onc told me he hates where my BS always puts them on patients. But honestly, no matter how much you hate the port or don't hate it, you will be very glad that you have it.  

  • MCTHO
    MCTHO Member Posts: 759
    edited July 2010

    Hi!  I've had my port put in a year ago. Because of lymphedema on my left arm, I can only get needles on my poor right arm! My port is a lifesaver.

  • nobleanna007
    nobleanna007 Member Posts: 641
    edited July 2010

    I had a port put in, and it was a life saver!!! never had any pain or infections with it!!! I never had a problem with my veins till cancer hit!! So I thank-god for the port!!!!! Some find it bother some cause it does stick out some but I was really glad to have it for the amount of chemo and herceptin I had to have!!!!!

    Good-luck on your choice, remember it is your choice!!!!

    B

  • Ang7
    Ang7 Member Posts: 1,261
    edited July 2010

    I have terrible veins and the port was really needed as I am doing Herceptin for a year...

    That being said, I was crying outside the preschool the morning after port placement because it was so sore and they had told me to take Tylenol.  I called for heavier drugs, used them for 2 days, and everything was much better.

    Maybe I just needed a good cry?

    Hugs to you...

  • jneumann
    jneumann Member Posts: 67
    edited July 2010

    I have had my port for over a year and a half and I agree it is much easier than using my veins.  Due to lymphodema they can only use my right arm.  I experienced no pain before, during or after surgery and have had absolutely no problem.  It will be ok, just one more step you need to take.

  • gfbaker
    gfbaker Member Posts: 173
    edited July 2010

    I had a port during chemo. It was a little uncomfortable sometimes, but not really painful. And a good chemo nurse can tap a port so well you don't feel a thing. If you are getting adriamycin you will want a port because that stuff is super caustic and burns so many people's veins up. They put it in while you are under so you won't feel it going in, and I actually had mine removed while I was awake (although they can put you out for that too). Also, if you are a smaller framed person, they can put in a smaller port which doesn't stick out as much. I wish for the best for you. Let us know what you hear on Monday.

  • sptmm62
    sptmm62 Member Posts: 665
    edited July 2010

    Thanks everyone, makes it a little easier to resign myself to this port knowing that so many of you had no problem with it.  Nothing like first hand experience! And for those of you who were completely honest and had problems, it is good to know that you thought the port was worthwhile, even considering the problems you had.  All in all, Jneumann is right...just another step you have to take....I just wish they would stop hitting me with unpleasant steps!  Thanks everyone for your support and help. 

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited July 2010

    I was absolutely horrified at the idea of a port. But then I met two women who had them and they let me see and touch them and it demystified it a lot and I felt much better about getting one.  That being said, I had 6 chemos and 11 more herceptins over a year. I have awful veins and the port was WONDERFUL to have during treatment. Super easy, painless, stress free. I loved it.

    IF you are only having 4 or 6 chemos and not adria (which is so strong/caustic), and you have good veins, I think it is a crapshoot. I might try going without.  However, some of those variables might preclude you from going without.  I found the port install recovery fairly painful (just for the first 5 days), and if I were only having 4 or 6 chemos, it might have been worth not having one. 
    Sorry to not be more decisive.  As with so many things about bc, there isn't one clear answer (which sucks).  Find out about what type of chemo and how many and then make a decision. Either way you are going to be fine.

  • jteach
    jteach Member Posts: 199
    edited July 2010

    Get the port!!!  I forget it's even there.

  • Beccabrite
    Beccabrite Member Posts: 16
    edited July 2010

    I just had my port put in on Tuesday.  The actual operation was not painful at all.....well, aside from the doc and tech shoving on the side of my neck for what seemed like hours.... but that was a sore neck thing later, only.

     I have had a good deal of discomfort around the port site and the secondary incision where they turn the port south into the vein....  However, I can't even tell the port itself is in.... no sensation at all of it being in my body, other than the pain around the installation site which I know will go away soon.

     I think I will be fine with this........ first TC chemo tomorrow!

  • fg2000
    fg2000 Member Posts: 30
    edited July 2010

    I have a port, and honestly, it never has caused me any discomfort whatsoever, not even initially, when it was being placed.Chemo is such a breeze with the port. Everyone is different, but I personally don't feel anything at all when getting my labwork done or chemo infusions. It's a little weird being able to see it under your skin (looks like a circular bump about the size of a penny), but really no big deal at all.

  • fg2000
    fg2000 Member Posts: 30
    edited July 2010

    I have a port, and honestly, it never has caused me any discomfort whatsoever, not even initially, when it was being placed.Chemo is such a breeze with the port. Everyone is different, but I personally don't feel anything at all when getting my labwork done or chemo infusions. It's a little weird being able to see it under your skin (looks like a circular bump about the size of a penny), but really no big deal at all.

  • sdstarfish
    sdstarfish Member Posts: 544
    edited July 2010

    The port itself was ok...but getting the chemo needle inserted kinda hurt. But you can ask for numbing cream each time.

  • imbell
    imbell Member Posts: 659
    edited July 2010

    Some of the women had a PICC line which basically is put into your arm. I found it to be a form of medieval torture and removed mine during my sleep. I have had two ports. First one I never felt but the second which was put in going up and into my jugular is more noticeable and feelable. BUT the alternative if there is one is a lot worse.

  • anniebford
    anniebford Member Posts: 128
    edited July 2010

    I did not have a port in for the first infusion of TAC back in 2008. I did not like the idea of another surgery and thought it would be uneccessary since I have easy veins. Getting an IV at each infusion helped change my mind. Because of nodes out on the left and the fact that my chemo acted as a dessicant sp? getting a port made sense. Chemo can be very hard on veins and using a port disperses it faster which is better for vein health. I've read some of the stories on the boards about port problems, but mine has been pain and trouble free. When I go in for labs and chemo I don't have to get stuck or have an IV and I am so glad. I know women who never went the port route and have ruined veins now. Getting labs drawn is a real challenge for them now and I don't know if the veins recover once they've been damaged from chemo. It is your decision and getting as much info about the choice is a good thing to do.

    Annie 

  • karen1956
    karen1956 Member Posts: 6,503
    edited July 2010

    spt....I had my port put in the morning before my 1st chemo...it was in my upper left arm (couldn't do chest)....the procedure was relatively painless...took a valium before it....done more or less awake by an intervention radiologist....as soon as it was put in, I went to chemo.....had port taken out 3 weeks post chemo and it was even easier than when it was put in....I didn't consider the port being put in or taken out surgery, but just a procedure....good luck to you as you go through this journey....glad you found us, but sorry that you had too....

  • lisasinglem
    lisasinglem Member Posts: 315
    edited July 2010

    My port was placed during my lumpectomy.  I had quite a bit of soreness afterwards, and the idea of it has wierded me out a lot.  However, now that it is in and healed, I'm really glad I have it.  And I don't even notice it much.  It was accessed for the first time today for a MUGA-scan, and it was so easy.  The nurse sprayed something on my skin to numb/freeze it a little before the needle, and i didn't feel a thing.

    I know I'm having 12 months of Herceptin, in addition to 6 cycles of TC, so I really wanted it.

  • billmomson
    billmomson Member Posts: 10
    edited August 2010

    I also had my port put in when I had my lumpectomy. It was never painful. Week after week of watching people have problems having their veins accessed made me very happy to have my port. The only thing I didn't like was when I showered and washed that area (right side chest)-it was just a reminder of the cancer. I had it removed about 2 months after I finished my Herceptin treatments. The scar is hardly visible now. I'm glad I got the port and would highly recommend it to anyone going thru chemo.

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