my margins are not clear

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What to do Uuuggghhh.  When does it end?  I need support.  HELP, HELP, HELP.

I had a lumpectomy on Wednesday June 30 Th and cancerous lymph nodes removed (auxiliary lymph nodes removal).  I have a Jackson Pratt drain.  My cc's is still over 100 in a 24-hour period (as of today).

My pathology report states that my margins are not clear.  I do not want numerous surgeries (another lumpectomy).  I seen where people had to have the surgery twice after the first lumpectomy and ultimately had to get mastectomy anyway.

 I am 37 this is turning my world upside down.  I am thinking about having a nipple saving masomectomy, if I qualify. Will I need another drain after the surgery?

 I have an appointment on Wednesday to discuss my options, and to go over the pathology report with a fine toothcomb.

Comments

  • HelenaJ
    HelenaJ Member Posts: 1,133
    edited July 2010

    Hi Sohardbnme,

    I'm so terribly sorry you are here and that your margins weren't clear.  I too had a lumpectomy for the removal of my breast cancer but the invasive tumor was surrounded by so much DCIS that to try and remove it with another surgery wouldn't be successful as the breast would have been severely deformed.  I didn't have very large breasts (especially after breast feeding two children) to start with so removing so much breast tissue just really wasn't an option.  I did however decide on a bilateral mastectomy (the right one be prophylactic).  And yes I had to have two of the dreaded drains in each breast for 5 days.  A real pain!!!  I also had immediate reconstruction with implants at the time of surgery.  The drains came out the day I left hospital.

    My bilaterial mastectomy was in December 2008 and although they call it immediate reconstruction it is quite a long drawn out process with numerous surgeries over that time (I didn't save my nipples so also had new nipples made - the final one being redone March of this year).  However I must say they look amazing and I am very happy with the result. 

    If you have larger breasts it may be possible to have another surgery to get clear margins and I would definitely discuss this option with your surgeon, it could save you the whole reconstruction situation and the end result may be good.  I would have been quite happy with my breast after the lumpectomy even with the dent and scars but it just wasn't to be.

    Please think of all the questions you have circling in your head, write them down and discuss them with your surgeon.

    There are hundreds of threads here and I am sure more ladies will come along with some more support and information.  Crappy place to be but full of the most amazing women.

    big hugs

    Helena

  • Lovegolf
    Lovegolf Member Posts: 513
    edited July 2010

    It is hard to be where you are. I had lumpectomy and 4 of 5 margins were still DCIS.  I decided to have bilat Mx and did so on 5/1/09.  I am going great now.  Yes there will be more drains but leave them until the drainage is down.  I had to have needle draining gone after the drains were removed and that was worse and made scar tissue.  Hang in there Breathe....

  • Ondagrow
    Ondagrow Member Posts: 349
    edited July 2010

    Thank you all for your support...I need it...

    You all are in my prayers as well...

  • gfbaker
    gfbaker Member Posts: 173
    edited July 2010

    I didn't have clear margins after my lumpectomy and went in for a second. My surgeon explained to me that it was a small margin problem, but I would look different after. I am glad I saved the girl. She looks different naked but with a bra no one can tell. You should do whatever you think is the best way to go. I am so sorry you have to go through surgery again.

  • Ondagrow
    Ondagrow Member Posts: 349
    edited June 2011

    I decided on a mastectomy... This insured it was gone... (at least out of the breast)

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