I'm a basket case & NEED YOU

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andersonsrus
andersonsrus Member Posts: 39
edited June 2014 in Just Diagnosed With a Recurrence or Metastasis

First I am trying to type this between the tears. First off I started my breast cancer journey in Jan 2003. Pretty much uneventful up to this point.

1st I am the type of person that I am always thinking it's back.  Surprised that my husband has stuck it out with me this long. He will or never believe that  it is possible that it will return and when it does it will not bea ble to be cured. I did have a bilateral Mastecomy in hopes that it willnever return there. 

Well I went for my bone desity test this afternoon as as always I asked for a printout.Well when I looked at the print out which has a image of the spine and the pelvis I saw something that I am unsure of and I am sure you know where this going. 

Well on the bottom part of the pelvis I guess the sit bone, on the right side( when looking at the image) on the edge that is facing the leg there is this something t that looks like to me is coming out from the pelvis. Well I am convinced that this is a bone tumor or something. However this is not where they measure  the bone density  it's on the image that was printed out. Myabe its soft tissue that was picked up or something but I thougt that

this scan only meaures bone.

I was wondering if any of you ladies would be willing to take a look and if you see what I see. I know I can't post it here so I could email you this if you would be willing.

I am just getting myself sick over this. Will not get the result back until I see my Oncologist on Thursday and the results will not be ready before that. I asked.

I need some  advice and most of all some cyber hugs.  

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  • jenn1975
    jenn1975 Member Posts: 103
    edited July 2010

    HUGS from Arizona.....

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2010

    They WILL be ready before Thursday.  Trust me on this one, I know. 

    Don't call your Drs office.  Call radiology and ask if they have sent the report to your Dr yet.  As soon as they say "yes", start calling the dr.

    That's what I would do anyway.

    Good luck to you.  Hope it's nothing.

    hugs..

    Lisa

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  • justpayton1
    justpayton1 Member Posts: 786
    edited July 2010

    Hugs from Indiana

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  • littletower
    littletower Member Posts: 333
    edited July 2010

    Hugs from the great state of New York (())

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  • sheila888
    sheila888 Member Posts: 25,634
    edited July 2010

    Another ((((HUG)))) from Newyork.

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  • jenn3
    jenn3 Member Posts: 3,316
    edited July 2010

    (((HUGS)))

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2010

    BIG HUGS from Ark. Many prayers!!!

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  • Jenniferz
    Jenniferz Member Posts: 541
    edited July 2010

    More ((((((HUGS)))))))))))) from Texas.



    Jennifer

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  • RobinNY
    RobinNY Member Posts: 766
    edited July 2010

    more hugs from NY

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  • Medigal
    Medigal Member Posts: 1,412
    edited July 2010

    Beloved lady,  PLEASE try not to let your fears overcome you.  The worse thing about tests is in the waiting!  You have been given good advice here.  Find out how soon Radiology can send that report to your doctor.  TELL them of your fears and you NEED to get information ASAP!  Don't let them stall you.  Worry can eat away at us worse than any cancer.  I should know!  If it were me, I would use prayer to get my mine off of my fears but I don't know how you feel about that.  But I hope you don't mind if I keep praying for you to get GOOD news!  I think many of these wonderful ladies on this site will be adding their prayers to mine so you are not alone.  We are with you and our HUGS ARE going to be with you until you write back and tell us everything is ok. 

    Wow!!  Do you feel all those HUGS yet??  Mine are coming from Kentucky and I bet many more people who read your post and may not reply will still be sending you more hugs.  Probably from even Hawaii!

    But I want a hug back!  So take your mine off of your fears and start seeing yourself sending back all those hugs to us.  Breathe deep, smile, and think about all these nice folks who are wanting only good things for you and sending you tons of hugs!!  

    SmileWinkKissCool

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  • vmudrow
    vmudrow Member Posts: 846
    edited July 2010

    HUGS AND PRAYERS FROM UTAH!!

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  • apple
    apple Member Posts: 7,799
    edited July 2010

    i've got a hug.. but also knowledge that breast cancer patients interpret every blip as cancer and usually it isn't.  tho stage 4 i've misassumed my share of scares.. hoping that this is just a bubble of gas or something... or maybe it's been there all along..

    don't freak

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  • iodine
    iodine Member Posts: 4,289
    edited July 2010

    No matter how many of us tell you not to worry, I suppose you will.  We all did.  You are NORMAL!

    May I say, one of the reasons techs don't show us films, scans, etc, is the very one you are going thru right now.  There are Many Many "thingy's" that show on scans, etc.  the docs have usually been trained and experienced to recognize the scary ones as opposed to the non-scary ones. 

    As an RN, I have only looked at a few x-rays, with full knowledge that I would be able to recognize only the most obvious lesions or breaks, etc.  I know MY profession very well and figure the rad doc knows his. 

    It doesn't take much to set us off.  I almost decked a rad who, after seeing microcals in my mast f/u mammmo, calmly said it was nothing to worry about and to return in 6 mos.  Yeah, right, and when they amputate one of your balls, and find something in the other, I doubt you'll wait 6 mos to return for a retest. NAH.  He was lucky to leave the room with his eyes intact.

    I've had cancer mets to my toenail, eyebrow, and anywhere else that hurt.  And mets most usually hurt.   Heck,, the thing you saw could have been a button.

    Hugs and all positive thoughts you way.  ANd yes, call the docs office as soon as you know it's been read and relieve your mind.  Hell, I'd camp out in the waiting room till they told me.  LOL, take some reading material.

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  • wahine
    wahine Member Posts: 8,231
    edited July 2010

    More (((HUGS))) from Alabama! Wishing and praying that its nothing.

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  • amoccia53160
    amoccia53160 Member Posts: 57
    edited July 2010

    A bone density test will not show mets if that's what you are worried about.  Not accurate enough...that's what I was told by my onc.  xxoo Annette

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  • Sue-61
    Sue-61 Member Posts: 599
    edited July 2010

    I agree with amoccia, the bone density only measures density! No way to even detect arthritis, so I wouldn't worry about it.

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  • Susie123
    Susie123 Member Posts: 804
    edited July 2010

    Hugs and Prayers from Georgia.

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  • every8thwoman
    every8thwoman Member Posts: 147
    edited August 2010

    More hugs from Alabama.

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  • ToriGirl
    ToriGirl Member Posts: 1,188
    edited August 2010

    A big HUG from Oklahoma!

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  • Leah_S
    Leah_S Member Posts: 8,458
    edited August 2010

    If the test you had is a bone DENSITY test it will not show mets. If it is a bone SCAN it would show mets, but would also show a lot of other stuff (arthritis, etc). So keep pestering the doc or an answr just for your piece of mind.

    And there are (((((((((hugs)))))))))))) coming to you from Israel.

    Leah

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  • ElaineD
    ElaineD Member Posts: 2,265
    edited August 2010

    As this was dated July 10th, and she was getting the results within a week, at the latest she would have known by the 17th July-a month ago! I do wish that pople who ask for help would share results when they know them. Think we can safely assume that all is well-she hasn't posted here, or on any thread since the 10th July!

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  • andersonsrus
    andersonsrus Member Posts: 39
    edited August 2010

    First I need to apologize to each and everyone of you for not responding sooner. I have no reason simply that I forgot, which is not a valid excuse. I am truly sorry.... So I hope it is in  your hearts to forgive me. You have   given me the best advice here and I have no idea what I  would do without  you wonderful ladies here.

    As for the result of the bone density test.

     right hip no change (Still osteopenia)

    Left  hip   is  siignificantly   better (still osteopenia)

    Lower back L1-4  (a significant loss but still normal)

    It was stated :  statically no major changes from previous  results. Result: Osteopenia.

    How can the left hip get so much better and the lower back get so much worse and the right hip remain the same? That really doesn't make sense to me. 

    So after 2 years of Tamoxifen and 5 years of Arimidex . MY Oncology took be off the Arimidex even though I begged to stay on it longer. Not comfortable with that but not much I can do. However I do have enough pills to last me until  October so I will be good until then as far as the pills go.

    You would think I would be happy with that.. but I  now feel kind of like a fish out of water, now really scared that the other shoe will drop.

    Again ladies sorry for not responding sooner.

    Thanks as always for being here for me

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  • JannaC
    JannaC Member Posts: 30
    edited August 2010
    Lisa,  please tell me how you became State IV with such a small tumor and no node involvement.  I'm still kind of new to this and very scared.  I've only had one bone scan to check for osteoporosis.  Should I be having special scans for mets?  Is that what happend to you?  Thanks.
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  • Bugs
    Bugs Member Posts: 1,719
    edited August 2010

    JannaC,  it's a crap shoot ..that's how she became stage 4.  Asking somebody how they became stage 4 is like somebody asking you how you got cancer in the first place.  Unfortunately, it happens to stage 1 as well as stage 2 and 3.  Most oncs will only do scans on symptoms.  This fear is hard to wrap your mind around...but it gets better.

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