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kymmber
kymmber Member Posts: 66
edited June 2014 in Stage III Breast Cancer

 Final Dx

1.breast right total mastectomy

 B9 tisue

unremarkable nipple and skin

2. breast, left,  Modified radical mastectomy

5cm invasive moderately differtiated ductal carcinoma(retroareolar)]

5mm invasive moderately diff. ductal carcinoma (lower outer quadrant)

focus of DCIS grade 3of 3

7 of 12 nodes involved by mets

3. lymph nodes-left axilla biopsy

 10 of 13 involved by mets

Macroscopic and microscopic extent of tumor:

skin-carcinoma dose not invade dermis or epidermis

nipple- carcinoma dose not involve nipple epidermis

sketetal muscle- no skeletal muscle present

DCIS; minute focus of ductal carcinoma in situ (grade 3 of 3 with comedo necrosis is identified)

lobular carcinoma in situ-not identified

histologic- ductal

histologic grade 2 of 3

total nottingham score 7

tubular diffenentiation  2

nuclear pleomorphism  3

mitotic count 2

Margins- margins uninvolved by invasive or in situ carcinoma (closest margin deep 4.5cm)

Lymph nodes- 17 of 25 lymph nodes involved by metsstatic adenocarcinoma

pathologic stage -pT3, pN3, pM( not applicable)

Ancillary studies: were performed on JS10-2558: ER 95% cells invasive neoplasm exhibiting nuclear staining

PR activity  95% cell invasive neoplasm exhibiting nuclear staining

HER-/neu overexpression equivocal by immunhistochemistry (2+) reflective fish studies are negative for HHER-2/neu amplification which is reported at 1.5

Final interpretation for HER-2/neu overexpression is negative.

This is what my pathology report reads post surgery

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Comments

  • kymmber
    kymmber Member Posts: 66
    edited June 2010

    I am still so confused I dont know which way to turn the doctors have went over these reports with me but I feel so devastated and upset I dont know what to do I feel like god is punishing me  for something.

    Stage III, its not stage IV it just a step up, and based on the Adjuvant online 10 year survival is 70%" is what the doctor told me on thursday. I just dont know how I am gonna do this All I can think about is what will happen to my 10 year old if I die he will be so devistated,

    I have MRI(brain), MUGA(heart) and PET scans scheduled over the next 3 days then see the surgeon on Wed to remove drains and back on thur to place the porta cath?

    Start chemo on July 8 every 2 weeks for 4 treatments of Adriamy & Cytoxan, then another round  with taxol.

    he says I will the have total Hystorectomy and start hormone drugs and

    rads after that. Dose this plan seems normal based on my dx and why is everything being so rushed now

  • mnmom
    mnmom Member Posts: 2,068
    edited June 2010

    wish we could be introduced under better circumstances but welcome. I am not sure about the order for sure mine was a mess. The scans are a great way to lay out a post op plan for you & hopefully some reassurances also. My youngest was 5 when I was DX w/BC I know what you mean about worrying but you need to get through this crappy stuff so that you can be here for him too. Hang in there.

    ((HUGS))

  • Pure
    Pure Member Posts: 1,796
    edited June 2010

    Yes your odds are 70%-we have similar diagonosis and I have a 9 year old. I was pregnant as well when diagnosed. I am happy to help you just pm me.

    So here are my thoughts 70% is good. And as my friend Mary has pointed out-if the weather man says 70% chance of rain then I am assuming it's going to rain.

    Now that leaves an opening of 30%-lets close that in a bit

    1) GET ZOMETA WITH CHEMO

    2) GET zometa after chemo ( proven to reduce another 37%)

    3) Exercise cuts another 50% ( very important for er girls make SURE you do it while going through chemo)

    4) Take a baby aspirn 4 times a week (reduces 50-70%)

    5) Those stats don't take into account her pos and her neg, triple neg, etc so your probaby more like 73% likly to be alive in 10 years

    You are not going to die-though it feels like it-your going to be ok. Go to our 5 year survival thread. There are so many women with very similar diagnosis as you doing great. In fact Jacquline who helped me through this process had the same diagnosis as you and is 6 years out.

    I am happy to help you in anyway possible!

  • flopsy
    flopsy Member Posts: 365
    edited June 2010

    Dear kymmber,

    I am fairly new to all of this too, but I know we can get through this.  The hardest thing is excepting what you cannot control.  I am scheduled to start my 1st round of chemo in 48 hrs.  My cancer was 3.5 cm invasive lobular with 5/7 nodes +.  None of us know the exact combo of surg,tx, or preventative that will zap this thing, but our medical professionals have been doing this for over 35 yrs.  FInd the best people possible available to you and get as much info as possible.  Knowledge is power.  The more you know the better you can help make decisions about your care.  Never give up and don't lose faith especially if you are a child of God.  I have been reading Hope is Contagious by Dr. Kenneth Hutcherson. He is a 7 yr ca survivor(not breast) and he is amazing.  His book is truly inspirational.  I plan to take it and start re-reading it the 1st day of chemo.   FInd your inspirations whatever they may be and don't look back, just keep looking forward.  This is a daily battle for me but I think of it as being a soldier in a war.  You have to be diligent and alert.  Try not to have pity parties for they are surely counterproductive and just make everyone miserable.  Getting that dx of br ca is a blow between the eyes but does not mean it is a death sentence.  I hope this helps and you may send me a private message if you would like and I will try to respond as soon as I can.  LOL and hugs, gin2ca

  • clariceak
    clariceak Member Posts: 752
    edited June 2010

    Kymmber- those damm path reports are so depressing, but they are not the whole story.  Please put it away and concentrate on getting well.  Also it's best not to google for too much information.  Much of it is outdated and won't apply to you.

    Read the post by Pure again and again.  Make sure you include Zometa in your treatment plan.  There are links to studies that may convince your onc if they aren't willing on board.

    You're having the same chemo that many of us were given, and although it is tough, you'll make it through. 

    Stage III is a difficult dx to wrap your head around, but one of the positive aspects is you will, as others have said, have everything thrown at you.  You'll receive the strongest treatment your body can handle to zap those buggers once and for all.

    Many of us have young children and we understand your fears. Mine are 8 and 11.  Please keep posting and we'll help you through.

  • kymmber
    kymmber Member Posts: 66
    edited June 2010

    Thanks to everyone for all the reasurances I guess sometimes I just let all this build up and need to vent. Trying to stay strong for my son and not make it too terrifying for him, he has been such a big help, watching over me like a hawk, he is so sweet and loving, I am truly blessed.

    Stage III makes me soooooo nervous but after reading some of the post, it has started to help me cope a little better.

  • jenn3
    jenn3 Member Posts: 3,316
    edited June 2010

    kymmber - I am sorry that you have joined this club of wonderful women.  While I would have preferred to have not been in the club, I couldn't imagine a better place to be.  I remember hearing I was stage 3 and felt like this is it..........it's a given that I'll just advance to stage 4.  But that's not the case, stage 3 is given everything they can, surgery, chemo, radiation and sometimes more chemo.  You will get through this and at times the road may be rocky, but we're here to let you know it's okay and hold your hands (in cyber space). 

    (((HUGS)))

  • caaclark
    caaclark Member Posts: 936
    edited June 2010

    Kymber-

    The treatment recommended to you sounds exactly like mine.  I was diagnosed 4 1/2 years ago when my children were 4, 6, and 8.   They are now 9, 11, and 13.

    It is scary in the beginning but many of us have been where you are and many of us are doing well years out.  Keep posting here.  We all get it!

  • KerryMac
    KerryMac Member Posts: 3,529
    edited June 2010

    Kymber - just want to welcome you aboard, although I am sorry you have to join us.

    Yes, there is a long hard road ahead of you, but you will get through it, and have a good life again on the other side. I am a year out of treatment and doing well - my kids were 2 and 4 when I was Dx, and they are thriving.

    I would second the recommendation to put away your path report (mine is at the back of my closet!) and concentrate on your treatment. That cancer is out of you, now you need to make sure it doesn't come back!  Your treatment plan sounds great, I would ask (push if necessary) about Zometa, and then do anything else you can to improve your odds (exercise is a big one!)

    We are all here to help you get through this. And you will! 

  • kymmber
    kymmber Member Posts: 66
    edited July 2010

    17/25 nodes postive scares the crap put of me.  Someone please tell me there is a possability that this dosent mean METS. seems like alot of nodes positives for it not to be METs

  • KerryMac
    KerryMac Member Posts: 3,529
    edited July 2010

    There is a women who posts here called Jacqueline who had 17 positive nodes....she was dx SIX years ago. And she is not alone, there are many others who pop up on occasion.

    It is scary, that's for sure, but it is survivable. The drugs they have these days are amazing, things have changed a lot for us node positive girls in the last decade.

    Here is a article I have posted before -

    http://www.pslgroup.com/dg/25a522.htm 

    And that was written five years ago - before things like Zometa were available. 

    There is a lot of hope for you!

  • cbm
    cbm Member Posts: 475
    edited July 2010

    Kymmber--I don't know if this will help, but there have been lots of discussions here about lymph nodes and what they mean.  I only had about fourteen collected, altogether, and many were huge.  That was all I had, my surgeon couldn't find any more. He told me after surgery that based on the size of the nodes he found I could expect my staging to change and to get further tests; surely there was a lot of involvement.  I ended up with only one huge node--2 cm, overtaken by cancer, larger than the breast lesion.  But--the way I look at it, that node was doing its job.  The cancer is supposed to be in the node--nodes are there to fight with it.   

    Truly, you will find women here who had no nodes involved and ended up with mets, and women with a gazillion nodes affected who did not.  I think Pure gave you good advice--remember that one of your best weapons is to do whatever you can to boost your personal chances by taking excellent care of yourself and your immune system.

    Warmly and with hugs,

    Cathy 

  • kymmber
    kymmber Member Posts: 66
    edited July 2010

    I am scheduled to start chemo in August :  Starting with 4 rounds Adriamycin and Cytoxan every 2 weeks  then 4 rounds of Taxol every two weeks....After chemo I will be going back for a hysterectomy,ooph ...then I will start Rads and Aromatase Inhibitor pill form estrogen thearpy for five years.

    Has anyone had this treatment and how hard was it for you?

  • jenn3
    jenn3 Member Posts: 3,316
    edited July 2010

    I did DD AC, but 12 weekly Taxol.  Chemo is different now and they have medications to help you with the SE's.  You can get out exercise, enjoy time with famiy and friends.  I won't lie and say it's a walk in the park, but it's doable.  You will figure out which days are bad, for most women it's 2 to 3 days after chemo and lasts for a few days.  On those days, rest and be good to yourself and on the days that you feel good get out of the house and enjoy time with family and friends. I also walked almost every day, even on the bad days.  I found it to help me both mentally and physically.  There were days that I just didn't feel up to it, but I walked - even if it was a short walk and I was always glad that I did take that walk. And....drink plenty of water.

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited July 2010

    Hi Kymmber,

    Sorry to hear about your recent dx but so glad you found this group.  They have helped me beyond words in my journey.

    I had the dose dense A/C and then the Taxol followed by 6 weeks of radiation and just started on Tamoxifen a few weeks ago.  The A/C portion of the chemo was by far the most difficult.  The good news was that all of the side effects and bad days were just temporary, and I think that is what you have to tell yourself on the "bad" days.  "This is only temporary, I won't feel like this forever", whatever works for you.  And some women get through it relatively easily.  Unfortunately no two bodies react the same to the tx's so there is no way of telling ahead of time how you will react.  Your doc (and you can look them up here as well) should give you a good idea of the most likely side effects.  It's tough at times, and losing your hair sucks, but again, IT IS TEMPORARY, and you are doing what you need to do to stay here with your kids. 

    I have a 13 and an 11 year old and I think the same thing at times about them.  But I don't dwell on it as much anymore. I've said before it's like being on a roller coaster.  Sometimes we are at the top and sometimes we are at the bottom.  Here's hoping you have lots of time enjoying the view from the top.  Feel free to PM me anytime if I can help in any way.

    Take care,

    Sharon

  • karen1956
    karen1956 Member Posts: 6,503
    edited July 2010

    Kymmber....glad you found us, but sorry that you have to go through this journey....I finished chemo 4 years ago today!!!  It is hard but doable. I had TAC chemo x6 every 3 weeks.  I don't remember the size of my tumors but there were 3 in my breast and also lymph node involvement....BS only took 1st layer of lymph nodes...12 in all and 8 were cancerous.....5 weeks of rads post chemo, then AI's and ooph......The women here are a wealth of information and support.  Dx of stage 3 is scary, but we get through this and can be around for many years...Hugs., Kare

  • AsiaYM
    AsiaYM Member Posts: 2,216
    edited July 2010

    Kymmber,

    You have treatment plan in place, it will help you stay focus.  Come here for support often.  This journey will not be easy but doable, hang in there, a lot of ladies here will  listen and give some comfort and encouragement to you.  Never stop asking question and for help.

    Hugs,

  • YATCOMW
    YATCOMW Member Posts: 664
    edited July 2010

    kymmber

    I just wanted to sneak in here to tell you that I am the one with the 17 nodes.....and yes..... I am now over six years out.

    The drugs are good.....everything that you are getting ready to do is what I did......

    My children were 7, 9 and 13 when I was diagnosed.......my oldest is getting ready to start her second year in college...one now in high school and the other going into 8th grade......it seemed impossible in the beginning to get this far.....but you will get there.

    Buckle up for the ride......and then when you are done.....things will get back to a new normal....just gotta get thru the treatment.

    Hang in there.......there are so many of us doing just fine.  You will too.

    Praying for strength. 

    Jacqueline 

  • kymmber
    kymmber Member Posts: 66
    edited July 2010

    Thanks to all for all the encouragement .  I seen the surgeon today he removed another drain still have one left hopefully it will come out next week. Got my PET scan today , MRI (brain tomorrow)

    I am feeling really good we have a small vacation planned  August 5- 8, my surgeon has said It will be fine to take it as scheduled that he wanted me to be 6 week post op before starting chemo. Onc. originally scheduled me to start chemo on July 8  which was  only 2 weeks post op.

    Surgeon calls Onc to tell him I need the full 6 weeks and he reschedules me for 5 weeks, which means I will be scheduled to have chemo when I am scheduled to go out of town  I called to ask Onc to work with me on the scheduling around the vacation "he stated I needed to keep my appointment" I so wanted to spend some time with the family before I get really sick from the drugs.........ugh

  • Annie62
    Annie62 Member Posts: 1,081
    edited July 2010

    kimber,

    I post infrequently, but try to keep a eye on the boards. As a stage IIIC, I don't think of Stage III one step from Stag IV. I am 5.5 years out. I look forward to posting to you in 2015. As for for the holiday, one of the first things I did after treatment was plan a vacation to Disney World in 2005. One of our best vacations ever.  

    Best to you, 

    Annie 

  • clariceak
    clariceak Member Posts: 752
    edited July 2010

    Kymmber - your onc needs to work for you, and with you.  I really don't understand the need to move up your chemo by a week.  You should be able to spend that time with your family.  It's important to gather your strength before you start chemo and a mini vacation sounds like the perfect plan.

    Thanks to Jacqueline and Annie for posting!  You are my Stage IIIC heroes.  Although my sig line says IIIb, I believe I'm actually IIIC.  Loads of nodes, big ass tumor, vascular invasion and a internal mammary node, but stories like yours give me hope!

  • kymmber
    kymmber Member Posts: 66
    edited July 2010

    Talked to the surgeons office on the phone today and surgeons says he wants me to be 6 weeks healed before chemo, so they then contact the ONC to let them know and my appointment was changed till after my vacation........yay I need this soooo much not only for myself but for my family. Still awaiting surgeon to schedule  for the port to be inserted.

    Am I making a mistake by postponing this appointment, how far post surgery should chemo start? My surgeon says postponing want change my survival?

  • Annie62
    Annie62 Member Posts: 1,081
    edited July 2010

    I'm not sure how much time normally elapses between a mastectomy and chemo. My onc didn't want me delay too long but also said a week or two wouldn't make a difference.

    Best to you,

    Annie

  • clariceak
    clariceak Member Posts: 752
    edited July 2010

    Like your bs said, the standard is six weeks. It should have no impact on your survival. The port insertion should be easy to schedule as it is usually done as an outpatient procedure under conscious sedation.  That's wonderful that you will have your family vacation.

  • kymmber
    kymmber Member Posts: 66
    edited July 2010

    Thanks so much for all the Input everyone has made me feel so welcome here , not to mention all the great advise I have learned so much this past month from everyone here.....thanks again HUGS..and Prayers to all

  • kimber3006
    kimber3006 Member Posts: 586
    edited July 2010

    Kymmber - So glad you get to take your vacation - hope you all have a wonderful time!

  • AsiaYM
    AsiaYM Member Posts: 2,216
    edited July 2010

    Kymmber,

    There is no need to have port installed right away, you can do that before chemo starts.

    I had 6 weeks break before chemo and installed the port on the same day of chemo.  Have your vacation first and port later, so you can enjoy vacation better.

    Hugs, 

  • karen1956
    karen1956 Member Posts: 6,503
    edited July 2010

    Like Asia, I had my port put in before I went for my first chemo, earlier in the morning...went from getting port to chemo.  I started chemo 3 weeks after bilat, but that was the earliest you could do chemo....enjoy your vacation, then worry about port and chemo.  Hugs.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited July 2010

    I didn't even have a port! So, don't worry too much about getting that in before your trip. Glad to hear you will get some relaxation time in before you go.

  • kymmber
    kymmber Member Posts: 66
    edited July 2010

    Thanks .....I have a question about breast forms. right now I have a camisole with the puffy fiber fill to insert into the pockets is ther a light weight form that want irritate my incisions

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