SNB VS AXILLARY NODE-Help
I am scheduled for snb this week,thurs y breast will be injected with a dye then on friday i return for snb removal,i was diagnosed with DCIS left breast on 5-20-2010. My question are does the injection of dye hurt,how is the recovery after the snb.I have anxiety problem,which causes my heart to palpatate and i am hypertensive but it is controlled through mediction.Did any one have these concerns.I am due to have a bilateral mastectomy i guess this month depeding on the results of the SNB,i am wanting reconstruction at the same time.Also if i did not mention i an 41 with a young child and i am scared.They told me that i was a stage 0 can i be comfortable with that? Can someone just talk to me please.I am not sure the doctors are moving fast enough,it is going on 2 months since the diagnosis.I never got a stage of the DCIS ONLY that it is intermediae to high grade on the Path report. What is sentinel node biopsy.I have been reading,but one of the post said she discussed with her doctor about how many to remove.please help me
Comments
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I know you're scared, but please try to stay calm.
SNB is the removal of the first couple of lymph nodes that cancer is likely to spread to from the primary tumor. It's a much less invasive procedure than an axillary removal, which takes out all (or almost all) of the nodes.
I believe it is protocol for all BC patients, even stage 0, to have a node biopsy. I would think that your doctor reached the conclusion that you were stage 0 based on the core biopsy results. Take this one step at a time and don't jump to conclusions.
I had a SNB last year and honestly, it wasn't painful at all. Before the injections, the radiologist put some lidocaine on each of the areas that were going to be stuck with the needle and I didn't feel anything. I also didn't look at all - kept my eyes close the entire time because I'm very squeemish. The only thing about the SNB preparation that bugged me was the CT scan - I'm a little claustrophobic and at one point the nurse left the room for about 10 minutes with the scan hanging about 12 inches over my head. But really, that was the worst of it.
After the SNB, my underarm was sore and as the wound began to heal, it felt tight - it was more annoying than painful. Make sure you have some ice packs on hand - it will help with the swelling. My surgery was on a Tuesday, I returned to work on Thursday and went away for the weeked a couple of days later, on friday. I was sore and and a little swollen, but overall I felt fine.
Like you, I was panicking beforehand - I hate needles, hospitals, doctors . . . but it really wasn't terrible. It's going to be okay.
Best,
J
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just keep reading.im new here too and just as scared as u r...i cannot give u info but all i can say is keep reading eventually you will find the info on axillary node,sentinel biopsy,i just had it so i can help a little.i went to sleep so the dye did not hurt.i did not feel anything.i do know stage 0 grows slowly(better dbl.check) on the stage o site.i waited 4 mos & it didnt grow.if that helps.i really dont know too much..get your path.report and have someone help you understand it.the SISTERS on these boards are wonderful...they want to help each and every one of us.just keep asking a lot of questions....GOD BLESS YOU.im sending u gentle hugs.its easy to say stay calm but try.im trying too...lets try together..good luck.granny dukes.ps.im a big chicken and i had no pain after the sentinel node surgery...no drugs at all...good luck again
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Thanks for the responses,it helps.J414 and Grannydukes once again thank you.Thanks for the hugs.Well keep me in your thoughts for the 2 days procedure thurs and fri.As i said before thurs they will inject the dye then i return fri morning for the biopsy.The reason for the 2 days is becase the doctor surgery schedule is a little tight,so to keep me from waiting they are going toinject the dye a day before.I have my Pathology report but need help interpreting it.I dont see a grade on the path report.I will keep posting and reading.You do ot know how much your responses mean to me.
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I know it seems like a long time has passed when you're waiting to get the cancer out of you. It seems like they're not moving fast enough and you do get worried. Please take comfort in the fact that DCIS is contained. It's not an invasive cancer. If you have to have breast cancer, DCIS is the best possible diagnosis you can get. The SNB is not a painful procedure. In the old days it was a crap shoot, they took lots of nodes out because they couldn't tell which ones might be positive. Now, with the SNB, they inject the area of your breast that has the cancer, with something they can trace and see which nodes the cancerous area drains to. That way they only have to take a few nodes, instead of all of them. It makes for a much easier procedure and recovery for us BC girls. I know at the beginning it is very scary. If you're having alot of problems with anxiety, ask your Dr for an anti anxiety med. There's nothing wrong with using anxiety meds when you need them, and a cancer diagnosis is definitely reason to need them. Hang in there. We all find that we're alot stronger than we think. Just take one day at a time and get through it. If I can help in anyway just PM me. I took Ativan for the anxiety at the beginning and it helped alot. I'm 6 months out from my diagnosis and don't need it anymore, but at the beginning it was a lifesaver. I've had a double mastectomy and reconstruction in the last 6 months. At a point I thought my life was over. Now I'm pretty much back to normal. There is hope. Just hang in there, it will get better, I promise.
Susie
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Thanks Susie123, that was informative.Yea it seems like a long time.Susie123 did you have reconstruction at the time of the mastectomy?
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Hi Psalms
Wanted to offer some encouragement; I am also an anxious person but had no problems at all with SNB (as I did with MRI's). Mine was done same day as BMX but earlier in the day; however I should point out that my surgeons protocol was to give you a valium when you arrive so I guess that helped (if I recall correctly it was a just a small dose) but I felt NO pain whatsoever. Also it has been a year and scar under the armpit is completely gone, which is a relief
So good luck to you and don't be afraid to ask for medication if you need it to get thru all this
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Also wanted to add just asked my surgeon the other day same question you asked which is why no number grade on path report (mine just said intermediate grade) and he said they only use numbers with invasive cancers (not DCIS) so my understanding was mine was about a 2
After you get over the shock of it all go onto the DCIS forum where there is lots of helpful info, see especially posts from Beesie
SNB carries lower risk for lympedema than axillary node so that is a good thing
good luck
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Winter1NY thank you so much,also how do i get into the discussion board that you were spreaking of, as you can tell i am very new to this,I would love to read Bessie comments
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when you are on the home page go to the white box on the upper right which says "jump to a forum" and arrow down until you get to DCIS and click "go"
that will bring up all the threads under DCIS As you will see there's a lot there (over 50 pages)
If you find a thread that's helpful to you click on box to save as a favorite topic so you don't have to scroll thru everything again to find it
good luck
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Psalms, I am two weeks out from my lumpectomy and SNB and it's feeling almost completely back to normal. The first week it was just sore. I didn't lift anything or reach for anything, just kept the arm relaxed and at my side. The second week I was using the arm normally, just not doing any weight lifting or anything. Now that 2 weeks have past, I don't notice it. The scar is about an inch and a half long and is almost completely covered when my arm is down. Getting the dye injected pinched for a couple of seconds then it was over. I also suffer with anxiety and had my Dr. prescribe something for the weekend before surgery which helped a lot. You'll do great!
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There is a lot of really good advice on this thread, but there is one point I want to correct. Re the comment above:
I believe it is protocol for all BC patients, even stage 0, to have a node biopsy.
While there are many people with a DCIS diagnosis who will need to have a SNB, it is NOT protocol for all DCIS patients, Stage 0 patients. I just want to point this out in case someone with a new diagnosis is worrying because she is not scheduled to have an SNB.
DCIS patients generally do have an SNB if they have mastectomy and sometimes (under special circumstances) if they have lumpectomy. But the majority of people who have DCIS diagnosis and who elect to have a lumpectomy, DO NOT have SNB. If you are concerned, ask your doctor specifically why he is she is recommending an SNB in your case.
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landos and djs thank you both for the information. i amd schdeuled to have a bmx due to the fact that i am Braca2 positive and i am the 8 th person in my familly to develop breast cancer on the paternal side of my family.I was opting for immediate reconstruction. How long does it takes for the Sentinle Biopsy results to come back?
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Psalms91- I had a bmx with immediate recon - a DIEP. A SNB takes about 4-5 days to come back. The recon procecures are very workable with an experienced PS. This is worth hunting for, interviewing, looking at websites, asking questions over on the reconstruction site. Lots of things to think through. The sites for PRMA in San Antonio and www.breastcenter.com have great photos.
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http://www.nytimes.com/2010/06/08/health/08canc.html?ref=health
Taking Nodes Has No Survival Value
The study presented here involved 991 women who had had lumpectomies, radiation therapy and a positive sentinel lymph node. Half had the other lymph nodes removed and the others did not.
After five years there was no difference in survival or disease recurrence between the two groups. Some 82.2 percent of the women who had the dissection were alive and disease free compared with 83.8 percent of those who did not. Cancer recurred in the breast or nearby in 4.3 percent of those who had the operation and 3.4 percent in those who did not.
"The evidence is overwhelming that the operation might not be necessary," the lead investigator, Dr. Armando Giuliano of the John Wayne Cancer Institute in Santa Monica, Calif., said.
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If you have only DCIS it has not spread outside the breast and they would not need to check the nodes. If you have a lumpectomy, they do not usually check nodes. For those patients who turn out to have an invasive component in addition to the DCIS they can do the SNB later. However, if you have a mastectomy the standard procedure is to do a SNB even for DCIS because some patients will have an invasive component found along with the DCIS. That would mean SNB is necessary, but once the breast is gone the SNB is not possible (no place to inject the dye and follow the path to the sentinel nodes). If the SNB were not done with the mastectomy, an axillary node dissection (AND) with many nodes removed would be necessary.
The study Jane cites is looking at the question of what should be done if the SNB finds a positive node. Standard procedure would be to go back and do the full AND. Does that improve outcome? As a research question it is hard to show that one step in the whole diagnosis and treatment process makes a difference in survival. An intermediate question is, "Do the results affect treatment decisions?" The answer is probably "no", if they would recommend radiation therapy because of the single positive node. It has been somewhat controversial whether radiation should be given for a single positive node but the evidence is moving toward that recommendation. So... if you have the same treatment recommendations whether you have the follow-up AND or not, the AND is not necessary.
The point is that SNB is much more limited surgery than AND with lower risk of lymphedema and other side effects. They are trying to reduce using AND.
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if you have pure DCIS you dont need SNB... but they really dont know if you have PURE DCIS until two days after the operation when you get the pathology report. i was doing Mammosite and another person had 1 node postiive and disqualified for the procedure. my doc on a lum ALWAYS takes 1-2 nodes min...
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Yes I had tissue expanders placed at the same time they did the mastectomy. I went through the expansion process, and have had the exchange surgery in April. The PS made nipples at the time of the exchange so all I have left to do is the tattoos. We'll do those in October, and then all done!
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Had the injection into the breast today, thanks for the support, it was doable.Tomorrow is the procedure for the SNB, how long does that usually take?.I know i will be asleep.Am i understanding correctly you can have positive SNB and negative AND?
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hi everyone
a little late but i know now the sentinel node and axillary node is one of the same (i think) going to dr #3 on wed. and onc next week.still dont know anyting yet.every dr.says something different.i ma just fed up.
thanks for all your help.
I PRAY EVERYDAY FOR A CURE FOR CANCER.
love my sistas
K
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