Dr. Stanislaw R. Burzynski
Has anyone heard of Dr. Stanislaw R. Burzynski?? He is located in Houston and was in Susan Summers book Knockout. I would love to believe but am also skeptical. He supposedly has found a peptide that when treated can stop breast cancer. Here is a link below from when he was on larry King live. Would love some feedback, more info and to hear if anyone knows people who have gone to him.
http://www.youtube.com/watch?v=63OIXnTliA8
Thanks!
Comments
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http://www.burzynskimovie.com/index.php?option=com_content&view=article&id=63&Itemid=68
The new Burzynski movie is showing the next few days in Asbury Park, NJ. The director and one of Burzinski's breast cancer success story patients will speak.
If anybody goes please let us know.
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I just read that book and was telling my mom about it and she said many years ago...like 15 i think her dad died of prostate cancer and before he died she had called him. She said even then he was doing some amazing work. I am planning to do some research on him myself. That whole book is good cause there are alot of drs who are doing amazing things.
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Yes Suzanne Somers book is great because the doctors she interviewed actually explain how their therapies work. We don't often see that. I wish that Burzynski breast cancer patient would post on this group. If anybody goes, would you please introduce yourself and ask her to post here?
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Very interesting. So what is the current state of his research on breast cancer treatment? Are there clinical trials for BC? Or therapy? Is it tested as safe?
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The movie was absolutely fascinating. It's now available on dvd.
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Please, people, Burzynski is a quack. While he had permsion to do research and has an IND (investigational new drug) approval to do research from FDA, he has failed to ever move forward in the drug approval process as none of his results are reproducable or consistent from patient to patient. His INDs are inactive.
His practice only exists because he is very careful to make his "suckers" come to him. If he ships his neoplastin junk out of state or through the mails, he is in interstate commerce and will have FDA down on him like a ton of bricks (I know for you conspiracy folks that is a ringing endorsement of this quack).
Try him if you like, but don't give up your conventional therapy.
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Sassa, You promote a dubious weight loss system called "Metabolism Miracle" on another thread and you call Dr. B a quack?
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I have not promoted everything. I just pointed out a low carb, carb controlled diet plan that is based on the pioneering work of Dr. Atkins. And by the way, the dietitian that has developed that plan has thousands of patients with reproducible results, including supporting blood work done by endocrinologists done to check the results of the diet. If the diet needed to be approved by the FDA for marketing, the data would pass review with flying colors.
Dr. Burzynski results are based on the same low number of patients (8, 9 , 11 - I can't remember) that are all over the board as far as types of cancer. NONE of those results have been reproducible by treatment with his "drug" alone for any of the cancers he has claimed results for.
So, Mollyann, if you need to lose weight, MAYBE the metabolism B diet will work for you if you are among the 45% of the population that has problems with metabolic syndrome or a strong family history of diabetes, hypertension, high cholesterol. It has REPRODUCIBLE, medically supported results. Dr Quack does not.
So go ahead. I am just given a heads up - its your dollars and life. Do what you want. Just don't shoot the messenger because the message for either the diet or the quack is based on what is used by sane, intelligent people to judge what is effective and safe.
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Sassa,
Have you seen the movie? I have no idea if his treatment works, but the people supporting Dr. Burznski were passionate. He targets children with brain tumors because they are the most difficult to cure. Unless the movie is an out and out lie, his treatment was effective on some children who would have died. I dunno, I'd love more info.
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Thanks everyone who took the time to answer this. Currently we are at some crossroads. I have done several chemos in the past 6 months, none of which have worked. We are now looking at clinical trials and a friend of mine reccommended Bruzynski after reading Susan Summers. I was very very skeptical but also hopeful of this miracle doctor. I wanted to post on here because I assumed if there was someone who had used him and felt he had a miracle to offer, we would hear about it. Appears as though so far no one knows of a miracle. I also spoke with one of my doctors who does all my supplements and he mentioned that Burzynski was once caught using DES (a synthetic form of estrogen that has been linked to cancer!) Needless to say we wont be trying him again. We are looking into clinical trials and I am going to post some of my potentials. Hopefully some people on here have tried some of these clinical trials so I can get help choosing.
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Aside from a great chapter on Dr. B, the book has other protocols by other doctors.
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Have you looked at some of the threads that list favorite supplements or alternative / complementary therapies? There's a number of ideas, most of which at the least are harmless.
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When I first read of Dr. Burzinski I though that he was a bit off too, until I read further.. It seems the FDA tried for years to put Dr. Burzinski out of business and Texas Board of Med. Examiners also tried to take his license.. But if you read all of the data and follow his case you find a man committed to trying to relieve suffering without the normal slash/burn/poison route. Sure he does use small amount of these, but only when he has to.. So after he spend 10+ years of trying to oppose the FDA (and quite frankly they were determined to put him in jail) the facts bore him out he was successful at having ALL of the charges dropped and his license remains intacked. No he hasn't got an everyday "cure" to any cancer but he has been able to help patients that the conventional medicine have termed "incurable" and it is in the brain cancers (the type of cancer that is the most difficult to address) that his Aminocare A10 have had a surprising ability to pass the brain/blood barrier (something conventional medicine has had a great deal of difficulty doing).
When in Houston I set up a consult with him (it's a long story but my father was dying of cancer) and found a wonderful human being trying, after years of working in the conventional health cancer arena, to help humans and doctors look at cancer a different way. He has in some small way succedded - he has just entered FDA's 3rd level trials. So a lesser man would have dropped the idea, with the amount of pressure that was put on him, and started working within the conventional system again -- not this man! He believes he has found something - so he got together with some investors as well as has put all of his profits back into trying to find the link between his aminocare and cancers. The FDA doesn't want him to succeed and puts up every road block possible, but 20 years ago they wanted to pull the plug on him altogether now they have allowed him into FDA trials because he follows their protocol.. He is slowly but surely finding that connection. Does he have the answers today - probably not - but by God the man has gone up against a HUGE industry and come out of it intack and has a wonderful clinic where you are seen (in consult) with a panel of cancer specialists before they decide if they might be able to help you or not or if you would fit the trials.. so in many ways he's as real as any conventional doc. He did not have a protocol for my father at the time he was not working on breast cancer let alone breast cancer in men and so told my father that and we left. But we saw a man of faith and a man with tenacious grip trying desperately to find a NEW way at approaching cancer treatment. He has a web site and you can certainly google him and find out about his past experiences with the FDA and Medical Board as well as a board of patients who had no success with their cancer treatment until they met Dr. Burzinski. I have the greatest respect for the man - he even faced death threats at the time of the turmoil.. So he is anything but a quack in my book. And as a final note, the FDA couldn't have allowed the man to get this far if they had "anything on him" because they would just thrown it out on the initial trials - so there is something happening with his method.. but it may be too soon to call it a "cure".. Just my opinions but the man is a martyr in my book! A scientist that crosses all his T's and dots all his I's or he would have been long since forgotten... Best, Deirdre
edited for typo's
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Deirdre: I agree with you--He hasn't found a cure-yet-but he has had some progress with a very aggressive brain cancer. I go to Dr. Galitzer mentioned in the in Suzanne Somer's book. He does integrative and preventative care. I still had to go through conventional therapies: chemo, mastectomy, reconstruction--however, with the support of alternative therapies I think that I have a better chance of not only surviving BC but never having it return. I have TNBC which is really aggressive. If I had only done alternative therapies I would be dead from the cancer. I worked with Dr. Galitzer 4 months prior to my diagnosis and continued to do alternative care/diet/supplements for two more months before starting chemo. Chemo is the only thing that shrunk the cancer so that they could operate. I believe the additional care I did assisted the chemo but by itself it would not have worked. I would place my money on the new clinical trials they are doing here where they freeze the cancer and do much less invasive procedures for BC. I found out about these trials on bc.org on one of the New Alerts. It is also mentioned in the book Knockout and it is done, I believe, in China as standard care.
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MJB - so sorry for your situation and I'm very glad you have "both sides of the coin" when it comes to medical care (alternative/conventional).. I also agree with you regarding the "freeze" hope but I wasn't aware that China (or anywhere for that matter) was using it as "standard care" . Thanks that is something I can now research better.. Take care! Deirdre
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Deirdre and MBJ -
There are two things I find very disturbing about Dr. Burzynski: 1) No other studies have been able to replicate his claims. 2) He himself has not kept records of all of the patients he has treated and of the outcomes. He has thus deprived himself of a potential source of evidence in his favor, or has hidden evidence against the effectiveness of his treatments. Instead of being able to present the establishment with meaningful statistics, he relies on the purely anecdotal evidence of a handful of cases for which there is absolutely no reason to believe that his treatments were pivotal. Anecdotal evidence is great for swaying large numbers of people who do not have the benefit of a rigorous scientific education, but it proves absolutely nothing. I am not saying no one should try unproven remedies, if they can do no harm, just don't hang your hat by them!
I am also disturbed that people seem to think he is legit because he has been prosecuted by the FDA. All it means to me is that he has been careless in how he has gone about his business, and that means he may be careless in the lab too, and careless in his record keeping. I am glad that he has a drug trial that follows protocol and would be thrilled if any of his drugs turned out to be of real benefit.
If you want to try something with research behind it, increase your vitamin D3 levels to 40ng. Here is one link on recent research regarding bladder cancer and D3, there are many more re breast cancer. http:health.uscd.edunews/2010/3-1-vitamin+d-bladder+cancer.htm. Just google Vitamin D3 and breast cancer to see what is out there. Also "Dr. Cedric Garland" who is one of the researchers who noticed the correlation between low rates of certain cancers and high sun exposure, and began following it up 30 years ago.
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Oh boy skeptical, was I ever where you are.. but if you do the research you will find that the FDA PULLED all complaints (ALL) as they were "unfounded" and now Dr. Burzinski is working WITH the FDA. He keeps records on his clinical trials as any other individual, scientist, doc would have to under their (FDA) guidlines - he does have the research to back up his claims that is WHY the FDA is now working with him. Albeit not a lot of research as he is only in the second stage of FDA testing.. but you really need to check out where he is NOW. 20 years ago the medical associations wanted nothing to do with alternative meds (and neither did I), but over time they have come around to understand that as long as it is put through the same strutiny that regular science is it's OK and some alternative med actually help people. And since medicine is always a practice and never full science well not many of our conventional studies can met the level of scrutiny that he and his team of oncologicsts, scientists etc. have endured. I'm not suggesting that he has the full answer, but he's got something and is now WORKING WITH FDA... I do appreciate your concerns though and I agree all things should be vetted - ALL THINGS! I was very impressed, when I did the research, where Dr. Burzinski is in comparision to much of what we call medical science.. Thanks though - I was very much a sceptic when I approached Dr. Burzinski... so I know where you are com'n from!!! Best, Deirdre
Oh and PS... I didn't see your response before this.. so sorry I didn't respond earlier!!!
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Hi everyone,
I have been posting on the stage IV because I stuck with convential therapies, all of which did not work. I was all set to go to Dr. burzynski and even paid the upfront fees until a friend told me about a neighbor who had gone there for lung cancer and came home broke and extremely ill. he passed away a short time after. I am not saying it was necesarily his fault, but he is extremely expensive and he cannot gaurantee how long you will be on the protocal. It could be years that I would be shelling out thousands and at the end of the day I dont have the finances and I also have kids to think about. There was not enough evidence for me to go and move my entire family and spend any money we have. i get there are no guarantees but there are other alternatives to try that don't mean my family losing their house. I am now trying protocel and may try paw paw. I just posted about both of those. Any information on those I would appreciate.
Thanks
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BcMomof3 - I think when it comes to breast cancer he really doesn't have much research that suggests that his protocol works (at least not yet) probably because he doesn't have a great deal of breast cancer patients - and you are definately right - it's totally out of pocket (with the exception of conventional tests and treatment that he does use - for example scan that would be covered by your insurance, and as long as it is not an HMO, would be covered by him also blood work and the likes. What most people need to know is that Dr. Burzinski usually get patients who have walked the full gamet of conventional medicine and so Dr. B is their last resort, yes he does loss people no question and that money might not be useful for you to spend especially when you are concerned about your kids!!! It is brain cancers he has had the best research with and even many of them, unfortunately, do not beat the disease, but his meds do get through the "brain/blood barrier" and that is something conventional medicine hasn't had luck with.. I'm sorry about your friend with lung cancer - I lost an uncle to that recently and we wouldn't have been able to send him off to Texas for that treatment because he was in final stages.. So yes he (Dr.
has a long way to go, but he has got something that is even in FDA 2nd trials... I hope you do well with what ever treatment you do and I want your kids to have you around as long as is possible.. Best, my thoughts are with you!!!! Deirdre -
I have been doing my research too, and the many alternates out there. I found the Knockout book to be very negative toward chemo, although she says she just wants to present both sides, she is clearly biased. I wonder what type of BC she had? Was it a small little thing that was easily removed? Good for her that it worked but just like chemo, alternates are not for everyone. Is a chemical my problem? Or a deficiency in something? How clean is my liver? (drink warm lemon water in the am to help this) . Would magnet therapy help? Or saunas? Heat? Cold?
But basically, along all of the claims out there, there are some common threads among them:
A primary veg diet. You will note that they all claim that if you don't follow their protocol 'exactly' then that is why it didn't work for someone. To me that is like a diet claim that says well, you ate carbs on Thursday so that is why you didn't lose weight. Even the macrobiotic diet ppl claim the diet 'cures', but when you dig in it is still primaryily vegs, no processed, no chemicals around you, plenty of rest, low carb except for brown rice, etc.
find your supplements and take them (Vit D3, magnesium, etc - find a natropath to help)
Spiritiual side/meditation - even the clinics in Mexico say this needs to be done.
Get outside and walk, be part of mother nature, breath fresh air, get some sun.
Yoga/exercise - In my opinion, if they were all so 'miraculous', then why don't they each use each others treatment method?
Also, see threads about alkaline diets and water, regardless of the for/against these, another common thread I notice is that all of these veg diets, macro, etc, in the end are all alkaline diets. If you eat your leafy greens like you are supposed to (I really struggle with this so take kelp and sprouts supplements) then you would have a higher alkaline count. Even the 'grape' cure in the end is an alkaline diet. Those that believe in carrot juicing, alkaline again. I am trying to juice at least 2x a day - one for fruits that I mix my IP6/Inositol in, and a green juice that I mix my tumeric/pepper powder in.
So for me I take all of this into account, and I take what is common among them and I incorporate what I can. Diet, exercise, mediation, yoga, supplements, lots of good water, etc. You can learn how to do a coffee enema on you tube (I do not do this), and also there is the Budwig cottage cheese and flax oil (issues with E+ I believe). If I reach a point that I actually need to go to one of these places then I will most likely do so, but they have to offer me something better than proper diet or exercise and homemade enemas.
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The campaign by the FDA, the NCI, the NIH, PhRMA against Burzynski (against ANY alternative treatment) has been ongoing for basically two decades. "Conventional" (old) cancer treatment is huge money, isn't it?
But let me just present this:
When Dr. Dvorit Samid, élan and the NCI, with the collusion of the US Patent Office tried to RE-PATENT (aka steal) Burzynski's already-existing patents, they mistakenly published information supporting Burzynski's data and efficacy!
Want more information? You can not only order and watch the movie, Burzynski, but also, at the movie's website, you can go and read an interactive transcript, which contains all the supporting documents, studies, et al, as mentioned in the film.
Make sure you click on the link "The Opposition".
P.S. Dr. Russell Blaylock
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Just a short and sweet version of what I know about Burzynski. For sometime, Texas had a law that said drugs could be approved by the State of Texas - the heck with the FDA. The FDA finally got off their collective butts and took him to court. He is now going through the FDA process/clinical trials.
He is hampered by the lack of money needed for these trials and does not want to take on investors or deal with the pharmacutical houses because they would then profit from his work - he wants to profit from it.
Believe me - anyone that cures cancer will be a trillonaire. I will make one concession here. The average researcher would have a difficult time because of the FDA process - they would need a lot of financial backing. So some genius out there will have to whistle until he/she can get grant money.
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My neice just mentioned him to me...sure i heard of him and i do believe in him....i read a lot about him with the FDa.they want to stop him...I have a dear friend who is a 26 yr.cancer survivor.first the breastS,then the colon and now she is on a trial med for the stomach.my neice who loves my friend very much wanted her to see Dr.B.She knows someone who went to him and is cured.does anyone know how much he charges???????Ill tell you...$50,000.00.....he does not take any coverage just plain old cash.I would go to him in a heartbeat with my friend who is suffering soooo much but who has that kind of $$$$$$$$$$???????
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Burzynski is a pioneer in cancer treatment & research. He's incredibly brave & brilliant.
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http://www.youtube.com/watch?v=S81PXHwjMAQ&feature=related
Burzynski is one man I will defend...he is a hero in cancer research!
I don't know how many of you watched the Burzynski movie. It's documented testimony, treatments, court cases and studies are all in the movie. It is real, moving and incrediable. I respect Burznski research and work. He's been through a lot and fought with all that he has to find a cure for cancer. BTW...no cancer treatment works for everyone...not even conventional.
Yes...his treatments cost a lot. Sadly the insurance won't cover alternative treatments that work. Keep in mind that conventional treatment cost far more. I know. When first dx with cancer (first two dx) I was self pay. When I first saw my surgeon, I was told that I would need rads and tamoxifen. The cost? Rads was $40,000. and tamoxifen for five years...way up there. I chose surgery alone which was about $60,000. when it was all said and done. After doing a little research I was glad I couldn't afford conventional medicine.
So...before you discredit Burzynski, please watch his movie and then tell me he is a quack.
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I do not think he is a quack!!!!!I have read many books on him and i think that the greed of the FDA etc.is stopping him.My friends woulld go to him in a heartbeat.she too has read his books and knows all about him....she has coverage for all her tx.and is drowning in debt.What does the person do if they cannot affort him??????no other choice but the conventional way....this is sad.
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Everything is out of pocket with him....I did 33 rads tx.it cost me 0 out of pocket.i have very good coverage and so does my friend....so where does that leave us??????...no choice but doing the rads.I certainly did not want it.i fought with all my drs that i was not gonna take it but in the end my family won out.im not sorry but i would have rather gone with Dr.Burzynski...Im not takin any of the ALs.I would love love love just to go to see him but his cost will never ever fit into my budget.My friend feels the same way I do.
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I think that all cancers are extremely complex diseases. From my research on Dr Burzynski, I would suggest that he may have found one of the components of the disease. However, it may not be the component that drives all cancers and is therefore not "the cure" that we all want. But what a remarkable advancement if it is indeed a step forward in the science of cancer. It does look promising.
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It sure does look promising....if you can afford it!!!!!
My neice works for a big co.the ceo got a very advanced cancer.dont know all the details but he went to him and is doing wonderful.he is NED....
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Cindy, many people using his treatments have already exhausted all other treatments so I don't see that it would be ethical to assign some to placebo. I can't understand why placebos are used instead of just comparing matched patients where a similar number are just normal patients using standard of care treatments.
For those choosing to use a new treatment with Early BC, why can't the statistics be compared to the statistics for matched patients receiving standard of care? It seems to me that these rigorous requirements for research are one of the reasons that research is so expensive and time consuming and therefore limited by finances and resources. Meanwhile masses are dying each year world wide. We need a cure first, then iron out the glitches later.
Edited to add, thanks for informing us what the objections are to his work. I did wonder.
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