May 2010 Chemo

Options
1…2526283031…91

Comments

  • Summer38
    Summer38 Member Posts: 253
    edited June 2010

    Fotopet - Great news!!! I'll have 2 oreos to celebrate with you Tongue out

    · Share on FacebookShare on Twitter
  • paxton
    paxton Member Posts: 577
    edited June 2010

    Well, I went in today and my onc said she felt I needed the week off so no tx.  I cannot say enough about how this lifts my morale.  It sucks that it will add another week to my tx schedule but at this point I think it was the right choice.  Now I can enjoy the 4th weekend.  DH's family is roasting a pig out at the campground.  I'm really excited.  Onc said she's going to switch my schedule from every 3 weeks to weekly to see if it lessens the SE.  I sure hope so.  If not, maybe I can get as much tx in as possible before I say go to hell and don't go back lol. 

    My little guy turned 11 months today.  He said two new words since last week.  One is "sweep."  He goes over to the broom and says, "sweep" about ten times in a row.  The other is "shoes."  He likes to be walked around and put his feet in everybody's shoes and say, "shoes, shoes."  My dad is flying up next month and they'll be having Gage's first bday party out by the lake.  I sure hope SE's are better or I won't tolerate being there.  :(

    · Share on FacebookShare on Twitter
  • Irishtess
    Irishtess Member Posts: 102
    edited June 2010

    Hello to all you brave and gorgeous women!  I've been away for 2 weeks ~ nothing glamorous, just work and a rough time after my 3rd treatment (AC).  After the first 2, I started feeling better by Day 6.  Not so this time!  (Wicked headaches, gastro issues, overwhelming fatigue).  So I've been in a real funk (yeah ~ I'm dating myself big time by using that word!).  njbhwgirl:  I know exactly how you feel ~ no boobs, no hair, feeling sick a lot of the time.  It's no wonder the tears come.

    Around Day 17 or 18, the tiny head hairs left after the buzz cut started falling out, so the husband shaved my head.  At first, it felt great (smooth) ~ now, my head feels like 800 grit sandpaper!  I decided against a wig (I've always been a hat person), so I've been using scarves for work, caps for walks (trust me, that's not been an everyday thing, although it should be!) and nothing when I can!

    I just caught up on the last 2 weeks of posts.  My heart goes out to everyone who's had scary reactions, hospital trips, and just plain "enough is enough" of this.  Thanks to bbd & maltomlin for the encouragement, & welcome to Lisa and Kristin.  Congrats to Sunflower for finishing chemo, and to everyone else who's moving on to the next tx phase.  My last encounter with the "red devil" is this Friday!  Then on to 4 bi-wkly treatments of Taxol (Summer:  I think we're on the same schedule), then radiation (4 wks).  Fotopet: I have the same eye tearing and nose running ~ it's constant.  LauraM:  I see that you're being treated at Sloan - so am I.  Who are your docs? 

    Sacphotomom:  I still have a lot of post-mast (bi-lat) pain.  Over the last several weeks, it's felt like I have a boa constrictor around my chest!

    patricia48:  Did you get your thyroid scan results back?  Hope it's nothing.  Pre-surgery, something suspicious at the C-4 level turned up on one of my scans.  An MRI confirmed it as a hematoma - a bundle of blood vessels.  Maybe that's what going on.

    Nana, Day, Drim, Paxton, Jenny B, cleob, Leanna, Kim, packjen, Golfergirl, MNLLinda, LibraryJenn, & everyone else in our not-so-little group:  Thanks for sharing your experiences.  There really are angels on earth who help make this awful journey a little easier.

    · Share on FacebookShare on Twitter
  • Summer38
    Summer38 Member Posts: 253
    edited June 2010

    Irishtess & LauraM - I go to Sloan too! My surgery & reconstruction was/is all done in NYC and my chemo treatments are in Commack (Long Island).

    · Share on FacebookShare on Twitter
  • Redbarb804
    Redbarb804 Member Posts: 299
    edited July 2010

    Fotopet:  Congrats on no reactions!!!  That is awesome.

    Sacphotomom:  I am sorry to hear about the boat.  I hope you find something fun to do this weekend. 

    · Share on FacebookShare on Twitter
  • sacphotomom
    sacphotomom Member Posts: 366
    edited July 2010

    Woo hoo no more shots or pills this week both blood counts are back to normal levels..

    Cant wait to have a cool Gin and Tonic....

    We have everyone that was going to meet on the river coming over to our house to Bar B Q instead.. its going to be so fun. Good thing the house is very clean..I am so excited...Cant wait to see all my cousins and my brother is coming from Colorado....this is going to be fun..pot-luck so no cooking...

    Summer38 Irishtess and LauraM...  Wonder if you all passed each other in the hallway?

    · Share on FacebookShare on Twitter
  • x-raygirl
    x-raygirl Member Posts: 373
    edited July 2010

    I'm glad I found you guys!  Please add me to your list.  I started chemo on 5/13  TC x 6 - every 3 wks, then radiation 5 or 6 wks.  Thanks - can't wait to read all your posts!  

    · Share on FacebookShare on Twitter
  • patricia48
    patricia48 Member Posts: 121
    edited July 2010

    Good Morning May Warrior Women!   Welcome x-ray girl.  This is a great place to get inspiration, information, courage, and compassion.  No one understands like we do.  Sacphotomom- I am so glad you get to have fun this weekend and glad  you need no pills or shots this week.  Have one of those Gin and Tonics for me.  It will need to be virtual, as I cannot tolerate alcohol right now.   Ha.    I  just returned from my walk.  I can walk 30 minutes without stopping for the last few days before my treatment , then  the two week cycle is up and it is back to walk ten, rest, walk ten.  Anyway, I am glad I have these days to remind me that my body is only weak because of the treatment, not the cancer.  We all need to remember this.  This is my first treatment going home  by myself.  My DBF is not able to be with me. He is ill.    I do have lots of friends I can call to come over, if I need them.    My thyroid scan will not be done until after this treatment today, (my last A/C) and before my first Taxol.  So thanks Irishtess for asking.  I will be thinking of you tomorrow. I know we will both be glad to finish with the red devil!  Ha.  Hope everyone has a good weekend.    

    · Share on FacebookShare on Twitter
  • fotopet
    fotopet Member Posts: 91
    edited July 2010

    I worked a fourteen hour-day yesterday.  Bad idea, but at least it was productive.  So, now I will go to my Pocono's hideaway and hibernate for the next few days while the nasties work their way out of my system. 

    My PS approved swimming so I am planning on trying the pool this weekend.  My place is in a nudist resort, so wish me luck diving in uncovered.  Lots of ladies there who have gone through thism with the resulting scars and they weat them proud.  So I think I can draw some strength from them.

    Sacphoto and Patricia 48 - I am with you on the nightmares.  Mine are mostly serial killers and weird monsters that no one believes are there.  Onco says steroids make them worse but just have to tough it out. 

    And Sacphoto - I agree.  My DH is wonderful with all of this buit sometimes I hate to worry him about things that I just need to vent and get out in the air.  Just chatting with all of you helps so much!

    Well - I will be off-line and hibernating until after the long weekend.  Everyone - enjoy the holidays as best you can! 

    Sacphoto - sounds like you have a fun weekend coming up.  Enjoy!

    x-ray girl - Welcome.  As long as my chemo brain doesn't kick in, I will add you as soon as I am done with this note. 

    Patricia - Great reminder that the weakenss is the TX not the cancer that we are so diligently chasing away!  It's a hard thing to remember right in the few days after tx.

    To those jealous of the ability to taste Oreo's - well it is gone now.  Back to cinamon toast and fruit smoothies for awhile  But the oreo's WILL return :)

    Irishtess - I seem to be getting some relief from the tearing by, of all things, adding artificial tears! Doesn't last as long as I would like, but it will soon be over, right?!?

    Paxton - sounds like you and your body both needed the break. relax and enjoy your family!

    · Share on FacebookShare on Twitter
  • njbhwgirl
    njbhwgirl Member Posts: 295
    edited July 2010

    I'M BACK!!!!

    wow did the 4th AC kick my butt.. started on the 5th day. I actually passed out in the kitchen. Thank god granddaughter was on other side of the room. Went to hospital and they said it was chemo induced vertigo. ONC concurred. It is now 1 week since treatment and I am still dizzy and I have no energy and lucky if I can walk a block...whew....

    now on to Taxol...I told the onc if I feel like this after round 1 of Taxol,,I am done.. I am taking the high road.. I cannot keep this up.... There is nothing I can take,,.just some meds for dizziness which give you constipation..oh great.....

    xray girl,...sorry to welcome you to these boards.. glad you found us.

    Paxton: glad your happy with the extra week. One part of me wants to recoup and another just wants it all over

    Sacphotomom: I'm thinking maybe I need multiple drinks to bring me back.. ENJOY yours

    for all you girls at Sloan...my ps is Dr. Disa. surgeon was Dr. King..anyone else have these 2 doctors..I just finished my 5th TE yesterday and will not have to go back to July 23rd. YEAH.for anyone at this hospital doing the exchange, book your surgery now.. I just got a first date of November 22nd...so they are running quite a few months behind.

    Have great day ladies!!! NO SE"s NO SE'S   NO SE"s

    · Share on FacebookShare on Twitter
  • sacphotomom
    sacphotomom Member Posts: 366
    edited July 2010

    OK so yesterday when went in for the blood test I ask once again do I have to do anything before my  first treatment of Taxotere...they said just take the 2 Dexamethasones the night before...I told them of my worries about infusions SE's and they said they will start with 1 hour drip and watch for SE's..they will be giving me the usually round of premeds too..

    My question to you all on Taxotere..how long was your drips?   and did you all take Amend in addition to dexa for nausea?

    X-raygirl....This is a great group ...feel free to express all your anxiety's and anger and frustrations! and dont forget your happy thoughts too!

    · Share on FacebookShare on Twitter
  • sacphotomom
    sacphotomom Member Posts: 366
    edited July 2010

        Ok so I wouldn't want to be accused of not sharing!                 

                                                         sharing a G and Tbb

    · Share on FacebookShare on Twitter
  • Drim
    Drim Member Posts: 302
    edited July 2010

    Hey everyone!!! Once again it's been ages since I've posted. I have, however, been trying to keep up with everyone. I will probably come back soon and post again when I get out of work but I did see that some of you were starting Taxotare so I wanted to throw my 2 cents in since I've now been through 3 rounds of TC and still doing well (including the hair on my head). The only issue I'm really having is bloating so I need to get back on the probiotics.

    I have been fortunate enough not to have allergic reactions to the T. My infusion time the 1st time was 1-1/2 hours and now it's 1 hr. since I don't get reactions. My premeds include Dexamethasone, Pepcid, Benedryl and Aloxi. What I've been doing during each T treatment is to bring bags of frozen peas and put one on my toes and stick my fingers in the other. This is supposed to help with nail changes and neuropathy (although Taxol is supposed to be worse with these things). The other thing I do is to suck on ice cubes (big ones that hardly fit in my mouth at first). The one time I didn't do a good job with this my tongue felt like it was burnt so it seems worth trying.

    Like others have said, if you feel anything, let them know and they will slow the drip.

    Good luck to everyone!!!

    · Share on FacebookShare on Twitter
  • sacphotomom
    sacphotomom Member Posts: 366
    edited July 2010

    Drim.... Thank for all the info on TC  ..is the C Cytoxan...because I had reactions to Cytoxan, really bad sinus issues it had to be dripped for over an hour...So glad to be done with that... I will just be having Taxotere..every 3 weeks... What is Aloxi? I have been sucking on ice cubes with the AC drip mostly to get the tastes out of my mouth....

    Again thanks for the info.

    · Share on FacebookShare on Twitter
  • Shrek4
    Shrek4 Member Posts: 1,822
    edited July 2010

    Here I am, tomorrow is my 3rd tx and I can't sleep. I took benadryl to no avail. Truth is, I had to take the steroid. I'll be a wreck tomorrow.

    sacphotomom, I take the steroid too, and I get two more in the IV before taxotere, in the bag with the anti-nausea med, and then another separate one. The first time, they have set the Taxotere at 300 (ml per hour) that would have made the taxotere be gone in an hour. It took a whooping 7 seconds for me to get the adverse reaction. The second time, they've set it at 150ml/hour, it took about 2 minutes for me to get the reaction. It seems I don't get a reaction only when it's at 100 ml/hr, but that makes for over 2 hours for the Taxotere only. The Cytoxan I have no issues with, I think they set it at 500 ml/hr, it only takes 40 minutes for the whole bag... But considering that I take benadryl the night before, the morning of, a Claritin the morning of, and then I get Benadryl IV, probably that is why my sinuses are all nice and behaved.

    · Share on FacebookShare on Twitter
  • x-raygirl
    x-raygirl Member Posts: 373
    edited July 2010

    sacphotomom ~  thanks for the welcome!  I wanted to tell you that my onc. has me taking dexamethasone 4mgs. 2 tabs twice daily the day before, day of, and day after tx (that's 12 tabs!) along with a drip as well before the taxotere.  From reading about the SE you guys have written about, I now get why!   I guess I'll take the puffy face over the SE.  Has anyone else put on extra weight?  I'm up 15 lbs and not happy about it.  Would help if I watched what I ate and cut out my 2 nightly glasses of wine - do they have to take that away from me as well?  Is it not enough that both boobs are gone, hair's gone, and my life has been turned upside down?  Having said that, I have really been overwhelmed with neat blessings in my life since dx - the love and support around me has blown me away!!!!!!  I feel so blessed - and yet there are times, like last night that it all sucked!!  Glad I found this group - really need someone who "gets" it right now.  Thanks for being there...   ~  Daiva

    · Share on FacebookShare on Twitter
  • x-raygirl
    x-raygirl Member Posts: 373
    edited July 2010

    Day ~  good luck with your 3rd tx.  I just had my 3rd and it did me in.  It wiped me out way more than the first 2 did.  I have a tough time sleeping b'c of the steroids too.   Hope you have a smooth ride...

    · Share on FacebookShare on Twitter
  • x-raygirl
    x-raygirl Member Posts: 373
    edited July 2010

    Ladies, I wondered if I could fire off some questions?  Would love thoughts, input, etc.  Is anyone else out there having 6 tx of TC every 3 wks.?  Bloating and weight gain - any suggestions?  Any thoughts on implants after radiation?  My PS thinks chances of capsular contractures are over 50% - but I'm not wanting a flap - sx is so long and so is recovery.  My body will have been through enough after chemo, rads and reconstruction.  Though, a tummy tuck would be nice - I don't think there's enough for 2 decent sized boobs.  Re:  alcohol - I'm having a tough time giving up my nightly wine - it chills me out.  Honestly, I probably have 2 good sized glasses.  Last night I wanted to switch to tea or fresh juice, but I was in a funk and was down - so I sent my hubby out for a nice bottle of red wine.  Mmmm...   it seems up to 3 glasses a wk is ok - but I'm struggling with it.  What are you guys doing to help you relax - esp. in the evenings?  Also, is anyone craving sweets?  I've gone up a pant size and I look pregnant :-(   I put a lot of effort into watching my attitude, reading inspirational things, keeping a check on my thoughts, etc...  somehow, very little discipline over caloric intake.  Lastly, anyone in the group go to Hopkins? oops, I lied - one more thing :  is it possible to go through all this and stay connected sexually?  My poor husband!  I'd love to hear your thoughts and suggestions.  thanks...  ~  Daiva

    · Share on FacebookShare on Twitter
  • patricia48
    patricia48 Member Posts: 121
    edited July 2010
    Good Morning all,  Hi X-ray Girl, I think I can share a few of my experiences with your concerns. I have really struggled with my sexuality.  I had no (zero interest) for three months after my diagnosis.  My very sweet and sexual significant other(Boy friend does not seem right at age 62), has been very, very understanding.  We had a very great sexual relationship prior.  He has done everything right, from embracing (truly physically and emotionally) all the changes in my body and reassuring me that I am beautiful and that he desires me...etc.  Still the change was within me.  I could not process all that had happened and my grief needed time to work itself out.  I am just beginning to feel sexual again(nothing like my previous self),  but who can feel sexual with all the changes, side effects, etc?   It takes time, and talking about it is so important.  Thanks for bringing it up here.   Hope this helps someone...it helps me to talk about it.   Anyway I had my last A/C yesterday before starting 12 weeks of taxol.  My hemoglobin was down and I am scheduled to have a blood transfusion on Saturday.  What a surprise.  I have been feeling so strong.  This journey is so filled  with ups and downs. Anyone else have a transfusion? I am sorry I cannot recall, but I believe someone did.  I wish I could have gotten past the A/C without this, since the Taxol is unlikely to cause this(so my nurse said).  I hope we all keep our spirits up.  I am dreading the weight gain from the steriod.  So far I have maintained my weight by walking, giving up sweets(not easy) and alchol(I adore wine and beer with meals  but I could not do alcohol now, due to the nausea, it does not even sound good) .  I do understand how it is so hard to give up so much.  We all have days where our positive attitudes slip because this is damn hard.  Some days I just get angry that anyone has to endure all of it, and for so long.   But I try to remember that my body needs all the comfort and love it can get, and I move on....we all are moving forward.  Love and Healing to you all,  Patricia
    · Share on FacebookShare on Twitter
  • DancerMel28
    DancerMel28 Member Posts: 122
    edited July 2010

    Hi Girls,

    Just got home from my final chemo - my Onc let me keep going with the Taxotere (thank god!) BUT guess what??  I DID NOT REACT!!!!!!!  Save the best for last I guess.  I didn't have any extra steroid or phenergen to begin with so I was sitting there expecting it to happen - but you know what the nurse did today that they ahven't done any other time?  Started the drip SLOWLY and then gradually increased it - worked like magic!!  Now if they'd done that the 2nd and 3rd time I may have avoided those reactions - benefit of hindight I guess.

    sacphotomom - I too was worried - my onc decreased my dose of dex to just beginning the NIGHT before instead of the morning of the day before, but when the pharmicist gave it to me he said that the dosage wasn't decreased by much so wouldn't make much difference.  I think it may've helped with the rash that I had the first time which I didn;t have the 2nd or 3rd rounds. With my expereince it didn't really matter what they gave me before hand - I think if you're going to react you are going to react - all three times for me as soon as they gave me extra meds then restarted the drip I was fine. It's scary the first time but the nurses know exactly what to do to fix it.  My body handled it a lt better today with no pre-meds but a slower drip so go figure!  TIme wise - the first 3 took prob 1 1/2 hours or so as mine was stopped in the middle each time due to my reaction and they had to wait before restarting, today it only took about an hour. apparently T is one of the longer ones I think?

    xraygirl - I've had 4x TC and have had the steady weight gain each round grr!!!  Unfortunately because of taste issues I find I'm attracted to ANY food which has a strong sugar/salt taste which is all the food we probably shouldn't be eating.  I'm resigned to that fact that due to some fatigue and the fact that I'm not working at the moment means I'm definetly not as active as I usually am - I'm hoping now that i've finished my last one I can slowly build myself back up with my fitness and hopefully (fingers crossed) I can lose the weight again.  I find taking the colxyl and keeping on top of constipation helps with the bloating a bit - but it's mostly from the water loading unfortunatley.  Sorry not much help!

    · Share on FacebookShare on Twitter
  • Summer38
    Summer38 Member Posts: 253
    edited July 2010

    X-raygirl,

    I can relate to almost everything you've written! I just had my 4th AC treatment yesterday and I wanted to cry when the nurse weighed me!!! My doc also has me on the same steroid regimen as you and I have gained almost 20 lbs! I constantly say it is so unfair - take my boobs and hair and now make me fat!!!??? I will admit I'm pretty vain in general so this doesn't help. I was walking every morning up until tx #3, but since then I have lost my stamina/will.

    I have TE's now and will be having radiation and then implants. I've read that contracture is about 50% also. My PS said I only had enough belly fat for a small A and I need 2 B's/C's - of course that was before the weight gain! You can follow the Exchange City thread on this board and there is so much info on there regarding exchange choices.

    I have also not given up my wine - at least 1 glass a night, usually over a few hours sipping though. I don't usually feel like it though the first 3 days after chemo. Then there are some days I may have 3 LOL. I'm not willing to give it up - It helps me to "de-stress". Smile

    I have also had issues with sexual desire - by this I mean non-existent! My husband has been a SAINT!!!!!! I know, he still finds me attractive and is not bothered in the least by all my scars, etc but I'm just not feeling it at all. I wish I had the answers but I don't Sorry! Patricia - thank you for your insight on the topic.

    DancerMel - Congratulations on being done!!! So glad you had no reaction.

    NJB - I hope you are feeling better! Sloan Sisters- My PS is Dr. Cordiero, My BS is Dr. Heerdt and my Onc is Dr. Sugarman (in Commack, LI)

    I hope everyone is doing well and is able to enjoy the holiday weekend!Smile

    · Share on FacebookShare on Twitter
  • x-raygirl
    x-raygirl Member Posts: 373
    edited July 2010

    Thanks for the responses.  Summer38, someday we'll be back at a good weight and have a good "rack" - along with great hair!  My 3rd tx zapped me - stamina and will too.  I'm going out and getting myself some sexy new panties - maybe that'll cheer me up.  My question is how do I get to Exchange City thread?   I'm still learning to navigate my way around here.  

    · Share on FacebookShare on Twitter
  • KimLovesDachshunds
    KimLovesDachshunds Member Posts: 177
    edited July 2010

    Hi everyone!  Just a general note -- I was with one of my best friends yesterday and I took her to a Sunflower Field in Rutledge, Georgia since she can't handle the heat for this weekend's festival there.  Anyway, while we were walking there, we asked a lady to take a photo of us.  This lady touched my sleeve gently and asked "Breast cancer?"  I said, "Yes."  (Was wearing one of my scarfs.)  She said, "Me too, -- two years ago.  You will be fine!"  We talked a minute - -she was a wonderful person and so lifted me up -- her willingness to share and let me know life will be better.  She said that even when her hair got just a tiny bit back in -- she was thrilled at the wind blowing through the tiny bits of hair.  :)  Anyway, it helps to let others know our walk so we can be open to such love offerings.  As far as getting the chemo meds in, GO SLOW -- they need to send it through slowly -- to me -- it helps the body to process it easier.  I took the dex too and it has helped me.  I have EMEND to take the two days after chemo. 

    · Share on FacebookShare on Twitter
  • Summer38
    Summer38 Member Posts: 253
    edited July 2010

    X-ray girl, go to the Forum Index (top right of this page) and choose the following:

    Forum: Breast Reconstruction → Topic: Exchange City

    It's a really long forum but you don't need to read all the posts. Just jump to the end and ask your questions. There are so many women on there that are full of knowledge and willing to help!

    Let me know if you can't find it. I'll see you there. I don't post much but I do follow it everyday. I figure as I get closer to exchange I'll have lots of questions. My mind is too full right now.

    · Share on FacebookShare on Twitter
  • Shrek4
    Shrek4 Member Posts: 1,822
    edited July 2010

    I got my 3rd TC treatment. NO REACTION! They did the increased dose of steroid, start it with a slow drip then gradually increased it, and I was out of there in 3 1/2 hours. I couldnt' believe it.

    I'm very tired and dizzy now (well, with not sleeping well last night, a benadryl pill in the morning and a benadryl drip in the IV ... figures.

    I think I'll go take a nap and post later.

    · Share on FacebookShare on Twitter
  • DancerMel28
    DancerMel28 Member Posts: 122
    edited July 2010

    Hi Day - such a nice feeling not to have a reaction hey? I wish I had of told the nurses earlier to start slowly to see if that helped as I'd read about it in posts on here- I just presumed they had tried that, I must keep remembering not to presume anything!

    · Share on FacebookShare on Twitter
  • cleob
    cleob Member Posts: 20
    edited July 2010

    Hi Ladies.

    Had my 6th taxol treatment today and am glad that am halfway through in my first cycle. no major side effects (except hair loss).

    Irishtess; you are quite an inspiration,i like the way you are handling things.

    Patricia48: the taxol treatment may not have the same side effects as that of your previous one. My third treatment was skipped and rescheduled for the next week due to infection and low red blood count. i was also given a blood transfusion and have since progressed with my treatment.

    I was browsing lately and found an information on INTRAOPERATIVE RADIATION THERAPY(IORT) on www.cancercenter.com  on news and publications for people that may be considering radiation therapy after surgery.  i was thrilled to learn about this new procedure that administers a one time radiation during surgery and i have been told that my medical center has a member in the team looking into the new procedure. the simple fact that it cuts down on radiation visits is a cheery newsand that gives hope that this monster "cancer" will be demystified in no distant time.

    HAVE A WONDERFUL WEEKEND AND HOLIDAY.

    · Share on FacebookShare on Twitter
  • njbhwgirl
    njbhwgirl Member Posts: 295
    edited July 2010

    Afternoon All:

    feeling slightly better. Sometimes I feel like I just drank 20 cups of coffee but still fatigued. Weird feeling. Starting taxol next week and really really nervous... Does Taxol make you loose your taste? I have been lucky so far in that respect.

     Summer83: Hey wouldn't it be fun if you and other Sloan girls could schedule somehow our appointments the same day so we could meet? My next ps appt. is July 28th..how about you?

    I know what you mean about the weight gain, it stinks...

     Dancermel: Touche!!!! wow how greatyour done

    Day: glad you handled #3 Okay.. You've been having a rough patch lately

    going to fight the GSP in NJ now....almost worse than a treatment(lol)

    · Share on FacebookShare on Twitter
  • JennyB100104
    JennyB100104 Member Posts: 237
    edited July 2010

    Hi All,

    I've been going through a lot with family stuff and TXs so I haven't been here much. My mom is here...so far so good!

    I had my last TX (#4) on Wednesday, and it has really thrown me for a loop. I've been so sick this time! Ugh! But I'm done. In a week I'll feel better, right? And, most importantly, I'M DONE.

    Patricia, good luck with the transfusion. What was your hemoglobin #? Mine has been consistently in the 9's, but I think that's still above the # before a transfusion. Still, I feel dizzy and short of breath all the time--don't know if it's from the chemo or what.

    Weight gain--yep. I've gained 15 lbs and I'm so upset about it. But I'll just have to deal with that later, I guess.

    Anyway, it's nice to check in with everyone. Is anyone else heading in to radiation in the next few weeks?

    · Share on FacebookShare on Twitter
  • nanaof2
    nanaof2 Member Posts: 112
    edited July 2010

    Barb.I have heard something about the 5 day radiation.  I believe it has to do with the size of the area needing radiaiton. If you find out anything else, let us know.  I don't start rads until mid Sept.

    Pax, your baby sounds adorable, I age when children start sayings words.  I think I actually love something about every age.  Glad your are having a great weekend, roasting the pig and all.  You deserve a break and I am glad you are getting it.

    Tess, sorry to hear about your last treatment SE's.  I think some of this is cumulative.  I had a harder time this third treatment.  Fever,  etc.  just basically exhausted and very weepy.  Which is not me at all.

    Sacphotomom, Sounds like you are turning lemons into lemonade with your party.  Hope you have the best time ever.  And further down in the blog, that drinks looks delicious! Thanks for sharing....

    Xray girl, welcome,  you are sure to learn alot, and I have never heard any complaints of any kind. You and I are on the same plan, I started 5/10.  I have had three and my next is July 12. To answer some of you questions, yes, I eat more and attribute it to the steroids.  I crave salty more than sweet.  I also think the water weight is a factor and once this is over things may even out.

    Fotopet, sounds like you to have a fun weekend plan.  Enjoy and stay away from the 14 days.

    NJ Girl, passing out really, how scary and dangerous is that - just hang in there. The drs will work with you on getting through the SE.

    Drim, I am glad you are doing so well, this third TC did me in.  How many are you having?  My dr wants 6, but says we will see how we do after 4.

    JennyB, CONGRATULATIONS, you are done, I am so happy for you. You will be able to lead us down the path of rads......

    Hope eveyone enjoys the 4th of July, spending it with loved ones and not thinking about C.

    Judy

    · Share on FacebookShare on Twitter

Categories