June 2010 Mastectomy

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  • jillyG
    jillyG Member Posts: 401
    edited July 2010

    Welcome Cleijo.

    Happy Canada Day to all! It's Canada's 143rd birthday today so there is lots of activities going on and some fireworks etc.  Feeling well enough to go out for a few hours,  Rash is almost gone as well, so that is a HUGE relief.  The rash was worse than the surgery....by far!

    Happy 4th of July weekend to all the US ladies as well.

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  • 1marmalade1
    1marmalade1 Member Posts: 308
    edited July 2010

    lizzymack1:  You will do fine with chemo.  I did my chemo before surgery, and I did very well.  This little infection business isn't going to get me down!

    stlcardsfan:  Yes, I did chemo first too.  My last chemo was on \March 31, so it was at least 9 weeks before my surgery.  I was never offered a port (you should see the big-assed veins I have in my hand!), so I can't help you with any advice on that.  I, too, have Herceptin - my 8th will be next Wednesday.  I have never had a problem with the nurses finding a vein!   Regarding numbness - the whole area around my incision is still numb after 4 weeks - I suspect this is the way it will always be.

    Cleijo:  Welcome - you will find a lot of comfort and advice from the great ladies on these threads.  

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  • stlcardsfan
    stlcardsfan Member Posts: 466
    edited November 2010

    Thanks Marm for the response.

    I just remember when they were looking for a vein for the pre-surgery check, and also to hook me up to the IV before surgery, the comments of - oh you have such tiny veins! In that sense I am glad I have the Port!  

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  • jsmiley60
    jsmiley60 Member Posts: 204
    edited July 2010

    Welcome to the newbies! LAURIE - glad you made it through and on the healing path now!

    I had my chemo first and had a port put in before I started chemo. So glad I did! My veins are not very good.

    Thanks for the info about bras and possibilities! I will begin research and maybe some shopping. I also had a meltdown yesterday - that's weird that many of us did! I needed it though and then I slept like 11 hours last night! Yay! I had too many visitors today so now I'm exhausted again...lol.

    The shaving thing: my bs told me I had to use electric razor under left arm because all those lymph nodes were removed and there is a risk of lymphodema. With a razor razor there is a risk of cutting myself, causing lymphedema. I still have to buy an electric razor. Oh boy!

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  • Kitwe
    Kitwe Member Posts: 64
    edited July 2010

    Hi

    I'm a new oldie.  I was diagnosed with LCIS 4/27/07.  Lumpectomy and Tomoxifin -> Arymidex.

    May 2010 DCIS in right breast.  

    I had a double mastectomy June 23rd.  I feel like I am on a whirlwind.  I am having reconstructive.  I did so much rearch that I'm not even sure exactly what I'm having.  It is implants.  Hopefully I get my second drain out tomorrow.

    I am sore but I have great grown children who have scheduled themselves to me.  I can only imagine having babies or toddlers.  It must be tough. (Can't wait for the grandkids)

    I thought I would be back to normal by the start of school. (I think I may have just expected it.)  I am sore moving but it doesn't hurt...do i push myself or layback.

    Is there any problem with driving?  I hate relying on people.

    You guys are so brave and wonderful.  Reading your words are anxiety provocating and reasurringly calming at the same time.

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  • Cleijo
    Cleijo Member Posts: 10
    edited July 2010

    Thanks for the welcome.  The recovery is slowly getting better each day. I am just blessed my BC was caught early and I count each day a blessing.  The post here are so real and I can relate to them.  Some make you want to laugh and some cry.  BC Women are amazing!

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  • RobinLM
    RobinLM Member Posts: 143
    edited July 2010

    Welcome to newbies Cleijo, Christine100 and Mellow.

    Jeanne, it's definitely meltdown time...... sometimes maybe you have to sit back and let it happen. We all try to hold things together and be strong - but sometimes you have to let it out.... Glad you are feeling better and had a good sleep - me tooSmile

    Liz, Sorry to hear you have to have chemo now, hopefully you will sail through that. Isn't it strange how treatments differ...... Jeanne had hers before surgery - I wonder why?

    Laurie, So glad to hear from you, it's lovely  that you were allowed a special little visitor, just what the doctor ordered. Hopefully you'll be out soon and let us know how you are doing? Your little lad will be delighted to get his mummy back home Smile

    Robin

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  • Laurie08
    Laurie08 Member Posts: 2,891
    edited July 2010

    just a quick update.  I slept great last night and was very comfy in my bed with the sleep wedge.  Had a lot of fluid this morning in the drains, 70 ml on one side 60 on the other.  Hubby is doing great with emptying them and taking care of me and the kids.  Although he is a little frazzled today, but just left to go pick strawberries with the boys, lol!  Not sure what possessed him to do it but hey!  I am not in much pain and am about to take just one percocet instead of 2 and snuggle back up in bed and rest. 

    I hope everyone is doing well and feeling good.  I skim read some of the posts but my mind is a little flighty at the moment :)

    Jacob is happy to have Mommy back home and is being very careful not to hurt my boo boo's.   This morning we laid in bed and watched cartoons with a pillow between us, 2 year olds never stop moving no matter how hard they try, and we held hands.  So we are figuring it all out slowly.  My youngest can't quite figure out why I am not picking him up- he is doing some of his best flirting and still I only talk to him.  

    I'll write more later when I can...

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  • almagetty
    almagetty Member Posts: 316
    edited July 2010

    Welcome, Mellow. I'm sorry you're having to face BC for a second time.  I see that you are in Florida, too. My rule of thumb for doing things is if it hurts, pulls or tugs, don't do it! Little by little things will get back to normal. My Mx was June 2 and I can tell you that it's just been in the past week that I've felt that I can do almost everything without pain or a pulling sensation. One thing I can't do is lean on my arm to lift myself out of the couch when I'm laying down, or push myself out of the car. That still hurts. I started driving again once I felt that my range of motion for my arm was close to 100% and when I could comfortably turn to look over my shoulder. Did you find your DCIS with a mammogram? I see that you took Tamoxifen after your LCIS. My onc wants me to start taking it now and I just can't decide what to do!

    Laurie: It's great to see you posting! I'm glad you're home. Your husband sounds like a great guy! How sweet is Jacob!?! I'm sure your poor little guy is sooooo confused! Sending healing thoughts your way ...

    Yesterday I realized that there are actually times in the day (more every day!) when thoughts of BC, my surgery and the TE completely leave my mind. A lot of the time, I forget about them altogether for extended periods until a movement causes a twinge, or I see an upcoming doctor's appointment on my calendar, or something like that. I guess that's progress, right? 

    Happy Friday!

    Getty. 

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  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited July 2010

    Welcome Cleijo...nice to have you with us although we are all bound by dubious circumstances at best Wink

    Where are all the June ladies?  Perhaps celebrating with the July crew?!

    I hope you all have a nice holiday weekend.  I, unfortunately, am very limited as to what I can do so I will be looking forward to more HGTV as it is supposed to be 95, hot and humid in Connecticut!

    Whatever you all do, take it easy-

    Liz

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  • in_cognito
    in_cognito Member Posts: 429
    edited July 2010

    HI Ladies!  Hope you don't mind - I am a July Mastectomy sister popping in to ask a silly question . . . I'm scheduled for a BMX with TE's on 7/16 - the instructions I have from my PS recommends going to a beauty salon for the first 2 weeks to have my hair washed and styled as I will have limited arm movement.  Does 2 weeks sound about right to go without being able to wash your own hair without help?  I'm trying to co-ordinate babysitting and all that since I have two little ones at home - so I would need someone to drive me to my post op appts and to the hairdresser if needed.  I typically wash my hair every 3 days - hubby says he'd wash it for me but would rather me go to the salon to relax and have them "do my hair up" - ha ha......  Do you think I can get by with salon appts for only 1 week as opposed to 2?  When were you all able to resume showering and hairwashing if you had a BMX?  Thanks so much!

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  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited July 2010

    Hello In_Cognito-

    The first week, hair is going to be the last thing on your mind!  You can perhaps attempt to go to the salon in week 2 but it is entirely feasible, drains and all, that perhaps letting your DH help you and then scheduling post-drain removal *pamper* sessions at the salon might be more comfortable for both you and the salon staff etc...   Also something for you to know: we are all different and I was able to wash my own hair 5 days after surgery without being distressed or in pain etc... ( could have been the meds!).   I was able to start showering 1 week to the day and I would encourage you to get a long, long piece of ace bandage (like 10 feet) and put it around your neck like a scarf.  Pin your drains to the very long ace bandage (of course marking sure the drains are comfortably pinned for maximum drainage) and then when you take a shower just hang your "Ace Bandage scarf" on a wall clip that your DH is going to put up for you this weekend!   This way you can shower and have some slack with the long ace bandage to wash.  Also, if you don't have one (and who doesn't?!) get a long, rope-like scrubber for your back because your back really needs a treat after all the surgery and bed rest!   A lot of women here opt to use nylons for the drains and everyone seems to be happy with that as well.

    I wish you the best and will be sending good wishes your way on July 16th.  You will be fine.   It is over before you know it.

    Liz

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  • 4LuvofZ
    4LuvofZ Member Posts: 12
    edited July 2010

    Hi everybody! I'm also part of team june - left breast mx on June 29, with immediate reconstruction. Feeling really blessed and lucky. My PS originally said would have to do an expander but got in and was able to do the implant (i'm a large B/small C before so we were all surprised). Had skin sparing, nipple saving mx and nipple biopsy came back clean (so far), and lymph nodes also negative. 

    I'm tired, and have some swelling and numbness under my arm, but figure that's par for the course .... The mx decision was tough but feeling now like it was the right way to go. Dealing with numbness, swelling, some pain, fatigue, and also trying to figure out how to shower!!!

    I've been following along for a bit now just was never sure what/when to post, but then just decided I wanted to say "hi" and thanks for all of your tips and positive thinking! This string and many others are helping me through a very difficullt time. You're truly an amazing group of women!

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  • speech529
    speech529 Member Posts: 337
    edited July 2010

    4LuvofZ, Welcome (such as it is!) to the June group.  I, too had a uni MX (right side) with immediate recon.  My BS spared my skin and nipple, too.  I am glad you have made it through to the other side.  It was a difficult decision to make for me too, but the alternative was radiation and I did not want to go that route.

    in_Cognito and Laurie08  big hugs to you both as you recover with your precious little ones by your side.  It must be so confusing for them that their mommy is in bed with "boo-boos".  My heart goes out to you and hope you are able to get all the help you need to focus on healing and helping your children adjust.  

    Cleijo and Mellow welcome to you...I am so sorry you are experiencing this all over again, Mellow.  Blessings to you as you go through the healing process.

    My own questions--I have one drain and so far the amount draining has decreased each day from 120 to 75 to 45 yesterday.  It is still red--kind of like cranberry juice color.  I thought it would change color along with getting less.  I am spending most of my time in bed or sitting/lying on the couch.  How far down should the drain hang for maximum drainage?  I thought it was the suction action that does most of the job of getting fluids out.

    Another concern I have: the nipple on the mx side is darker than usual--probably a bruise.  My breast tissue around this area is reddish but it does not hurt (of course not, the whole breast is numb).  I am not sure what is something to be concerned about.  I know they told me if it's hot and painful, to call the dr. I don't know if it's red due to the pressure on it...The incision looks fine, no swelling or drainage.  This is all new territory...anyone else go through these changes that are concerning but normal?

    Happy Canada Day to our neighbors to the North....Happy July 4th.  Have a great weekend!

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  • jblcsw10
    jblcsw10 Member Posts: 174
    edited July 2010

    Hello Incognito - I had BMX w/TE this past Monday - yeserday I was actually able to wash my own hair in the shower. I didn't think I would be able to but I pinned my drains to a ribbon around my neck, and was able to raise my hands enough to rub some shampoo in...DH had to help towel dry, and then I just let it air dry. But at least it feels clean.

    Mellow, Cliejo, luv4z, welcome to this awesome group. glad you found it.

    Today I am laying very low....my back/arms have been sore when I wake up in the morning (from sleeping in the same position all nite I think) & this morning it was so bad I took a muscle relaxer (had never taken one b4) and it pretty much wiped me out for the day. I figure I must have needed a quiet day..Actual pain from the surgery is really manageable now with tylenol, at least for today, but it feels so strange, numb and swollen under the arms, occasionally I have wierd sensations across my chest but not really pain.

    Hope everyone has a good weekend.

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  • stlcardsfan
    stlcardsfan Member Posts: 466
    edited November 2010

    Welcome in_cognito - on the hair washing front - I was able to shower 48 hours after bmx and ooph surgery. I used pantyhose to hold my drains around my neck, and another one around my waist so that the tubes would not get caught. I was able to wash my hair - didn't have much as I lost it due to chemo - at each shower. Had my mom wash my back as I couldn't reach there without pain. She also assisted me in the drying off as well. My PS and BS instructions were to keep arms below shoulder except when washing hair and brushing teeth.

    Also welcome to 4luvofz 

    Speech529 - my drains don't hang, never have, as they were attached to the straps of the compression bra when I woke up. The bulbs were then pinned to the front of my hospital gown so that I could move around in the hosptial. At home, I have the drains hooked by the bra straps first, and then the bulbs are in little drain pouches at mid-waist. I was told it was the suction that draws the fluid out. I have two left, and one is doing about 5 to 7 cc's every 12 hours, the other about 15 cc's every 12 hours. Color is like diluted cherry kool-aid which is what I was told it should look like. Foul, smelly, cloudy or tan drainage is bad and that is a sign of infection. So if you are still red, then that is good. Since I don't have nipples anymore, can't answer that part.

     jblcsw10 - glad to hear you are doing well. I too have had the weird pain in the chest area. Guess you call it phantom pain, It went away after a few minutes. I have also been using the muscle relaxer at night - one way to get a good nights sleep!

    Hope all the Juner's continue to heal! 

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  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited July 2010

    jbl-your arms might be sore from the shower.  You might also be tired from the shower.  I, too, have weird sensations across my chest but not pain....good times, good stuff!!!!!!!!!!

    Liz

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  • Kitwe
    Kitwe Member Posts: 64
    edited July 2010

    wow what a Dad/Hubby

    Glad to hear your doing better.  Kids r definetly the best medicine.  Mine are grown & still taking care of dear old Mom.  My baby came from Conniticut for surgery, my oldest is coming from Colorado this week and then my son will come from Maryland.

    Good Resting

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  • Kitwe
    Kitwe Member Posts: 64
    edited July 2010

    Hope you are feeling better.  I've been doing these bath showers.  I sit in the tub with the water running.  I always had shoulder length hair or longer hair but cut it pre surgery.  I cam wash my hair under the running tap while keeping an eye on my drains.  One drain in and one out -> got the OK to shower today,

    I, too, have some discomfort across by breasts (maybe where my nipple should be).   It is not constant but comes occasionally throughout the day since surgery 6/23.  Is this the phantom pain that is felt when a limb is lost?

    Are you using OTC muscle relaxers?  

     Does anyone have advice on the necessity of a bra ?  I had always hated bras but now feel i need one.  My mom has Alzheimer's, I bought her some front snap soft comfy bras.  I borrowed one to try.  I din't start the expanders yet.

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  • jsmiley60
    jsmiley60 Member Posts: 204
    edited July 2010

    Hey In_cognito, you may want to check with the doct, the plastic surgeon. Mine would not let me shower until all drains were out which was almost two weeks, so I had friends/family wash my hair in the sink until I could do it in the shower.

    I did too much today...went to a couple garage sales, then a friend came to visit and we did some stuff, then went shopping for way to long........then another friend came and picked me up and she drove like a maniac and jerked me all over and the seatbelt killed me cause she kept slamming on her brakes......lol! Remind me not to ride with her again....she hit every pothole too at breakneck speed.......Okay I ought to sleep good if I can get comfortable! I definitely need to NOT do so much in one day.....What was I thinking???

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  • speech529
    speech529 Member Posts: 337
    edited July 2010
    jsmiley60 wow you made me tired just reading that....how did you do it? I can totally understand the desire to get out and around.  I am very active and this is totally unlike me to be at home doing virtually nothing.  Did your crazy driver friend not know what she was doing?  I hope you get a good rest tonight and take it easy tomorrow.
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  • reneemac
    reneemac Member Posts: 73
    edited July 2010

    I have a question for those of you back in your beds sleeping - I have not been able to comfortably sleep in bed since my surgery. I used to sleep on my right side but that's the side that was taken and my PS told me not to sleep on that side. I cannot sleep well on my back or left side; I wake up numerous times during the night. I have a recliner in the bedroom that I nap in and sleep in and don't have these issues, but 4 weeks post surgery, my DH is anxious for me to join him in bed again.

    Another bedtime question - when did you start having sex with your partner/husband after surgery, or have you? Mine is afraid that he will hurt me and the surgeon said to wait a few weeks... well, it's been a few weeks but I don't know what we are waiting for now. Forgive me if this question is too personal.

    Jsmiley, I take a pillow with me whenever I get in the car. It is very helpful for those nasty potholes.

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  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited July 2010

    JSmiley-

    your story was hysterical simply because I can totally identify!   I was supposed to be discharged 1 day later than I actually was so rides and everything were set up etc... but at 11 when my docs came in, and b/c they wanted me out of the big hospital b/c of risk of infection asap, and my progress warranted it, they said I could go home if I wanted to.  Now, of course I wanted to go home but everyone was working so just as my docs were leaving my room a good friend called and he is some years younger than me but we are very close friends.  He had the day off from work and so I said "oh yes, come and get me!"  Well, he was zig-zagging and the CT highways are not much to begin with and was hitting bumps and pot holes, tailgating....I was in the backseat 1/2 laughing, 1/2 whimpering!!!!!!  Finally I was able to explain and he felt bad and explained he did not realize etc... but it was so hysterical...in retrospect, that is!!!!!!!

    Renee-I live alone and although I have a boyfriend, he is not a live-in and my post-op pain has not really lit my fire in that department, per se (!), but as for sleeping in the bed, I have been in my bed since the night I got home surrounded by these fluffy but firm king size pillows and a bed rest pillow so you should be able to sleep in bed again.  I had a bmx w/immediate recon and although it has not been super comfortable, I have been able to get a good night's rest...until this morning that is!!!!!!  You might want to ask your doc about sexual activity but if you feel like it I think it should be ok but, I must tell forewarn you, I am NO MD!!!!!!   I am not licensed to dispense medical advice!!!!!!!

    Happy 4th girls!  I am going to watch "Just Friends" now and try to put myself back to sleep ;)

    Liz

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  • speech529
    speech529 Member Posts: 337
    edited July 2010

    reneemac I have a hard time sleeping on my back, too (prefer left side or tummy).  I have a comfy body pillow (5 feet long!) that I keep up against my back and I am sort of on my left side but leaning back into it.  It helps me to relax my back muscles and just sleep and it does not cause any discomfort in my chest (I had a rt mx with immed recon).   It puts me in sort of a slanted position.

    Since I am still recovering from a hysterectomy, there hasn't been any hanky-panky.  Not sure how we're going to handle it when the time comes.Undecided

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  • joystars
    joystars Member Posts: 95
    edited July 2010
    Hello again my beloved June sisters!

    Sorry I have not posted much lately but, as always, there's lots going on this way.

    Fortunately my recovery is going great, hardly have any pain in the arm apart from the ocassional pain in the back (which I defo believe is a consequence of using the bra with the protesis and my other breast growing). Stripes over my wound are still in place, the yellowish dark purple bruises are almost gone but mobility in my left arm is not 100% back... I find it really really hard to raise my arm  completely, moving it forward and back is fine tho.

    I wanted to share such special moments I had this day: MY 30TH ANNIVERSARY!!! Cool
    And really wishing to stay around as many more years as possible and to be able to celebrate each year saying: "YESSSS!!! Take that you damn disease, I'm still here and won't give up"
    Finally my mother and sister are here in Oslo, after a hassle trying to come. They are here to make me some company and help around. Husband baked for me a yummy yummy chocolate cake with peaches and got me three lovely presents, all of them thinking in our future baby. Just love it! and friends joined us to enjoy a delicious dinner, sorry I SO gave up on my healthy diet today.
    This birthday is so special, so much to celebrate: I'm starting a new decade, a new chapter in my life, I'm gonna be a mom, I'm fighting this crazy cancer (which took already a bit (BIG) part of me but won't let it take more!), I'm celebrating with my mother and sister again after three years away and on top top of this the love of all my friends, husband and family encouraging me to keep going!!!!  I'm blessed, I'm thankful, I'm here! Smile

    So all I can say is, join me, join me on this celebration of life! We all had our surgeries already and we all are on our recovery process, waiting to start our chemos or treatments (or to finish them) but we all are here, full of life and we'll be around with our families, friends, loved husbands.... I wish I could meet each one of you in person, to be able to have a chat with each one of you, to celebrate together because for me you all are true warriors.

    Anyways, as my birthday minutes are fading away... all I can say is I'm happy.

    Big hugs!
    Joy & Matt & baby 12 weeks who has parties in my belly! :)


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  • Laurie08
    Laurie08 Member Posts: 2,891
    edited July 2010

    things are going well.  I am sleeping comfortably in my bed.  I too was a side sleeper but have adjusted ok to being on my back with lots of pillows.  Friends stopped by today to visit for a couple of hours and I am paying the price now from just sitting up and talking while they were here.  My left side is much more sore than the right?  It is in the muscle under my arm going into my back, I think because of the drain.  Kind of weird because this was the cancer free side and not the SNB side.  I am also putting out more fluid on that side?  Anyone have a similar experience? 

    I feel like things are going really well, husband has already seen me completely on top and said he thought I looked good.  I don't care if he is lying or not- I love him.  

    Hope everyone has a great 4th!  Tomorrow my DH turns 40 :)  Somehow we have to have a fun day!

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  • 1marmalade1
    1marmalade1 Member Posts: 308
    edited July 2010

    Laurie08:  Glad to hear you're doing well - you must feel so much better to have it over and done with and be home sleeping in your own bed.  Happy B'day to your hubby!  I'm sure he's being a big help.  My hubby saw me the second day, and he spent 5 minutes trying to figure out just where the drain tubes run to and from!  Uh...hello?! - can we just get the drains empty and put the bandage on, please????  Jeesh!!

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  • Laurie08
    Laurie08 Member Posts: 2,891
    edited July 2010

    marm- ok- laughing my ass off!  I asked my hubby, why does my back hurt?  Are the drains in my back?  He says he's not sure and pulls my shirt up and starts to check it out- he says yha, more towards your back than your front.  He was so nervous and now it's "no big deal".  Men are funny.

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  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited July 2010

    Marmalade--your DH is very funny!  

    Laurie - glad you are doing good and so happy you are sleeping in your bed.  Me, too, since my first night home.  In any case, I can totally identify with you on the company thing: I get sooo knocked out from company.   Just today I had to get up for fedex then my friend came over with her kids (please...someone pull the fire alarm!) then another friend came over then my boyfriend wanted to come over and i had to draw the line as I am tired.  I took a shower and sleep is only around the corner.  Man, this operation really takes some coming back from...but alas we are!

    Speech: I would definitely call the doctor with any nipple changes/issues before it gets worse.  There is no sense speculating especially when the big fear with us mx/bmx girls is infection.  I hope you are feeling well.

    Liz

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  • jsmiley60
    jsmiley60 Member Posts: 204
    edited July 2010

    RENEEMAC: you may want to check with your ps about sleeping on your side...I have been doing it for at least a week so I would think you could sleep on your side by now. I just put pillows a little bit under my side and it seems to be okay. As far as the sex, I can't answer that....lol....I'm single.....

    Very sore today from all the stuff I did yesterday......took a big nap this afternoon, then went to a friends cookout and just sat there! Tried to take it easy. I hope I feel better tomorrow - I'm tired of not being able to do stuff.........How am I gonna go back to life?

    Oh! Got a sports bra and put these fiberfill falsies they gave me at the hospital in there and it worked well! And I can pull out some of the fiberfil stuff as I get more fills in my expanders. So I solved that problem! :)

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