Tykerb - side effects - HELP!

I know this is my first post here, and I just don't feel like taking the energy or the time to "introduce" and "get to know".  Forgive me, after 18 months of hell, I don't have much left for niceties.  Since February this year, the oncologist has prescribed Tykerb.  I continue to work full time, as I have since the beginning - but this drugs is kicking my butt big time!  

Back to the hard decision on the Tykerb. I have had nothing but problems with this drug.  I begged the oncologist to stop it and they ask me why would I consider stopping a drug that is keeping me alive.  The last two sets of scans show no evidence of progression and no evidence of disease.   (April and June; another set will be done in September). The Tykerb is worse than any of the sets of chemo I went through.  So tired, pain, nausea (vomiting in the AM), constant diarrhea, mouth sores, nasal sores, hair falling out, dizzy, vertigo, and basically a loss of will to do anything while taking the drug.  I truly feel that I can not live the rest of my life like that.  I stop it, and within 24 hours I feel better, no dizziness, no nausea, and I feel like smiling again.   Like I said, the doctors insist I continue the drug.  They tell me that if I don't the cancer will progress and it would be basically a miracle if I make it through the year.  (I feel that it is a miracle that I am showing NED at this stage!)  They tell me that if I continue it, my survival could well be up to 10 years or more.  But it is absolutely worse than any of the chemo infusions - I knew that I would feel better the next day or the next week on them.  With the Tykerb, I will never feel better.  The doctors also tell me that I should continue this drug until it stops working - so there is no end in sight.

I took it for a week to start, stopped because of this.  Tried again at a lower dose for a couple of weeks, and stopped again.  This cycle has been on and off since February.  

When I take the Tykerb, the side effects are immediate - the very next day.  As the days continue, the effects become more and more difficult to deal with and seem to escalate.  Each night, when taking this drug, I feel as if I am taking poison!  I stopped again last night, I couldn't bring myself to swallow the pills.  This morning - no dizziness, no headache, I feel like smiling, and my energy has returned.  Best of all my will to get up and "live" has returned.    Any ideas of how to handle the side effects?  Has anyone taken this for an extended period of time and had the symptoms start to even out or become more bearable?