Scan Results - Is This Lung Mets?

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Anonymous
Anonymous Member Posts: 1,376
edited June 2014 in Stage III Breast Cancer

Crap, my scan showed an new lung nodule from my last scan last year.  I called my onc office today and asked them to fax me my scan results from last week.  I read it and now I'm totally scared and confused.  I am going to put a call into my onc tomorrow.  This is what the first CT scan showed last May before Chemo began:

Comment: CT examination of the lung parenchyma demonstrates puntate subpleural nodule in the left upper lobe on image #8.  No other pulmonary nodules or infiltrates are seen.  There are no plueral effusions.

Last week CT Scan says:

Findings: Comparison is made with the prior computed tormography examination of the chest, abdomen, pelvis and PET-CT exam obtained on 5/11/09 ......... Minimal linear radiopacityis seen involving the anterior aspect of the left upper lobe which reflects post radiation change.  No confluent pulmonary infiltrates or discreet pleural effusions are seen within the lungs.  There is a relatively stable indeterminate nodule involving the superior segment fo the left LOWER lobe, best appreciated on image #24 of series 2, measuring 3mm in transverse dimension.  Continued follow-up is recommended.  Questionable subplueral nodule is also again seen involving the left upper lobe on image #7 of series 2, without change.

Now I'm really scared this new 3mm nodule is the start of mets, and the original nodule is now questionble.  Another thing freaking me out is that my onc when he ordered the CT Scan he wrote reason: Re-Staging.  Now I'm a mess.

  image

Barb

Comments

  • Pure
    Pure Member Posts: 1,796
    edited June 2010

    He wrote restaging so insurance would cover it.

    I am have a 3mm nodule and they donteven watch it-they said it was too small to biopdy and didn't feel it was anything.

    On top of that they told me that depending on my position on the machine this little thing may not have even showed up.So this nodule they found could have been there last time but b-c of the way you were laying on the machine didn't show up.

  • Pure
    Pure Member Posts: 1,796
    edited June 2010

    Also I had 2 of them one 2 mm and one 3mm and they said they were left over from probably a cold.  Did your doc call and say it was mets?

  • Alpal
    Alpal Member Posts: 1,785
    edited June 2010

    All my PET/CT orders say restaging and I'm already Stage IV! I do think this is insurance lingo. Keeping my fingers crossed that your onc tells you this is nothing to be concerned about.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2010

    The language is so confusing.  What is the "superior segment of the lower lobe" the word "indeterminate nodule".  Does that mean they haven't determined it's metastases yet, but recommend "continued followup"? 

    Pure and Apal, your words do make me feel a little better but I'm really totally wondering why this other nodule just is being seen since last year and on my left cancer side.  Ugggh this totally sucks always worrying about it spreading.

      image

    Barb

  • karen1956
    karen1956 Member Posts: 6,503
    edited June 2010

    Barb....sending you cyber hugs....I agree the language is confusing....try holding on till you talk to your onc....wishes for only good news and the saying that "no news is good news" applies here.  Karen

  • Pure
    Pure Member Posts: 1,796
    edited June 2010

    Those terms are describing the position of the nodule... I am so surprised they gave you the report without actually explaining them first. I hardly think if the doctor thought you had lung mets that he would say fax her the report without talking to you first.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited June 2010

    Is it from radiation?? They mention something about radiation damage. Not sure if that is the same nodule.

    Try not to read too much into it before talking with your Onc. They only recommend watching it, and do not say anything like "indicitive of metastasis" They did say it was indeterminate - so even they can't tell what it is.

     ((((Hugs)))), I can imagine how concerning it is. 

  • jenn3
    jenn3 Member Posts: 3,316
    edited June 2010

    I know it's hard not to read and reread all test results and plug in terminology into the computer, but if you can try not to let it get the best of you until you speak with the onc or nurse.  I agree with Jenn that if they thought it was mets they would have talked to you before giving you the report.

     Continuted (((HUGS))) until you talk to the onc.

  • Frankie_
    Frankie_ Member Posts: 422
    edited June 2010

    I agree that your Onc would have verbally discussed these findings with you if he felt it was something more serious. Radiation would create some damage to the radiated chest (lung). My rad onc told me that future CT scans would show change to the affected lung. Could this possibly be the case? Also, a CT san tech once told me that CT scans are sensitive that if you breathe or cough ever so slightly this could cause an issue with the image. Hoping you get answers real soon and you can put this behind you.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2010

    The way I'm reading it, the radiation damage is to the anterior aspect of the left Upper lobe. The "indeterminate nodule" that I'm worried about involves the superior segment of the left Lower lobe. Then it mentions the "questionable nodule" that was on last year's scan, was there before radiation, and that is also on the upper lobe. So It''s the new 3mm lower lobe nodule that's freaking me out.  My onc told me last week to call the cancer center for the results of the scan and the tumor markers.  When you call his office they give you a bunch of numbers to hit depending on whether you want to make an appt, "press 1"  if you want prescription filled "press 2" if you want test results "press 3" and blah blah blah"  I pressed 3 and asked them to "fax my scan results and have my onc call if there was a problem.  He didn't call, and I can picture him not calling unless the report specifically said mestastes was seen.  My report referred to the nodule as "stable and indeterminate"  So I'm going to call him tomorrow and ask him what it meansUndecided

      image

    Barb.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2010

    I forgot to mention, the onc nurse called and said my bloodwork was clear.  My tumor marker number was 26.

      image

    Barb

  • Kandy
    Kandy Member Posts: 1,461
    edited June 2010

    Barb,

    First I would like to send hugs your way. Now I hopefully can put your mind a little at ease. First of all I am sorry I didnt see this post sooner, I have been working. I am a CT tech, so I think I can clear a few things up for you. The nodule that is new is in the upper portion of the left lower lung. It is 3mm at its widest point. It appears to be stable and they are recommending for it to be watched. This all means that at this point they do not think that it is that worrisome. They typically say in the report how long they want to wait until it is rescanned. The longer they suggest out the less worrisome they feel it is. But they typically never recommend less than a 2 mo recheck. The other nodule that you originally had hasnt changed at all. That would mean that it probably is nothing or it would have changed in the year. Radiologist are very specific in their reports. If they thought it was mets, they actually state "worrisome for metaphysis". Or they may say worrisome and recommend biopsy. The other thing they might would say is to recommend PET scan. Like I said they are very specific so the Dr knows exactly what they need to do. Alot of people have nodules in their lungs and they mean nothing. They can tell by the shape whether it is worrisome just like on mammos they can tell by the way it looks on a film. Now to clear up a few things from the other comments. When you have a CT scan the xray tube travels in a circle around the body giving the 3 dimensional picture so it does not matter how you lay on the table. The position will not make a difference. As far as breathing and coughing it does affect the image. It causes motion on the image but certainly does not produce a nodule.Radiation damage is always a thin line right under the rib cage of the radiated side. It looks like scar tissue because of the damage to the lung. It is not a nodule. I really feel like right now you dont have anything to be really concerned about. I do hope this makes you feel a little better until you can talk to your oncologist. Best wishes

                                                                                                    Kandie

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2010

     Kandy  -  Thank you so much for the in depth information.  I've been tending to feel that if if had been something they would have definitely said so.  I spoke to the onc nurse today and she basically said the same thing you did, but because my onc left for the day she'll have him call me tomorrow.  I think they would not have said it was a "relatively stable indeterminate nodule" if it looked like a metastatic nodule.  Crap they knew right away with my breast tumor.  

    Sherri -  I know we all see everything as suspicious when it comes to this disease.  I am thinking a little more clearley today and am hanging on to the description of "indeterminate" and "stable"  What really got me yesterday was the fact that this showed up from my last scan as another nodule and on the left side where my bc was.  So I'm going to try to be more upbeat and wait until my onc calls tomrorrow.  Thanks

      image

    Barb

  • Bugs
    Bugs Member Posts: 1,719
    edited June 2010

    Barb,

    Hugs!  I agree with the other ladies..but a good talk with your onc will make you feel much better.  Let us know how it goes.

  • YATCOMW
    YATCOMW Member Posts: 664
    edited June 2010

    Hey Barb......

    I was just like you...... I had some small nodules after radiation and then a bit later another one popped up that wasn't seen before.......they watched it for a couple of years and nothing changed so they figure they are all benign.....this was back in 2005/2006

    sounds like you have the same thing.......I hope this helps!!!!!!!! 

    My friend told me once that if they turned us all inside out....there would be all kinds of bumps and lumps seen ...... it is just that most people don't have to do all of these scans so they don't get the opportunity to "freak" like we get too......

    Jacqueline 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2010

    Hugs to all  of you ladies for being there for me during this freak out time.  Today my Onc's assistant onc nurse called me and went over the terminolgy on the scan results.  Her take on it is that because it says it's "relatively stable" and "indeterminate" and that "continued followup is recommended" she doesnt think it is mets.  But she feels my concerns are completely legitimate especially because it wasn't mentioned on last year's scan with the other nodule that that is "also seen on the left lobe without change.  She's going to have my onc look at it and call me tomorrow morning.  So right now, so far I haven't heard anything other than that it's "stable" but I need him to explain to me if he's concerned or not about mets.  I know 3mm is tiny tiny, but so are positive cancer cells that travel to the lungs and until he talks to me I'm still so nervous.

    image

    Barb

  • lkc
    lkc Member Posts: 1,203
    edited June 2010

    Hi barb just logging in and seeing this. Jacqueline is right, we all have  things  in our lungs, can be scarring nodules, densities etc. ( lungs are after all just our bodies  "air filters")    What is  crucial is if they are enlarging. Stable means no growth., no change. , good.

    Also from last may to now if the nodule was " active it would be expected to have increased in size substanially.

    my bet is it's all good.

     take care!

  • ktn
    ktn Member Posts: 181
    edited July 2010

    Hi Barb~ I am an RN and was talking to a MD at work about scans today. She said they often use terminology that covers them if something happens down the road...they don't want to say clear so they say stable or continue to monitor. Of course liability is at issue too! She said these terms can be confusing to patients getting their results from their computers. She said she gets calls herself if things are bad so she can personally call the patient. Also a woman was there today with sudden pain and they worked her up for ovarian or uterine cancer. Turns out it was a ruptured cyst on her liver. She'd had scans years ago and they said she'd had these cysts for many years.The cysts are common and benign and she is fine. I think Kandy's explanation was really helpful. Due to BC we always assume the worst so all this is hard. It sounds though that you will be reassured tomorrow after talking to your onc!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2010

    Yes ladies,  you are all right!!! My onc called this morning and said he talked to the radiologist and does not want me to worry about the scans.  This is unchanged and stable from last year and nothing to be concerned about.  So I guess I needed him to tell me that.  I know me and I will probably still be worrying about it now that I'm aware it's there and each new scan will drive me nuts.  But for now everygthing is ok.  Thanks all of you!

    image

    Barb

  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited July 2010

    Barb -

    I'm so sorry about the scanxiety that you had to go through but very glad about your results!  And I really appreciate your asking questions because the info on this post is great.  It helps me understand some of the wording that I've been seeing on my reports.

    Keep rolling on!

  • Leah_S
    Leah_S Member Posts: 8,458
    edited July 2010

     Great news!

    Leah

  • caaclark
    caaclark Member Posts: 936
    edited July 2010

    Wonderful News!!!!!!!!!!!!!!!!

  • Bambaloos
    Bambaloos Member Posts: 85
    edited July 2010

    Fantastic results and great news!!!!

  • Pure
    Pure Member Posts: 1,796
    edited July 2010
  • Frankie_
    Frankie_ Member Posts: 422
    edited July 2010

    Barb,

    Whoohooo!!! Thanks for keeping us up to date.

  • karen1956
    karen1956 Member Posts: 6,503
    edited July 2010

    Barb....doing the happy dance for you :)

  • KerryMac
    KerryMac Member Posts: 3,529
    edited July 2010
  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited July 2010

    Barb,

    I have been w/out my computer for almost a week and I just saw your posts.  Damn, you have been through the wringer!  And I COMPLETELY understand.  All that medical mumbo jumbo---they really shouldn't give us patients those reports w/out the doc explaining it first.  I am just glad to hear the doc gave you good news!  Now, try to relax and enjoy some PEACE!!!!

    Love,

    Sharon Smile

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited July 2010

    Barb,

    I have been w/out my computer for almost a week and I just saw your posts.  Damn, you have been through the wringer!  And I COMPLETELY understand.  All that medical mumbo jumbo---they really shouldn't give us patients those reports w/out the doc explaining it first.  I am just glad to hear the doc gave you good news!  Now, try to relax and enjoy some PEACE!!!!

    Love,

    Sharon Smile

  • SunDiego
    SunDiego Member Posts: 76
    edited December 2010

    Just had a restaging PET/CT done for my wife, and the liver met is nearly resolved (SUV down to 2 from 10.8, and now about 1.12 sq. cm, down from nearly 12 sq. cm, or 90% gone!

    One part of the report is a bit unsettling, and Onc can only suggest she rescan in 8 weeks to really determine what's going on. In meantime, wife will do TCH another 3 rounds, bringing it to a total of 9 rounds.

     Here is the line from the report... would appreciate anyone who has had similar reports chiming in with their experience

    "Several new 3 to 4mm pulmonary nodules are identified including 3 in the right lung and 2 in the left lung, which are indeterminate, however metastatic disease cannot be excluded."

    Important facts to consider

    1. PET scan was also done and did not show any increased activity (realize that given size of 3-4mm the PET likely wouldn't pick it up anyhow.

    2. CA 15-3 tumor marker was down again... down to 20. (from original 1000). It has been down each and every time the past 7 readings. (CEA 0.3, CA 27.29 <40) 

    Onc feels it is most likely these are related to inflammation from possible cold or other benign reasons, however given the breast cancer has already spread to liver, nobody wants to rule it out completely.

    Any input? 

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