Stage III Chemo questions

Options
24567

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2010

    Thanks Jan, I'm starting my treatment on June 7, pretty nervous about that. At least the sooner it starts the sooner it will end. I'm a bit sad about loosing the summer ): wish it was during the winter when I spend a lot of time at home anyway. I'm from Vancouver and love to go to the lakes and do some rowing, hope that I will feel good enough to do some of that this year as well. Where are you from? Congratulations on your daughter's graduation!

  • mcsushi
    mcsushi Member Posts: 174
    edited May 2010

    so day 6 and i feel like the worst of round 1 is behind me; even the fatigue is lightening up. it hasn't been easy, but i'm still grateful to be getting through it fairly well. went back to work today for a half day. at first i wasn't sure i'd make it, but i dug deep and it felt great. it's good to know i still call some of the shots. thanks for all the encouragement!!!

    jan: i'm not sure about your protocol (FEC) but with AC it's pretty common practice to dose dense the treatments every 2 weeks instead of 3. it shortens my chemo from 6 months to 5 months and there seems to be evidence that is more effective. i go in the day after my infusion and get a neulasta injection to help keep those blood counts up. are you getting those injections?

  • jan-m
    jan-m Member Posts: 88
    edited May 2010

    Thank you KerryMac.. that is good news!! I have a wig to fall back on if I need.. crossing my fingers I won't. I'd probably feel pretty uncomfortable having to try it out for the first time at such a big event! Knock on wood I don't seem to be shedding yet!  Hope I haven't jinxed myself now.. lol just a little superstitious eh.

    Daniela, try not to be too nervous.. you will be in good hands & take your anti-nausea etc. according to directions and you will do great!  Honestly, I think we will all still have a great summer, my 1 concern is that I won't be able to swim.. I have a PICC (are you going to get one?) in and it can't get wet.. but I am going to look in to getting a cast cover which people use to keep their casts dry in the shower.  Saran wrap hasn't worked for me. I am in Lumby, which is east of Vernon in the Okanagan. Grew up in North Vancouver & also lived in Halfmoon Bay on the Sunshine coast. We'll have to get together sometime :)  Have you registered with the Victory program and with Pharmacare to get help with the cost of cancer drugs? If you haven't & want to, let me know.. I have the phone #'s.  Also.. the cancer society here loans out wigs and scarves etc.. my wigs are in really good shape & am able to get them trimmed to suit me.

    hahaha.. keep calling those shots Colleen!! Laughing  I am so impressed with you getting back to work like you have.. must have been nice to see everyone!!  How many days or 1/2 days will you do per week?  Glad you are feeling less fatigue! The shorter the term and more effective sounds good to me!!  Do you have a PICC/Port?  My blood work will determine if I get a shot of Neupogen (which must be the same thing as your Neulasta) My Onc told me to expect it at some point!

    Take good care!!

  • mcsushi
    mcsushi Member Posts: 174
    edited May 2010

    ok couple questions. so the decadron... anyone break out like a pizza and french fry loving 15 year old? all of a sudden i'm breaking out in pimples. it's like insult to injury. just wondering if anyone had this endearing side effect. also, wondering when the hairs are gonna start dropping. i'm only on day 10 but sometimes my scalp feels really tender or like it's sunburnt. 

    jan-m: i don't have much of a choice when it comes to going back to work. those bills aren't gonna pay themselves!! luckily, i have an incredibly flexible job and i work with really great gals. i'm immensely grateful. i'm a pastry chef at a small catering company so i can pretty much make my own sched. i try to work 25-30 hr/wk during my good weeks. my rough weeks i only work around 10. how are you feeling?! ready to tackle round 2?! Laughing 

  • kimber3006
    kimber3006 Member Posts: 586
    edited May 2010

    mcsushi - My face broke out horribly during chemo, too.  It wasn't quite as bad during Taxol and pretty much cleared up about 3 weeks after my last treatment. 

    I worked through treatment with reduced hours as well (plus I have a job where a lot of it can be done from home).  It was tough during AC, but much easier with weekly Taxol.  I'm still only in the office about 25 hours a week until I get through radiation.  I think it really helped me to keep in touch with my "regular" life, if that makes sense.  It was nice to lose myself in the job and forget about all this bc mess for a while.  Plus I don't have the rough transition from no work for months back to full time, and I don't have to fix all the mistakes a temp would have made while I was out - lol!  I'm so thankful I had the kind of job where I could do that.

  • janincanada
    janincanada Member Posts: 258
    edited May 2010

    Jan M plus others: I had FEC 3 and Taxotere 3 with Herceptin starting with the first Taxotere. Feel free to ask me any questions too; PM if you want. I didn't have much difficulty at all with the chemo. I walked, went of a couple of 4 day vacations between treatments, helped p[ack my daughter's house etc. I did take it easy the first couple of days as I was tired. Never stayed in bed or didn't get dressed but I could nod off watching TV or reading a book. Nagging headache too!

  • janincanada
    janincanada Member Posts: 258
    edited May 2010

    Odd.....my skin was the best it has ever been during chemo. Porcelein.....pores seemed to disappear and no dryness or oilyness etc.

  • Pure
    Pure Member Posts: 1,796
    edited May 2010

    my skin was amazing as well and I tend to break out easily so that was a welcome change. Ask your doctor about lowering the decatron. That helped me with my se's tremendously. Eventaully I had no decatron and I would go through the week feeling like I didn't even have chemo.

    Also< i took ginger in a pill form. I took no other meds.

  • Bugs
    Bugs Member Posts: 1,719
    edited May 2010

    Put me in the great skin during chemo catagory.  :)

  • mcsushi
    mcsushi Member Posts: 174
    edited May 2010

    *sigh* i didn't really have pimples when i was 16 so it really stinks that i have them at 31. oh well, right? not the end of the world by any means. i'll get myself some proactiv and just keeping on going, pimples and all!!! :D

  • jan-m
    jan-m Member Posts: 88
    edited May 2010

    Good luck tomorrow Colleen.. hope everything goes well for you!

    Let us know!

    What is happening with your hair.. I started shedding right on cue a few days ago!

    Thank you janincanada.. I will take you up on that offer! :)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2010

    Hi Jan-m,

    Sorry for the late answer,just realized that I have to put the thread in my favorites if not it gets lost among the other threads. 

    I'm encouraged by your words about the summer, I'm trying to get out of the mood of believing like the cancer is going to change everything and affect every aspect of my life in a negative way. I do manage to be more optimistic from time to time, and I hope that it will get better as the time goes. One of the good things that are happening is that my ex is taking my three kids for a three weeks vacation in August.It will be the first time since I had kids that I will have over one night away from them. I'm so excited about it!! three weeks real single life!! just hope to feel good enough to enjoy it to the max. Maybe I can do a short trip in the Okanagan Smile

    I did connect with the Victory program and next week will be wig hunting week (not really looking forward for THAT)

  • mcsushi
    mcsushi Member Posts: 174
    edited June 2010

    hey! i just got back from a nice holiday weekend in the country. i went home to stay with my family after my second round of chemo last thurs. it was nice to be spoiled! round 2 went pretty much like round one and the worst is pretty much behind me. my hair started coming out last wed night and by now it's almost all gone. even though you know it's coming, it's still traumatic... i was more upset than i thought i would be. hopefully, i'll get used to it soon and feel more comfortable with it. how are you dealing with it so far jan-m?

  • jenn3
    jenn3 Member Posts: 3,316
    edited June 2010

    mcsushi - the hair loss can be hard, prior to that you don't look sick, but losing the hair signals illness and everyone can see it.  It does get easier and you will get used to it. (((HUGS)))).

  • mcsushi
    mcsushi Member Posts: 174
    edited June 2010
    jenn3: thanks. the fact that i can no longer hide my illness is definitely one of the things bothering me most. today was my first day back to work since i lost the hair. my co-workers were great but when i went out for a delivery i just felt like everyone was staring at me :( i guess it'll just take some more time. one day at a time right?
  • apple
    apple Member Posts: 7,799
    edited June 2010

    you want to feel comfortable for yourself.. not other people.

    it's hard at first.

    good luck

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited June 2010

    Hi girls and welcome to the new ladies,

    I had 4 cycles of dose dense A/C every 2 weeks, then 4 of Taxol the same way.  Lost my hair on schedule and have hated every minute of it, especially when I kept my eyebrows/lashes until the last week of Taxol and then they almost all fell out too!  Blah! Good news is that they came back fast and furious, I'm actually plucking them already!   My head hair is SLOWLY coming in, but not long enough to go without a bandana or my wig.

    I had a plethera of se's but luckily none long term, and none that made me skip or reduce my treatments.  And the steroids were bad news for me during the A/C (they discontinued them for Taxol).  I was up almost everynight for hours at a time.  The only long term se so far is some neurapothy in my feet.  Hopefully that will go away with time.  Keep an eye out for mouth sores though, call your doc/rn right away if you get ANY ulcers in your mouth and get the "Magic Mouthwash" px right away.  It does help!

    Keep us posted on how you are all doing!

    Love,
    Sharon

  • jan-m
    jan-m Member Posts: 88
    edited June 2010

    danielaes:  I'll bet you can't wait till August!!  We have lots of great lakes around here.. lol hopefully we will get a change of weather and get a bit more sunshine to warm them up!  How did the wig hunting go?  Is your chemo still set for the 7th? 

    Haven't been on the computer for quite a while I have had a couple of complications. A blood clot in my PICC sent me to emergency on May 25th now I am on blood thinners for 3 months.  Thankfully am still able to use the PICC because the clot doesn't go to the tip :) The other thing that cropped up was an infection in my seroma.. Why do these things ALWAYS happen on weekends at night?? ended up in emergency for that.  My temperature went from 99.6 to 100.4 in 15 mins.  Am now getting intravenous antibiotics for that.. so between the blood clot and infection I have had to go to the hospital daily for the last 2 weeks.  My chemo was supposed to be on the 1st but because of my temperature & pain wasn't going away as it should have, it will now be tomorrow. I figure it's got to be smooth sailing from now on in!!

    Colleen:  Glad to hear your #2 chemo went well & that you went to visit family.. make plans with them for round #3.. pampering is good :) 

    I made it through my daughters grad May 28th WITH hair.. hair sprayed and not brushed out too much.. I guess it didn't look too bad Foot in mouth got my daughter to buzz it off on the 30th and yep I shed a few tears before she started. I've been going out with a scarf with a hat over top & have only just felt comfortable enough with myself to go scarfless at home.. oh my gosh I can't believe how white my head is underneath the fuzzies.. my family likes the fuzzies which kind of makes it a little easier.

    Take good care of yourselves!

    jan

  • mcsushi
    mcsushi Member Posts: 174
    edited June 2010

    hey everyone... been a while since i've checked in. had my 4th and last round of AC thursday. it feels like it was all a blur and i can't believe i'm half way done!!! i start weekly taxol infusions july 8th. looking forward to not having the nausea, decadron and nuelasta shots. i'm hoping the side effects get a little more manageable with the second half of this regimen (i've been told it should be a little easier). after round 2 i had to take a leave of absence from work. i'm hoping to return in the next few weeks. one day at a time i guess...

     jan, how are you making out?!

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited June 2010

    Hi mcshushi,

    Glad to hear you are DONE with that NASTY A/C.  It did a real number on me.   Taxol was definitely more tolerable, but of course me being a freak of nature I had some unexplained se's.  You will probably do just fine.  The only thing that bugged me (and I've heard the same from others) is that I made it almost to the end of the Taxol then almost all my eyebrows and eyelashes fell out!!!  GRRR!  The good news is that once the chemo was done they came back in really fast!  Keep us posted on how it's going!

    Sharon

  • jenn3
    jenn3 Member Posts: 3,316
    edited June 2010

    So glad you're done with the "red devil".  I did find Taxol to be easier, but like Sharon I seemed to have some crazy SE's from Taxol as well.   Even though Taxol did come with it's own set of annoying SE's I did find I felt a little better with Taxol than AC and there was no nausea with Taxol.

    Before you know it you'll be starting a thread that says, I am done, done, done.......

  • JENNA32
    JENNA32 Member Posts: 3
    edited June 2010

    wow you and I are really similar.I am so sorry I wish you the best. It is a long road but I am now 1 year into it. I was diagnosed at 33 and am a single mom of a 10 year old.I sought out the best cancer hospital in my area.I was diagnosed 2/4/9 surgery 2/27/09 1st chemo march 23 09.I had 8 rounds of chemo 4ac and 4 Taxol then seven  weeks of radiation.I am now on Tamoxifen for the next 5 years and they want to do a hysterectomy within the next few years.Stay strong!

  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited June 2010

    Just wanted to pop in this thread and show my support.  Keep those goals in mind whether their getting through the week or even just the day.  You'll get them behind you and get through this!  I hated the uncertainity of knowing what tomorrow would bring but I always made it through the next day and I had some tough ones.

    I've got two weeks of rads done and I'll be back on low dose chemo this week.  But I'm back to work, my energy is good, my attitude is positive and I'm enjoying my life.  You'll get through this!

  • mcsushi
    mcsushi Member Posts: 174
    edited June 2010

    thank you all for the support; you're wonderful!!! so what are some of these crazy taxol se's you all experienced??? give me a heads up!

    ~colleen 

  • clariceak
    clariceak Member Posts: 752
    edited June 2010

    Let's see.  Taxol was so much easier than AC, but it gave me the gift of bloody noses, temporary neuropathy, blackened nails and took away my eyelashes (2 weeks after treatment).  I never plucked my eyebrows after dx, so they thinned out during Taxol from the top and bottom but didn't completely disappear.

    What was amazing is that Taxol treatment went so much faster than AC.  You're on the downward slope to regaining your health.

  • JFV
    JFV Member Posts: 795
    edited June 2010

    Hi  Joining this group late.  Just had second does of AC last week.  Hair falling out and really tired.  Will do AC two more times then Taxol 4 doses 2 weeks apart.  Thanks for sharing all the info.  Need to hear from others that this is doable and they way I feel is normal.

  • Pure
    Pure Member Posts: 1,796
    edited June 2010

    I had a dry nose with the taxol. My se's we due to the steroids so I asked them to pull them. They gradually pulled them.  After that I had no Se's.  You will be to the other side before you know it!!!

  • sandiddstn
    sandiddstn Member Posts: 88
    edited June 2010

    Hello ladies... found this topic and I have a question.  My onco has flipped my treatments, starting with 12 taxol every week and then to the 4 adriamycin with cytoxan every 2 weeks and then 32 rads.  Has anyone heard of this before.  Just wondering.,.,.

    MCSUSHI- looks like we are on the same path.. You are a little a head of me.. Did you have a bilateral mastectomy also... I did and I still hurt a little.  Want to know if you do also?

  • JFV
    JFV Member Posts: 795
    edited June 2010

    thanks Pure  for encouraging words.  sandiddstn I had a double mast with implants done in  April.  Shoulder pain wakes me up.  I am still "tight" along chest by scars and under arm and have odd spots of pain and numbness.  Try to stretch and exercise frequently which helps.  Wonder if I'll ever be my old pain free self again.

  • mcsushi
    mcsushi Member Posts: 174
    edited June 2010

    my onco did warn me about the neuropathy. i play the guitar and i'm a pastry chef so she's gonna keep a close eye on that. didn't know about the bloody noses... my sinuses are already pretty irritated and dry (i had some allergic reactions to cytoxan) but here's hoping that's not something i experience. blackened nails doesn't sound too appealing either. compared to what i've just been through, it all sounds pretty manageable. i'm just so relieved to already be half way done! 

    sandiddstn and JFV i also had a blm (no reconstruction) back in march. i still have some tightness in the chest muscles and occasional soreness in my armpit, but it's nothing that some ibuprofen won't relieve. i stretch when it feels really tight and that always seems to help. healing can be a slow process but i just try and think of how far i've already come instead of how far i have yet to go. helps me stay positive... we'll all get there in our own time!!

Categories