An international resource Forum?

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  • Isla
    Isla Member Posts: 82
    edited June 2010

    Hi Musical

     Latte has directed me here - thanks Latte!

    You and I  are, at least given the distances on our international forum, next door neighbours! I live in Auckland, NZ - whereabouts are you?

    This Thursday I'm having my 2nd cycle of 4 x 3 weekly AC chemotherapy at Ak. hosp. I had a total mastectomy with immediate TRAM reconstruction end April.

    Feel free to PM me if you don't want your details on a public forum

    All the best to all our lovely international ladies 

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  • dreaming
    dreaming Member Posts: 473
    edited June 2010

    Most countries have a cancer association,just google in the language of your choice and you can find information, also you can get help from N.B.C.C. on how to form your own groups, 15 + years ago YME was the first to start lobbing with NBCC, we the cancer patients worked very hard to get were we are, many are gone, but now we are more aware of B.C. than 20 years ago.

    Many countries are ahead of us on the way the treat and the cost for this patients, while others are years behind. Also one has to take into account the cultural attitudes in many countries toward women.

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  • monisch
    monisch Member Posts: 57
    edited July 2010

    Hey Ladies and Gents,

    Im back from te Hospital  ( had the surgery 2 weeks ago). All went well and the area looks better than I thought i would. I have my final pathology report now and this i what it has in it.....

    C50.4, M8500/3, G2,pT1b(m),pN0(0/3i+, sn) L0,V0, R0, Stage Ia, ER-,PR-,Her-2/neu -

    I know what G2 means, and the triple negative, but what the heck sdoesthat other stuff mean. I've googled adn found some definitions but nothing that really satisfied my curiousity.

    I have an appt. with my gyno. on friday and then Im sure he'll send me direktly to the Oncologist.

    I know I have to get Chemo and Rad. therapy. Has anyone had this sort of Chemo and if yes how were the sie effects..what can I expect.

    Polychemotherapy  with Taxan, ( FEC/DOC)

    does anyone know what that is ??? 

    I appreciate any info yal have ...

    Thanks, Monica

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  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited July 2010

    Hi Monica:  Your onc is recomending the same treatment that many of us in Canada and Gt. Britain have received.

    FEC = Flouroracil, Epirubicin and Cyclophosphamide

    DOC = Docetaxel.

    I'm sure someone else will be along to decipher your path report.  Good luck and warm wishes!

    Linda

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2010

    Hi Isla, just got back yesterday from my prophy surgery on Tuesday. Feeling a bit wiped out but all went well with the surgery, though I had to fight off a bit of nausea and a headache. Im a lot better now, thank goodness. Smile   I'll PM you soon. It looks like this thread is already a help to those of us outside the US to connect and thats great. If I had any control at all in the worlds affairs, it would like to think it would be that no one, whereever or whoever they are, should face this monster alone and that they can get the best info possible for their situation.  How did your Round 2 go? I hope you are feeling OK, as much as it is possible with Chemo.  My sister had AC and was really crook the 1st day but was OK after that. They say FEC which is what I had, is a little "kinder" to your system. I didnt pewk at all but boy I felt at times like I was sure dragging the chain .Undecided

    Hi dreaming, where are you from, and whats NBCC?

    Hi monisch lovely to have you here, although sorry you have to put up with this like the rest of us . Yes some of your diagnosis needs deciphering, for sure! .The staging has to do with a collection of info like how "early " or advanced overall, the cancer is/was, tumor size how aggressive it is whether any lymph nodes are positive etc. Hopefully others much more knowledgeable than me will chime in.

    God bless all you ladies and gents too if youre reading!

    Musical

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