ER + / PR + / HER2-

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Dorothy12
Dorothy12 Member Posts: 28

Hello

Is there anybody here who has the same diagnosis?
IDC, ER and PR positive, HER2 negative, Grade 3, tumor diameter about 2,3 centimetres, lymph node involvement: only one lymph node (sentinel) positive out of 3, stage is unknown.
Please write something about your treatment and I would be curious wether you had recurrence or not. 

Thank you!

Comments

  • mslrg
    mslrg Member Posts: 293
    edited June 2010

    SImilar diagnosis--except that mine was a grade 2, and my tumor was a centimeter. I was diagnosed in September of 2009. I had a bmx, then four rounds of TC. I had my bilat recon on Monday this week.

  • mnmom
    mnmom Member Posts: 2,068
    edited June 2010

    PM on it's way

  • Carol913
    Carol913 Member Posts: 23
    edited June 2010

    Dorothy...

    Yes, I have a similar diagnosis (I guess you'll see it at the bottom of this post.)

    Right now I am waiting to hear from the Oncologist...for my first appt. with him/her. I have read where others know who their Oncologist will be before surgery, but that isn't the case for me. I think this has been the hardest part....waiting to find out just exactly what my treatment will be.

    Will I have to have chemo since I am IDC and Grade 3? When will me radiation start? I know these are normal questions...and I am most anxious to find out!

    Where are you in your treatment now?

    Carol

  • thegoodfight
    thegoodfight Member Posts: 560
    edited June 2010

    Dorothy12,

    Yes, our diagnosis are very similar................see my signature line below.  I had an Oncotype test and scored fairly low.............17, but I went ahead with chemo anyway.  Partly because I was grade 3 and because we did find another small lesion that was mostly dcis in another part of the same breast.  I was scheduled for TC times 4 but had a reaction after treatment two so I was switched to 6 weekly doses of Taxol.  The chemo, although not a party, was very doable.  You will hear that from most of the ladies.  I then went on to 33 or 38 radiation treatments ( I guess it is a good thing that I can't remember, sort of like labor and childbirth, lol).   I am now almost 16 months into my 5 years of Arimidex.  This for me has been the hardest part of the journey, with the most side effects.  But again, doable.  And certainly better than getting more bc.

    You should have your full pathology report soon.  Have you met with an oncologist yet?  Keep us posted and I wish you well.

    Caren

  • RIV54
    RIV54 Member Posts: 359
    edited June 2010

    Our dx are very similar. I had 6 rounds of TAC and 28 rads. I was on Arimidex for 5 months and had to switch to Femera. The joint pain was too extreme for me. I just had my 3 yar cancerversary in March. I'm doing well for the most part. I can't tell most of the time if the aches and pains are from old age or SE of tx. My best to you.

  • samsue
    samsue Member Posts: 757
    edited July 2010

    Same stats - and so confused since I met with one onc and we didn't mesh. Trying a new one in a week. The first didn't want to do any testing, blood or otherwise and wanted me to jump into the arimidex bandwagon. I'm now not sure what way to go. I did have a session with my accupunturist today and he agreed i would need to reduce the estrogen in my diet. I had early meno at 38 with hystro.

    Tonight I'm really hungry for chocolate in any form!

  • KeepingtheFaith
    KeepingtheFaith Member Posts: 60
    edited August 2010

    My stats are below and I am still waiting for my treatment plan. Meet with my oncologist Tuesday Aug. 3.

    Interested in hearing others treatment plans. I am wondering if chemo will be recommended or not, and if left up to me what I should do.

    Deb

  • thegoodfight
    thegoodfight Member Posts: 560
    edited August 2010

    KeepingtheFaith,

    I am glad you have your onc appt coming this week.  I of course am not a doctor, but I think just by the size of your tumor you will probably be a candidate for chemo.  The onc may suggest an oncotype test which will give you more info.  That being said, my tumor was 3.5 cm and my oncotype score was "low enough" that I could have considered opting out of chemo.  I decided to throw the book at the beast and did chemo followed by rads, and now Arimidex for 3 and ahalf more years.  Do not be afraid of chemo if you decide to go that route.  It is not a picnic, but for most of us it is quite doable.  You will find lots of support here with threads that are more specific to you once you decide on your treatment regimen.  Good luck with everything and let us know how you make out on Tuesday.

    Caren

  • KeepingtheFaith
    KeepingtheFaith Member Posts: 60
    edited August 2010

    Thank you Caren. After much thought, I will definitely do whatever seems to be likely to give me the best long-term outcome.

    I find myself to be very emotionally fragile at the moment. The smallest thing may upset me, I suppose that may be the cancer fear, anger and sadness coming out, since I don't allow it to come out at the cancer.

    I don't know which forum I said this on before, but I said what a great support group I had, and its mostly true. All my sistas on here, my friends and family and my special new friends, but my daughter is strangely distant. Really hurts. She has a new man in her life and right now that is all she seems to think about.

    Deb

  • thegoodfight
    thegoodfight Member Posts: 560
    edited August 2010

    I can't help but wonder if your daughter isn't in major denial and she is distancing  herself as a defense mechanism, both of which are totally normal.  I had a different experience.  I have two daughters and a son and I am very close to all of them.  My girls "needed" to jump on a plane and make sure I was really ok.  My older daughter had a 2 month old at the time.  My son, who is usually very attentive, did not come down for a couple of months, the weekend before I was starting chemo.  It took him all that time to digest his own feelings about the situation.  My point is................everyone deals with this in their own way.  Be glad she has the new man in her life so she can lean on him.  Give her time, and be thankful that you do have a strong support system.  She needs support too and for now she cannot turn to her mom.  You will all adjust and will stand together on this journey.

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