Yo -- metastatic only: what's your current chemo

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sherrold
sherrold Member Posts: 2
edited June 2014 in Triple-Negative Breast Cancer

The metastatic forum is huge, and 90% of them seem to be poz for something; I thought it might be more useful to talk amoung our triple-neg selves.

I'm just starting on four-week sets of Taxol/Avastin - Taxol - Taxol/Avastin - week off. The first week was horrible after...but now I'm beginning to wonder if it wasn't particially because I was still miserable from hi-dose radiation on my lower intestine (actually lower lumbar spine -- but there's no way to get the bone and miss the intestines).

I'd love to hear from people who've been on this, or similar regimes, and what your side effects have been.

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  • angelsabove
    angelsabove Member Posts: 363
    edited June 2010

    I just crossed over to the Mets World. I am now at Cancer Treatment Centers of America. I am on Avastin,Taxotere, and Carboplatin. I am doing this regimen every three weeks. Hopefully someone will come along and give you some information. Know that I am here if you need to talk.

    LOTS OF LOVE

    May God Bless Us All

    Diane

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  • angelsabove
    angelsabove Member Posts: 363
    edited June 2010

    I just crossed over to the Mets World. I am now at Cancer Treatment Centers of America. I am on Avastin,Taxotere, and Carboplatin. I am doing this regimen every three weeks. Hopefully someone will come along and give you some information. Know that I am here if you need to talk.

    LOTS OF LOVE

    May God Bless Us All

    Diane

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  • stephanief
    stephanief Member Posts: 200
    edited June 2010

    I am going to be starting taxotere and xeloda next week, keep you posted on SE

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  • vbgranny
    vbgranny Member Posts: 4
    edited June 2010

    I am on caroplatin and gemzar, two weeks on, one week off.

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  • LRM216
    LRM216 Member Posts: 2,115
    edited June 2010

    Sherrold:

    There is another wonderful website that I found and joined, prior to knowing it was only for those with metastatic cancer.  There are many triple negs on there and they have a wealth of info.  If my day comes and I too progress (am triple neg as well) - I will be there in a heartbeat.  Please check it out.

    It is Aspire.com.

    Wishing you nothing but the best.

    Linda

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  • Jollymom
    Jollymom Member Posts: 37
    edited June 2010

    I'm currently on Gem/Carbo/PARP at MDA.  I just posted that I'm now NED after 5 months 2weeks twice a week and  one week off.  Its been a huge uphill battle.

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  • tibet
    tibet Member Posts: 545
    edited June 2010

    JollyMom,

    Did you have any regular body scans afters the first dx? How big was your tumor in 06?

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  • my4kitties
    my4kitties Member Posts: 1
    edited June 2010

    Hi,

    I am on Avastin/Gemzar 3 on 1 off, was on Avastin/abraxane from Oct '08,

    til April '10. same schedule. At Cancer Institute of Fla. 

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  • imbell
    imbell Member Posts: 659
    edited June 2010
    Starting Abraxane July 6. Got an e-mail from the Minister for Health saying they got my e-mail and will be responding later to why we don't get Abraxane and Avastin in Manitoba. Retired so I have the time to annoy the politicians. This is my second round of chemo as I had a recurrence. First time was Adriamycin (also called Doxorubicin) and Taxotere. Severely allergic to suspension used to administer Taxotere. Port in on July 2nd. Couldn't do without it.
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  • justpayton1
    justpayton1 Member Posts: 786
    edited June 2010

    Currently finishing up 6 cycles of Gemzar/Carboplatin (mets dx March 15)

    My SE's have been min..some hair thinning, tiredness the week after chemo but nothing to keep me down. I have a platlets issuses w/ them dropping and have recieved blood and platelet infusions.

    After I finish I will be put on a maintance program w/ Gemzar alone..while I wait for a PARP to be released for compassinate use.

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  • hope123108
    hope123108 Member Posts: 58
    edited July 2010

    Jollymom,

    So happy to hear you are doing well, keep up the good work.  I am trying to recall if you were going to MD Anderson for a transplant.  If not where did you complete your treatment.  I am also triple neg, and always waiting for the shoe to drop. 

    Many Blessing to you and to all,

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  • tibet
    tibet Member Posts: 545
    edited July 2010

    hope123108

    May I ask what stage you have? I cannot see anywhere on your signature. Thanks.

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  • hope123108
    hope123108 Member Posts: 58
    edited July 2010

    I am stage 2a, clean nodes, however lymphatic invastion(that scares me).

    thanks

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