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  • Lilah
    Lilah Member Posts: 4,898
    edited June 2010

    Good luck Jayne -- so many women are so happy with their implants (of all kinds) -- I hope you find something that works for you.  Did you replace the gummies with the more traditional silicone?

  • JayneE
    JayneE Member Posts: 11
    edited June 2010

    thank you.  I did replace with the tradional silicone,  I do hope that they are better.  good luck to you it will get better

  • Lilah
    Lilah Member Posts: 4,898
    edited June 2010

    Thanks Jayne :)  I hope they are better for you! 

  • sweetie2040
    sweetie2040 Member Posts: 817
    edited June 2010

    BigApple-glad to hear you like it. I hope everything works itself out. So you get a flat stomach out of it too!

    I have a question for the US ladies. When you choose the gummies I understand you have to consent to be part of the study. I read the consent form and it said something about them requiring you to get MRI's at intervals as part of the study. Is this true? Does our insurance pay for this? Also it said something about being reimbursed for being part of the study. Not that I care about that part, but I want to make sure our insurance pay for these type of implants because they are still under trial. Any comments about the study or insurance? Also did any of you have drains with your exchange? Please say NO!!

    JayneE-thanks for sharing your story. So what you didn't like most was the firmness right? I am still in TE phase and leaning towards gummies.  How hard did they feel? Can I ask you about what size your went with. I had small dense breasts before BC so I never had much giggle anyway. I know round and gummies both have pros and cons,but trying to figure out what is best for me. I am more concerned about shape and appearance than firmness.  I did hear the rounds will be softer and move around more. Let us know how you do with those.

  • cs7777
    cs7777 Member Posts: 570
    edited June 2010

    Sweetie,  About the study, consent, etc.  Yes we had to go through a 20 page consent form; it was a nonevent.  Some study centers are part of the MRI group, and some aren't.  So some women will have to do the MRIs and some won't (I'm part of the latter).  Those MRIs are paid for by Allergan/Inamed, the implant maker.  Your insurance isn't involved in that.  If you need to have the implant removed for any reason they also request you do an MRI first, also paid for by them.  Other than possibly MRI's, you also have to do a quality of life questionairre at intervals.  I think the times are before surgery and then after yr 1, 2, 5, 7, and 10.  Yes, its a 10-yr study.  As for the implant itself, it is NOT provided for free, you still have to make sure your insurance pays for it.  Mine did, no question.  I asked my provider's office in advance to make sure and they said that they don't have trouble getting ins to pay, even though it's part of a trial.  And finally, yes, there's a small amount of compensation for being in the study, which they pay after you complete specific things.  Its something like $100 immediately (I haven't received mine yet) and then $100 after a yr, 2 yr, $150 after 5, etc.  I think the total added up to about $1000 over the 10 yrs. 

    Oh, and yes, I did have a drain after the surgery.  That seems to be a PS-dependent thing--some use them, some don't.  Everyone seems to hate drains and I can't say I enjoyed having it, but seeing 100 cc drain the first day and then down to 25 by day 4...well, frankly I was glad there was a place for all that to go instead of risking seroma.  Anyway that's just my feeling about it.

    geneskirt - I really appreciated your writing yesterday, thanks for sharing.  This is probably the least important part of what you wrote, but it was interesting to see that you said the upper part of your breast was firm and the lower part nice and squishy.  I'd say I feel like mine's the opposite...the upper is softer than the lower.  There's still some squish, but where its thickest is where it feels most firm.  Funny how this is different for everyone.

  • Lilah
    Lilah Member Posts: 4,898
    edited June 2010

    Wow I didn't get any sort of payment for the trial!  Nor do I recall reading anything that promised me payment either.  I filled out a questionnaire re: my quality of life at the time (i.e. prior to implant) -- things like self-image and also physical well-being.  It said that if my implant failed for any reason they would pay for an MRI prior to explantation, but I'm not required to have one; though my PS did say that all women with silicone implants of any kind SHOULD get an MRI once every three years to have a look at how the implant is doing.  This is because whereas a saline implant, when it breaks, deflates and is visibly different.  Silicone is not always visibly different; you can't see or feel it when it breaks.  I asked my PS why it was recommended with a gummy and she said it's just SOP to recommend it; in truth if it were to break apart the gummie would not leak the way a traditional silicone might.  As for insurance coverage: it had better be covered!  No one ever told me it wasn't and I will raise hell, believe me, if I find out there's an issue.  I guess the best thing to do (now I wish I had done it) is to specifically confirm that it is covered by insurance.

    I did have a drain after surgery.  Having a drain has nothing to do with kind of implant; it seems to me it has to do with (a) your PS (mine told me she simply ALWAYS uses drains at exchange or (b) your specific needs (if you seem to need one in surgery they MAY use one).  Again this is a question for your specific PS.

    I am like gene -- my implant is squishiest where it is thickest (lower area).  CS -- maybe it has to do with the size of your implant and also the state of your pec -- how much it was stretched prior to implantation, for example, or how resilient it is.

  • geneskirt
    geneskirt Member Posts: 218
    edited June 2010

    I wonder how different, if any, it is for the PS to prepare the pocket for anatomical solid gels?

    I can add this bit of  info to those that are still deciding on implant type - the CPG's are noted for "upper pole" fullness. I didn't really understand the difference when i was trying to communicate my prefrences with my PS prior to exchange. He did, but i never really noticed the nuances of different breast shapes, so I found it REALLY hard to choose.  I really  wasn't too helpful to my PS, other than to simply be trusting of his experience.   Again, i think there would be some degree of PS variable on how they prepare the pocket during expansion and exchange too, so experience and familiarity count in my books.:)

    Has anyone had a PS that has inquired about the differnce in LOOK of the gummies?

  • Lilah
    Lilah Member Posts: 4,898
    edited June 2010

    When I saw my PS at final consent meeting (prior to exchange) I did ask her: which is better for me -- gummy or traditional round -- and her answer was: with traditional round there would be a bulge in the upper pole and if I wanted that she would give it to me, but the gummy would be a better match with a more natural slope in the upper pole (I'm a uni)... and so that is why I chose the gummy.  I had already really chosen it anyway but was having a last minute: let's be sure.  That said, as I understand it, the TE CAN be chosen based on what implant is going in... though I'm not sure it always IS chosen that way. 

    New avatar is me post-chemo, by the way (old one was me before chemo).  New short hair growing in! 

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited June 2010

    Lilah:  Being a little lop-sided is ok.  As the swelling has gone down on the surgical side it looks better in a bra.  If I'm off without one, I really don't care.  It has meant I always had a side I could roll over on once my drains came out after mx. 

    I finally made a lot of progress in healing the end of this week.  My voice is back again (no anesthesia voice) and I am starting to feel stronger.  I am 2 weeks after exchange today. 

    As far as how it feels, compared to the TE it is great!  It isn't as soft as I thought it would be (mine let me "play" with one at my appointment before surgery).  But I know no matter what it isn't going to be "normal" like it was before cancer and all these surgeries.  The numbness just isn't going to go away, no matter what kind of surgery you do.

  • Lilah
    Lilah Member Posts: 4,898
    edited June 2010

    BCinColorado -- exactly -- there is no way that any implant is going to be a replacement (truly) for what has been lost.  The gummies are pretty good though for shape and feel (I think).  So glad that things are improving for you!  I too have found that as the swelling goes down on my reduction side the match gets better with my implant side.  And yes it all was easier having only one side affected overall. 

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited June 2010

    Lilah, I'm debating even maybe going out bra shopping this weekend.  I kind of want to have a "cancer-free weekend" either this weekend or next though.

  • Lilah
    Lilah Member Posts: 4,898
    edited June 2010

    If you feel up to it physically, give it a try!  I was very tired for about a month due to low red blood count after my last surgery... so I waited a bit longer.  I did have some nice, stretchy, front-zipping sports bra on hand to wear though (had worn them with the TEs) so I wasn't in a rush.  I have to say I have gone to a few stores since my RBC came back up and it was still pretty exhausting putting on and taking off bras!  I did find my size though so that was nice.  I was happy because it was still a D cup lol.  So my advice is: go if you feel up to it :) 

  • JayneE
    JayneE Member Posts: 11
    edited June 2010

    They just felt sooooo hard.    I felt like they were digging into my rib cage and arm pits.  I also was dense before BC.  I wore a b cup.  I still buy bcups but do not fill them out.  Mostly I wear camisols.  I went with them because of the shape.   AT MSK you have to go to a reconstruction class and they have a session on all kinds of reconstruction.  They pass around samples of the implants.  I just wanted to look normal and when I held the gummies they really did look like a breast, tear shape. 

  • Lilah
    Lilah Member Posts: 4,898
    edited June 2010

    Jayne - I went to that class at MSK!  And yeah they did pass around all three kinds of implant: saline, silicone and gummy.  Sorry it was so hard on you... hope the new implants do better!

  • geneskirt
    geneskirt Member Posts: 218
    edited June 2010

    Lilah:  Your short hair is funky cool!  How long is it now??  I cut my hair off to "P!nk" stlye(love her energy!!) last summer. I even dyed it blonde, LOL!!!!  The change on the outside matched the change on the inside.  I was 'different'! Tongue out I hope  you are having fun with it!?  Your smile is BEAUTIFUL in both your avatars, and you radiate Joy!

    I think the Recon class is a fantastic idea.  I have just been learning a little about MSK and how reknowned it is.  You and JayneE are both very fortunate:) to have your care there. Awesome reputation!Does all your adjuvant treatment and care happen there?

    bcincolorad: Go Shop for the prettiest, sexiest most rediculous bra you can find.Sealed  Take the girls for a drive out, and make it all about that!  You may not BUY anything, but it will help you get accustome to the new shape and feel.  Take your Maximum into the dressing room each time, and don't settle on anything til you look and feel comfortable in EVERY way.  Good Luck and have fun.  Can you take a trusted girlfriend or sister along with you??

  • Lilah
    Lilah Member Posts: 4,898
    edited June 2010

    I only did surgery with MSK -- my oncologist who is local to where I live (MSK is a drive) is so wonderful; she's the one who sent me to MSK for the surgery. 

    Aw and thanks re: my pic and my hair!  I LOVE Pink and her hair... I actually mused (back when I was bald) that when my hair was long enough (and it's about an inch or so now so it's long enough) I'd do it up like Pink's hair!  But I actually like my hair as is so am not going to dye it right now... way to go on doing YOURS that way!  I wanna see a picture :)

  • geneskirt
    geneskirt Member Posts: 218
    edited June 2010

    :)!!! Bleach is REALLY hard on my hair, and everyone keeps telling me i need to do regular protein paks.  I am scheduled to see someone next week who is going to educate me on a regimen. :)  My daughter is going to have a 14 inch weave for the first time!!! (She cut her hair off too last summer and is now wanting LOOONG!!!!).  It should be fun.  We spend alot of time doing FUN things now.  I think it wll be great.  The stylist said she just did full extensions for another lady who just finished Chemo and her hair is just 1/4 inch long.... !!!!!! They are 'bonded'.   then cut, styled etc.  Now i understand why celebs have the locks they do..... they are enhanced and RECONSTRUCTED  to be anthing their natural hair isn't, so who am i to judge, lol!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

  • geneskirt
    geneskirt Member Posts: 218
    edited June 2010

    Oh and i will tell you a funny story bout my lack of photo... My laptop crashed when i was loading photos onto Tim Tam, and i haven't have the nerve to take it into to a tech to have it restored..... I know the first thing that is going to pop up it the largest version of my post exchange photos!!!! lol.So I have been using my duaghters..... with no photos of me in their hard drive.  I need to start TAKING photos of NOW (like YOU :) and post a face to these words!

    xo

  • sweetie2040
    sweetie2040 Member Posts: 817
    edited June 2010

    cs-777-thanks for the information on the study. I guess I need to confirm it with my PS. He was very rushed at my last apt where I had my first fill. Tried asking a few questions but he had that one foot out the door attitude. He's usually great so I gave him the benefit of the doubt of having a bad day.

    Lilah-love the hair! I keep cutting mine shorter and shorter. It used to be super long, then a bob, I always wanted to go short but worried it wouldnt' suit me. It actually looks good on you, and you have a Smilebeautiful smile. My sister in law just did the Victoria Beckham asymmetrical bob, it was short in the back, but cute!  There's a lot you can with short hair, especially nice in the hot summer!

    You ladies who had the reconstruction class, that sounds great. It seems like it gives you more of an idea of the whole process instead of muddling through it along the way, like some of us. I haven't even't felt the implants yet! Oh, and the drains, ewwww, I really hate those. I need to ask my PS. I still have the large marks on both my sides from the MX and they made an indentation and are dark.

    Bcincolorado-I'm glad you going good. 2 weeks goes by fast! I hope you get out this weekend and enjoy yourself. You deserve it! Good luck bras shopping!

  • sweetie2040
    sweetie2040 Member Posts: 817
    edited June 2010

    geneskirt- the CPG's are made by mentor right? My doc uses allergan. I think they are two different manufactors. He put the Allergan TE in me so I don't think he can use the CPG's unless he can order those. They did look nice, I looked them up.

  • geneskirt
    geneskirt Member Posts: 218
    edited June 2010

    Sweetie2040- yes, Mentor.  Wouldn't hurt to ask.... thats what i meant by the CPG's being noted for more upper pole fullness - as opposed to other gummies on the market.  I just remember my PS saying something like that.  He also talked other features to consider, like textured (supposedly to reduced risk of contracture?, i think).  but, i was so overwhelmed at that point, I honestly just told him all I could contribute was my thots on volume.  I am happy with what i ended up with. It's important to convey that early(when choosing TE).  I really entrusted my PS.  I think i conveyed more a preference for what LOOKED good, instead of feel.  So, gummies it was.  They are more firm than natural breasts... but they look BOMBIN', lol ;) ...That makes ME feel better inside throughout the day.  They restored my 'self', not my breasts., Ya kno??? <3 There is  physcological AND physical elements. 

  • sweetie2040
    sweetie2040 Member Posts: 817
    edited June 2010

    geneskirt-ok I will definitely ask about the CPG although I think each Dr. is part of a different manufactor's study. I'm glad you love the way you look. That is so important, how we look affects how we feel about ourself. I think I'm like you, I want the look more than the feel (yes I know gummies are firm, that's all I hear!) I wish we could have both, but then they wouldn't be gummies right, they'd just rounds and we wouldn't get that look. At my next fill I am really going to ask all these questions and get it settled. When you had your TE did he overextend a lot? I heard with the gummies he stays close to the implant size chosen because of the pocket and he doesn't want to overfill to make the pocket too loose.

  • geneskirt
    geneskirt Member Posts: 218
    edited June 2010

    Hi sweetie2040,

    I actually had to look back in old posts to remember what i was expanded to...lol!!!  I bet its hard to believe that some day you may actually FORGET these details.... its like childbirth, i guess.

    I was expanded to 490cc and my implant was 495cc.  The  i recall the TE was designed for 350 to 450 cc... so it was over expanded! 

    That was my late stage request.... to go to my maximum allowance for my frame (aka 34D or 34DD at approx 125 lbs and 5'5 and 29" rib cage).  I'm happy with my decision now. I rarely think "they're kinda small", and occasionally feel "they're kinda big" , so most days i feel they are "just right".  LOL... its like Goldie Locks!!!!

    And, i noted you asked this on an earlier post.... I did not have a drain with the first exchange. which is more common than not.   Unfortunately I had a seroma that resulted  in a need for a repair of a pec muscle tear.  The second exchange of that side had a drain.... and was removed promptlly on day 4 post exchange.  Just my body's response to trauma, i guess-lots of fluid.

    When is your exchange?

  • Goldieknox
    Goldieknox Member Posts: 83
    edited June 2010

    geneskirt -  your 3 bears reference had me giggling.

  • sweetie2040
    sweetie2040 Member Posts: 817
    edited June 2010

    Geneskirt- I have a 400 TE in and he said he can go up to around 450. I'm 5'7" 125, kind of an athletic build. It's weird about size because they already feel bigger than I was before. The shape is so much different it feels like they are under my armpits! Before they were just out front and perky. They feel fuller and wider now. I'm not sure if I like that. I like the natural shape but I want them closer together.  I wonder if that can be adjusted during surgery.I understand what your saying about feeling different about them one day to another. It's strange getting used to a different body image. I'm glad you happy though, that is very encouraging!  Since I was set  back about 5 weeks because of wounds not closing I would guess my exchange would probably be Sept/Oct depending on how many fills I get. I am trying to settle this all in my head and know what I want. I don't  like the we'll see as we go approach. I'm getting that feeling from the Dr, but I want to convey my goals with him. He spent so much time talking to me before surgery and now I feel like I have the questions I need answered. I think at times I have learned more on this website than I would have in the Dr.'s office. It's a different perspective hearing the details from someone who is going through it or been through it.

     Sweetie
    Diagnosis: 2/25/2010, IDC, 1cm, Stage I, Grade 1, ER+/PR-, HER2-

  • cs7777
    cs7777 Member Posts: 570
    edited June 2010

    Regarding what part of the implant is softest - yes Lilah I think you hit on something a couple days ago.  My TE was too high and it stretched the upper area of pec & skin just plenty, but my implant needed to be lowered by about 3/4 inch and so the PS had to "open" the bottom of the pocket during my exchange surgery.  So that skin wasn't yet much stretched and is therefore the snuggest part of the pocket.  So I guess its not too surprising that my implant is still firmest on bottom.  Hopefully it will loosen up with time.  I'm seeing a PT who's doing massage of the area and that helped loosen things up when I had the TE so hopefully same will happen with my implant. 

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited June 2010

    Well I didn't do the bra shopping over the weekend.  DH thought it might be nice to do something "non-medical" for a change since he and I both have health issues.  So we drove up in the mountains to a festival on Saturday instead.  I'll be up by Nordstroms next weekend and DH and I can go shopping then.  You know how men just LOVE to be in the bra section of a store! LOL!

  • Lilah
    Lilah Member Posts: 4,898
    edited June 2010

    CS -- here's hoping the PT does the trick!  I am thinking that if the tight feeling I have from surgery (under my arm really and related to the numbness from being cut back when I had the MX) doesn't go away in six months I am going to have to get some PT/Massage too!

    BC -- I think that sounds SO much better and lots more fun (the concert vs bra shopping :)  Your DH is right!

  • cs7777
    cs7777 Member Posts: 570
    edited June 2010

    BC - Excellent weekend activity - glad you did it!  Your DH in the bra shop...well, tell him to bring a book.  ;)

    Lilah, yes, hopefully it will.  If you're feeling tight I'd recommend you get the PT now if your insurance will cover it.  Really, it just feels so good and can get you back to full fxn more quickly.  Everyone I know who's had it raves about it.  I don't know why its not just automatically ordered for MX & MX/recon patients but its not.  My BS almost rolled her eyes when I mentioned it.  Luckily my PS was amenable to ordering it although I had to bring it up after my MX.  Now after my xchg I pointed out that my implant is just a tad high and the PS immediately said "I bet some PT could help that - some massage and ultrasound.  We'll send over a referral."  I don't know if it'll help or not but it's not likely to hurt and it sure feels good so I'm on it. 

  • Lilah
    Lilah Member Posts: 4,898
    edited June 2010

    I'll ask my PS when I see her at end of July.  Thanks CS.

    EDIT: though now that I'm thinking about it and paying attention, my true problem is not tightness (I have excellent range of motion) -- it's numbness from nerves being cut.  Can PT/massage restore feeling?  I thought it was a matter of time (years worth of time) for nerves to regenerate?

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