Poll on Sentinel Node Biopsy Pain
Comments
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Excruciating pain is what I had with the shot. They had not scheduled time for any numbing so I told them to just do it I could take it. (thinking numbing the skin probably wouldn't help anyway) What a huge mistake, that was the worst pain I have ever experienced and I've had 2 children. I started by yelling and ended up sobbing before it was done.
I don't understand why it hurt me so badly and not others, but am glad for you who didn't have to endure it. I also can't have morphine, and the demoral didn't touch that after surgery pain, after hours I finally got two percocet and was able to get up out of the bed before they kicked me out of the hospital. I was out of surgery at 7 pm and was released just after 9 am the next day before my pain was under control. My surgeon said well you knew there would be some pain. I thought If I could get out of this bed I'd show you pain! LOL
I am almost 3 weeks out from the dmx and am just now beginning to get back to anyform of life. It must just be me, at 53 it's hard to bounce back like I used to. Thank god we don't remember pain for to very long and this anger I feel will pass.
I go for my first fill Thurs and I'm taking a lortab befor leaving the house. What a wus I've become.
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I had the SNB yesterday, along with a port, and the tracer put in. They covered my breast with some cream and put plastic over it until I got the 3 injections. The first two I had no problem with the third one was a little rough. My question is the shot you get in your stomach to keep your blood from clotting. My stomach is all bruised and so sore I can hardley get up and down. Is this normal?
Thanks
Sandy
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Hi all - I have to say, the SNB injections caused some of the worst pain I've ever had in my life. I had no idea what to expect and thought okay, a little needle stick - holy cow! I came up off the table and actually cried a little. Then - three more to go...it was awful. Thank goodness the pain was short-lived, but it was awful. The second worst pain of the day came from the needle localization, Four sticks with the needle before final placement. I was so anxious and then thankful to go off to surgery (all this was done on 6/7/10).
Take care all.
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I had 4 injections of the radioactive tracer injected directly into the aereola about two hours before surgery. A technician did it with a little numbing cream.
It was by far, the most barbaric thing that has ever happened to me. It was very, very painful. The numbing cream was a joke. Maybe it takes the edge off the initial injection, it still felt like an insect bite. But when the start injecting the material... oh my gosh. My husband could hear me gasping from outside the room. I was shaking from the pain. When I went into surgery a couple of hours later, the anesthesiologist commented that my blood pressure seemed a little high. No kidding!!!!! I felt like I had already been through hell, between the injections and the threading of the wire to locate the tumour.
I have had 3 kids, I have had a few surgeries...this was horrible and barbaric, and more painful.
They said they can't do it under anasthetic because there is a delay of a couple of hours between injection and surgery, they would have to keep you anesthetized unnecessarily for hours. I get that, but they really have to develop a better process. No woman should suffer like this.
Thanks for this thread, if only to vent ...
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They should offier local anesthesia w/needle, or lidocaine cream which should be applied 1-2 hrs beforehand.
My needle US-guided needle biopsy of a lymph node wasn't too uncomfortable compared with the rest.
Frankly my stereotx biopsies and lymph node tracing felt like torture. Being immobilized and having painful things done to your intimate parts by strangers of another gender -- NOT "patient-centered" care. Even dentists wait until the anesthesia kicks in. The interventional radiologists just injected lido and immediately tried to biopsy. For one I started yelling and told them to stop and give me more anesthesia.
We should refuse to have procedures done to us unless we have proper anesthesia.
I'm sure men getting prostate biopsies get more anesthesia than we do. And I bet they get pain meds afterwards and not just ibuprofen.
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I had an injection into my LOQ breast tissue about an hour before my surgery...SNB, Bi LAT MX with immediate DIEP. The women who injected me was amazing! She and I talked about our kids in school, and it was a nice distraction. The injection was like a bit of a 3 sec pinch....then a 2X2 and walk to the pre op room on another floor. My son was there so I wanted him to remember a good experience. This is a very interesting topic. I am grateful that I had all three surgeries at once after a core needle biopsy at anothe hospital which wasn't that painful either (but they couldn't do an immediate DIEP). I wanted this to be a short term project!!! Now I don't have to do the frequent monitoring and feel so blessed that I was stage 1. I am sorry to read about other experiences because it just doesn't seem like it should be that painful. I will say that right now, 3 weeks post op, the most painful area is under my left arm...down to my elbow...and I had no positive nodes! The anesthesia I had put me asleep immediately and I have no memory of the 11 hr surgery or recovery room until just before they transfered me to an intermediate care unit to monitor the DIEP flaps. I am very gratefute to my Medical/Nursing team.
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Thank you everyone for your posts about the SNB shot. I saw my surgeon today that will be doing my Bilat MX and because of your posts I knew exactly what questions to ask. At Johns Hopkins they just started putting Lidocaine in with the tracer and they only give you one shot. I was so relieved! I'm also going to use something topical like you all suggested. I went in armed with about 3 or 4 research papers that I found on the web stating that the lidicaine DOES NOT interfere with the radioactive tracer. I encourage all the new people out there to ask their surgeons to follow this protocol. I don't have a surgery date yet (I see the PS this Thurs) but I will let you know how much pain I was in when I had the shot. Thanks again everybody!
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Nbb1032
Good For You! I JUST wroute about this under the thread about stupid things people have said to you. It was utter hell. There are no words to describe it...and anyone that can miss this experience should.
traci
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My experience with SNB was that it was basically a painless procedure. I felt a little tad of stinging when they injected the dye but no worse then any needle I've had. The only issue I had was that my arm hurt from having to hold it above my head. The tracer took a long time . . . longer than normal and holding my arm in that position was really beginning to cause shoulder pain.
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I will be going into the hospital Wednesday for a lumpectomy with sentinal node biopsy. I have been told by the hospital today i will not have any pain meds for it. I have a question how do they decide where they will place the dye? I am seeing my BS Tuesday, and I want to ask him why I can't have any pain meds for this procedure. I will have pain meds for the placement of the wire for the lumpecomy though, but she doesn't think I will be very numb for the dye procedure.
Karen
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I had bmx with sentinel node biopsy on july 8. i asked about getting lidocaine in the tracer shot the week before and was told that was how nuclear medicine did it. When i went to nuclear medicine on the day of the surgery the doctor did use lidocaine topically and in the shot and it was only a small sting. He said he just started using lidocaine two months ago after attending a conference. I am so sorry for anyone who has to go through this without pain medication.
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My bilateral mastectomy is scheduled for July 26th, 2010. I am dreading the sentinel node tracer shot more than I am the actual surgery! I am armed myself with pages of literature, and I'm going to fight like hell to have lidocaine and anything else that can be provided. I'm taking Valium with me, just in case. I'll be at the Piper Cancer Center, and from what I understand, they are still under the barbaric notion that no numbing med should be used, and that they will try to inject close to the nodule....which in my case is deep in the breast....another reason for me to panic! I'm meeting with my surgeon this Friday, and I am going to plead my case....I'll keep everyone posted. Thanks to everyone for all of this info! I appreciate it so much
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God, you guys.I think its just barbaric what they do. I am on the West Coast (San Francisco) and never had to go thru this--all this was done while I was under anesthesia during the lumpectomy. I didn't have a clue. Zenith, I can't believe it took attendance at a conference to get lidocaine. Suzanne, I would refuse until they told me why you can't have lidocain--that its the 'protocol' is rediculous. Good luck.
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Thanks, Cowgirl13
You're right....I need to stick to my guns and DEMAND to be numb... or they can just take a Louisville Slugger and knock me out cold...I think it would hurt less
Hope you are doing OK!
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I had a lumpectomy on July 16. The nurse rubbed the "numbing" lidocaine cream on my breast and said it should be an hour before the tracer injections. About 35 minutes later, the radiologist came in and started the procedure. When the isotope material was going in, it felt like liquid fire and I did a lot of whimpering. I asked the radiologist why they didn't inject the lidocaine and she said, "this is how we do it"! I complained to the BS before surgery, and she said "Yeah, it hurts!".
The surgeon inserted the guide wires after I was anesthesized, so I didn't have to go through that. Luckily, she only had to remove one node as she told my daughter "they all drained into that one". It tested negative on the preliminary. I hope there isn't a repeat.
I wouldn't quite compare it to birth, but it was comparable to bad dental surgery, for sure.
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SNB injections were the worst pain I have ever experienced in my life. That is not an exageration, when the rad techs left the room it took me 20 mintues before I quit crying and I swore to myself that I would start a campaign to end the torture for others when I got ouf of surgery. Well... of course I have not but I did give my surgeon a verbal ripping when I had my first follow up visit. I will NEVER allow that to happen to me again, if I get BC in my other breast they will have to knock me out before they inject that stuff in me again or it just won't happen. I'm happy not everyone feels the pain that I did, mine were done in the areola and there were 7 shots, should have been 8 but when the tech told me he only had two more to do I told him I couldn't handle two more so he did the 7th and called it quits. It hurts me to even think about it now. I often wonder how badly I hurt the poor nurse that was holding my hand during it all.
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When I had this done. I said never again would I let them do something so painful. I can't understand why they can't do the shots when we are OR???
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I just had my lumpectomy done less than 2 weeks ago. I had seen this discussion and was to say the least scared to death. I talked to my BS the day before and asked him about it. He told me I would be given lidocane in the same shots the isotope was in. I had no pain from the shots when given during the operation. I was asleep for the blue dye, so can't say anything about that.
I just find it barbaric so many of us are not given the lidocane to stop the pain.
Karen
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Karen, I hear you and just FYI. they gave me ice (right) and some numbing spray. The first needle hurt but when the doc injected it, I thought my boob was on fire!. I never had pain that bad. While my boob felt like burning oil was being poured all over it, they got the other 3 injections done and I didn't feel anything (other than the burning oil, which lasted for 10 min.)
What is WRONG with these people? Lidocaine is necessary.
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Ok, now that you have me scared out of my wits (never had much wits when it comes to pain!) WHERE is this Sentinel Node and when do they have to biopsy it? The reason I am asking is because those uncaring savages calling themselves medical people have done things to my breast which have been so painful I almost passed out from the pain! "We are sorry it has to be so painful" is a pile of CRAP! In this day and age they should be able to NUMB every part of our breast before they add more pain to it!
I won't go into the painful tests they have done on my breasts for the sake of "helping me" because I don't want to frighten any new gals who may not have been tortured yet but I want to know if I have this Sentinel Node torture waiting for me. I will ask my Onc next visit if he knows if they did it. I want peace of mine about this. Between the Arimidex making me a basket case and the "helpful" pain tortures, I am ready to go hide in a cave someplace from my Oncologist!
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I had 4 shots in the areola area....
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Medigal, if you are on Arimidex, did you already have surgery? If so, no worries. If not, simply insist that they give you anesthetic or you won't do it. My mistake, I should have gotten up and started to walk out.
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Barbara A, I had my lumpectomy in right breast and that's when surgeon removed 25 nodes and one was positive.That was in 2003. I was completely under for it all so maybe that is when he did the Sentinal thing. It was all these other procedures they did to me 'AFTER" the surgery on later dates everytime they "thought" they saw something suspicious in either breast which gave me so much pain because they insisted I had to be awake for them. Those Stereo Core biopsy things were a nightmare for me but thank goodness the results were negative. If I have any more tortures coming, I will insist on an anesthetic. I have high blood pressure and I can't afford to get that upset.
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I also had 4 shots to the areola area. Insist on some anesthetic. I have to go back Friday for removal of a little more tissue to get the margins clear. There is no way he would ever plan on cutting me open without local numbing. His plan is I take 11/2 Alprazolam 1 hour before plus 4 Ibuprofen a half hour before. I guess this will calm me down before the procedure. I am so sick and tired of all this stuff already.
Karen
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had 4 shots..was told before hand that I could not have anything for the pain. I was warned by my BS that it would be painful and he apologized in advance (Love that man)
IT WAS THE WORST THING I HAVE EVER FELT
I cried..the tech held my hand, the nuclear tech rubbed my head..they felt bad. I told everyone I could that this procedure SUCKS and their must be a better way.
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i had the sentinel removed while i was asleep.are you kidding me.they wanted to try that shit on me its only a pinch.bull.no way.and now i have to have more nodes removed because the first dr only removed the sentinel node (jerk) and i am going for surgery again...i am in enough pain without someone sticking a needle in my C breast. and the after was a big nothing.i had every kind of pain killer ready and i took nothing..I REPEAT I DID NOT LISTEN TO THE SISTERS...GIRLS SECOND OPINIONS ARE VERY IMPORTANT..I FOUND OUT THE HARD WAY..GOD BLESS EACH AND EVER ONE OF YOU...GENTLE HUGS.
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The Nuc Med Tech told me it would be like a bee sting and OMG was sh ever wrong. I too have had a child(18 hours hard labor) and I have an extremely high pain tolerance. The SNB injection was by far the worst pain I have ever had in my whole life. I sailed through my core biopsy, but this was horrible They didn't use anything for numbing on me either. The BS even said he never does this without numbing agents, but this particular hospital does it the morning of surgery and the lidocaine or whatever could interfere with surgery. I actually started sobbing and couldn't catch my breath. The girl adinistering it clearly felt bad too. She was hugging me and everything. I think it should be mandatory that they numb you first.
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When the tracer was put in in the nuclear medicine department, it only stung a little. They warned me it might hurt but it was fine. The blue dye was put in when I was already under in the operating room so I didn't feel it at all. Overall, the process was fine for me.
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I just got back from my pre-op stuff today (for surgery tomorrow) and I insisted on speaking to someone from Nuclear Medicine. The nice young lady tried to tell me that they use tiny needles, that it would be like having a tb test, and that they used a numbing agent in the injections. Then I asked her if she would have this test without having the injection area numbed with Emla cream and all of a sudden, she was speechless...LOL! I asked everyone I saw after that until the nurse called my surgeon and got the OK for Emla.
It is ludicrous that this procedure would be done without the use of anything to make the patient more comfortable. One nurse actually tried to tell me that "the nipple doesn't have many nerves in it and you probably wouldn't feel it". I honestly could not believe what I was hearing! Somehow I doubt they stick needles in men's private parts without painkillers!!!
I'll report back in the next few days on my experience. Bottom line - it's your body, it's your choice. There's no reason to endure any procedure without something to make you as comfortable as is reasonably possible. Don't let anyone tell you otherwise.
Michelle
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Michelle,
Honestly they did use the numbing agent with mine, and it was fine, only 1 hurt a little but that was because they hit a nerve which could happen to anyone. The fact someone tried to tell you we don't have nerves in the area is nuts. I'm really glad you made such a fuss. The more we talk about this the more the medical association will have to come up with a realistic way to keep us comfortable while doing what needs to be done. Glad you held strong.
Karen
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