Doctor just called, found IDC, please help me cope

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KatherineNaomi
KatherineNaomi Member Posts: 104

I was diagnosed on June 2nd with DCIS after a subareolar resection for an intraductal papilloma. Previous mammogram and ultrasound showed nothing. I've since had the breast cancer gene test (negative) and an MRI. They found what looks like extensive DCIS in my breast but also a more worrisome spot. They did an MRI guided biopsy and I just got the call that they found invasive cancer. My head is spinning with the possibilities and I'm sick with worry. I'm only 34 and I have 4 beautiful kids. It is Grade 1 so that's giving me some hope but I'm just so scared. Any words of advice would be greatly appreciated. I won't see my doctor to talk mastectomy until next week and I'm sure it's going to be a long worrying wait until then. Well, after then too. :(

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  • Polyana
    Polyana Member Posts: 200
    edited June 2010

    Hi, I feel sorry for what you are passing through, take this statement (We've all been there before). You need to be thankfull that it was caught early enough (grade 1) at least you know where you stand and your cure is over 80% I believe. Read as much as you can so when you meet with your Dr. you are aware about everything he is telling you about, stay positive. The great success for this disease is SPIRIT and positive EMOTIONS and our will to CONTINUE BEING STRONG.

    I was told 3 years ago I have papilloma with mild atypical cells, not sure till now if they turned out to be BC, but I have been into allot, and still the road is way long to go. Discuss with your doc the options of mast vs lump. and see what he says, discuss the matter with your closest family members, and see what is best for you that you will be able to ACCEPT, and HANDLE now and in your future.

    My best wishes for you..

  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited June 2010

    I'm very sorry that you were diagnosed with invasive cancer, and I am also sorry that you have been undergoing uncertainty for almost a month.  But, this is the worst part, soon you will know your stage and your treatment and you will find peace.  Our imaginations are worse than reality,  most of the time.

    You may still be able to have lumpectomy if that's what you want, although I don't know the details.  I'd wished for lumpectomy but ended up having to have mastectomy due to the multifocal nature of my disease.  However, none of the horrible things I imagined happened.  I was still me, just me with a scar.  I'm undergoing reconstruction now. I don't feel diminished.

    I did chemo, and that wasn't so bad either.  Nothing like you might imagine.  I was tired at the end but never got sick and really, it wasn't like the movies.  I lost my hair but it's growing back now - white!  Who knew?  I'm not old enough to have white hair so it's a big surprise and it looks cool with a tan, almost like I'm a plantinum blonde.  (Not that I won't dye it back at some point). I found that wearing wigs was uncomfortable and wearing scarves was an interesting sociological experiement in how people react.

    I am still doing herceptin until December, and I enjoy the quiet place to play iPhone games and read.   It just becomes a routine of treatment - it's just a time-consuming year (or in my case, 18 months) and then hopefully you can start to put it behind you.

    There are good things - I've made new friends because of cancer, I have discovered how generous people can be. 

    You are in the fearful part right now but you will find that cancer treatment is all about putting one foot in front of another, and the steps aren't usually as difficult as you think.

    Even in the unlikely even you turn out to have mets (we all think we do at the beginning - and a few actually do) you'll  find that people can live many, many years with it.  I have a friend who had breast cancer with mets to the brain - ten years ago.  She is NED right now and has been for years.

    I understand your mind is whirling- I was there too.  I spent a day getting pissed off at old people because I thought I wasn't going to be one.  But, then I realized all we have,, young or old - is this one day.  And, we have some say in how we deal with it.  I decided not to spend a lot of tme worrying, and for the most part, I haven't.  It was much harder at the beginning than it is now, and it's harder around test times than normal, but those are all normal things.

    I don't know if somebody who is down the road from you can reassure you or not, but you can get through it.  And you can get through it with humor and grace - it's your decision.

    Good luck.

  • one-L
    one-L Member Posts: 1,110
    edited June 2010

    Katherine, you are really at the hardest point of this journey.  I am so sorry you have to face this, but you can survive this.

    I was diagnosed last year in July, had a lumpectomy, 4 x TC (chemo) and 33 radiations. For 8 months, my life was wrapped around BC.  I will not tell you it will be easy, but it is doable and you have so much to live for.  It sounds like they caught yours early and that is a very good sign. 

    Take this one day at a time or one test at a time, what ever it takes  to get through this.  Keep posting, there are many forums where you will find encouragement and women who will be there for you when you need them.  You will meet many great women and believe me, you are not alone, we  have all been there.

    Hugs,

    Juannelle

  • KatherineNaomi
    KatherineNaomi Member Posts: 104
    edited June 2010

    Thank you so much for your kind words. They really helped! I agree that this part is hard. I think once I can get my treatment going I'll feel a lot better. I'm a planner by nature and having everything up in the air is disconcerting. There's just so much anxiety in the waiting. I find that during the day I can cope pretty well, the kids keep me busy. But at night I can't sleep and I find my mind wandering to the scarier potential outcomes. I think I need to see if they can prescribe me something so I can get some rest. 

  • debbie6122
    debbie6122 Member Posts: 5,161
    edited June 2010

    Kate, welcome to a site no one wants to be part of,but you will find a lot of love, support and help as you go thru this, we will be here for you as you go thru this journey/ Somthing I tell every one as i did it to was to ask for some anxienty pills, like xanex, it really does help to calm your fears and helps you get thru all of this-keep us posted ((((((((hu)))))))))))))))

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