Anyone starting chemo in June 08

Options
1757678808194

Comments

  • Wyoming
    Wyoming Member Posts: 381
    edited June 2010

    Leggy I know what you mean. My goods seem farther apart. Get you chin up I know you will be back to your (old) self.

    Bonnie sorry to hear about your brother-in-law. It must be hard on your husband.

    Kelly I had my grand-daughter for only a few hours a day last week and I was DAT. Part of my problem is I don't say no to her. I let her make a mess while I cook, she thinks she helping and my goal is make sure she is happy!!!!

    Hunky is everything OK?

    I'm leaving in the morning to go to Billings MT with my sister. We have a pedicure on Sat. and shopping and eating the rest of the time. This is our girl trip. Can't wait.

    Chocolate and Karen how is you June?

    Wyoming

  • ChocolateLover
    ChocolateLover Member Posts: 363
    edited June 2010

    hi ladies,

    Wyoming, enjoy your trip!

    Bonnie, I'm sorry too, to hear about your dh's brother. Hang in there. Hopefully, the switch to another med. will help you feel better soon. Taking something is definitely better than just stopping tamoxifen.

    Leggy, I am feeling crappy right along with you right now. I dont know if it's all the rain causing arthritis issues, or mets, or just too much yoga (ha, i only go once/week), but my hips and lower back have been so painful lately. Seems like I have one good day, then 3 painful ones. DH says "just take it easy" but I do. And I need a life too! I cannot stay on the couch all day everyday.

    Also for the past few weeks I was having trouble keeping food down. This was quite scary for me, as you know the mind can make up all sorts of stories about mets, etc.  The dr. gave me a prescription for acid reflux, but that didnt help. Then he gave me meds to help the esophagus mucles work more effectively. they didnt help either. Finally, dh and I have realized that it only happens when I eat eggs, chicken or peanutbutter. AHA! I have developed alergies. Imagine my relief! Today I've taken no meds (besides Xeloda and Clodronate) and had no issues swallowing my food. I am so relieved! The ironic part is that even with reduced food intake I only lost, get this, one pound. ONE! Geez! no fare, right?! oh well, I'm very happy to be enjoying food again, and not worrying about throwing up in public. Pizza anyone?

    Happy Friday. hugs all, Choc.

  • LeggyJ
    LeggyJ Member Posts: 726
    edited June 2010

    There is good news, Choc., it's only allergies!!!  Yeah, and it's TGIF!  Thank goodness this last week is over and the acetyl-L-carnitine, which I started taking yesterday, gives me hope, that my feet will feel better soon.

    Hey Wyoming have fun on your trip to Billings Montana, my Mom said it's really pretty there.  She grew up in Montana, and that is her name, although she goes by Tana.  Wish I could go with you...

    Have a nice weekend, everyone

  • Kellke
    Kellke Member Posts: 424
    edited June 2010

     Leggy,

    I hope you have a good weekend and get out of your funk.  I hate when I get stopped in "the bad" as I call it but sometimes it takes a lot to get back out of that groove. Maybe something great will happen this weekend...

    I went to five yard sales after dropping my daughter and her cousin at soccer camp.  I had my slippers on but they looked so good I had to stop.  I found a lot of treasures and had a good visit with two different neighbors that went to the same sales.  I love a good 25 cent book.  I also found some cute t shirts for my daughter, a softball bat, new softballs, roller blades for the cousin that is visiting (thank you God for that blessing, now the kids will quit fighting over the one pair we had), also a hockey stick and tons of books for the family.  Isn't that great?  And in half an hour I am putting those kids to bed and having a drink and a cheer that we made it through the week with no broken bones or major disasters!    

    Enjoy your weekend everyone,   Kelly

  • LeggyJ
    LeggyJ Member Posts: 726
    edited June 2010

    Sounds like you had fun Kelly, I'm glad.  I went to the beach with my friend Steve, but he didn't seem all that with it.  We went to the beach and while I walked he stayed in his truck. What fun. At least Wolfie and I had fun.  Steve just doesn't like to pick up his dog poop, and I said it was mandatory on this beach....Who want's to step in dog poop, I know I don't. Oh well.

    I forgot to mention something my Onc. said during my appointment, and it's been bothering me.  I mentioned to him about the new report and having a mammo. every 6months instead of once a year, and he said that one thing they said about my mammo. is that my breasts are very dense and they wouldn't be able to catch any cancer early.  I'll I said was Oh.  What should I think about that...

  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011
    Hey Leggy...your beach walk sounds great.  I would pick up dog poop any time for a stroll on the beach.  I am very curious about this new mammo program.  I don't need to worry about it personally, but if I were in your shoes, I certainly would be.  How can that be good for your body?  Especially if the mammos are really insignificant.  I dunno...
    I hope everyone else is doing well.  Wyoming, enjoy the weekend, Kelly, happy garage sale finds, Bonnie...hope your new meds have less SE's...(let me know), KKing....yes, we are all DAT sounds like.  I can still remember how good I felt 2 years ago right before I was diagnosed.  All full of energy...walking, golfing, working like a dog.  Now I don't even care!  Oh, Choc, so happy to hear you found out about your stomach issues.  Isn't it funny what our bodies go through with trts, drugs, surgeries, etc?  Stay away from that food that bothers ya.  Stick to chocolate!  LOL!  I am home alone this weekend and lonely!  Good night to all...sweet dreams!  HunkyD 
  • ChocolateLover
    ChocolateLover Member Posts: 363
    edited June 2010

    ah, fresh doggy poop - I can't wait! Steve sucks. Leggy you deserve a prince who will take care of you and Wolfie. I am sending in my wish to the universal fairy godmother right now!

    Yes, what joy knowing I can still scarf down chocolate! & fruit. I have been gorging on cherries and papaya and melon and blueberries and......I LOVE summer!

    Kelly, I can just picture you in slippers going through all the bargains with a smile on your face. I love books too, and they get to be pretty expensive at Chapters. $.25 is amazing! you could buy truckloads.

    oh Hunky, don't be lonely, we are all here reading and posting. Remember the chaos will come back, so enjoy the peace & quiet today. I feel so connected to you ladies. One day I really would like to get together somehow. You are all so encouraging and inspiring. :)

    I'm just having my morning tea and listening to the birds on the deck. DH is snoring away (9am). We went out for dinner with friends last nite and it was good fun. Lotsa laughs, especially when we women were describing mammo's and told the guys to imagine their bits squeezed between cold metal plates. then adjusted. then squeezed again. Ahahaha, their faces were priceless! LOL.

    Leggy, my mammo's were not good as I have those "dense" breasts too. My onc did more ultrasounds/sonnograms in my early days. Maybe you could get that? Although they did say that even then it's hard to "look" for something that might not be there. Mostly they monitored my neck lymph nodes that way. I think a year is a long time to wait. For me, indication is some soreness in my armpit, as the remaining nodes tend to get inflamed right before any new activity. Do you notice any of that?

    Bonnie, how's your dh and his brother? How are you managing? Know that you are all in my prayers.

    Happy Sunday all, xo Choc.

    (i'm going to try to post another pic of my now 4 week old puppy - oh how time goes so slowly when you want to bring them home with you and have to wait another 4 weeks!)

  • ChocolateLover
    ChocolateLover Member Posts: 363
    edited June 2010
  • LeggyJ
    LeggyJ Member Posts: 726
    edited June 2010

    Hi girls, I'm just taking it easy today, reading a good book, it's called LITTLE TOWN LIES, by Anne Strieber.  Someone left it one of the rooms at the hotel, so I from lost and found, when no one wanted it back.  Free books are great, you just pass it on when your done. 

    About the mammo., my Onc.also  said having one mammo. a year was enough.  He said since my breast were so dense, and they couldn't catch anything early anyway, it wasn't worth the stress.  I admitted to him that I didn't want it either.  I also told him just coming to see him freaked me out, and he smiled and said "I know". I guess he isn't so bad after all.  He softened up a bit when I started the tears...Usually I don't do that with him, he's just so darned young and cute. I'm old enough to be his mom...Oh well, I'm sure he's seen worse.

  • ChocolateLover
    ChocolateLover Member Posts: 363
    edited June 2010

    hi gals, i think if you click on the link in my last post, it will open the photo. can someone try it and let me know? thx.

  • Bonnie02
    Bonnie02 Member Posts: 193
    edited June 2010

    Hi Everyone, yes it would be nice to see and talk to you all in person. We have a $50 million lottery with 55 1 million dollar prizes, and I do buy a ticket so keep your fingers crossed for me because if I win I will buy everyone a ticket for us to meet somewhere or maybe go on a cruise. Got to keep on dreaming.

    Bye the way Choc my husband is fine but his brother passed away on the 17th which is a blessing for him.

    Will be starting my new pills sometime this week and will let you guys know how they react I sure hope they don't have as bad side affects that the Tamoxifen has.

    Still haven't figured out how to put pictures on here, maybe if my brain gets into full gear instead of just humming along doing nothing I will be able to figure it out.

    Everyone have a nice day.

  • Wyoming
    Wyoming Member Posts: 381
    edited June 2010

    I'm baaack!. I missed everyone. Had a great time. Did a lot of shopping, Bought stuff for grand babies, ate some great food, and great talks with my sister.

    Bonnie sorry for your loss. Good luck with your new pills. I buy lottery tickets when I go to my mom's so if I win we will all get together.

    Leggy if I could walk on the beech with my dog I would pick up her pee and poop. LOL I also have dense breast but I'm lucky because I don't have to worry about having a mammo because of the drugs I'm on.

    Kelly How long do you have the cousins? Make sure not to over do.

    Hunky did you survive your weekend? Remember we are here to talk with.

    Chocolate, I love summer too. I have fresh fruit in the frig all the time. Your puppy is so cute. I would want them both.

    Have a good week.

    Wyoming

  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    I saw the puppy pictures Chocolate.  They are adorable.  You can't wait, I know, to get him home.  Bonnie...sorry to hear of your family loss.  Always hard.  Hope the new pills work cause I'll bet a dollar that is going to be my next change.  Onc first said tamoxifen for five years, then he talked about two years and hysterectomy.  We'll see.  Wyoming, glad you had a good trip.  I was a loner this weekend until yesterday afternoon when DH got home.  I made dinner and brownies.  I thought my son was supposed to do that on Fathers Day?  Hmmm....LOL!  He did show up to eat though.  He (son) was out of town camping, so I will give him a break this time.  Anyway, dinner wasn't anything fancy, but good.  I was still tired last night.  I did housework also, so I know that played a little part in my tiredness.  Work came early this morning needless to say.  Leggy, I don't read that much anymore.  I just can't stay focused.  We did watch a couple good movies though last week, Unthinkable, and Invictus.  Supposed to get a couple more tomorrow.  KKing, glad you are still checking in.  Kelly, hope you are enjoying company, but still getting your rest.  Mandatory as you well know.  Oh, and Bonnie...just mess around with the pictures when you have time.  We just expect to see that grandbaby before too long!  Hugs to all of ya.  HunkyD

  • LeggyJ
    LeggyJ Member Posts: 726
    edited June 2010
    HI, HDI heard Invictis is a good movie, how did you like it? Wyoming, looks like you dodged a bullet, bad weather in Billings Mt..  Bonnie, forgive me for being lazy, and not looking up, your med. change, but what did you change to from Tamoxifen?  Halfway through the day, I fell at work hard. There's a step, I missed with my feet having neuropathy, no one saw thank goodness, but I'm tripping or falling everyday, and I feel like it's getting bad. It was hot, and difficult getting up all the stairs at work. Awful news, about your brother-inlaw, but at least he's not in pain, anylonger. 
  • Kellke
    Kellke Member Posts: 424
    edited June 2010

    Chocolate I also looked and thought those puppies were pretty cute... that is saying a lot since I don't care for the work involved with having pets at all but we have those two big dogs and a lot of poop in the yard!  :)

  • Bonnie02
    Bonnie02 Member Posts: 193
    edited June 2010

    Leggy the new pill I will be taking is Letrozole  hope it works bettr than the Tamozifen

  • KKing
    KKing Member Posts: 425
    edited June 2010

    I love your new puppy Chocolate...   I couldn't beleive how expensive it is for the yearly checkup for our 2 dogs...over 700. 

    Glad you had a nice time Wyoming.     HunkyD.. I relate..it is hard to see the good in doing things.      Leggy... That is not good if you have neuropathy and it causes you that.  What do you think about the mammo only once a year... I  never did ask the onc about that.  When I went into the waiting room to make my yearly appt...the receptionist said once a year was sufficient.  Yet, this website recommends it twice a year.

    Kelly... sounds like you have your hands full with your company. 

    I am at work at the moment and just wanted to see how you are all doing.   I just had my checkup and the onc said everything looks good.  I had complaints and he said he doesn't see anything related to the big C.   When he first saw me, he said are you all achy from using Arimides and I said yes.  He said well after the 5 years and you don't take it anymore...then you will probably have arthritis.   So, I didn't ask if he meant because of the arimidex or the fact I would be older.   Stupid me.   So I was glad things are good but my mind is always feeling things that I dont' think are normal.  I guess this is the way it goes.

    Well, I have to take my break and then back to workk.   Karen

  • Wyoming
    Wyoming Member Posts: 381
    edited June 2010

    Leggy did you hurt yourself when you fell? Good thing no one saw you, because I know after I asked how you were I would have laughed. I know that doesn't sound very nice but I can't help it. LOL.

    Kelly and Chocolate, I have a small dog I we still have a lot of poop. It is a never ending job.

    Hunky hope you ate a lot of the brownies. If you are the one to make them gets to eat them I always say. That is why when I bake I take it to school for every one else to eat. LOL

    Karen nice to hear from you. Don't work to hard. I hate that I forget to ask things when I'm at the doc. I wish I knew what aches are from age or the cancer. My mind always go to the cancer first.

    Wyoming

  • LeggyJ
    LeggyJ Member Posts: 726
    edited June 2010

     If I'm not falling on my butt, the pain is kicking my butt. Last week I called my psychiatrist, and told her I was at my wit's end, with pain, neuropathy, and feeling really depressed.  She called me today, and I have an appointment with her on July 6th. She asked if my bumping up the Celexa I take for depression was helping, and I went off on a rant, so she probably thought I quess that was a no....I think I sort of gave up after seeing my Onc., who had little he could do to help me.  Now I'll stop ranting on you all, sorry, but this helped, somewhat.

  • Kellke
    Kellke Member Posts: 424
    edited June 2010

    Rant away, that is one of the reasons we are all here together, it helps to be able to talk and vent to people who can understand.

    I fell this weekend at the girl scout training on the path and I hopped up so quickly to reassure everyone that I was fine that it took me hours later to realize I had torn my pants and skinned my knee!  Why do we do that?  I guess because you feel silly for being the one to fall?

    They poured the concrete for my porch today I will try post a pic this weekend when we can walk on it!  Now there is enough room for everyone to come visit...

  • LeggyJ
    LeggyJ Member Posts: 726
    edited June 2010

    Yahoo!!!!!!!!!!!!!!!!!!!!!!!!!  I love a good porch.

  • ChocolateLover
    ChocolateLover Member Posts: 363
    edited June 2010

    Yummmmm. does it come with front porch cookin, or Alan Jackson himself? Ah..................sorry - i started daydreaming. hehe.  I'm in for a visit to Kelly's house. (if I can stand to be away from puppy so long) Will the porch be ready for August? I sure hope you get to enjoy a good part of the summer on it. I can't wait to see that photo!

    Leggy, I'm getting worried about you. How about you retire and come live with me? You definitely need a sit down job, or at least a nice golf cart to drive around the grounds. and no stairs. what can we do to help? besides buying those lottery tickets that haven't paid off yet. :( Really, is there anything we can do for you?

    Weird weather here in Canada. tornadoes in Alberta, earthquake in Ontario. Friends/family are all fine, but it makes you wonder about more than yourself for a while. That can be a good thing too. Having lots of people to care about is always a good thing.

    hugs ladies, I'm just takin' it easy today. xo Choc

  • Wyoming
    Wyoming Member Posts: 381
    edited June 2010

    Good News----my tumor marker numbers went down. First good news in awhile.

    Kelly it won't be long before you  get to use your porch. It will be so nice. Having coffee in the moring and wine at night. Kelly how is the knee?

    Chocolate I like your new avatar. Do you have your puppy home yet? You will have to keep us posted with pic as he grows.

    Leggy are you feeling better. Are your feet getting any better? Be careful at work so you don't fall again.

    Need to get back to cleaning house.

    Wyoming

  • LeggyJ
    LeggyJ Member Posts: 726
    edited June 2010

    Hi, thanks for all the love, I needed it!  Yesterday I called my Onc.'s nurse and told her about my on going neck and back pain, and she hasn't called back yet. I also emailed the Onc. who is out of the office, until next week.  But on a bright note my feet do feel a little better. Hey Choc. I do have a golf cart at work, THANK GOD!  Our property, is about 26 acres and all on a hillside, so we have a lot of golf carts, and I have my very own, parked right in front of my office.  But most of the rooms, have stairs. Over the last 10 years at work, I've worn out 3 golf carts...No wonder I'm DAT. 

    Take care

  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Leggy, I just want to also offer my support.  It just seems to be a nightmare at times.  I know your body tells you when it is tired, like your mind tells you when you are depressed.  Um...and I believe these two things certainly seem to correlate significantly with each other.  I wish I we could meet in wine country, a cruise, or on Kellys new porch, and just vent, giggle, and maybe clean up some dog poo if we felt up to it!  LOL!  Oh, I have really only been to Canada once eh!  Maybe that is a possiblity too.  Please take care of yourself Leggy!  We all support each other here and will continue.  That is my plan anyway.  Love you all....HD

  • ChocolateLover
    ChocolateLover Member Posts: 363
    edited June 2010

    Leggy I am glad to hear you have wheels. 3 in 10 years? whoa. ya, no wonder you're DAT!

    I am having a crappy day and just feel like crying. I had a barium x-ray this morning and looked at it with the radiologist. We can see a mass pushing against the esophagus which "is most likely" causing the swallowing issues i've been having. DAMN!!! I so wanted it to be allergies. or my gallbladder.  Now I have to wait until next week, hopefully Tuesday, to get an appt. where they can compare it to my last CT results from April to note the difference.  Well, my throat can tell the difference. I could eat then! Now I can't!

    I dont know if this will mean switching chemos again, or having rads to zap the one lump (if it is just one) or what. I admit I am worried and scared for what the future holds.

    The only silver lining is that my dh decided not to work this weekend (he has his own business and often works wkds) so we will go up to see the puppy again and hopefully this will keep my mind off things for the next day or two. I'm sure I'll cry most of the way up there ~3.5 hrs.drive~ and all the way back (without diesel). I'm a crybaby most days now. And I thought I was in menopause with no hormones anymore. sheesh. Ativan here I come. I'm trying not to panic but it's so hard. Stupid effing cancer!!!!!!!!

  • hunkydory
    hunkydory Member Posts: 1,241
    edited June 2010

    Aww, Choc.  My thoughts are with you...I wish I could be right there with you and help you through this rough time.  You are a strong woman.  I enjoy strong women.  We could place bets on how many times Diesel takes nose dives while still on wobbly legs, enjoy some fine wine....and whatever you can tolerate eating.  Ativan...yes mam!  I am glad your DH is with you.  Cry to us whenever you want.  This isn't summer camp, this is hell what we are going through until we are dead.  One thing I am certain of as stage IIIc.....there is no promise.  Please do not assume I know what you are going through....but I will always be here for you as I hope you will be here for me!  Big Hugs....and kiss that pup straight on for me.....HD!

  • LeggyJ
    LeggyJ Member Posts: 726
    edited June 2010

    Thank God we have each other!  It's been a long time since I've traveled up north to Canada, but it might take me a while to get there, with having to take frequent breaks to stretch my neck and back.  Hang in there Choc.!!! 

    I love you girls, and sure would like to meet you all.  The Napa Valley is a good place to meet!  By the way, you can look at my work place on line, it's Auberge Du Soleil !!!! 

  • Bonnie02
    Bonnie02 Member Posts: 193
    edited June 2010

    Hay Choc, wish I could do something for you, try not to think about it to much (yaa right) focus on your DH and Diesel.  How long before you can bring him home?  I don't know how old you are but I have a feeling that you are around the same age that my daughter got cancer which was around 35 or maybe you are younger. If I could switch cancers with you I would because I have had my life and then it would give you a much better chance. I really don't know what to say except keep your chin up and try and smile and enjoy life as much as possible.  You take care of yourself.

  • LeggyJ
    LeggyJ Member Posts: 726
    edited June 2010

    Breath in that healing puppy breath, Choc. it will do wonders. Prayers are with you.

Categories