Working During Treatment
I'm recently diagnosed, Stage 1, Grade 2, DCIS and IDC, going back in for a lumpectomy on July 8th to get clear margins (hopefully). Not sure what treatment will follow, likely radiation and possibly chemo. I'm interested in the cold, hard truth about trying to work during treatment, even if intermittently. I have an excellent short-term disability program at work, 6 months at full salary, and can even do "partial" disability and work part-time and still get full salary. Doesn't mean I will feel good enough to do so. Just wondering what other people have experienced. My job is pretty sedentary, project management/consulting, so not a high level of physical effort required. Any insight would be appreciated!
Comments
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Hi MrsNice - I had a lumpectomy, chemo and radiation. I missed a day here and there during chemo. I had a part-time desk job, so it wasn't strenuous work. I did radiation on my lunch hour, and that worked out well. I think it helped to keep working to take my mind off of the treatment. My biggest issue was when I was hospitalized for 11 days with pneumonia and congestive heart failure from the Herceptin. Ask about the Oncotype test to see if you would even benefit from chemo. Good luck and feel free to ask questions.
Juli
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I worked during treatment. I had around 2 weeks off after lumpectomy. Then during chemo I took the day off for chemo, and the following two days and then the weekend. I was more and more tired as chemo went on, but I was fine. I worked half days for a month during radiotherapy, then had the last two weeks off, then went back to work part time.
I had to work as Im single and had no other source of income. I had to work to pay the bills. I would have liked to take a year off work, but I couldnt and physically I coped fine. Emotionally though the stress that shitty people at work was the last thing I needed. I will never forgive certain work colleagues for what they put me thru during this year of my life, on top of what I was already dealing with. Looking back, it's almost as is they were jealous that due to my BC diagnosis and treatment certain people my have been giving me 'special treatment' so to speak and they wanted to 'right that' and even the score and treat me badly...it's really quite bizarre the way other women who havent had breast cancer can treat you when you go thru this. I hope for you that working thru treatment and the year following sees you surrounded by really nice work mates.
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I cut down to a 2-3 day a week schedule. It was doable and I got the rest I needed. If you have the option to cut down I would. A very smart friend said to me when I was considering this ....."If not now...when?" xxoo Annette
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I took one week off after my lumpectomy; worked all through chemo only missing for infusion days (which I had on Fridays so I could have the weekend to recover). I teach & it so happened that my radiation was in the summer, which was good because I had to drive 100 miles each way every day to get to where my radiation center is! (finished up four days before I started back to school!). I wanted to work because I would have gone crazy if I had just sat home thinking about what a crappy, scary situation I was in, and at work you HAVE to concentrate on other things, plus you get to interact with other people in a normal setting and think and talk about other people's lives, joys, problems instead of just sitting and dwelling on your own. I would see how it goes; if you feel you need to cut back, do so, but I wouldn't quit all together; keep doing as many normal, usual things as you can. Best of Luck! Ruth
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MrsNice: I was fortunate to have a low recurrance risk % and low OncoType score so I opted for no chemo. I had a lumpectomy 5/10 (missed one day of work) then a re-excision 10 days later (missed one day) then started rads last Thursday. I did take some days off here and there for the PET scan, various doc appts (try to schedule all on same day) but so far, I feel fine. My appt is at 7:45 AM so work is no problem. Have not had fatigue as yet though they say that usually kicks in around tx 10. I have a lot of energy anyway so maybe it will calm me down a bit. I am always going/going/going. But I like it so it works for me.
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Thanks, Ladies!! I am loving these discussion boards more and more; everyone is so helpful! I'm sort of amazed at some of you taking only a day or two after surgery - I had an outpatient surgery on May 17th and had major body aches afterward, there was no way I was going anywhere. That surgery was to remove the lump I had found which turned out B9, but I had bloody discharge from my nip that required another incision, and that's where they found the cancer - so the surgeon only took samples as opposed to trying to get clear margins around something. Upcoming surgery on July 8th will remove the nip and surrounding tissue to get clear margins; I'll be left with a smaller breast and will likely wear a partial prosthetic for awhile. I've got a ton of weight to lose before I decide on any reconstruction. Being obese adds to the difficulty for me, I know, and probably makes my recovery times longer. I have started walking and will continue to do so daily. Thanks, again!
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I''m glad you are walking; I think if you do get some light exercise during treatment it will help both with the physical and emotional recovery.......might not make any given treatment any easier but it helps you bounce back faster from them, I believe.
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I'm on 3/6 TCH and I am working through treatment. I do miss 3-4 days every three weeks but I have an understanding boss and I my STD is picking up those days I am out (as long as the dr. submits the forms). I would like to have the summer off but I think emotionally and physically it is probably better that I work--or attempt to!
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Every person is different. I did not miss a beat. I scheduled my chemo days on fridays, then on Monday I had my nuelesta shot, then off to work, repeat every 21 days x 6. My radiation I got in the morning before work. I had no difficulties. This could happen to you too. The unknown is the hardest part. My first chemo, the nurse started the iv, came back 45 min later and asked how i was. I stated fine, she then told me this would be the worst of it, and it was. Wait to see, it may not be so bad for you either.
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I had a mastectomy so I had to take 3 months off for that. I came back in the middle of chemo. The hardest part was getting dressed each day and trying to figure out which scarf matched which outfit.
I was tired but I shortened my day - I have a commute so I worked 6/7 hours a day instead of 9. It was fine. I had a bit of chemo brain so I had to write stuff down to remember it but it's gone now. You can do it!
But, if you really don't want to, then you can consider staying home. I think the body heals best when you are resting and sleeping and if you can manage to do that, you should. But, that is up to you and your feelings about work - you should be able to work if you do chemo.
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I did not work thru treatment. Short Term Disability and Long Term Disability helped tremendously. It was hard not being at work but now that I look back it was just the thing for me. I believe it has helped me heal. I have also been on Herceptin for almost year--and despite what people tell you, i believe you do feel something from the treatment. Prior to my diagnosis, I worked like a dog at my job for 10 years. I was completely burned out and exhausted when i started this journey. i am presently more relaxed than I have ever been and will be returning to work in September. I believe this time off has helped me to make changes in my life that I did not even know i needed to change. (I'm a slow learner!). Its just a very individual thing--i will admit that I felt real 'less than' because i wasn't able to work and so many women can. I'm happy with my decision now and feel it was the best for me even though i lost my job.
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I've finished surgery (lumpectomy) and still haven't gone back to work 4 weeks later. This is the case b/c I still don't know what my treatment will be and the anxiety is killing me. Having said that if I'm only Rads then I think I'll work through that but if it's chemo then I think I'll take the time to heal, rest, recuperate and not have to be "on" at work. I too do a lot of consulting type work in my career and while I really, really love my job my mental health is fragile right now.
Maybe some other ladies will know this, does that change once you start to undergo treatment? Did you feel differently once you started treatment as opposed to when you were in limbo? Quite honestly I feel a little like an "underperformer" at cancer right now!:)
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I took two days off when I had the lumpectomy/SNB and than the day of the chemo treatment. Next week I am starting radiation but plan to continue working. Have been feeling well enough to work and helps me keep my mind off the BC.
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I took 3 weeks off for my masctomy. Then 2 day off when I had my port put in . Worked a reduced work schedule, mening I took off on Thrusday afternoons for chemo. Had CMF and Taxol for 6 months. Then I worked thru 36 radiation treatments. I suffered thru cellulitis thru the whole time-THAT was hard 103.5 fevers, had a few days off here and there for that. I WISH I had the option of Disability, after the first 20 or so rad treatments it was very hard. They used a bolus towel on me and the skin seared off my chest. I still worked though, just used a wash cloth to stop seepage. Dressing for work was tricky. I wore a cami instead of a bra, and large over sized shirts. The first time I had cancer I stayed in bed for 5 years, so I was blessed to have a reason to get out of bed this time, and also was amazed at my ability to keep up my job performance thruout the illness. Forgetfullness, a little bit, use stickies and lists. GOOD LUCK!
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Lots of good input! Thank you!! I've just returned home from my pre-op appointments and check-in is 7:00 a.m. tomorrow. My doc was telling me not to even worry about what chemo and all until we know for sure what we're looking at. Honestly, I would choose not to work if I didn't have to. I am the sole income provider for my family and although my job wouldn't be at risk if I used up disability, it leaves my team at work in a lurch if I'm a flake. I am lucky to have a great bunch of people to work with who are very supportive. I'll just play it by ear and see how I feel.
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Sweeny, one word for that Xanax. You can pop one whenever you need it, and it doesnt take "weks" to kick in. Take control. I had freinds join me for treatment,couldnt drive home after Taxol chemo (I got pretty high on teh Benedryl IV drip). I HATED every minute of teh chemo, but dealt with it by being "sassy" at the chemo office. I would play volleyball with teh rubber gloves, etc. TRY and relax and "enjoy teh journey. My 1st time thru this adventure, I didnt realize this is PART of my life's work, it was my kids childhood, it was day after day of extra days to my life. Dont dwell too much on it, it will suck the life and joy out of you. jmho, HUGS t
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I think BC treatment , more than any other condition I know, affects different people differently even if they are on the same treatment programme.It is SO important to remember this - for those who have been fortunate enough to remain fit to work through chemotherapy - great. For those whose side effects have been such (overwhelming fatigue, nausea etc) that working hasn't been possible - just plain bad luck. They are not 'weaker' , pathetic or less diligent, the chemo-gods simply looked down from above and thought 'hmmm she'll be a good one to give a truckload of horrid SE's to!!'You are being wise on two counts Mrs Nice i) not worrying about the prospect of chemo until it arises ii) realising that it will be impossible to actually plan ahead regarding working or not. It's like childbirth, you can plan a lovely calm home birth but if circumstances dictate an emergency caesarian the bottom line is there ain't much you can to to alter it ;-)Hope your surgery went well
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I am nanny to twin girls - who just turned a year old. Thankfully their parents have been very compassionate and understanding since I was diagnosed. Though I was willing to give it a try (through treatment) they decided to look for temporary care for the girls. I was SO relieved when this decision was made! It took a load off my mind. Yes, unfortunately it also lightened my pocketbook each week
but the peace of mind in being able to put myself first, is priceless. I don't feel the pressure to push myself beyond what I'm comfortable with. I feel for those of you who aren't in such a position. It is incredibly difficult and trying. In the end it is your health (both physical and mental) that needs TLC the most right now.
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I worked pretty much through out treatment. I'm an engineer with a mostly desk job but some business travel (about once a month). I had the lumpectomy on a Friday and was able to work Monday (but I've always healed quickly from minor surgeries and things like that). Since I'm HER2+, chemo seemed pretty important. I considered not working during chemo and talked to HR about going on part time disability but it is kind of awkward to arrange if you don't know ahead of time how much time you will need off. Also, disability would cover 75% of my salary, but it doesn't cover my other compensation. My stock grants wouldn't vest while on disability (or would vest prorated if I had taken part time disability) and I'd lose income from, IRA matching, the stock purchase program and bonus pay. It would have worked out to less than half of my regular income. We could live on that but I decided to try working and see how that went.
I took my laptop with me to chemo and worked all during the infusion session (I didn't need benedryl and the steroids made me very alert). My manager was really good about accepting that there were some days in the midst of the chemo cycle when I wasn't very productive. And as others have mentioned, work was a useful distraction from focusing on worries or how bad I felt. I had some trouble with side effects from the Neupogen which got worse each cycle so the last cycle I worked some pretty short days (but I'm exempt so no one counts hours and my company was glad to get what they could).
I was able to schedule my chemo so that 3 trips fell during the third week of chemo cycles (my best time was from the start of the third week until a few days after infusion day). So I even did some of my usual business trips.
Rads went really smoothly for me. My appointment was around lunch time - I chose that time mainly to avoid rush hour traffic. Travel each way plus treatment took about 45 minutes. I really lucked out on radiation side effects. Tiredness never hit and I only had a little skin damage near the very end.
My boss and co-workers were very supportive which helped a lot. The hardest part was going to a meeting right after a co-worker died. He had had prostate cancer stage IV, was able to come back to work seeming fine for a year or two and then had a recurrence. He died shortly after restarting chemo. People at the meeting had known him for a long time and were very concerned about me. I had to reassure them that there is a long way between prognosis for someone who starts out stage IV and someone with stage I breast cancer - especially now that Herceptin is available for those who are HER2+.
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I worked straight through surgery/chemo/rads/herceptin also. i work from home, doing sales, account mgmt and project mgmt and I have to say that it was a pleasure to have an area of my life where I could just be 'ME' and not the 'cancer-me'. I was in a support group with a woman who had the exact same tx as I did at the same time, and she took a full leave from work. She said she sat aruond the house and worried/thought about cancer all day and wished she had kept working.
Now that being said, there were some days I did less, and I really did like being home to be near my own kitchen and my own bathroom, and not have to put 'real' clothes on and wig/makeup. But I did go to client meetings in my wig (never toldl clients until afterwards and they never had a clue) and it went fine. I figured out quickly which were my good days and scheduled stuff for that time.
Work was really a great escape from cancer. This is a LONG HAUL - esp if you have herceptin which takes a year - and I really thrived on having cancer pushed off of center stage at times during the process. Oh - also, I did arrange some back up help if I needed it - had coworkers who agreed to back me up, but I never did need them.
One time my stomach hurt and my husband drove with me to my local warehouse but that was only once.Overall, i was glad to have flexibility with my work, BUT it was a huge benefit to be working. I also experienced no chemo brain and I wonder how much that had to do withthe fact that I pushed myself mentally and kept myself alert. I don't know if there is any connection or if I was just fortunate.
Hope my info is helpful.
Amy
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Edited to redact a post with personal information.
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Thanks everyone for the info. Badger - I love the Klingon proverb!! Great!
I had my 3rd surgery on Thursday the 22nd to remove more nodes due to a micromet found on my sentinel node. Surgery was fine, but my drain is not working so my hubby has to change the dressings a couple times a day. Will hopefully have the drain removed tomorrow.
I feel like crap due to a cold bug I caught earlier in the week and now I'm coughing up goo and the coughing is wearing me out. Oh, and I got my Monthly Gift when I got home from the hospital on Friday. Triple Threat!! Arggh.
So glad I have a place to kvetch. Hope you all are doing well today!
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Hi everyone, reading all your posts sure helps, knowing that I am not alone when it comes to working through treatments for BC. I had a partial mastectomy July 16th, and am doing well, hardly no pain, still have my drain in,but hope that will be out on Wed. I work full time at a pet store, taking care of customers problems with their pets,also train birds of all sizes to be good and not bite when handled. I guess I am afraid my onocolgist will say I can't work in my store, that is not possible, I know my bosses say I can work when I want and do what I want, I guess I will have to wait and see what dr. says. Wish me luck ((((((hugs to all)))))
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