Stage 2
I had to kick myself out of the stage 1 thread/club as soon as my SN was positive.
Any ladies out there wanting to chat?
I am 10 days out of having a lumectomy and meeting with onc and radiologist June 18th and onc June 21st.
Not sure what to expect other than with node involvement it will be prolonged chemo on rads to breast and nodes.
I'm still struggling to come to terms with me having cancer. No family history.
I'm trying to find the fight in me, but it is hiding and I can't find it.
Each day brings new fears and challenges.
Needing some advise, support or maybe someone to give me a good kick up the ass?
Hugs to all my fellow sisters oxoxoxoxoxxxo
Comments
-
Swanseagirl, this is do-able. You have been through the hardest part which is the diagnosis and the surgery. You are just where I was a year ago. I was terrified of chemo--said that I would rather be dead then have chemo. Fortunately for me I found a wonderful oncologist (he was a second opinion doc) who inspired so much confidence. I was still terrified of chemo but I just had to show up that day and go thru it. A friend went with me. Fortunately I wasn't terrified of rads--my best friend went thru rads about 10 years ago and it was doable for her. I was also terrified of my first oncologist visit--i was so scared i couldn't ask any questions--just sitting through hearing what the onc had to say was enough for me. I didn't feel comfortable with the first onc and so i got a second opinion and that's when I found a wonderful doc.
You will find so much help and hope here on these boards. Ask any and all questions you have. And don't forget that your experience now is so helpful to other women who are just where you are.
Take care.
Lizzie
PS chemo was very doable as was rads.
-
I didn't have an family history of breast cancer either. I had chemo then lumpectomy then radiation. As I went through it, I found strength. When I first heard the word breast cancer I held on to my husband but did not cry. I cried the first couple of times of the chemo sessions but then found that humor helped get me through it...even when my hair fell out. I loved wearing wax lips to the chemo sessions and makinmg the nurses think I was having a bad reaction. Or wearing a clown wig while getting chemo (the room was always cold). You'll find your strength to get you through it. I am a big baby when it comes to procedures but somehow I made it. You will too.
-
I had no family history either....my twin is cancer free to date.
How old are you? Post meno gals with 1-3 nodes benefit from the oncotypeDX testing.
You may be able to avoid chemo. You are a grade 1 and may score low and eliminate it all together.
Best to you!
-
Hi
I will echo what others have said--- definitely ask for the oncotype--- it is so worth doing it to help you decide about chemo----
If you have to do chemo, let me tell you, it is nowhere near as bad as you imagine---it is not pleasant, but you can do it. Everyone reacts differently-I can only tell you that I worked fulltime through most of it and I have young children....
What I really want you to know, though, is that I am over a year out of active treatment (radiation ended in May of ;09) and I feel fabulous, hair is back, I am exercising, healthy, healthy healthy---- it some ways, it is almost like it never happened (although it did).
My point is, the day will come when this will NOT consume your every thought-and treatment, although it looms large right now, is a small period of time in your life......
I had no family history either.....
keep us posted. I always brought a digital voice recorder to my appointments along with a list of questions so I could focus on the dr and not take notes.
I think you have every reason for great outcomes... expect them!!!!
-
let me also add that my chemo was done over 8 weeks-that was it--- so don't assume it will be prolonged.....
-
Thank you all for your support and encouragement. Wallycat, i am 42 and pre-menopause.
I am going to ask for the Oncotype test, however, I've been told it will not make a difference in me getting chemo as I had a positive node.
I guess I will have to wait until I see the ONC and radiologist.
Sorry if I sound like a big drama queen. I am usually the strong leader. This is just scary to me and overwhelming beyond anything I've gone through before.
I had thyroid cancer 4 years ago and that was nothing compared to this.
I figured I had already paid my cancer dues. Wow was I wrong.
Thank you, thank you, thanks you for your support.
Mmmmh, and nobody offered to give me a good kick up the backside. LOL
Hugs oxoxox
-
Swanseagirl--you should take the oncotype test, and if your score is low risk, which looks possible given your dx (ILC, Grade1, HER2-), most oncs will not insist on your doing chemo. If yours does insist, consider getting a second opinion.
Some oncs are reluctant to give up the convenience of assuming that one positive node means that the patient has an aggressive tumor which requires aggressive treatment. The oncotype test allows one to assess the nature of the tumor more precisely and treat it accordingly.
-
Seabee, thanks for the great advice.
Being armed with information and research makes me feel a little more in control.
Many many thanks
Jules
-
Hi, I wanted to let you know that it is indeed doable. I was dx in Oct2009. Had lumpectomy, chemo (cytox/taxotere x4) and then rads x30. I worked as a nurse during most of the chemo. I took off a day here or there- lucky with some flexability. I have finally taken a couple of weeks off at the end of the rads because of skin issues. Can't wear a bra and I was getting pretty red. This way I can heal up properly and got back to work without problems.
The folks here give sound advice. You will be able to figure out what works best for you.
There is a huge amount of info to go thru and I know my own anxiety level made it hard to process at first. Good luck, you will get there. K
-
Hey swansea girl!
The fight is there, I think. Everyday we get up we are fighting! Each visit you make to the doctor, you are fighting.
I went to a local support group last week and there were many ladies there who had chemo or were having chemo and they all said it wasn't pleasant, but it wasn't horrible either. They say the drugs they use are gentler and that they have medication to counter alot of the side effects like nausea and vomiting. I hope this is true.
Welcome to the Stage 2 club, personally I like stage 2 and I hope I stay here, although when my node biopsy comes in maybe I will have to jump....lets hope not!
Anyway, good luck on your appointments. Sending good wishes and hugs your way...Debbi
-
I understand where you are at right now. I am 40 and sitting in the same boat. I haven't reacted much to the diagnosis and been okay so far but today is decision day and it is all becoming more real.
You can do this. Although I don't have positive SN, two close friends of mine have and went thru chemo, radiation and hormone therapy. They both are fine and over 6 months cancer free. It is a little rough going thru the chemo but one still managed to work.
You can do this!!! My attitude is "lets just hurry up and get it out and get treatment over with. I have better things to do with my life". Look at the glass half full sweetie and stay positive

I am always here to talk if you like. I am going to get my onco test results this morning and make the decision for chemo or no chemo. I have no positive SN but still struggling with making the decision.

-
swanseagirl--You're welcome!
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team