Chemo June 2010

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  • twinmomjackie
    twinmomjackie Member Posts: 24
    edited June 2010

    Algreach- Thank you so much for that link! I laughed until I cried. It is so funny and inspirational.

  • twinmomjackie
    twinmomjackie Member Posts: 24
    edited June 2010

    Algreach- Thank you so much for that link! I laughed until I cried. It is so funny and inspirational.

  • Beanius
    Beanius Member Posts: 1,697
    edited June 2010

    algreach - Wow! That packs a punch! Yes, laughed and cried, great show - Many thanks for sharing...

  • DesignerMom
    DesignerMom Member Posts: 1,464
    edited June 2010

    algeach-  Thanks for the youtube video.  Brilliant!!!  I think we all will end up stronger, more truthful and with fierce attitude from this "adventure".

  • jenweg
    jenweg Member Posts: 195
    edited June 2010

    I can say that things definitely don't bother me like they used to before all of this crap.  My son just got his permit last week and I am not a nervous, stressed out wreck with him driving.  Now when my two daugthers had their permits, i was a freak about them driving and nervous as can be.  I definitely think that after enduring all that we do it makes us take a step back and see that most things in life really don't matter!!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2010

    Algreach, beautiful video, thanks, made me laugh and cry...amazing women!

  • Sherry9316
    Sherry9316 Member Posts: 294
    edited June 2010

    Algreach - it seems you made the day of many people.  I too loved the video.

    Today I am feeling better on 2 day of 1st treatment.  I'm going in a little while to get my neulasta injection.  Any tips for that?  I feel tired and out of energy today, but nothing else significant.  Don't have much of an appetite.  

    My wig is in and I'm going by to pick up it on my way to get shot.  My hairdresser wants me to wear it a couple of days and then see how much of it I want her to cut (if any).  I choose a longer style becuase my hair is long.  But the temps have been so hot here lately I might want to trim it up quite a bit.  We will talk about when to shave my head.  Probably this weekend.  I'm hoping I feel well enough my week off to go with granddaughters to Big Splash.  I bought season tickets last year.

  • Sherry9316
    Sherry9316 Member Posts: 294
    edited June 2010

    P.S.  How do you post pics for your avatar on here?

  • TMarina
    TMarina Member Posts: 692
    edited June 2010

    Sherry-->I suggest you take some Aleve or ibuprofen right before you get your shot.  Many people are also recommending Claritin.  I took that just in case, and my nurse said it wouldn't hurt to take it. I have not had any pain!  I had terrible pain in the past with neupogen shots (similar to Neulasta, but shorter acting), so my nurse and I were really worried about the Neulasta.  When I had pain with Neupogen, I alternated ibuprofen and Tylenol throughout the day and that really helped.  Only take ibuprofen if your platelet counts are ok. 

    I'm sure the nurse that does your shot can give you advice too!  God luck!!

    T

  • kaycee
    kaycee Member Posts: 39
    edited June 2010

    Hi Ladies!

    I'm late to the party, as usual. I will be starting my chemo on 6/25. I'm scheduled for TC 4x at 3 week intervals. I'm a little freaked out about the Taxotere, and plan to discuss Taxol as an alternative when I meet with my onc again on 6/21, so "maybe" the schedule will change.

    I had my port placement Tuesday, and it went well with minimal pain. It's on the left side, and is just a little sore when I reach with my left arm or bend over too quickly. Everyone assures me that it will be worth it as chemo burns up little veins pretty badly. 

    My wonderful postman delivered a wig yesterday (I've been shopping like mad since I just can't see myself Rocking the Bald), and the seller included this poem that I really loved.

     What Cancer Cannot Do

    Cancer is so limited...

    It cannot cripple love.

    It cannot shatter hope.

    It cannot corrode faith.

    It cannot eat away peace.

    It cannot destroy confidence.

    It cannot kill friendship.

    It cannot shut out memories.

    It cannot silence courage.

    It cannot reduce eternal life.

    It cannot quench the Spirit.

    ~~Author Unknown

    God bless all.

  • Sherry9316
    Sherry9316 Member Posts: 294
    edited June 2010

    Thanks, TMarina, for the med tips.  The nurse did tell me today to take Tylenol and a Claritn, which I have done.  So, here's hoping.  Now if anyone can help me post a pic I MIGHT post my shaved head one.  Or maybe not  It's not like anyone here hasn't seen a bald head - LOL!

  • cheyenna
    cheyenna Member Posts: 379
    edited June 2010
    well ladies, may i join your June Chemo cocktail party please Cool i start tomorrow morning at 9 am (Friday) (whew hoo) im so very nervous.. ACx4 Tx12 i have decided  to do it at the hospital and not my ONC office, they did not order my drug so they sending me to hospital for first treatment and when i went in to check it out, the nurses were so wonderful to me and even gave me my own corner cause i will be in tears the whole time..lol.. they will make it good for me... i dont have that feeling at all at the ONC office.. but its time to get started!!! ive not been able to come to terms with this but as you all said once i start treatment it should get better..Smile thank you
  • SKD
    SKD Member Posts: 140
    edited June 2010

    kittycat: I am on FEC x 3 followed by Docetaxel x 3.

    algreachL that video is hilarious, thanks so much for posting that. 

    I went to the doctor today to make sure my blood count etc.. was good for tomorrow, and it was! So round 2 tomorrow...

  • brat352
    brat352 Member Posts: 41
    edited June 2010

    Thanks Algreach for the video.  Laughed my butt off!

    Going in Saturday for wig fitting and will probably have my head shaved pretty close.  Donating my hair (measured it today and it's 15 inches long from the ponytail!) to "Locks of Love".  At least someone can get some use out of it!

    Work was totally a turnaround today!  The RN was nice to me and told me I am eligible for "intermittent FMLA" so I will get paid for the day I have to take off for tx.  My boss apologized for all the horrible stuff that happened yesterday and totally understands that I'm going to try to work as much as I can, but if I'm not able to, it's okay. 

    Julie2, Bon, Meliss and Kaycee:  we are all on same tx plan!  Keep posting to keep us informed of how you are doing.  This is a great board and these ladies are THE BOMB!

    Everyone have a great night!

  • Sherry9316
    Sherry9316 Member Posts: 294
    edited June 2010

    Question about Claritin and the Neulasta shot - do you take the Claritin the day of the shot only or do you take it for a day or two.  I'm a bit conused.

  • TMarina
    TMarina Member Posts: 692
    edited June 2010

    I think some have said to take it for a couple of days?  I just took it the first day.  Never had any pain, so not sure if it was from Claritin or not.

    You should be able to upload a pic from you computer by going to "My Home" at the top.  There should be something there that says "add picture".  Sorry I can't be much more help than that! 

    I got my hair cut much shorter today, and will have a friend buzz it when it starts falling out.  Can't bear to part with it before that!  I hop you can get a pic up!  Love to see it!

    T

  • PennStater
    PennStater Member Posts: 10
    edited June 2010

    Had 2nd A/C treatment today.....was pretty uneventful, just like the first one (knock on wood).

    My hair is starting to fall out, right on schedule (day 14).  Not coming out in chunks or anything yet, but way more hair in the drain than normal when I showered this morning.  I'll probably go ahead and buzz it tomorrow night; I have a wig, some scarves and a few baseball caps ready to go. 

  • kittycat
    kittycat Member Posts: 2,144
    edited June 2010

    Holli - the wig salon by my house sells Lindi products.  They said they work great!

    So, today is my 1 year anniversary of my first diagnosis - yeah.  I can't really celebrate because I got cancer again and I'm on chemo.  I got my Neulasta shot and it was uneventful.  Let's hope it stays that way.  I was doing fine all day and then....  my dermatologist's office calls me.  They removed a mole from my back last week.  She said they'd only call if there was something wrong with the mole.  I called them back,but it was too late, they were closed!  Crap!  Now I have to fester all night about this! 

  • MelMel10
    MelMel10 Member Posts: 19
    edited June 2010

    Hi All,

    My hair has also started to come out (I'm at day 17 on first tx of TCH). My head started getting sore yesterday and today my hair has been coming out in handfuls. It seems to be thinning rather than coming out in clumps. I have really thick hair and can afford to lose quite a bit (as long as I don't lose it in clumps), so I think that I'm going to wait about shaving it until I see the clumps coming out. I already have my wig ready, so I'm prepared for it when it does happen. This is my "good" week, and I have felt pretty much normal, yeah!! My 2nd tx is scheduled for next Wednesday, and so it will begin again, but now I have some idea of what to expect. It's not nearly as scary this time.

    To all you ladies who are waiting for your first tx - I hope that you all are as lucky as I have been with SE's. I have had very mild SE's, no nausea whatsoever, and have been able to work every day. I am saying prayers for you all and sending hugs and well wishes your way. It was not nearly as bad as I had made it out to be in my imagination. Hang in there everyone! 

  • meliss
    meliss Member Posts: 31
    edited June 2010

    Hair is starting to fall out now (day 10). Being the procrastinator that I am, I don't have a wig, or hats, or scarves yet. I did go look at wigs today, and am going to another place tomorrow. I do have a closet full of fabric (I'm a quilter), so I can figure something out if I have to before I get a wig ready to wear.

  • DesignerMom
    DesignerMom Member Posts: 1,464
    edited June 2010

    sherry- to add your photo:  There are tabs above ( favorite topics, private messages, active topics).There is one that says "My home".  Just click on that and you will see in the upper left corner "add photo". You should be able to upload from your computer.

    Maybe someone can tell me how you guys add quotes and things down under your diagnosis?  I can't figure that out.

    Cheyenna-  Hurray!  You nailed it down.  You are going to do just fine, you'll see.  I'm glad you are getting your chemo at the hospital.  I didn't have a confident feeling about your Onc as they DIDN'T EVEN GET THE DRUGS IN TIME!  Another thing about getting chemo at the hospital is that they are set up for allergic reactions or problems.  NOTHING is going to happen, but it is nice to know they have oxygen, crash carts and everything there in case.  By the way, I am so paranoid, I quizzed my lovely nurse.  She told me she chose a particular chair for my first time and pointed out the oxygen mask, crash meds everything all laid out behind me.  It is their procedure that they follow.  Take it from someone who knows, you want to head constpation off at the pass.  The anti-nausea meds can cause holocaustic constipation.  I would suggest lots of extra fruit and fiber today.  Be sure to hydrate and drink lots of water too.   I'll be thinking about you tomorrow!

    kittycat-you just are having no luck with the waiting game!  I'm so sorry you have to worry about the dermatologist's report.  I am hoping it will be good news for you!

    tmarina- I like your new photo!

    skd-  you will be in my thoughts and prayers tomorrow.  Won't it feel good to have two under your belt!

  • alsu777
    alsu777 Member Posts: 15
    edited June 2010

    I am in!

    June 17 (have started today) Dose dense AC/T.

  • DesignerMom
    DesignerMom Member Posts: 1,464
    edited June 2010

    meliss-  Like you, I have tons of fabric (not that I am motivated to do anything with it) as I am a designer.  I googled "free chemo scarf pattern"   found a pattern that I printed right off my computer.  It is fitted with ties and tails.  Unfortunately,  it does not have a reference other than Sewers Forum.  I'm sure you can probably make something yourself, but this sure would make it easy and looked like it would not slip around on your head. You will find loads of free chemo scarf patterns as many folks make and give them for charity projects.  It's got me thinking that might be a way to use all my leftover fabrics! 

    alsu-Hooray!  I hope you have few SE.  Drink your fluids!

  • angelwoman1
    angelwoman1 Member Posts: 27
    edited June 2010

       Went to get blood work today, WBC 2.1 should be 4.3, Platletts 100 should be 150. I almost cried! I have done everythng they told me to do! They tell me not to worry it will go back up by the time my next treatment 6/24/10.  I have a sore mouth, now do 1/8 salt,1/4 baking soda,and warm water! No visable sores though. I just done understand why the wbc did not co operate! Love you all pam

  • kittycat
    kittycat Member Posts: 2,144
    edited June 2010

    alsu - welcome to the dd AC/T club!  Hope everything goes well for you and little to no SE's!  :)

  • alsu777
    alsu777 Member Posts: 15
    edited June 2010

    Well, until I read the whole thread I though I was safe thru the second round. I am happy not to have SE as of today (the 1st one was today) but I see now that it might start days 2, 3, 5 ... etc (not round 2! 3!)

    I surprisingly handled the surgery, after surgery recovery, power port, etc.  really well. It's either because as we say in Russia: on me "everything heals like on a dog's skin" (sorry if the translation doesn't sound adequate), and apparently the assumption is that dogs' wounds are being healed fast and easy; or I was just lucky. We'll see. I keep my fingers crossed that I will be able to go thru chemo with minimal SE since I am alone now (well, crap happens), and my job is only part-time so I have to go to work trying not to miss a day.

    And I am fine. The hope is that I will stay that "fine" way thru the end until I am cancer free, with perked boobs and a free tummy tuck! LOL

  • RS711
    RS711 Member Posts: 105
    edited June 2010

    designermom- theres an edit button under your post, you can add text that will be a signature...

  • MzCaprcorn
    MzCaprcorn Member Posts: 3
    edited June 2010

    Ladies, thanks to your encouragement and great information, I was ready for my first chemo. It went very well, the only discomfort was the iv installation. So glad I am having a port installed. No immediate reaction to the drugs so I am good for a quicker infusion next time. Had a diarrhea onset, took immodium right away and it stopped. Just a slight off taste but still snacking or is it called grazing?  Undecided I've made myself a white "fun fur" chemo cap that is really cute. Thinking I should make a blue/aqua on - my favorite colors, maybe stick on a temporary tattoo on my cheek for my next visit. That should get some "looks" or even "laughs" - we all need that. So glad number one is done. I think the waiting/anxiety was the worst part of it. Can't wait for my hair to fall out, that means those little buggers in my breast are going too!! 

  • PennStater
    PennStater Member Posts: 10
    edited June 2010

    If you don't want to have to retype your signature each time, go to "My Home" (third tab over at the top of the page), click on my profile, then scroll all the way down to find edit signature.  You can add quotes, or additional info about you diagnosis, surgery etc. 

  • batoday
    batoday Member Posts: 27
    edited June 2010

    I had my firest treatment on Tues.  I still have nausea. I am controlling it with Zofran at day time and with Avtan at night.  Avitan doesn't work as good as Zofran though.  I am tempting to take Zofran at PM too but then I guess i will stay whole night awake. Water tastes strange.  Has anyone experiene this?

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