is IDC slow or fast growing?

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ebarb
ebarb Member Posts: 38
is IDC slow or fast growing?

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  • ebarb
    ebarb Member Posts: 38
    edited May 2010

    I just posted a different question a few minutes ago but forgot one thing-

    is IDC slow or fast growing?  I have a few surgeon appts but one is not for a month, and I don't know if I can wait that long, even if that person is recommended if this is fast growing.

    Any ideas?  Thanks,
    Erin

  • yellow78
    yellow78 Member Posts: 82
    edited May 2010

    Hi Erin,

    I too was just diagnosed with IDC last week.  I had a lumpectomy on Monday and now I am waiting for the finally pathology results which I will get tomorrow.  My understanding is it depends on the grade of the tumor but I am not sure.  I am still very new to this.  My tumor is a grade 3 so that I believe it is a fast growing tumor. Hang in there waiting is the worse.  I just joined this board this week and I find reading the posts help. 

    Jenn 

  • ADK
    ADK Member Posts: 2,259
    edited May 2010

    Hi Erin,

    No one can answer your question because it can be either.  It depends on the grade and aggressiveness of the disease. 

    I had both DCIS and IDC.  I waited for about five years between the appearance of the lump (2001) and surgical excision (2006).  I had a fine needle aspirtion in 2001 and they said they didn't find anything which is why I waited so long to have the surgery.  So, mine was definitely slow growing.  There are other women here whose lumps double in size quickly. 

    You have to do what makes you most comfortable, but a month doesn't seem that long - you could contact the doctor's office and ask them to call you if there are any cancellations.  Good luck. 

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited May 2010

    Both.  BC growth follows a curve where it grows very slowly for a long time, then it starts to accelerate.  The tine it takes to do this depends on a lot of factors.

    I asked my surgeon a version of this question, and she said that normally you have about six months before things progress significantly.  (She thought I was Stage III at the time.)  So waiting a month is normally OK.  In fact, I discovered you need that amount of time to get all the pre-surgery stuff done.

    I just noticed your diagnosis date.  Relax.  You do have some time, and more important to get all the groundwork done correctly than to rush straight into surgery.  BTW - if they thought it was an emergency, they would tell you.

    I remember when I was being diagnosed with the ultrasound pointing to the fact that I most likely had cancer.  I scheduled the core needle biopsy for a Monday as opposed to a Friday so I could do a cycling trip I had planned.  I didn't lose any real time, and I got my head in shape for the journey ahead.

    Good luck.

    p.s.  One thing I think helped me was to get my body strong.  BC treatment is an endurance event and the more fit in body and spirit you are going in, the easier the trip through.

  • marichai22
    marichai22 Member Posts: 31
    edited May 2010

    This is one thing that is worrying me about my mom's cancer.  All we know is she has IDC Grade 3 but nothing more.  She was diagnosed March 24th but is scheduled for surgery June 28th. We went through alot of set backs for her surgery date. It will be difficult to schedule the plastic surgeon with the general surgeon this upcoming month because they are on vacation.  I guess getting breast cancer during the summer is not good cause all the surgeons are on vacation. She is scheduled to have a mastectomy with an immediate reconstruction. We are wondering if we should just go ahead with the mastectomy and worry about the reconstruction later if her cancer is fast growing. First we were told hers was fast growing but now they are saying well another month won't make the cancer grow tremendously bigger.  So we don't know is waiting 3 months from your diagnosis date too long to wait for surgery? Should we just go ahead and just do the mastectomy now and wait for the reconstruction?

  • in_cognito
    in_cognito Member Posts: 429
    edited May 2010

    IDC can be either fast or slow growing.  Were you able to get a copy of your biopsy report? It may say on there.  (Well differentiated = slow growing, poorly differentiated = fast growing).  My preliminary biopsy report came back as slow growing - yet that can also change with the final pathology report after surgery. 

  • ebarb
    ebarb Member Posts: 38
    edited May 2010

    It doesn't say anything about well or poorly differentiated, but it does say Grade 2.  It says DCIS for 70% of the tumor, and i assume the other 30% is IDC.  The longest length of the tumor is 1.6 cm. 

    What is a notthingham score?  Mine was 7/9.

  • Luah
    Luah Member Posts: 1,541
    edited May 2010

    For a lumpectomy (and no reconstruction) I had to wait a month from time of diagnosis to surgery (and about 7 weeks from the time I discovered the lump)... that was plenty long enough for me, emotionally if nothing else. Later, the path showed the tumours as grade 3, nottingham 9/9, so I'm glad the surgey wasn't any later.  Had I opted for a mastectomy, getting simultaneous reconstruction with PS and BS schedules would have taken months longer and I would definitely not have waited for that. However, cancers are all different and people's tolerance for waiting is different. I would be asking my docs some pointed questions about the risk of delay and follow their recommendations.  Good luck.

  • Ronike
    Ronike Member Posts: 5
    edited May 2011

    Hi Ebarb - the Nottingham score is a scoring system to assess the grade of the BC by how the cells look under the microscope. They look at 3 different things giving each one a score of 1 2 or 3

    Wishing you good luck

  • ishobie
    ishobie Member Posts: 96
    edited May 2010

    I had DCIS and IDC with a very small tumor, clean margins and SNB negative, 3 nodes negative, but because i am HER2+ they are going to treat me with 6 rounds of chemo and herceptin and then 9 months of herceptin.  I had the mastectomy on 5/3/2010. I really think it has a lot to do with the Grade and the ER/PR or HER2 receptors.

  • angelwoman1
    angelwoman1 Member Posts: 27
    edited May 2010

    I was diagnosed 5/12/10, have type 2 ldc and have had bone scans,chest and abdomen scans and a ekg 2 doppler for the heart. I had the port put in on 5/25/10 and they found something in the bronhialtube and have to have a bronscopy 6/3/10, called the onco and told them I was worried this was going to grow and they told me they have a handle on it not to worry grade 2 is a moderate growernot slow and not fast.hope this helps pam

  • tgood02
    tgood02 Member Posts: 26
    edited June 2010

    I sure hope that it grows slowly. It was found on a mammogram in March and I won't have the surgery until about the middle of July, a 4 month waiting period until full treatment begins.

  • ebarb
    ebarb Member Posts: 38
    edited June 2010

    I don't have estrogen receptors on my tumor, and from my latest tests- MRI, CT scan and bone scan, everything is clear and fine.  He even told me my lymph nodes are remarkably clear.  I wonder what treatment I will have.  He also said he believed that I would need chemo. 


    What is HER2?  What tests do they do for that?  What is ER/PR?

  • Ca1Ripken
    Ca1Ripken Member Posts: 1,254
    edited June 2010

    Hi, and welcome to the club - sorry you are here, but these ladies are great all around!!  I'm still pretty new, but will try and help with some answers.  I'm glad your scans were clear, that's great.  I assume they were 'staging' you before treatment.  You are looking for ER status (you are negative) and PR status; and HER2 status.  HER2 positive tumors are a minority (about 25%) and they indicate the aggressiveness of the tumor.  There is a drug called herceptin that is given to tumors that are HER2+.  Your tumor is grade 2, which is as someone else said, not fast and not slow growing - it's in the middle.  If your nodes "look clear" that's good, but you may want to have a SNB (sentinel node biopsy) to make sure before treatment.  You have some decisions... lumpectomy vs. mastectomy, genetic testing, etc.  Waiting is the worst.  If they are saying you will need chemo, it may be because of the size of your tumor (over 2 cm).  Feel free to PM me anytime.  I know this is all very overwhelming, and your head is probably still spinning not wanting to believe that this has happened to you!  Hang in there, hon!!  (((HUGS)))

  • stphns_m
    stphns_m Member Posts: 10
    edited July 2010

    To Leanna9 - that's great advice, I have a similar diagnosis to you, the waiting is the worst. When I was 44yrs old, I felt a lump in my left breast, had a mammogram which was clear, had 3 core biopsy of 1.2x1.8cm tumour guided by ultrasound on 30 Dec 2008. After nuclear & blue die tests for sentinal node, chest x-ray, full body CT & bone scan - no mets detectable. 1st surgery on 30 Jan 2009 lumpectomy and sentinal node dissection. I waited 10 days for pathology results - 5cms removed margins not clear, 2 sentinal nodes positive, 2nd surgery 13 Feb 2009 left side mastectomy to chest wall, additional 21 nodes removed, 1 positive. Pathology came back - multifocal IDC, further 9cms mass totalling 14cms with clear margins, Stage III, 3/23 nodes +, ER+/PR+ HER2+, drain left in for 25 days causing cording and problems moving left arm requiring physiotherapy, chest portacath inserted 23 March 2009 (day of my 1st chemo treatment) -  Doxorubicin (Adriamycin) & Cyclophosphamide (Endoxana) every 3 weeks x 4 doses. After 1st dose on my 10th day rushed to hospital emergency neutrapenic (no white cells) with high fever & coughing, admitted to cancer ward isolation room for 6 days, with daily Nurlasta injections till white cell count rose, then 24 hours after next 3 doses, Taxol weekly x 12 doses together with weekly Herceptin (worst side effects - peripheral neurapathy (nerve damage) in hands & feet, lost ability to read & understand things and loss of balance - very wobbly walking), 25 doses of radiation across chest, underarm, across collarbone and neck and across my back cutting across my left lung and heart (which my skin handled well - just a bit pink afterwards), 3 mnthly ECGs to check my global systolic function while on Herceptin doses continuing 3 wkly for 12 months (last treatment 1 June 2010), started daily Tamoxifen Nov 2009 for 5 years, early menopause since April 2009 (might change to Aramotose? if periods don't return), breast reconstruction from tummy tuck planned. I've had 30 visits to the hospital for chemo treatment as well as the 25 radiation visits together with breast clinic, surgeon, physio, plastics, ECGs, blood tests, oncologist visits, radiation followups, ultrasounds to check various lumps found. I just hop on the local bus & in 30 mins I'm walking into the hospital. It's been a long slog - with more to come so patience is what I'm good at. Getting to know the staff and other breast cancer patients has been what gets me through. Sometimes a visit can be as long as 8 hours. I have never been told what the grade was?? I have been told by oncology registrar  that it was DCIS not IDC, although the nurses have checked my path report and said that it is IDC and very aggressive. I was supposed to have a inflator put in at the time of the mastectomy but once it was discovered that it was so extensive and close to the chest wall with the need for radiation, that idea was shelved. Now I've been advised not to have an implant because of the amount of radiation I have received (apparently high risk of infection, encaptulation). I have been advised to keep my portacath for at least 6 months (having it flushed 6 wkly) so that puts off reconstruction plans again for a while (more time to heal). So hang in there as I am now feeling about 90% myself and hope to soon be leaping tall buildings (joke). So good to read all these posts and other people's stories to know I am not alone down here in Australia.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2010

    I would encourage you to have the Oncotype test.  It will give you information as to how agressive your IDC is.

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