Stage 2

swanseagirl
swanseagirl Member Posts: 393

I had to kick myself out of the stage 1 thread/club as soon as my SN was positive.

Any ladies out there wanting to chat?

I am 10 days out of having a lumectomy and meeting with onc and radiologist June 18th and onc June 21st.

Not sure what to expect other than with node involvement it will be prolonged chemo on rads to breast and nodes.

I'm still struggling to come to terms with me having cancer. No family history.

I'm trying to find the fight in me, but it is hiding and I can't find it.

Each day brings new fears and challenges.

Needing some advise, support or  maybe someone to give me a good kick up the ass?

Hugs to all my fellow sisters oxoxoxoxoxxxo

Comments

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited June 2010

    Swanseagirl, this is do-able.  You have been through the hardest part which is the diagnosis and the surgery. You are just where I was a year ago.  I was terrified of chemo--said that I would rather be dead then have chemo.  Fortunately for me I found a wonderful oncologist (he was a second opinion doc) who inspired so much confidence.  I was still terrified of chemo but I just had to show up that day and go thru it.  A friend went with me.  Fortunately I wasn't terrified of rads--my best friend went thru rads about 10 years ago and it was doable for her.  I was also terrified of my first oncologist visit--i was so scared i couldn't ask any questions--just sitting through hearing what the onc had to say was enough for me.  I didn't feel comfortable with the first onc and so i got a second opinion and that's when I found a wonderful doc.

     You will find so much help and hope here on these boards.  Ask any and all questions you have.  And don't forget that your experience now is so helpful to other women who are just where you are.

    Take care.

    Lizzie 

    PS  chemo was very doable as was rads. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2010

    I didn't have an family history of breast cancer either. I had chemo then lumpectomy then radiation. As I went through it, I found strength. When I first heard the word breast cancer I held on to my husband but did not cry. I cried the first couple of times of the chemo sessions but then found that humor helped get me through it...even when my hair fell out. I loved wearing wax lips to the chemo sessions and makinmg the nurses think I was having a bad reaction. Or wearing a clown wig while getting chemo (the room was always cold). You'll find your strength to get you through it. I am a big baby when it comes to procedures but somehow I made it. You will too.

  • wallycat
    wallycat Member Posts: 3,227
    edited June 2010

    I had no family history either....my twin is cancer free to date.

    How old are you?  Post meno gals with 1-3 nodes benefit from the oncotypeDX testing.

    You may be able to avoid chemo.  You are a grade 1 and may score low and eliminate it all together.

    Best to you!

  • momand2kids
    momand2kids Member Posts: 1,508
    edited June 2010

    Hi

    I will echo what others have said--- definitely ask for the oncotype--- it is so worth doing it to help you decide about chemo----

    If you have to do chemo, let me tell you, it is nowhere near as bad as you imagine---it is not pleasant, but you can do it.  Everyone reacts differently-I can only tell you that I worked fulltime through most of it and I have young children....

    What I really want you to know, though, is that I am over a year out of active treatment (radiation ended in May of ;09) and I feel fabulous, hair is back, I am exercising, healthy, healthy healthy---- it some ways, it is almost like it never happened (although it did).

    My point is, the day will come when this will NOT consume your every thought-and treatment, although it looms large right now, is a small period of time in your life......

    I had no family history either.....

    keep us posted.  I always brought a digital voice recorder to my appointments along with a list of questions so I could focus on the dr and not take notes.  

    I think you have every reason for great outcomes... expect them!!!!

  • momand2kids
    momand2kids Member Posts: 1,508
    edited June 2010

    let me also add that my chemo was done over 8 weeks-that was it--- so don't assume it will be prolonged.....

  • swanseagirl
    swanseagirl Member Posts: 393
    edited June 2010

    Thank you all for your support and encouragement.  Wallycat, i am 42 and pre-menopause.

    I am going to ask for the Oncotype test, however, I've been told it will not make a difference in me getting chemo as I had a positive node.

    I guess I will have to wait until I see the ONC and radiologist.

    Sorry if I sound like a big drama queen. I am usually the strong leader.  This is just scary to me and overwhelming beyond anything I've gone through before.

    I had thyroid cancer 4 years ago and that was nothing compared to this.

    I figured I had already paid my cancer dues.  Wow was I wrong.

    Thank you, thank you, thanks you for your support. 

    Mmmmh, and nobody offered to give me a good kick up the backside.  LOL

    Hugs oxoxox

  • Seabee
    Seabee Member Posts: 557
    edited June 2010

    Swanseagirl--you should take the oncotype test, and if your score is low risk, which looks possible given your dx (ILC, Grade1, HER2-), most oncs will not insist on your doing chemo.  If yours does insist, consider getting a second opinion.

    Some oncs are reluctant to give up the convenience of assuming that one positive node means that the patient has an aggressive tumor which requires aggressive treatment. The oncotype test allows one to assess the nature of the tumor more precisely and treat it accordingly.

  • swanseagirl
    swanseagirl Member Posts: 393
    edited June 2010

    Seabee, thanks for the great advice. 

    Being armed with information and research makes me feel a little more in control.

    Many many thanks

    Jules

  • KKeckiella
    KKeckiella Member Posts: 5
    edited June 2010

    Hi,  I wanted to let you know that it is indeed doable.   I was dx in Oct2009.  Had lumpectomy, chemo (cytox/taxotere x4) and then rads x30.  I worked as a nurse during most of the chemo.  I took off a day here or there- lucky with some flexability.   I have finally taken a couple of weeks off at the end of the rads because of skin issues. Can't wear a bra and I was getting pretty red.  This way I can heal up properly and got back to work without problems. 

    The folks here give sound advice.    You will be able to figure out what works best for you. 

     There is  a huge amount of info to go thru and I know my own anxiety level made it hard to process at first.  Good luck,  you will get there. K

  • sptmm62
    sptmm62 Member Posts: 665
    edited June 2010

    Hey swansea girl!

     The fight is there, I think.  Everyday we get up we are fighting! Each visit you make to the doctor, you are fighting. 

    I went to a local support group last week and there were many ladies there who had chemo or were having chemo and they all said it wasn't pleasant, but it wasn't horrible either.  They say the drugs they use are gentler and that they have medication to counter alot of the side effects like nausea and vomiting.  I hope this is true. 

    Welcome to the Stage 2 club, personally I like stage 2 and I hope I stay here, although when my node biopsy comes in maybe I will have to jump....lets hope not! 

     Anyway, good luck on your appointments.  Sending good wishes and hugs your way...Debbi

  • soccerstorm38
    soccerstorm38 Member Posts: 7
    edited June 2010

    I understand where you are at right now. I am 40 and sitting in the same boat. I haven't reacted much to the diagnosis and been okay so far but today is decision day and it is all becoming more real.

     You can do this. Although I don't have positive SN, two close friends of mine have and went thru chemo, radiation and hormone therapy.  They both are fine and over 6 months cancer free.  It is a little rough going thru the chemo but one still managed to work.

    You can do this!!! My attitude is "lets just hurry up and get it out and get treatment over with. I have better things to do with my life".  Look at the glass half full sweetie and stay positive :)

    I am always here to talk if you like.  I am going to get my onco test results this morning and make the decision for chemo or no chemo.  I have no positive SN but still struggling with making the decision.

    Innocent

  • Seabee
    Seabee Member Posts: 557
    edited June 2010
    swanseagirl--You're welcome! Smile

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