diagnosed 6/2/10, stage 3, ER+, PR+, HER2+, IDC

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stillbella
stillbella Member Posts: 10
edited June 2014 in Young With Breast Cancer

Hi ladies,

Just reading all the wonderful posts, and it is helping me feel so much better already. I was hoping someone with my same diagnosis and age group could guide me along as for as what to expect with treatment, kids, and work.

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  • swanseagirl
    swanseagirl Member Posts: 393
    edited June 2010

    Hi Bella, welcome!

    This is a great site for information and wonderful support from incredible people.

    Not sure what your dx is.  I was dx'd 3 weeks ago with ILC.  I had a lumpectomy last week.  One of my nodes was positive so i was back at the surgeons office today talking options.  It's chemo and radiation for me.

    I have a 19 year old son and a 16 year old daughter.

    How old are your children?  If old enough you can be honest with them without scaring them.  If young there are websites out there to help them understand what you will be going through.

    Have you been told what treatments you will need or what surgery?

    Ask any specific questions and I will do my best to answer if I'm the right person.

    Hang in there and plenty of hugs coming your way

    Jules

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  • lfasano44
    lfasano44 Member Posts: 50
    edited June 2010

    Hi Bella, Just read your post and thought I would write.  I was 32 when I was dx'd as you can see by my stats, big tumor, lots of nodes and to top it all off, it was 6 weeks after I gave birth to my third child!  I made it through chemo, rads and herceptin and it really wasn't as bad as I thought it would be.  Take the medicine they give you, rest and drink lots of water even though you won't want to.  I did TCH every three weeks for 4 months and I am about to be 2 years cancer free in July! It is all so hard at first but it does get a bit easier.  PM me if you need help or have any questions.  Take care.  Lauren  

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  • stillbella
    stillbella Member Posts: 10
    edited June 2010

    Thank you so much for writing back, you have made me feel so much better knowing you made it through and with such a positive attitude. I go in for my port placement tommorow, unfortunately they found a second smaller tumor in the same breast. So they will do another biopsy at the same time.:( Dr's haven't mentioned a time frame to begin chemo, have any idea of when to expect it?

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  • lorrhaw
    lorrhaw Member Posts: 751
    edited June 2010

    Bella, sorry you have to be here but you will find the support to be wonderful.  Hopefully it will be some comfort to you to hear that the intial diagnosis and waiting part is the worst.  Once you come up with a treatment plan and know your final diagnosis some of the stress starts to fade.  I was diagnosed on January 8th, had a lumpectomy in early February and started chemo 3/22.  I have had 4 treatments so far and even though it isn't a pleasant experience it hasn't been nearly as bad as I feared.

    You will find this forum a wonderful place for support and information so reach out to us often.

    Lorraine

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  • Pure
    Pure Member Posts: 1,796
    edited June 2010

    Hi there,

    I was diagnosed when I was 36 while pregnant. Before surgery they found out I had 2 tumours. A  small one and a 4 cn one. They will probably both be the same in terms of er status and her 2 status. Make sure they run the FISH on both tumours. Also, if you come back borderline for HER2 or above make sure you get herceptin.

    I had them give me zometa every 3 weeks with taxol as I found in a clinical trial that zometa given with chemo produced excellent results. You should ask about that as well.

    Also, I got 5fu, andrimicyinm and c drug. They will probably say they are giving you the a and c drug but ask for 5 fu as well. This is standard in Canada and a really goood rregement.

    Pm me if I can help in anyway!

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  • stillbella
    stillbella Member Posts: 10
    edited June 2010

    Hi Jules, thanks for writing back. WOW, you sound so positive being that you were just recently diagnosed like me. I am just now coming to terms with my cancer, and not crying everyday. These boards have helped so much. I have a 16yr old son and a 3yr old daughter. I told my son a few days ago, and he is doing fine. He was scared at first only because he has a friend who's mother died with breast cancer. But, reading more has helped him understand that there are also many survivors. Unfortunately, Dr's found a second smaller tumor that needs to be biopsied tomorrow during my port placement. So not sure yet when treatment will start until they have the results. When are you starting your chemo?

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  • stillbella
    stillbella Member Posts: 10
    edited June 2010

    Hi,

    Sounds like you were very well informed. I am glad you sent me all this info because I was asked to be in a study group. First, let me tell you my exact diagnosis: Infiltrating DC, grade 3, ER+,PR+, HER2+++, tumor size 2.5-3cm, sentinel node+.  With a second tumor pending diag (1cm) in same breast. I see my Dr. tomorrow for port placement and would like to tell her of your meds, but it would help to know if your tumor was the same as mine. How's your baby doing?

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  • Pure
    Pure Member Posts: 1,796
    edited June 2010

    I had IDC 3.7 mm tumour and .7mm tumour. I was er and pr pos and hr negative. I was treated at Duke which is the 8th best cancer center in the US.

    I had 5fu, Andrimycin, and cytoxan ( most girls only get the A and C drug ASK for 5FU )

    I then got 12 weeks of Taxol.  ( some docs like to do Taxotere as it shows a slightly better response for er girls but more side effects)

    I did zometa every 3 weeks wtih the chemo-there is a study that shows girls who had this regemie has a 100% response to chemo. I had to ask for this and she was willing to do since there were no dangerous side effects.

    Go to the stage 3 tread on this board. If you scroll through the posts I posted the studies there or I am happy to email to you.

    You could also google Zofast Study I think is the name.

    My baby is perfect and so am I and so will you be!

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  • jsw19
    jsw19 Member Posts: 243
    edited July 2010

    I just wanted to jump in and say hi because I am new to the boards but I also have IDC ER+ PR+ and HER2+.  I am 32 years old and married but no kids yet.  Husband and I both really want to have kids and were talking about starting to try in the next year but then I was diagnosed and of course that changed everything.  My tumor was 1.6cm and I had several positive lymph nodes.  I had a lumpectomy and today had my first dose of herceptin.  I will be starting chemo with carboplatin and taxotere in about a month.  So I can't share much yet about what treatment is like but I wanted to say hello since it sounds like our diagnoses are similar. 

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  • stillbella
    stillbella Member Posts: 10
    edited June 2012

    Hi, hope you are doing well and so done with treatment. So sorry I didn't write sooner, but I just logged into the boards this morning to look up brain mets. I have an appointment today for a brain MRI, that the dr has a suspicion it may be a recurrence. I'll keep my fingers crossed. Have you started your family yet?

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  • stillbella
    stillbella Member Posts: 10
    edited June 2012

    Hi just seen your post, hope all your treatments went well. Have you been in recovery with no further treatment?

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