Are There Any Other Hospice Patients Out There?

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mehitzel
mehitzel Member Posts: 3
edited June 2014 in Palliative Therapy/Hospice Care

Hi, everyone.  I posted my introduction about two weeks ago and check back to this site every day or two.  I thought with as many members as this site has there would be others who, like me, have stopped pursuing curative treatment, and are working on quality of life issues.  However, there is very little activity in this forum.  So, just thought I'd ask if there are others like me lurking out there.  It would be nice to have someone to share experiences, thoughts, fears, feelings with.

Thanks,

Martha

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  • LivingIt
    LivingIt Member Posts: 710
    edited June 2010

    Martha. Hi. I have noticed that too. I am not on Hospice yet, but I do put Palliative care FIRST. I am stage IV lung/liver/bones mult sites etc. I will join you one of these days not too long from now.

    Tell me, what are you feeling like? What meds are working? Have you got your pain manged? How do you deal the day to day stuff like cooking, errands. stuff.

    My memory is poor and I have less energy all the time. I am on hormonals for now and moving onto some bone rads for pain.

    Anyway, let me know if you'd like to stay in touch. I love a pen pal. You can PM me anytime.

    Zoh

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  • EnglishMajor
    EnglishMajor Member Posts: 2,495
    edited June 2010

    Hi Martha

    I am not on Pallative Therapy/Hospice Care but  I wanted to encourage you to introduce yourself (if you haven't) to the Stage IV board.  I think you will find some kindred spirits there (and probably more discussion). Take care

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  • apple
    apple Member Posts: 7,799
    edited June 2010

    i agree

    http://community.breastcancer.org/forum/8

    see you there.

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  • chainsawz
    chainsawz Member Posts: 3,473
    edited June 2010

    Hi Martha :>  It's true you will find lots of support over on the stage IV forum so you are always welcome over there!  I'm not in pallative care at this time but also wanted to give you a cyber hug.....best to you.  lisa

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  • nobleanna007
    nobleanna007 Member Posts: 641
    edited June 2010

    I am not at this stage, but may be in the future and just wanted you too know you are being thought of. I am always sense I was diagnoised waiting for the other foot to drop!!!

    I am so sorry you have to deal with this and make the decesion to go on Hospice, but I also admire you and am proud of you!!!!!

    pm me anytime!!!!!

    Hugs to you!!!

    Bridget

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  • whichwitch
    whichwitch Member Posts: 17
    edited June 2010

    Hi,   My sister is on Hospice.   So I would be glad to share her experiences and my with you.  She can't get on the computer much.   We would love to share with you and to hear about your life and how it is going for you.   I try to check the computer every day but sometimes only when I can.    So be patience with me in getting back to you.   But I will.   Having a very hot and raining day today.   The flowers will love this rain.   talk to you later and everyone here is very uplifting and always sending hugs.....   Paula

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  • michelshelpformom
    michelshelpformom Member Posts: 36
    edited March 2012

    HI , I need help on what are the right meds for mom to at least eat and how to control these panick attacks?please help, my mom refusing treatment and now in hospice at home, she 72 and is nauseas and vomiting on liquid moraphine (smoking through inebulizer) bone mets rib lung, pelvis, backbone broken, she is also on haldol and now having severe panick attacks, is this from no air in her left lung or just the meds. .what can i get her to eat and not be nauseas, ican't see her like this. .she also is on oxy and methadone. thanks for any help. .im' only child trying to work and help mom while she in hosopice at home, hugs to you.love M

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