Anyone starting chemo in June 08

Well, girls your making me cry, but it's a good one, knowing I have you all in my life.   I so look forward to hearing from you, no matter what, good news/bad news or nothing new.  Yesterday in the mail, I got my mammo. results, and it said no cancer.  Somehow for some reason, it just didn't make me feel better.  Why is that?  I just don't believe it, maybe.  It just seems like there should be some reason, for the crappy way I feel, besides arthritis, neuropathy in my feet, and getting older.  Funny though, I feel so much better on the weekends, and I'm afraid I'm getting allergic to work....LOL.  It sucks becoming a dried up, cranky old lady, at 54.

Happy Maonday ladies! The sun is shining, the robins are chasing the hawks away from the babies (with DH's help, or course!)  and it's a beautiful day. maybe rain later, but we need it. Just wanted to say hi, and see what's happening in your worlds. ? Leggy, this trip is sometimes not much fun - oh, ok, Never any fun! but the people we meet on the journey are so special. hugs to you and your achy body.

xo Choc.

ps; I am having a pain free day - the first in a loooong time. hope it stays around a while.

Hi, I feel pretty good today too!   I took a personnel day, so I can do a little shopping, over in Santa Rosa, before I see my Onc. today at 3pm.

Wyoming, I'm so glad your having a slumber party!!!  Sounds like fun.  Just don't end up doing all the work.  Let your daughter pamper you a little bit.  OK! 

My yahoo horoscope really hit the nail on the head today, it said "So, your tired of being tired", yeah ya think. I saw my Onc. today, and I started on him before he could turn his back on me, looking at the computer.  I told him how my feet are killing me, and the neuropathy from TAC is getting worse everyday, and after about 6 hours on my feet, I can hardly walk.  Then I started the waterworks....Jeez, I hate that, but it's been getting really hard to work. I said I'll bet I'm about the point when most women want to quit Tamoxifen, and he nodded, but said it wouldn't help my feet to quit now, and most mets happen the between 1-3yrs, and I'm only at 2.  He said Arimidex has the same complaints about bone and joint pain.  The only thing he could recommend was carotene(might help) ,or that I go on part-time disability(which worked out Ok when I was on rads.). I would have to talk the disability thing over with my boss, but they would probably love that this winter. He asked about any new bone pain, and I said no I still hurt all over. Basically I think it's my only choice, since I don't think I can work full time anymore, and I would still work harder than any of the men....God their a worthless bunch, always taking longer breaks, hiding, goofing off, looking at their cell phones, eating........Sorry this is a rant.

Well I bought my acetyl-L-carnitine from Amazon and got free shipping, so I'll see if it helps, sounds like it helps with weight gain as well as a whole bunch of stuff...

Any easy tips for toots while on xeloda/tykerb?

I used to rely on maalox but was told not to take it during this treatment.

I do have prilosec I sometimes take daily. 

It seems to be worst as I finish the last few days of my three week cycle.

Any ideas other than leaving the room and bending over in pain?    Kelly

Hi gals!  Work Work Work!  I am so jealous of those of you who don't.  My body is DAT just like Leggy.  My heating pad and me have a serious relationship after work!  LOL!  I don't know if it is mets, or just leftovers from my multiple surgeries this year.  I don't really want to know.  I am sick of going to onc, etc.  I still haven't made appt for my paps and this is 2 years for me.  Why don't they just turn ya inside out, and do all the tests at once.  Leggy, I didn't even take short term dissability.  I had enough sick leave built up with my employer.  Well over 1000 hours.  It sure came in handy for chemo, rads, and the surgeries.  The last couple surgeries have been on my vacation time though.  Used all sick leave up!  Fun!  If I could just work part time I think I would be OK!  I would be afraid after all time off the last two years to ask for STD.  I don't even really know how it works really.  Seems funny how every dang one of us here posts about aches, etc.  At least some do.  I can understand it with you gals still on trts.   I shouldn't bitch about tamoxifen I guess.  Leggy, if you can get the time off...I say DO IT!  Bonnie, you still feeling better and are still off the tamox?  Karen, long time no hear!  Choc....thanks for giving us support!  You are amazing!  Hugs to all....HunkyD

crap Leggy, I guess the health insurance part is most of the deciding factor right? Keep taking your 3 day weekends over the summer and hopefully that will help.

Hunky, I was always jealous of you guys still working. I loved my job, and the laughs we would have there, going out for lunch, wearing trendy business styles, (oh, the high heels!). And now we have less combined income = more worry. but you are right. I am more rested and can just sleep in and do yoga on the days when my body says it wants to. I wish you could all retire too.

Kelly, my gas doesnt make it that far. sorry if this it TMI but I usually get a huge bubble in my chest, right after my second bite of supper. It feels like heartburn/going to throw up combined, and i have to walk and breathe and take tiny sips of water to disperse it. sometimes I do throw up my two bites, but then i wait 5 minutes and can start eating again. really it's only weird for the other people in the restaurants. ha! (we've stopped eating out)

But now my hands are starting to go darker pink in colour. I met a lady on Tues. whose hands and feet went almost purple. She was on Xeloda for a year, so I've got 6 mths to catch up to her. She's now been off it for 6 mths and they are still purple! crazy drugs!  I met her at a support group for stage IV cancer ladies. I resisted going, but finally realized that I was not depressed this winter, just lonely, and that my family & friends don't really give me the support I need, so I'm hoping to connect with this group. 16 women, live - in person. BUT I am not replacing you ladies!!!!!! just getting extra support. xo

hugs to all, Bonnie where you at girl?, haven't heard from you for a while. Wyoming enjoy your granddaughter & summer! 

xo Choc

Jennypoo...I am so sorry to hear of your battle.  You will find support and information here.  You have certainly touched base in the right organization....BCO. 

I believe there is a chemo thread that is June 2010.  We have all gone through the chemo, etc in 2008, but PLEASE.....feel comfortable asking any questions you want in this thread anyway.  Anyone here that still posts are wonderful women and will answer whatever question you may have if they can.  However, I think you will find more support in the June 2010 group as we are not nearly as active of a thread and you will receive much more support.  Search in the Chemotherapy, Before, During, and After in the Forum called chemo June 2010 or something like that.  Please do not think I am disregarding your post...hugs for you.....You will learn so much from this site.....it will help!  HunkyD 

I am trying to post a photo, hopefully you will see it.

 This was at thepark in South Dakota a few weeks ago.

Wow I am so proud of myself for posting.  My husband did help!   Have a good weekend, we are staying inside close to the fireplace as it has been raining here for days and will not get nice until Tuesday!!     Kelly

Yay Kelly!!! I love both of the pics!! you have an amazing family, so tall and good looking! I love the happiness when you are all lifting you daughter. good times!

We are having friends over for a BBQ with two little girls 2 & 3 yrs old. I met her at chemo. She was pregnant with the second baby when diagnosed with BC. no mets thank goodness. she finished herceptin last year and is still DAT. No wonder!! chemo and two babies. I am in awe of her. So, today our hubbies meet for the first time and I really hope they hit it off. Her girls are amazing and she is such a lovely person. Hopefully I can post a pic here later this week.

I am inspired by so many women, you all among them. It gives me courage everyday. xxoo

take care all, sunny & warm here today. (for once!) xo hugs to all, Choc.

Thanks for the nice comments.  I think my big boys are pretty handsome too! 

I am DAT today.  I am keeping my nephew for the week and although he has been very good, having another child around makes you stay on "high alert" and when they go to bed at 8:30 I am not far behind them.  I keep them going so they sleep good at night!

My porch is coming along, they will pour the concrete tomorrow so soon I will show you a picture of me sitting on it!

It is very warm here so I am heading out to let the kids swim a bit.  What is everyone else doing this week?   Kelly

Ladies, I'm in a FUNK and can't seem to pull myself out of it.  I contacted my doctor, and she called me back, but I was at work and didn't get the call, until she left the office.  I just feel like crap, and wish I had some kind of relief.  It seems like such a long time since I was happy. Maybe I was, and can't remember.  Thanks to chemo.....