Chemo June 2010
Comments
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Day 4, Tx 1 and I'm doing pretty good today. Coffee tastes good for the first time in several days. Yay! I'm still tired and most foods still don't appeal to me, but I'm eating anyway. Other than that, the SEs are minimal.
Holli--Chemo cocktail party. :-) Love that! So sorry you're having such a rough time of it.Hopefully the change in your anti-nausea meds will improve the next round for you. Did the hike with your dog help you feel any better?
chob--Glad you're off to the ER. My onc nurse said there's no reason to suffer, ever.Even if the fuids aren't necessary, they may be able to adjust your meds.
Danielas--Good luck tomorrow! Fingers crossed that the FEC will go as smoothly for you as it did for me. Is someone going with you? Or are you just bringing a book/music?
Mari-12 and Janny66--Wishing you the best for your first treatments tomorrow, too.
Mimi9186--Good luck with the port placement tomorrow.
Best wishes for all you brave ladies this week.
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back from er. got some fluids and zofran in the iv. feeling better. thanks!
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Glad to hear you're feeling better, chob! I start the same regimen as you (except no Tamoxifen) soon --I'll find out Monday for sure when I'll start. Keep us posted on how it goes for you. I've done chemo in the past for colon cancer, but these drugs are all new to me. Unfortunately I'm starting to feel that old nausea feeling just from reading some of these posts--sort of brings it all back to me!
I'll be really curious to read about everyone's hair loss. I'm so thankful a friend (bugs!) told me about this site. Its such a good group of ladies! Bless you all!
T
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Hi Algreach,
Thank you, hopefully it goes well, for some reason I'm pretty calm, reading this site has certainly helped me. I'm also encouraged by the research I got in and seeing the other women in the gym looking so good during treatment. I decided to go alone tomorrow, I do have backup in case I need a ride back. If someone comes with me I will afraid that I will that I have to talk or entertain them in some way during the long wait. I suppose that this is a time in which a partner could come handy. (-:
Do you think that it could be possible to bring my laptop to watch a movie during the infusion?
I'm happy to hear that you are doing so well !
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Hello everyone: so good to see you guys are just pushing thru the 1st few days of treatment & afterwards. it's really encouraging!
PET scan came back clear (what a RELIEF!) & start chemo on the 11th. i have a very weak stomach under normal circumstances, so have been closely watching each word you say about the nausea thing. especially the IV for fluids like chob had to do----
did anyone go to 1st treatment alone & were ok to drive home afterwards w/no trouble?
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Dsa,
Congrats on the clean scan! I haven't started yet but I did ask the nurse if it is okay to go home by myself and she said that there is no problem unless you get a drowsy medication. I plan on going back by myself so I'll let yo know tomorrow how it went.
Daniela
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daniela---thanks!! hope all goes well & will look forward to how you did!
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Starting tomorrow....feeling okay, a little nervous, and just ready to get going with this whole thing! Any tips on what to bring along for your first day of chemo??? Are there things that I should have at home for when I'm finished? I do have some recommended items, but just so worried that I'll either bring too much stuff or not be prepared....been cleaning house today, totally 'sterilized' my bathroom!!!
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My first treatment was pretty looooonnnnng and boring. We were told there was a little tv at each station and we could watch dvds on it, too, but we were put in a temporary overflow room so we didn't have that. We just read and talked and my husband went and brought us some lunch and snacks. I've heard of lots of people bringing laptops.
I think I could have driven myself home. I was tired after the all day ordeal but not sleepy even though I had Benadryl to start off with. They gave me some kind of antianxiety medicine also and I was told I had to have a driver if I had that. I don't think I really need it. I wanted to go by myself next time but hubby and stepdaughter want her to take me this time so I guess I'll go along with them.
Chob, glad you're better.
dsa, I'm glad your scan came out clean. Its awful waiting to hear those results, isn't it?
Nothing tastes good but I keep trying. In fact I'm probably eating more than usual trying to find something good. But if this is the worst thing that happens I'm going to be very lucky, I know that.
Terry
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3 more days - the chemo count down for me!!! My hubby and I went to a party yesterday. It was nice to see so many friends. I am tired today, but the port feels okay. I can barely feel it. I had a strange reaction to the adhesive stuff they put over my wounds from the port. It was pulling on my skin on my neck and caused my skin to blister. I put some Neosporin on it. My hubby cut the adhesive a bit, so it's no longer pulling on my skin.
Thanks for all of the good advice on dealing with chemo. I picked up my prescription meds yesterday. We have 2 insurance plans. My hubby works at Costco, so we went there first. The meds were cheaper there and the pharmacist was great. He went over every drug and gave my hubby some advice on vitamins for him too.
Holli - I'm a bit scared that they said the young ones have a harder time. I'm also 40 and I have a tendency to throw up rather easily. Part of it's my gallbladder (I have small gall stones). I bought some ginger candies in China Town in NYC. I'm also going to get some ginger. The nutrionist I saw said to peel it and boil it, then make it with some tea. It's easier to drink it cold (esp since it's 109 degrees here in Vegas)! Yikes!!!
I have my wigs ordered and ready. Has anyone tried the Brian Joseph's brow and lash gel? One of the girls from my work is using it and she's a little more than halfway through chemo. I read about the Penguin Cold Caps on here, but decided to just deal with the hair loss.
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Last Wed. I Started AC x 4 every 14 days Then Taxol 4 wks every 14 days. Not doing well. Hope you all are doing ok.
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Tammyg - what are your side effects? Are you drinking a lot of water! I hope I can take this chemo okay!!! Sorry you're not doing well! (((hugs))))
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Hi Kittycat-looks like we are both starting chemo on June 9-same day, same stuff. Can I ask how they found your IDC (which by the way totally sucks-can't imagine how you felt finding that out so close to your other cancer). Did you have an MRI? I noticed bx with te in your signature and am wondering with which test they found it, especially because it was so small. thank goodness.
Laurie
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Danielas--I'm sure you can bring your laptop; don't know what the internet connection will be like, tho. I'll be thinking about you.
I had originally planned to go to my first treatment alone, and then my brother got the day off work. I'm very independent and I often prefer being alone, but I've started to realize that this disease is affecting the people around me, too. My brother wants to help and doesn't know how. Coming with me to treatments makes him feel like he's doing something constructive. So, I let him. :-)
My onc said I would most likely be able to drive home afterwards--and after my tx, I certainly felt alert and capable. I plan to drive myself whenever my brother isn't available.
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5 days into first treatment and fatigue hit hard... may be from coming off the steroids... its unbelievable.
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So glad to hear this group is getting into and some past the first tx. I've had another delay with starting. Was supposed to start tomorrow (6/8), but will not be til next Tues (6/15) or possibly (6/22). I was all ready but the oncologist has another test - the oncotype dx - that takes two weeks, so I'm not sure what the plan is from here.
I'm wishing you all so so so so well!
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I don't know when I'll start chemo. I'm hoping sooner than later to get this show on the road. I will be having my second meeting with the oncologist this friday to hear results of Oncotype test and I'm assuming it won't matter. I feel like I'm spiraling down because I'm growing impatient with the waiting and need to begin doing something about this and not just sitting here pinging about it all. I'm so glad that I found this site to vent on. I think that once I get going on treatment, things will be easier mentally because there will be a plan to follow and I can begin the "healing" or "surviving" part. Right now, I"m just thinking about it too much and it's consuming me, owning me, eating me up. I can't stand it. I know that physically, the chemo will be hard but at least I will be working toward beating it.
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Algreach, I hope everything went well on your first treatment! mine is Thursday June 10, and I don't mind adding SCARED!
I ams o very glad I have good friends like all of you on line! Oh yes, for the first time in my 54 years got a short hair cut!
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suebean123 you are right. That waiting for the treatment to get started is really hard mentally. I had my surgery on April 28 just had my first TCH on June 3 and it really was a relief to get the show on the road. It kind of felt like here I am with this aggressive cancer and we hurried up and did the mastectomy so why are we not jumping on the chemo right away. I know there are healing reasons but it was hard. And so far just a few little stomach problems and ugly taste in my mouth as far as side effects.
Gotta eat light today. I ate everything in sight over the weekend to try to find something that tasted good. No luck! Just a full bloated tummy.
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suebean123, I know how you feel. I was diagnosed on 5/12/10 and have had bone scan/ct scans/ekgs,and they found something in the boncialtube and had to have a bronchialscopy done last thursday. Get results today. And supposed to start Chemo thursday, I hope! Just scared. If you want we can du this together! love pam
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kittycat- You have Gallstones too? I was in the ER last Sunday (3 days before my first chemo treatment) and they said I had to have surgery for Gallstones. They thought the Chemo was more important right now though. I think my body had a 35 yr warrenty. The wk after I turned 36 It started to fall apart. lol
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Hi All!
I just got off the phone with the clinical research coordinator and I sadly will be in the control group of the trial. My treatment will be 4 cycles of Taxotere followed by 4 cycles of AC, then surgery, radiation and 5 years of Tamoxifen. The positive side of not getting the Avastin is that it would have prolonged my treatment for 30 weeks after surgery, so I have to look at the bright side, though I was really hoping for the biggest, baddest meds they have. Please add my meds. to the list. I will receive my first treatment Wed. at 7am.
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Suebean, you nailed it on the head with the waiting for chemo to start comment. Everything moved so quickly from my original diagnosis (Thank goodness!) but I had a double mxt on 4/19. It took me 4 1/2 weeks to get the drains out and the ocn wouldn't see me until a week later. I had my second visit last Friday and will start chemo no 6/19. I am so anxious to get started so I can get finished! But at the same time I am nervous as well.
I know the journey is long and the road is bumpy but my engine is running!
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Hmmm. I have gallstones, too. I didn't know I had them until I did all the staging tests--I've never had a gallstone attack.
Beanius--Sorry to hear about the delay. Waiting is sooo hard.
Suebean123--Taking charge is less stressful than waiting, but you ARE doing everything you need to do. The day of your first tx will be here before you know it.
Angelwoman1--Yes, my 1st treatment went well, thanks! The anticipation is more frightening than the event.
tbyrd--You perfectly described how I feel: nothing tastes good but my tummy is bloated. :-(
tammyg--Hope you're feeling a bit better. You certainly managed to keep your sense of humor.
twinmomjackie--Sorry to hear that you didn't end up with the plan you wanted. I seem to recall the plan you're on has excellent results, though. Good luck on Wednesday.
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thanks everyone. I'll be checkin in later, I'm sure. My family is great but it will be nice to communicate with people who are going thru it at the same time. I just need to stop letting it own me right now which is easier said than done.
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Everyone sounds determined and strong. I, too, am ready to get this chemo show on the road. I had my final test this morning, a PET/ CT scan. They were over an hour late (don't you just love waking at the crack of dawn to sit and wait). I have never considered myself clostorphobic, but I just hated being inside that machine! They used a sort of velcro straightjacket to trap my arms so I wouldn't move. Then they put me inside that tin can, holy moly!!! At one point I asked them something.....no response. I kept calling out, feeling very panicky... FINALLY someone came. As my dear British friend would say "what kind of fresh hell is this!?" I am sure this would be a much better experience if the technicians had been more concientious and "present". I just wish people would take pride in doing their jobs well. I think I am showing my age again! The worst part is that I have to stay away from my 11 year old son for 12 hours. I guess I am still "hot".
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it's amazing how many posts can be made w/in a 24 hr. period.....you guys have been very busy!!
finally got my 'marching orders' today for 1st & 2nd treatments and neulasta shots. thought i'd be having the 1st AC round of treatment this friday; but, it's been changed to 6/23 & 2nd infusion on 7/7. the delay is due to my port site remaining 'irritated' from last surgery---it doesn't seem to want to heal & in a way i'm glad the infusion is delayed; however, i'm so stinking tired of waiting to start that i'm working myself up in a dither with anxiety!
so, guess i'll be an onlooker for a while longer to everything you all are experiencing. guess it's more time to learn what works/or not for you.
tammyg--i see that you're on AC/T, too. and, beanius, you also have a delay to starting chemo, right? we may be neck & neck in that 'start' date!
everyone else::::::: sounds like you're hanging in there! congrats!
deb
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Does anyone know how to get into the chat rooms? I tried using my username and password but it says they are already taken (by ME)! How do I get in to the chat rooms?
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Hello Ladies,
I'll be starting my Chemo on the June 14th.
AC 4-every 21days & Taxol every week for 12 weeks
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Roosje: sounds like you/i will be pretty close in our treatment start date & type to drug......we can compare 'stories' along the way
deb
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