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KWolf
KWolf Member Posts: 55
edited June 2014 in Genetic Testing
Test Done Today!!!!
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  • KWolf
    KWolf Member Posts: 55
    edited June 2010

    I met with the genetic councilor today.  She went over my family history and explained about the BRACA and the BRATS tests.. She told me that my risk is 32% that I have the mutation. Thank god my insurance cover this in full.  I hate all the waiting for results, its all I ever do theses days. I talked with my Oncologist about the options that will be available to me depending on the results, so that gives me something to research while I wait.

    I was surprised when she said that if the test is inconclusive she would still recommend bi-lat mastectomies and removal of ovaries, have others be recommended this too?

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  • MRDRN
    MRDRN Member Posts: 537
    edited June 2010

    Yes,

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  • Carlatap
    Carlatap Member Posts: 96
    edited June 2010

    Hello KWolf, yes, the waiting is awful. Do you think the genetic counselor would recommend these options because of your family history? 

    Carla 

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  • kittycat
    kittycat Member Posts: 2,144
    edited June 2010

    Mine also recommended a bmx with or without the results, but I had the BRCA1 gene mutation.  I had a strong family history of BC.  My sister was dx at 44 and I was initially dx at 39.

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  • MRDRN
    MRDRN Member Posts: 537
    edited June 2010

    (sorry i was suprised i deleted the whole post above...thought I edited it)

    My risk was 50% of having the gene that my sister and first cousin has...and I tested positive.  I am not sure what the rec would have been if I did not test positive, but I did get the rec from three different BS after it was back.   How are you now?   Any news?  Waiting is indeed a challenge.  (Hugs)

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  • westiemom
    westiemom Member Posts: 174
    edited June 2010

    The waiting is nerve racking. I tested positive for the BRCA1, with an 88% chance of BC reoccurance and 32% for ovarian cancer. I tested after I was diagnosed with BC, but this was the help I needed to determine if I should have a bi-lateral. Please let us know when you hear more, take care, sending happy thoughts your way.

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  • KWolf
    KWolf Member Posts: 55
    edited July 2010

    Hi all

    Sorry i vanished off the face off the earth... I got the results back from the tests and I am please to sat they were neg...

    My oncoligist  thinks I am still at high risk for reoccuranc. 44% in my lifetime... I can not take tamoxifen because of a family history of DVT.

    I am taking my time to think about BMX and I am just begining to look into reconstruction and what options I have. So if anyone can help with a idiots guide to reconstruction I would be greatful..

    I am going for a MRI on thursday, this will be my first test since the last surgery, so I am a bit worried about what they might find this time...  please keep me in your prayers.

    Kathleen

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  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited August 2010
    One of the best resources for learning about reconstruction is The Breast Reconstruction Guidebook:  Issues and Answers from Research to Recovery by Kathy Steligo.  I got  a used copy from amazon for a dollar.  She goes over all the options, gives lists of pros and cons for each as well as talking about how to find a good Plastic Surgeon that works for YOU.  I couldn't have gotten through recon without this reference. 
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