29 year old with mucinous carcinoma

Hi Jennifer.  I am sorry to hear of your diagnosis.  I am almost 34 and was diagnosed at age 32 with mucinous carcinoma.  Mine was Er/Pr + and Her2-.  My tumor was 1.4x1.5x2.0.  So, I was stage T1C.  had 5 lymph nodes removed with no cancer!  So glad to hear your's was this way as well.  Has your doc ordered the OncoType Dx?  I did chose to do chemo and had 36 rad treatments.  My decision to do the chemo was based on my "gray" area onco score of 22.  I am young and have two small baby girls--I felt like it was the best thing for me to do.  I am sorry this is happening to you.  Please let me know if youhave any questions.  The good news is--I had my one year check up in March with an MRI and mammo and everything looked great!  I am loving my new short curly 'do.  The chemo wasn't fun but not that bad.  I agree with Maria_Mac that this is a "nicer" cancer to have.  You can do it!!!  Hang in there!!  Let me know what you do!  Oh--get your vitamin D checked if you haven't.  Many breast cancer patients are low and there are new studies that supplements may help.

Hello, I am sorry to hear your situations but I am kinda glad to find others in my situation.  I just turned 32 and have been diagnosed with mucinous carcinoma, I do not have that much information like you guys.  I know it is about 7mm so it's small, and stage one. My doctor has given me two options of a mastectomy or surgery to clean the margins then radiation for 6 weeks.  I am seeing so much information all over the Internet, and I keep going back and forth:(  I am going for a second opinion this week and have to give my doctor my decision next week.  My doctor also requested the Genetic test be done and I should get the results next week. 

I was 26 when I was diagnosed with mucinous carcinoma — 1.5mm lump, ER & PR+, HER2+. I opted for a mastectomy because that meant I didn't need to do radiation. My oncologist also recommended chemo, which I am finishing up on June 25. He told me that because I am so young, the precaution of doing chemo was important because cancers in young people tend to be aggressive (even though mucinous carcinoma tends to NOT be aggressive...weird). Anyway, chemo really hasn't been that bad. The worst part for me is the bloating/swelling/weight gain.

Dear Jennifer,  I too have mucinous cancer.  The BS said it was the best kind to have, as it is not aggressive. I have done a lot of research on the internet and asked a lot of questions {take someone with you to take notes}.  Mine is Stage lla, no node involement, I am 62.  I opted for a lumpectomy and 8 weeks of radiation, after getting a second opinion.  I had my 6mo. mammogram and was all clear.  The worry lessons with time.  Sending happy thoughts your way. Karen333

Dear Jennifer:  I was diagnosed last March, and my cancer was exactly as yours, except mine was 3 cm.  My oncologist said she needed to discuss adjuvant chemo with her colleagues at Tumor Board, and they came back with a recommendation of no chemo.  They did not recommend Oncotype Dx either.  This was absolutely not good enough for me, I have two girls aged 4 and 6, and I need to do everything possible.  I got a second opinion at MSK in NYC, and they not only ran the Oncotype score, but did another pathology review and recommended 8 cycles of CMF.

I went back to my regular oncologist with this, and she had a very negative attitude towards the other institution. She said she diasagreed with them, but didn't do a good job of supporting this with hard evidence during our discussion.  After making me wait 2 1/2 hours after my scheduled appointment, the woman had not one encouraging thing to say to me.  I insisted, because she told me earlier she had very little experience with a mucinous cancer in a 42 year old. So I thought, how can you be so sure this isn't necessary?  So she did agree to put me on the chemo before the tamoxifen.  But the whole experience left me feeling exhausted and put out.

Now that I'm about to start 3 cycles of TC instead, this will be a little harder, but over with quicker.  Since I will be working through it with kids, I am glad for this.  My advice to you is, please go with your gut.  My gut told me to do absolutely everything possible to ensure there are no micromets left hanging around to come back and bite me in the ankle later on.  

I wish you all the best, just push for what you need, and do not give in. 

I am a 34 year old (well really 35 as of the 27th... Happy birthday here's breast cancer), I am going in for a lumpectomy on Friday. Mine is almost 2 centimeters I'm stage 1a. I meet with the oncologist on the 20th. I asked the surgeon a bunch of questions tho though he said that after the lumpectomy I would be treated with radiation and hormones, he said they may recommend chemo because of my age, I guess since it can spread faster in young people. My opinion is scary, but I feel like so few younger people have it (not that I want them to) there's not enough research. Did you ask the oncologist why they recommended it for you