Mestastatic triple negatives

Ren.....SO sorry to hear this.....I am going through a scary road right now myself. I was just 10.5 weeks post radiation treatment and I started having shoulder and neck pain. I called my Doctor and the nurse told me it sounded like a muscle. She said I have you down to do protocol scans middle of June and then see the Doctor. I said yea but IT REALLLLY HURTS....she said well if it will make you feel better we can move the scans up.....I said yea I would like to do that. Well FAST FORWARD.....scans revealed 4.5 by 1.5 cm tumor attatched to my chest wall. I do not have any breast. I did a double mastectomy 5/21/2009. I did ask my Dr. yesterday if it was ANYWHERE else and she said no. It is located under the clavical area above the first rib and on the chest wall........Husband and I are going for a second opinion to Cancer Treatment Centers Of  America. We fly out Tuesday evening.......I want you to know you are in my thoughts and prayers and I WISH YOU ALL THE BEST.....and as far as chemo....I am not sure just yet for me what that will be.....

Angel

Did they do a scan before or right after your double mastectomy? Usually they should do that to make sure there was no tumor left in the breast or attached on the chest wall. Was your original tumor very close to the chest wall? Hope your second opinion will be good news.

Love and pray for you.

Hi ladies:  I have had mets since July 08.  My mets are to spine, and lymph nodes near clavicle and in mediastinum.  I started on Taxol/Avastin which worked for 10 months, then I started Gemzar and was on that for 6 months, next was Navelbine for 3 months (that did not work at all); I just started Ixempra/Xeloda and hope to see good results from this new tx.  In the middle of all this tx; I had rads to spine last December for severe pain.  The rads worked very well and I no longer have severe pain in spine.  I know this is a hard time for you being newly dx with mets, but you can continue on with good QOL.  I have been living with mets for nearly 2 years now, and really don't feel that bad.  I go to my grandchildren's ballgames, play golf, and garden.  I do suffer from fatigue at times and take a nap when I need to.  Please feel free to PM me if you have questions, or just need a shoulder to cry on.  Linda

Hello.  I didn't look into any old posts so I don't know what your whole story ot treatment but I can tell you already that you have already given me hope.  You have been kicking this things ass for 3 years now and have no doubt you will contine to do it.  My bad boy has had its reoccurances quickly so I've had quite a bit of chemos and radiations surgeries etc... Currently, my onc had me on gemzar/carboplatin and avastin.  It seems that this avastin does increase chemo's efficiency.  If these start slowing down, then we will look into parp allowances to give it another boost.  Good luck on your coming journey.  They have alot of different options for us , my wish for you is that they pick the one first that nips it in the bud so you won't have to run the marathon just the 50 foot dash.  Love and Happiness - Yvonne. 

I have mets..officially March 2010, my mets are in my mediasonial lymph node, supraclavcular, internal mammary, and a coulpe othe rnodes.

I am being treated w/ Gemzar/Carboplatin and that is working for me. I have 2 more cycles to complete and than keeping fingers crossed to get a PARP for compassinate use.

Angels- I am BRCA 1 but the Parps are showing promise w/ the TN's. I will send you a PM with the name and info of one that was discussed in Cure magizine. A couple are being "fast tracked" because they are showing great promise w/ TN and should be out late summer early fall for compassinate use. How many cycles of chemo do you have?

I had 3 and than a scan which showed no progression..but I have 3 more to do..

Stephanief .......I am sending you well wishes and hoping that the blood clots get better. I also hope the chemo does wonders.....I love all of you.......Hang in there.......