LIVER MET LADIES

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andersonsrus
andersonsrus Member Posts: 39
edited June 2014 in Just Diagnosed With a Recurrence or Metastasis

I was wondering if you guys could help me out. 

What symptoms did you have with your liver mets?

Also how were the discovered outside of a scan that the Dr ordered. Was there anything that put up a red flag? 

I have  had anxiety since my  original diag  ( almost 8 years ago)  ever since a lady a work made a real harsh statement to me years ago ...

Which was....

." why would go through all this reconstruction to replace both your breasts when it's going to come back and kill you...."

Very tough words to forget.

I am having a real hard time as of late ..2 weeks ago we buried  a dear friend  who died of cirosis (spelling) of the liver.  Well my mind is going into overdrive and is thinking that I must have liver mets. Well I felt  under by ribs on the  right side  and mind you I have no idea what I  am feeling. It feels wierd to me . Especially way to the right almost to the side. I think that is the coastal margin from what I read/ . What is that area supose feel like with out mets to the liver and a better question what would it feel like if there were liver mets there?

Need some input. I cannot go to the Oncologist at this time since we  cannot afford the ded. at this time.

Any insight would be super

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  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited April 2010

    I have had liver mets for four years and have not had them act up or in pain in all that time.  I think that your imagination may be running away from you since that horrible lady said that. There is a good chance that you will never hear a diagnosis of cancer again.  And if you do, you will deal with it then.  Dealing with "What ifs" will give you crazy.  Go live your life in health and screw the sourpuss that said that.

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  • konakat
    konakat Member Posts: 6,085
    edited April 2010

    What a horrible woman!!!!  I agree with Dreamwriter -- she said it perfectly. 

    I never had symptoms when I was diagnosed, it was found in a scan.  When it was really bad it felt like I had a belt on too tight and twinges.  Even when I had lots of lesions it couldn't be felt with my oncs hand.  You are most likely feeling a healthy liver.  Once I thought I felt a bump and my onc said it was the end of a rib!  Please put what this woman said out of your mind.  It is so easy to think any ache or pain is cancer, and it is nothing at all.  Forget what that witch said and enjoy your life.  Lots of hugs,

    Elizabeth

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  • flachica
    flachica Member Posts: 244
    edited May 2010

    That woman sounds horrible. Please put her way, far, out of your mind. I had innumerable lesions that were discovered incidentally on an ultrasound of my abdomen that I had to check for a gallbladder issue. Only time they hurt was once I started chemo. Good luck!

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  • MsBliss
    MsBliss Member Posts: 536
    edited May 2010

    I just posted a question like this....I have a strange pain too.  I am only one year out.

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  • konakat
    konakat Member Posts: 6,085
    edited May 2010

    Hi MsBliss -- just posted a response on your thread.

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  • MsBliss
    MsBliss Member Posts: 536
    edited May 2010

    Hi Konakat, thank you.  I saw your posting...many thanks again.  Bliss

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  • cherub
    cherub Member Posts: 11
    edited May 2010

    be proactive with your health girl 

    I would say to help you the most is get to know what is normal for you lie down and just feel your abdomen and chest cancer can come back any where - I found mine myself it was a lump just near the collar bone if you are tracking what is normal for you then you can be allerted to what is not normal for you 

    take care  

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  • activern
    activern Member Posts: 409
    edited June 2010

    I have liver mets too and yes you can liver for a long long time with Stage IV cancer. Do not drive yourself crazy with some small-minded person who was only being nasty.  I hope by now that you have listened to others advice and put her away and out of your mind.  Mine was found with diagnostic testing when my BC recurred.  There was and is no pain, no skin discoloration or any symptoms of liver disease.  Do not let your heart be troubled; the fight to end our disease will go on while we ignore the negatives.

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  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited June 2010

    Hi ladies,

    Interesting this is a current topic as I am concerned about my abdomen area too and liver mets.  I've been having pain in the abdomen under the ribs (both sides) for the last few weeks.  Seems to stick with me most of the time now, so of course I'm going to that "dark" place thinking it's mets.  ARE there specific symptoms that you will FEEL????  Can they do a blood draw to see your liver levels or do you have to have a scan to dx?

    Thanks to you all,

    Sharon

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  • konakat
    konakat Member Posts: 6,085
    edited June 2010

    Liver mets would be felt just under the ribs/below the ribs on the right side, not the left.  I never had symptoms until it got really bad (i.e. 5x5cm lesions) -- sort of twinges and the feeling you get when your belt is too tight, but on the right side only.

    You could get a blood test done to check your liver enzymes but it isn't very reliable. The only definitive way is to get a scan. 

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  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited June 2010

    Thanks Kona,

    And BTW andersonsrus, I hope you gave that nasty, nasty woman a hard right hook or the very least an equally witty comback.  I'm speechless!

    Sharon

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  • Pat634
    Pat634 Member Posts: 271
    edited October 2010

    Yeah I can't believe people are so rude, insensitive and stupid. 

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  • Denny123
    Denny123 Member Posts: 1,886
    edited June 2010

    What an ignorant lady!

    At its worst, I had a 9 cm tumor and numerous 2 cm tumors throughout my liver with NO pain at all.

    I had 9 months of Gemzar with Herceptin and my liver went into remission.

    I have been in remission now for 6 years and am on Herceptin for life.

    Pains in that area are usually the gall bladder.

    My liver mets were detected with the CA 27-29 and a CT scan.

    Denise

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  • Maryiz
    Maryiz Member Posts: 975
    edited June 2010

    Denise, awesome to hear that you are in remission.  Great news. Maryiz

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  • MandieD
    MandieD Member Posts: 6
    edited June 2010

    Denise:

    That is the single most encouraging thing I've heard since my parents called me with the news that Mom's 14 fantastic years of remission were unfortunately over, and this time, it's in her liver (but only there, best they can tell). 

    To the original poster:

    Get your blood work done every three-six months (that's how my mom's recurrence first manifested itself) and maybe even a liver sonogram if it's really weighing on your mind, and to hell with the haters. My mom got her other breast reduced to match the lumpectomied one in size a few years after the initial surgery, and she's been delighted. Even though she's back in treatment, I doubt she'll ever think, "now THAT was a waste of time/money."

    Be well,

    Mandie

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2010

    " why would go through all this reconstruction to replace both your breasts when it's going to come back and kill you...."

    Whaaaat??? what an awful woman!   I cant believe how blunt and tactless some people can be. I probably wouldve said  "your ignorance is only surpassed by your arrogance" or something. Certainly these idiotic people need to be put in their place.

    Anyway I think your question is a very valid one and we need to be pro-active and find out what we can.

    All the best...

    Musical

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  • majo104548
    majo104548 Member Posts: 4
    edited July 2010

    have lesions in my liver. feeling some pains. i admire you guys for being so brave. been depressed since i got my result but when i read your posts, they made me stronger again.

    -------------------------------------------------------------------------------------------------------------------------------------------- 

    diagnosed 6/2006. mastectotomy 12/2006.12/18nodes Stage3C

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  • sportsmom
    sportsmom Member Posts: 9
    edited September 2010

    How are you doing now? what kind of chemo did they put you on? I have drs appt today afte rthe zilllion tests.looks like just in my liver but God knows.  I wouldl ove to see how you made it thru..seems so hard sometimes..I pray alot and I know it will be just a longg journey, but would love to see how you are!

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  • TCGGal
    TCGGal Member Posts: 137
    edited September 2010

    I am on vacay and facing possible liver mets. Onco took me off Tamox more than a month ago because my enzymes were over 200. Now they are over 400: alt:467     ast:430  normals are less than 30-50...I have a PET scan the minute I get back from vacay and an appt with a GI dr that afternoon....everyone is panicking to get me in so I am concerned-even the GI dr scheduled me for 10/25/10 UNTIL he saw my test results, then he called me to move my appt to the day I get back.

    did any of the mets gals have high enzymes? I am certainly nervous. 

    sorry to hijack this thread-I am BLOWN AWAY by the rudeness of that woman.

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  • TCGGal
    TCGGal Member Posts: 137
    edited October 2010

    No  one can respond to my plea?

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  • sincitydealer
    sincitydealer Member Posts: 2,712
    edited October 2010

    Laurie, since you're not getting any responses to your post maybe you should post your questions and concerns on the Stage lV forum.  Just tell them you haven't received any responses in this "just diagnosed" forum.  I realize you're listed as stage ll, but somebody there may be of some help, especially since you're unable to get a response.

    Sorry I can't be any help in answering your questions.  Take care.

    Peggy 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2010

      TCGGAL,  I have had mets to the liver since 1998, but I have never had elevated liver enzymes....so the two don't necessarily go hand in hand.  Imagination is at times a horrible thing and I hope you at least are able to enjoy a bit of your vacation without worrying the entire time.  When I was lst diagnosed and heard liver, I thought it was curtains for me, but that is no longer true.  ANDERSONSRUS,   I cannot believe the stupidity of people...if you still work with that insensitive stupid woman I would stick my chest out, give her a smirk and say I am still here, enjoying my reconstruction.  What has happened with your liver?..did you find anything out?

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  • Lynwaz
    Lynwaz Member Posts: 29
    edited January 2011

    Don't know how your situation turned out, TCGGAL, but my liver mets were found by accident via elevated liver enzymes  on a routine physical blood test...I'd added the "routine physical" request to my primary care doc who was giving me a pre-surgical test for 2nd stage bilateral reconstruction (tissue expanders out/implants in).that took place 1/13/2011. I don't have "lesions" I have "masses of lesions".  I go for my port on Tuesday  - & will learn results of recent bone scan, brain MRI on Wednesday at oncologist's. I feel good physically so intend to enjoy everything I can as long as I can - & that means years, I hope. Saw two terrific movies this weekend - The King's Speech & the IMAX"Hubble Telescope" film. I made spaghetti for tomorrow's dinner & waffles to freeze for the future. Life goes on.

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  • thegood5
    thegood5 Member Posts: 478
    edited February 2011

    Denny123:  It's so great to hear that you have been in remission!  I was diagnosed in Sept. 2010 with IDC and was told that they think they caught it early , only to find out 2 weeks later after a PET scan that I have a nodule on my liver, but only one.  They said this is very rare, usually you are either covered or have nothing.  Since this news I realize that I am only treatable, not curable, and that's tough to take, but your story gives me hope.  I meet with a liver surgeon in Philly tomorrow to talk about my options, I may be able to have that section of my liver removed, but it might be too risky.  I guess I'll find out tomorrow! 

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  • twinsmom96
    twinsmom96 Member Posts: 55
    edited August 2011

    Like to hear stories like this was just diognoised with liver mets starting chemo next week can only hope for remission.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2011

       What chemo are you starting twinsmom?   They did a blood test to check on my tumor status and it came beck elevated for Her2( after being - for 20 yrs!!)  so I got my first infusion of herceptin yesterday....also I started xeloda a week ago and so far no hand foot syndrome although today is only day 8 so probably too early to tell.  I have some pretty large tumors in my liver, largest is 7.2 X 6.9 cm, but my liver enzymes and liver function are still good. 

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  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited August 2011

    ARGGGG post-Deleted, I hate when people bump threads and we see a bunch of people who are no longer with us!

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