What we WISH people would say.

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  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited March 2010

    lmays--way cool!  Good for you and your friends!

  • artsymom
    artsymom Member Posts: 61
    edited March 2010

    Stupid sayings.  Have to share one from my dear mom.  She has not seen me since lump first found, called 2ce since diagnosis Feb 5th.  After my lumpectomy March 17th even though she promised to come help she came up with 100 excuses why she couldn't. I am 45 with 2 busy kids and a husband that works out of town, and would have appreciated the help, but whatever. The kicker though was a card she sent me this week.

    The outside says:  With loving thoughts and good wishes.

    Oh and it includes a bookmark that says:  Love has a healing power all its own.

    Inside: Hope you can feel the loving thoughts of caring and support that surround you today and always, hope you feel better soon.

    HA!  Surround me.  From 3 hours away and from 2 phone calls.

    Then she writes inside cover.

    "Soon you'll be back to work and having fun."

    So crazy it made me laugh. 

  • lmays
    lmays Member Posts: 114
    edited March 2010

    I wish my husband's friends would have said, "Hey man, this is awful.  Anytime you want to talk..." instead of running for the hills.  Don't think men know what to say to one another.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited March 2010

    It's been proven that men's first instinct is to "fix" it. And...as we all know....you can't fix stupid!

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited March 2010

    Nor can you fix having cancer. . . .

  • NatureGrrl
    NatureGrrl Member Posts: 1,367
    edited April 2010

    Wow, this thread has brought tears to my eyes, to see all the support and love that y'all have found and/or wished for.  I agree with every word.

    Yeah, men want to fix things. What's up with that? :)  It's a great instinct when the furnace is broken, but otherwise, sheez!

    I love the article you posted, Nancy.  I wish everyone one would read that because sooner or later everyone will be touched by cancer...

    A year after I had moved back to IN to take care of my declining mother (her own cancer plus dementia), I found my cancer.  I was not only trying to deal with all of her issues and take care of her, now I had to try to take care of me and go through treatment, too... alone.  And in the middle of my radiation, mom died.  I was truly overwhelmed.

    I was so grateful for hugs, especially the "deep" ones.  And I agree, don't say "how can I help" -- find a way and do it!  One of the kindest things anyone did for me was invite me to dinner at their house -- neighbors I barely knew -- it was so good to have a break from caring for my mom, have a homecooked meal that I didn't have to fix, and just relax.

    A hug to all of you!

       

  • Melinda41
    Melinda41 Member Posts: 672
    edited April 2010

    Here is a warm fuzzy that happened to me:

    I was talking to a friend who was saying that I just needed to take it easy. I replied that I hadn't mopped my floor in two months, I can't take it much easier!

    Within hours, he showed up with his little steamer cleaner and just buzzed in, cleaned my floors without me lifting a finger!

    That is a good friend.

  • artsymom
    artsymom Member Posts: 61
    edited April 2010

    Melinda41 ~ Awesome story!

  • Annabella58
    Annabella58 Member Posts: 2,466
    edited April 2010

    naturegirl...a deep, gentle hug to you in the loss of your mom.

    It will all be alright in time. 

    What I wish people would have said to me was not what I got which was.."oh, you are so strong, you'll be just fine" or worse, from all of my 5 brothers and sisters...when I needed to tell someone I needed help, they would change the subject.  They didn't want to hear it.  Sometimes I'd email them about it and I would get a chatty mail back, ignoring the elephant in the room and talking breezily about everything else in the world.

    Lately, I tried to speak to my sister who got divorced 10 years ago and is still angry at her ex for lack of child support, etc.  I asked her to help with mom LTC policy if she was able.  I got a rant in return of how she had not money, was in dire straits, etc.  I told her it was cool if she couldn't help, but to please remember it does rain on everyone.  And that I would gladly trade places with her if my problem was to be selling one of my (two) homes.  The reply I got shocked me and still does....it was "drama much?  Oh boo hoo, cancer."

    Ladies, is it just that people cannot deal with this?

    xx

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited April 2010

    Warm and fuzzy that happened to me.

    I have a good friend, J., an ex-co-worker from the time I worked for the State Emergency Management.  She has been heart and soul close to me. I had a revision surgery a month after the first one, and got out of the hospital on the 20th of November. Then my boyfriend had to go to drill. He was back two days before Thanksgiving. We had talked about the Thanksgiving dinner, and decided to just get over it that year, as there was no chance I would be able to cook it (wasn't allowed to lift more than 2 lbs) or that he would be able to do it by himself, even with me directing him. And the way I was, there was no way we could go out for dinner. After that I talked to my friend J. and when she asked me what are we doing for Thanksgiving, I said that we won't be having Thanxgiving dinner and why. In the morning of Thanksgiving day she was at my door, with bags and bags, she brought everything! All nicely set in one-use pie-pans so they could be easy to heat up in the oven - one pan of dark turkey meat, one of white turkey meat, green beans caserole, mashed potatoes, gravy, stuffing, and a pecan pie. Everything for a Thinksgiving dinner for two! It brought tears to my eyes.

  • Melinda41
    Melinda41 Member Posts: 672
    edited April 2010
    Day: That is a great warm fuzzy, good karma points for J!!!!
  • lmays
    lmays Member Posts: 114
    edited April 2010

    Just got off the phone with a lady who is newly diagnosed.  PS arranged for her to talk to me about what's to come.  At the end of the conversation she thanked me for "being so honest and optimistic" and asked if she could call again.  Made me want to cry.  I remember so well being in her shoes and having the terror of the unknown crowd out my daily life.

    Also made me very proud to be part of this group of BCO discussioneers.  The information we share has here made a huge difference in my life.

  • artsy
    artsy Member Posts: 54
    edited April 2010

    I has been 17 years since my mast surgery but I still remember the fear, anxiety and worry about the future.  If it wasn't a friend who took my youngest daughter to stay overnight before surgery, the mothers of my oldest daughter who briought food over after I came home from the hospital...other people in my life...some of which are related....were not there for me and my family.

     I don't know if this forum was in existance back then....I really would have been helpful.

    But  "What we wish people would say"...brings me to a father of one of my daughters basketball team members from high school.   We were sitting in the bleachers...me in this wig and he just sat next to me and said....I just want to tell you that you are a very brave person.  

    Most of the other parents knew what I was I going through, but never even asked me if I needed anything.  I tried to rationalize that they just didn't know what to say.  But in reality, saying nothing is worse.

    Pat 

  • artsy
    artsy Member Posts: 54
    edited April 2010

    I has been 17 years since my mast surgery but I still remember the fear, anxiety and worry about the future.  If it wasn't a friend who took my youngest daughter to stay overnight before surgery, the mothers of my oldest daughter who brought food over after I came home from the hospital...other people in my life...some of which are related....were not there for me and my family.

     I don't know if this forum was in existance back then....I really would have been helpful.

    But  "What we wish people would say"...brings me to a father of one of my daughters basketball team members from high school.   We were sitting in the bleachers...me in this wig and he just sat next to me and said....I just want to tell you that you are a very brave person.  

    Most of the other parents knew what I was I going through, but never even asked me if I needed anything.  I tried to rationalize that they just didn't know what to say.  But in reality, saying nothing is worse.

    Pat 

  • retrievermom
    retrievermom Member Posts: 522
    edited April 2010

    I have a friend who calls regularly to check on me.  Her focus is me, and she listens.  I have an old friend from college who writes a weekly email, just telling me what is going on at her place and that she is thinking of me.  Another friend from grad school days sent a care package with tea, a book, and some cookies.  A lady at work asked what I needed early in my chemo, and I told her I wanted some soft ginger snaps, that I had not been able to find any.  She and her granddaughter made them for my next 2 tx rounds.  Contrast that to the gal who upon hearing I was looking for candied ginger said, "I think they have it at Whole Foods" (there isn't one in my town but is near where she lives).  Or the folks who've told me, "I've thought about calling."  Huh?

  • lmays
    lmays Member Posts: 114
    edited April 2010

    retrievermom - the Whole Foods story is a classic!

    you have the cutest profile pic ever!

  • diana50
    diana50 Member Posts: 2,134
    edited April 2010

    when i was in treatment, i had a good friend who would just stop by to sit with me.  one night we were playing backgammon....or i should say SHE was playing backgammon.  it was my last infusion..and i was struggling with that chemo brain thing...anyway.....she would take my move for me....play..play for me...(all this time i was watching...) when the game was over...she yells "YOU WON"  lol  we still chuckle about that.  she was consistent and just was able to BE with me. it was priceless. 

  • fortunate1
    fortunate1 Member Posts: 644
    edited April 2010

    After my surgery, one of my dearest friends (like a sister really), took time off, drove from half a state away and stayed with me. She cooked for DH and I, curled up on the sofa with me and cared for me for a week. But the most wonderful thing was how she looked at me. I could tell that she thought I was brave, but in her eyes I could she that she thought I was beautiful, too. I must have been anything but, but with that look I felt the most beautiful of my life. 

    The other thing was flowers. So expected, flowers for the sick, but the house filled with them. It was like a florists shop. we had to push them aside to get to the table. Flowers in the kitchen, flowers in the bedroom. I found out that a lot of people cared.

  • lmays
    lmays Member Posts: 114
    edited May 2010

    At my cancer support meeting last night, one of the ladies sais that she always appreciates when someone says "I'll pray for you."  It's a kind thing to say and she's sure most people are sincere.  What she has really come to cherish, however, are those who will stop what they are doing, right that moment, and say a prayer with her - in the hallway at school, at the grocery store, all kinds of inconvenient places.

    Thought that was interesting and something that had never occurred to me to do.

  • MinnesotaBarb
    MinnesotaBarb Member Posts: 46
    edited May 2010

    What I wish people would say (but know they can't): "I am sorry you are dealing with the cancer, hurt, anger, sadness, and fear. Here, let me give you a break and borrow all of those from you for the weekend. I'm sorry. You'll have to pick them up again on Monday, but I would like to give you a break." Okay, it is a fantasy. I like to think about the fantasy sometimes.

  • Katey
    Katey Member Posts: 733
    edited May 2010

    That is a fabulous fantasy!

  • lmays
    lmays Member Posts: 114
    edited June 2010

    Not sure someone has to "say" this out loud, but would be nice if the message from a friend was "I will sit here as long as you want to talk."  Don't have somewhere better to be, or a bigger name on the other line, just going to make you a priority right now.

  • leaf
    leaf Member Posts: 8,188
    edited June 2010

    I agree that there is nothing like having a trusted person listen.  However, it is good to know something about the person's religious beliefs before they get prayed for. Some people do not believe in a higher being; some people would find a prayer uncomfortable or perhaps offensive. 

    However, other people I'm sure would be very comforted by prayer.

  • lmays
    lmays Member Posts: 114
    edited July 2010

    Borrowed from a post Barbe made on another discussion thread:

    "I am sorry you're having to go through this."

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited July 2010

    I love all of those.  Because I look fine people just assume that I am ok and I will be to them, which is what I told them.  I don't have a husband/bf or significant other, I do have kids but either they don't want to deal with it or cause I look fine they can't see in, they all assume cause I "look ok" that I am in remission, NOT....am not a religious person actually was but after twice getting it not so much, actually not at all...I don't tell anybody anything and don't have a confident that I want to worry about it all, I do talk to the oncologist when I go and see him but now it is every 8 weeks. I should go to a support group, which I did the first time, I guess.

  • Leah_S
    Leah_S Member Posts: 8,458
    edited July 2010

    I told my sister about my mets diagnosis tonight and she cried a bit. Sometimes that's what we need - someone to cry for a moment with us because, after all, if she didn't love me she wouldn't cry.

    Leah

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