Bone mets question

wrsmith2x,

I do not have bone mets, but have read several active threads on the stage 4 thread. This is where you will find much information on the who, how, when and symptoms or there lack of.

wishing you the best and I know it is very hard not to think about what it could be.

hugs

I had had hip and back pain r/t arthritis in my spine.  That is pretty much what I chalked the creakiness too.  I also developed a chronic cough but the original lung scans were negative.  I was tested and found to have a lot of allergies especially to molds.  So I don't know when it went from that to the mets.  On or about Labor Day of 2006, I had pain that felt like I had broken a rib.  Had a bone and a PET scan with mets from C3 to the end of my spine, multiple ribs, a small lung lesion, etc. etc.  It is never a bad idea to follow up re:  any symptoms you may have.  ALWAYS think positive thoughts and assume your alright.  Otherwise, the cancer will consume you and you will miss some of lifes best moments.

Good luck!

wrsmith..let us know how your appt. goes on the 1st...Where exactly is your pain in your hip?  Does it come and go...does it get worse with exercise?  I'm questioning you about it because back in January I was sweeping with a broom..I mean really sweeping hard...bent over...trying to sweep underneat this sink.anyway..a few days later I could hardly walk...I went to the dr..(didn't wait the 2 weeks) and he said it was muskoskelatal.   that this is this muscle that wraps around your pelvic bone...and he said not to over exert for a couple of weeks...so I rested it...now it is 5 months later..and while it hardly ever bothers me now..it is still there...I have upped my exercise..walking or running 3 miles per day (plus walking backward)..and now it kind of bothers me again...I keep thinking that it never really healed the first time..but then I don't want to rationalize it away because we just can't do it anymore...anyway..I think I'm going to wait one week..try to rest it..take it a little easy and see what happens..if it continues to hurt..I think I will call for a pelvic scan..but I'm freaking out about doing that too!  I know exactly how you are feeling...it may be nothing..or it could be something!  Dang, I hate this...

so understand what everybody is going thru, I have only just finished radiation and don't even finish reconstruction until sept! I had a scan for tailbone pain which kept getting worse, but nothing showed, my husband said it was probably "skinny butt" syndrome from losing weight due to that awful cisplatin and sitting at work, now my arm aches at night, but it is ok when i get going, i am not going to stress about this, I think it is nothing and will wait until I am to go for my scheduled scan.  Wondering if this is what life will be, picking apart every little pain. Aren't the scans bad for us?  I do try to think positive thoughts every day and thank God I am comfortable and much loved...my friends will comment on my good attitude that they see, but they don't really feel the terror I sometimes feel...but, things could be worse, right?  

wrsmithX2 what is going on with you? Are you OK?   

Thinking of you all! Good nite! 

Wrsmith2x

Good luck with your scan. Finger crossed for you!! Prayer and love to you.

Great news.  This is probably the only place where people are happy about a cartilage tear.  lol!!   So happy for you.

I'm bumping this up. Here's my story:

At my 6-month check up in July my onc felt something at my scar and sent me for an ultrasound.

The radiologist didn't see anything on the US but took a biopsy of the area anyway and it came back negative.

She sent me for breast MRI. The breast MRI lit up on the ribs under my affected side.

She asked if I had ever had a fracture. Answers is no.

I was sent for an x-ray. Then sent to an orthopedic onc to look at MRI and x-ray. This was last week. He said he couldn't tell what it was but the x-ray tech wrote that there was a thickening on the ribs.

He is now sending me for a CT (on Sunday) and a bone scan (on Monday).

Am scared but then I started thinking that with TNBC..it's not all that common to get bone mets. If it is going to spread, I think it spreads to soft organs.

Does anyone know anything about that or know of somebody with TNBC with bone mets?

thanks. good article. and up to date, I think. and that's what I thought...I mean I thought that it went to soft tissues first...

However...it is also more common for younger women to be diagnosed with TNBC and I was 50 when diagnosed!

yep..me, too. I exercised and still do, have never been overweight in my life, I have been eating a low fat diet all my life as well and all those other things for TNBC! I'm a vegetarian now and have been for over 2 years now. However, I rarely ate meat anyway. I just added a little bit of fish now and then to my diet recently.

So, I don't go with the stats. They are good when studying the disease but we are not really numbers and there are a lot of women on the boards here who don't fit into it, like us.

ho hum... waiting for the scans and then will wait for the results....

mitymuffin

Thanks for the article. Do you know what stages of the triple negative patients they took for the study mentioned in the article?

Ravedeb,

Have you got bone scan results? Pls update and hope it was b 9. 

Usually the bone scan results can be out within 15 minutes after the scan. I usually do PET/ CT scan. Insurance never gave a problem if prescribed by doctor and PET/ CT scan i read is more accurate than bone scan and PET/CT scan is also two tests at one piece and can very accurately detect the differences between b 9 changes and maligent changes. And results of PET is within 3 hours post scan.

Good wishes and let us know.