What the %$&^#????

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  • lottie
    lottie Member Posts: 205
    edited May 2010

    Hi all

    I had a unilateral mastectomy last july for IDC, chemo from Sept until Jan and I'm still not back to normal. I felt an abnormal area on the outside of my left breast a month or so ago. Two docs have examined and not found anything abnormal. Nonetheless we moved my 1 year mammo from the end of June to a week ago and added an ultrasound. While I was having my ultrasound, the radiologist came in and said that my mammo was normal and the tech and radiologist concurred that the ultrasound was ok too. The radiologist recommended an MRI because my last BC didn't show on mammogram and she wanted to cover all the bases. I was grateful and the MRI got scheduled and is happening on 5/19. BUT, I was under the impression that the MRI was just to make extra sure - probably to give me peace of mind. The radiologist herself stood there and told me the mammo and ultrasound where fine. Today I got a letter from the radiology department that says: "The radiologist who read your mammogram performed on 5/6/10 indentified an area that requires further evaluation" -- it goes on to say that I should have an MRI (already scheduled).

    I called my primary care who confirms that the radiology report she received said both mammo and ultrasound were "normal" and that an MRI was recommended because of my history.

    I called radiology and spoke to a receptionist who said that the report on the mammogram says there's indentified an area that requires further evaluation. But I don't know where she's getting her information.

    Could this letter be just a template type letter and the language referring to "an area that requires further evaluation" just be in there so that the MRI gets insurance approval?

    Has anyone had an experience like this? I'm freaked out.

    I've been on 20mg of tamoxifen since March.

    Lottie

  • Frankie_
    Frankie_ Member Posts: 422
    edited May 2010

    Lottie,

    I have not experienced this but as I was reading your post, I was thinking that it could be a standard "template" letter that goes out to patients that are required a "follow-up" MRI whether it's because there is a "questionable" area that requires further investigation OR because the radiologist just "wants to make sure" like in your case. It's hard not to read anything into it as you have gone through so much already and especially when you think that you have felt an abnormally.

    Hoping that you have a clean MRI!

    Frankie

  • carcharm
    carcharm Member Posts: 486
    edited May 2010

    I just went to the onc and I asked if I could have a pet scan after my herceptin treatments in august. The dx they put on the script is suspected malignancy v71.1. I think you hit the nail on the head. In order to get a "peace of mind" mri for a stage one... a symptom or dx has to be listed...only certain codes will pass for the mri to get thru precertification. I'm a coder so I kind of suspect that's why they said that. Also, the NCA guidelines for stage I cancer patients is no scans at all.. no bloodwork... no follow up. My last onc said the only time she would do a scan is if I was having symptoms. My new onc does peace of mind scans.

  • lottie
    lottie Member Posts: 205
    edited May 2010

    Thanks so much carcharm and Frankie_ -- My rational mind tells me that this is a template letter and also perhaps related to getting insurance approval for the MRI. Still it's frightening. I'll consider this a "peace of mind" MRI and hope all's clear.

    Lottie

  • lottie
    lottie Member Posts: 205
    edited May 2010

    Happy to report that MRI, ultrasound and mammogram on my remaining breast were all clear.

  • hmm
    hmm Member Posts: 2,183
    edited May 2010

    Great new Lottie Smile

    Pat

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