Crazy Sexy Cancer in Seattle

Is anyone here involved with the support groups in Everett?  I hope to go to my first meeting next Wed.I also plan on attending the event on the 6th of June in seattle.

Hello Gals,

My goodness I guess life in lil' Poulsbo is cruising along as its been a while since I've popped in.  Finally feel like I'm over the hump in the recovery process, golf in April was definitely not one of my smarter choices.  Dealt with a bit of infection on the new hoot (not on the flap itself, but on the outer area), hoping an aggressive course of antibiotics has done the trick.   Been starting some short walks (5/6 milers) on the weekends for my 3 Day training.  Been pretty lazy when it comes to weekday walking .... need to get my hiner in gear.

Just read your post Annie, and if it's of any help I too do a Zometa infusion (like Tracy) every 6 mo.  I realize we may all have different dosages, I did want to reiterate what Tracy mentioned that I too had much more of a reaction after my first txt then I have with the subsequent 3.   I will hope that your se's take themselves a hike and your txts do nothing but kick some cancer pa-tootie!

I'm planning on walking at the RFTCure on the 6th and hoping to see some familiar faces !   Has anyone else participating received their T-shirt yet ?   Was just reading on the website for the race about picking up your T-shirt the day before???   Think/hope I paid to have it sent to the house ?!?!?!?

Time to hit the "galley" !   Take care my friends, Carol

golfer, I'm going to the event on the 6th too.  I'm not registered but gonna be there any way.  hope to get a chance to meet some of you in person.

Hi Colette.  I had surgery last week with Dr. Chatal.  I had tissue expanders put in, so I can't comment on her work as a finished product.  I did want to tell you, though, that my Swedish PT recommended her work and she sees mastectomy patients pretty much exclusively.  She gave me a list of about 5 drs and said she thought Chatal was the best of the lot.  Best wishes for Thursday!

kyasou...Thanks for the reply..I agree she did good work on my right side, but it is my left side that has the rads and much less tissue.  It is nice to know I chose a great surgeon and that she does many of these kids of surgeries.  She can be anal and really reminds me of my sister..but you WANT that in a surgeon!  LOL

Thanks for the well wishes, I will be glad when this one is over because then it seems like it is down hill with the exchange and nipple construction.  Sigh...this has been a long treck hasn't it!

Laurie R - they moved to Seattle Center and it starts about 830am.  http://www.komenpugetsound.org/ will get you the details.  You have to pick up your shirt the day before unless you chose to have it mailed to you.

Verene -- have you noticed the creeping fatigue?  It really hit me hard on #4 and found that the 5.5 miles I walked this past weekend was almost too much.  Just did #5 today.  YAYYYY!!!  One more to go!

Hey folks,

Haven't posted for a long time; been dealing with my mother's illnesses and then she passed away in March from a combination of liver disease, liver cancer and breast cancer. I'm still sad but it's getting a little easier.  I'll be at RFTC with my colleagues from work (our team is Group Health Poulsbo Jean's Beans), raised more than 1000$ so far! 

Carol--sorry to hear about your infection, hope it clears up quickly.

Welcome to all newcomers to this club; you'll find amazing support and inspiration here.

Jean

I'm going to be there but not up to the walk yet.  I'll be getting there about 11:00.  Everyone knows about the location change to Seattle Center?

I went to pick up our shirts yesterday at Road Runner and met the woman who runs the program.  She is a hoot!  The survivor walk starts about 11am on top of the pavilion.  I'm trying to find the particulars and will post and maybe we can all meet up ...

Day 5 and defintely have the yucks.  You know it's bad when even a shower is tiring.  Oh well.  One more!

I will be at the 5k - with kids so not running! 

Would love to meet up -

I have not registered yet, so I guess will have to go in on Saturday?!

S 

Do any of you know any support groups for YOUNGER women down in the Lacey/Olympia area?  When I first was diagnosed I tried finding a breast cancer group and the lady point blank told me that the group here was targeted towards older victims and was not really appropriate for younger women with young kids..And so I was wondering if any of you know of any groups directly in the area?  I know that I am 14 months after diagnosis, but I am still dealing with the emotional baggage from losing my breasts, to now slowly getting them back.  I am 38 and have 3 kids (9, 5, and 2)

It is hard for me to believe that there is only one group in an area the size of Olympia that is targeted towards breast cancer.

How many people on this board are from the Olympia/Tumwater/Lacey area?  Would you be interested in getting a group together to meet and chat once a month or every other month?

hi all - when I wrote not running, I meant - walking in the co-ed 5k walk. So, I will be there, and will be participating, just not RUNNING. 

For sure, let's meet up somewhere - we can exchange cell phones BUT it is really loud (as you can imagine) so it was virtually impossible to hear anyone who called.  Anyone have a good meeting place in mind?

Colette - I would either contact Gilda's club or the Young Survivor group and see if they have groups in your area.  I went to one cancer support group on Bainbridge when I just started chemo.  I was 44 and the rest of them were over 70.  Subsequently I found Carol (Golfer779) on the boards who lives close, then Jean, then Peg etc. etc.  So we kind of formed our own little support group locally.   Your local support group contact does not seem very supportive!  There has got to be other groups.

Hope everyone is enjoying Memorial Day weekend - I am having fun with cozy fires inside instead of the outdoor bbq's that were planned!  Either way - have a good time! 

I met Jeri on Saturday who was handing out the t-shirts at Road Runner and she asked me to carry the 0-1 year survivor banner.  So look for me with the 0-1 year banner in the survivor march.  I'm walking as well ... working my way up to running, but still a ways out.  Since the walk is at Seattle Center this year, I'm not really sure of the layout, so hard to figure out where to meet.  Jeri said there is a Celebration Tent that you gather at 1040 before the parade and the parade is on top of the pavilion. 

Good luck to all of you walking/running this weekend.  Actually sounds fun (which is not something I would have said a year ago).   I am in the middle of training for the 3 day.  My sister and I walked 6 miles twice this weekend which is a good accomplishment.  I also had an "Thank You/ End of Chemo / Fundraiser" Party a week or so ago.  We had 70 people and my husband set a challenge that if we raised $2000 for the 3 day walk, he would shave his head.  We ended up raising $3500+ and both he and my son shaved their head.  It was an amazing party and now when I don't want to go out for a walk, I remember all my friends and women on this board.

 I am having my hysterectomy on Friday (BRCA1+) and then I am taking the summer off from surgery and treatments.  My surgery will be done via the DaVinci Robotic Surgical System.  The recovery is supposed to be pretty quick.

Lorrie -- best of luck on your surgery and a speedy recovery!

I hope to see many of you on the walk Sunday.