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Leah_S
Leah_S Member Posts: 8,458
edited June 2014 in Just Diagnosed With a Recurrence or Metastasis

I got the results of the CT-PET scan I had last week.

Probable mets to my sacrum.

The report is couched in cautious language, as far as I can tell (it's in Hebrew so that's limiting me). But the BS didn't seem to have any doubts. She said my onc will probably want to do either a bone scan or, depending on the location, possibly a biopsy to confirm but she seemed pretty sure of the diagnosis.  I called my onc but he's on vacation until Sunday so I emailed him and will fax the report in the morning.

Meanwhile I keep crying.

Leah

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  • Texas357
    Texas357 Member Posts: 1,552
    edited May 2010

    Leah, hugs to you!!! Go ahead and cry. This is scary stuff we're dealing with. Please keep us posted, okay? In the meantime, I will say a prayer for you.

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  • Beesie
    Beesie Member Posts: 12,240
    edited May 2010

    Oh Leah, I'm so sorry.  I guess if it's couched in cautious language and they want to do a biopsy, this means that they aren't 100% certain.  So there still is chance that it's not mets - I'll hope really hard for that.   

    Sending lots of cyber (((((HUGS)))) your way.

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  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2010

    Oh, shoot Leah, I am so, so sorry to hear this.

    Please keep us updated when you hear more. Remember, nothing is 100% sure until they biopsy it.

    Meanwhile, I will be thinking of you. ((((hugs))))

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  • JacquelineG
    JacquelineG Member Posts: 282
    edited May 2010

    Leah, you are in my thoughts and I will pray really hard tonight that your BS is wrong in her prediction. Hang in there. I send you hugs!

    Jackie

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  • molly52
    molly52 Member Posts: 389
    edited May 2010

    Oh Leah, That is really tough news, I am so sorry.  If there is any shred of doubt available, I hope it will be in your favour.  Gentle hugs and warm thoughts to help you through this weekend.

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  • fightinhrd123
    fightinhrd123 Member Posts: 633
    edited May 2010

    Hugs Leah, I will be praying too that your BS is wrong!

    Laura\xoxoxox

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  • redsox
    redsox Member Posts: 523
    edited May 2010

    Leah,

    I am crying with you.  ...and also still hoping it is something else.

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  • kira66715
    kira66715 Member Posts: 4,681
    edited May 2010

    Leah, the waiting must be horrible. I work in rad onc, and the head rad onc always looks at the images, because he finds the reports to be unreliable--we saw a woman this week where all sorts of questions were raised and the images just didn't show the problems that were written in the reports.

    PET/CT's show metabolic activity, so until the bone scan, plain films and biopsy--it's just a worrisome preliminary test. I know, very worrisome.

    I also saw a woman who on initial work up had the question of a lesion in her hip: was initially treated as stage IV, but the biopsy was negative.

    The waiting is torture. I don't want to minimize your concern, just share that there's more testing to be done to understand the report.

    Leah, my thoughts are with you.

    Kira 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2010

       I am so sorry you got an upsetting report.   There is always the possiblity the BS is wrong so try not to panic.  Crying is normal and waiting is torture.  Hang in there and I will pray that it turns out to be arthritic changes or something minor.   I don't know if this will make you feel any better, but several years ago, I had pain in my lower back and my orthopedic doctor (not my onco) sent me for a MRI of my back....it showed possible mets to my left sacrum.  We followed that with a biopsy and sure enough it was BC and I then had rads to this area and it got rid of my pain.  I then had to move onto chemo, but the point being, I am still here.  No matter how long we have been dealing with this, it is always scary to think it is progressing, and not knowing for me is always worse than knowing.  It is easier said than done, but try not to worry.   

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  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited May 2010

    Leah -

    I am sending my thoughts and hope your way.  You have been so supportive to so many and now you have the need.  I care.  We all care.  Sending you hugs.

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  • helena67
    helena67 Member Posts: 357
    edited May 2010

    I am really sorry about this news. That seems very unexpected. I too hope it turns out something benign..

    -Helena.

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  • Pamelajo
    Pamelajo Member Posts: 346
    edited May 2010

    just had a friend go through the same scare.  biopsy came back negative!  there is hope hon.  hang in there

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  • apple
    apple Member Posts: 7,799
    edited May 2010

    i cry for you too... it's so scary watching this disease progress. 

    I'm praying

    (edit) 

    peace and love, apple
    Diagnosis: 5/10/2008, IDC, 5cm, Grade 3, 4/9 nodes, ER+

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  • Frankie_
    Frankie_ Member Posts: 422
    edited May 2010

    Leah,

    I am so sorry...I too am undergoing scans -scanaxiety! I recently had a Chest-CT Scan (April 9th) and showed 2 spots on spine (that weren't there) in November. The findings were "vague" and Onc ordered a bone scan (which was clear). So now I am undergoing a "wait and see" approach to redo the scans in 3 months. Onc said that he isn't convinced the spots on the CT Scan are cancer-related BUT really he cannot tell for sure. It makes me sick to my stomach just worrying and waiting. BUT as some of the ladies (above) have mentioned "findings" can be other things non-cancerous and OTHER diagnostic tests are needed to compare to rule things out one way or another. Also remember some findings can be "false positives" too.

    Sending you positive thoughts and hoping that it's benign related.

    Hugs,

    Frankie

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  • molly52
    molly52 Member Posts: 389
    edited May 2010

    Leah,

    Have you had an opportunity to talk to your onc yet?  Waiting is hard.  I've been worrying for you and hoping, hoping, hoping for a favourable outcome.

    How are you managing?

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  • Leah_S
    Leah_S Member Posts: 8,458
    edited May 2010

    This waiting is the WORST.

    But all of you are the BEST. The support and love you give me are strenghthening and are helping me to get through this.

    I spoke to my onc today. He's read the report but can't make any judgement until he sees the imaging, so I'm getting that to him first thing in the morning.

    Meanwhile, I'm praying.

    Leah

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  • hymil
    hymil Member Posts: 826
    edited May 2010

    I'm praying too Leah, and I couldn't have put it better than what Anacortes said. (((Hugs))).

    "I have kept every one of your tears in a bottle"

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  • lovemyfamilysomuch
    lovemyfamilysomuch Member Posts: 1,585
    edited May 2010

    Praying for you sweet Leah xo

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  • Heleny
    Heleny Member Posts: 8
    edited May 2010

    Dear Leah, I can relate.  I had stage 1 BC diagnosed 10/8/09. I had a double mastectomy. 20/20 nodes were clean. I had chemo anyway. No radiation. Recently, I told my onc that my hip hurt (they have hurt for years!) & he ordered a PET scan. The PET scan showed two small spots on my left lung. They tried a biopsy, which was inconclusive. No one can know if it is anything w/o a good biopsy. Now I have to wait for another PET scan in June. The fear and waiting are horrific.  No one can say for sure if it is something or nothing (not Valley Fever, tho). I keep analyzing things in my mind and having weird dreams. Mostly, I try not to think about it. I can say that now that we have had BC, the doctors will react seriously to every single thing they see.  Take comfort in the fact that they miss nothing and even if it is something (which I pray for us both it is not) they will get it early. My prayers are with you that this turns out to be nothing. xxoo

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  • ravdeb
    ravdeb Member Posts: 3,116
    edited May 2010

    Leah..

    I had just sent you a private message but hadn't read this yet.

    I'm so sorry you are going through this. Please contact me if you need any translations or just plain support.

     Keep me posted..

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  • molly52
    molly52 Member Posts: 389
    edited May 2010

    Leah,

    Has your onc reviewed the imaging yet?  We're worried for you?

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  • Leah_S
    Leah_S Member Posts: 8,458
    edited May 2010

    Thank you! I'm still waiting to hear. My onc is the type who consults with others so I think tht's why it's taking so long.

    And driving me nuts.

    Leah

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  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2010

    Leah, I have been thinking about you all week. Hang in there, hoping no news is good news! Let us know.

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  • Joviangeldeb
    Joviangeldeb Member Posts: 213
    edited May 2010

    I'm sending prayers your way. 

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  • Frankie_
    Frankie_ Member Posts: 422
    edited May 2010

    Thinking of you Leah!

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  • apple
    apple Member Posts: 7,799
    edited May 2010

    I'm thinking of you two Leah.. *sayin my Catholic prayers in the hopes that God will respond to someone!)

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  • lovemyfamilysomuch
    lovemyfamilysomuch Member Posts: 1,585
    edited May 2010

    Still praying Leah! xo

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  • otter
    otter Member Posts: 6,099
    edited May 2010

    Aw, Leah...  It's awful that you've been left waiting and worrying for such a long time.  I didn't see this thread until today, so I'm late in telling you that I am thinking about you.

    Hugs...

    otter

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  • Wonderland
    Wonderland Member Posts: 3,288
    edited May 2010

    Hang in there, Leah. You're so supportive and encouraging to many on this Board. Now let us support and encourage you.

    Prayers for you,

    Wonderland

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  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2010

    Any news??

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