Starting Chemo February 2009?

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  • xpectmiracles
    xpectmiracles Member Posts: 439
    edited May 2010

    I don't like that we are all sharing about our continued stress. But, I am relieved I am not alone. My dh and I went to session with councelor. It seems he does not think I should be dwelling on my continued cancer treatment side effects. I say I am not "dwelling". As I go though my life now a day does not go by that I am reminded I had cancer and I am not the same now. I am trying to move on with life as "normally" as I can but so much has changed. He doesn't see that.
    I also found out the uterine biopsy showed normal tissue and midwife thinks there is no need for any intervention

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2010

    ((Artemis)),

    Cheryl~ I hate that we are all still stressed about BC but it does me a lot of good to know that I am not alone. 

    I feel like I am still in cancer land with all of the surgeries that I have had recently and the fact that I am still healing.  I can't stand it.....but where else can you go ??  I don't think that I need to go back into counceling yet, but I always reserve the right to go back.  I have a bad case of canceritis recently because my back is hurting like crazy but I think it is from sitting and just being weak.  Another thing that is bothering me is I am back to trying to be a night owl...so I need to get some lunesta and get back on track.  I need to sleep at night and stop dragging thru the day. 

  • MicheleS
    MicheleS Member Posts: 937
    edited May 2010

    tried to post but stupid computer ate it.

    I'm awake and feeling crappy.  I have a uti and hurt (that'll teach me to ever have sex again).  Of course, being awake at night means icky thoughts... plus, too late for xanax. I have to be up in a couple hrs.

    Jaimie~ I loved the cake on FB! How are your foobies doing??

    Judy~ I'd be worried about coming off the coumadin too.  Are you on Plavix or aspirin?

    Kerry~ Hi! Hoping all is well!

    Cheryl~ So happy about the biopsy.  WONDERFUL!  Also, I'm glad you are seeing someone.  I still am seeing my counselor.  She's a BC survivor and doesn't expect me to "get past" anything yet.

    Hi Artemis and Nancy!!!

    So I saw a PS today and I liked him.  He would do the te/implant procedure.  I just don't think I can take off work for the GAP.  So, I'm considering it...

    xxoo

  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2010

    Cheryl - great news on the Biopsy!!

    Michele - Ohh, UTI, no fun. Hope you are feeling better this morning! I'm glad you are going for recon. I am still not sure....don't know about implants after rads, although my BS seems to think I would be OK. I just don't know if I really want to go through all the recovery of Surgery. And being a Uniboob really doesn't bother me that much. I've been trying to think why....I just think my fear of reoccurance is so much higher than my worry about only having one boob. It kind of overshadows things a bit. 

    We have a long weekend coming up and we are going away to the Cottage- cannot wait! And the weather is even looking good (it is usually freezing cold!)

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2010

    Michele~ You know if you are considering Gap go see Dr. S.  He is worth the money, the wait and the time.  You know what they look like...lol...  BTW, they have even gotten better over the last couple of weeks.  The best part is they feel real to me and to others also (lol).  Honestly the only reason that I have been down on stage 2 was that he fixed my stomach.  In all honesty I could have been back to work (at my old job) within 2 weeks for stage 1 and a week for stage 2.  I know that the center would have been against it but I didn't feel bad.  Stage 2 I just get stomach cramps from the plication and if I eat too much according the the plication. 

    BTW, I took ativan at 2:30am last night because I was up and that never means good things.  I hope your UTI clears up soon. 

    Kerry~ Have fun at the cottage.  I hope the weather holds out for you. 

    As for me I am supposed to be photographing my nephew today....we will see if they come over or not.  I am not holding my breath because I hate when people say they are coming and they never show up or call and say they are not coming.  I also have to set up some time for a senior but the weather is not holding up.  It seems like it is raining everyday. 

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2010

    Cheryl:  great news about the biopsy!  Reading your post, it concerns me that your therapist doesn't get it and would tell you to simply stop dwelling on your bc....it's not like we *want* to dwell on it, but how can we totally just never think about it, that's unrealistic.  That really irked me, that he said that to you, like you're doing something wrong here, when you're just going through something that to me seems par for the course.

    Michele:  hope you feel better soon...I had a UTI a couple of months ago, and had forgotten how painful they are, yuck.  I do plan to start taking something, I want to take curcumin, which has blood thinning properties, but have been told that until I get the genetic clotting test, I shouldn't take anything at all.  I'm with ya on the PS issue....I have a new appt in July (have to be off coumadin for 2 months prior to any surgery), but am leaning toward DIEP or something similar...I know my body, and get a feeling it would reject implants, but I am not sure I have enough fat anywhere to make 2 foobs.

    Kerry:  I had rads in 2004, thought my skin held up well, but in order to do an implant on that side, the PS had said I would need a flap because my skin is "thin" on that side....I figured if I have to get a flap on that side, I may as well get the DIEP or GAP.

    The problem is that no one at U of M does the DIEP or GAP, so I will probably cancel the appt.  I need to talk to my insurance co and see what they will cover out of state.  I found that one of the NOLA docs recently added a Chicago location, that's only a 5 hour drive from here, so I will look into that.

    Well, off to actually get something accomplished today.  Hugs to you guys : )

  • MicheleS
    MicheleS Member Posts: 937
    edited May 2010

    I'm at work and can't keep my eyes open... Uggggghhhh. been up since 1am urinating blood and <wait for it> puking.  The ONLY reason I'm at work is that I need to do biosafety training for a lab and I had a really difficult time getting the investigators to comply...

  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2010

    Oh, shoot Michele...go home as soon as you can.

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2010

    Oh Michele please go home.  You need to take care of yourself.  The lab will survive.....

  • Nancyb7912
    Nancyb7912 Member Posts: 84
    edited May 2010

    Oh dear, Michele.  I hope you feel better tomorrow.  Nausea is bad enough when you have to work, but what you're experiencing sounds miserable.

    Kerry, have fun at the cottage. That's one thing all my Canadian cousins have that all of us south of the border don't so much, is a cottage. I think you all have it right on that subject.

    We ALWAYS love negative biopsies here. 

    Funny how our "new normal" seems has its own highs and lows. I'm sure our friends and loved ones are thinking - isn't it great that you beat cancer. Now you can get on with your life and everything will be normal again.  I don't know about any of the rest of you, but normal seems like a distant memory for me now. Right now I feel like I will forever be looking over my shoulder waiting for the cancer to return. You ladies who have dealt with recurrence - how were you able to get past this?

    I had an odd dream last night - the first one I can truly recall the theme and not simply mental pictures of the hair, or lack thereof. My former next door neighbor who ended her chemo as mine was starting was there and we were painting 2 versions of the same scene. Lots of food for thought there.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2010

    Michele - hope you are doing better today.

  • MicheleS
    MicheleS Member Posts: 937
    edited May 2010

    yes better. thanks.  :)

    I went home at lunch and took a long nap.  By evening the antibiotics were working and I had some relief from the pain.  I took a xanax last night and actually slept through... So, I do still have some discomfort today but it isn't that bad.  :)

    I did want to post about something here... I've decided to have te's put in.  I know that Jaimie had a bad experience and am praying that she's our token implant-rejector for the Furies!  I would rather have the GAP but can't take off that much time from work.  There's no way...

    So... I'm going in on Friday 5/28 to have my ovaries out and te's put in. Do you guys think I'm doing the right thing?

  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2010

    Whoohoo, Michele is getting new girls!

    Yes, it's absolutely the right thing. 

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2010

    Michele:  that is great, I'm jealous ; )  Alot of women seem happy with their implants, and have no issues like our poor Jaimie : )  Glad you're feeling better.

    Nancy, I think new normal sucks, too.  My hubby does get it though, although  he doesn't seem too thrilled sometimes....I'm definitely moodier these days.  I don't think we have anyone in our group dealing with a recurrence thank god!

    It was a gorgeous day today, got my flowers planted.  I tried going to garage sales, but was kind of depressed, so I came home to garden instead.  My husband has an interview in Indiana tomorrow...if he gets the job, he will have to rent a room during the week, and come home weekends.  but it is important to him to get a job in his field, he hates the job he currently has.

  • living4today
    living4today Member Posts: 215
    edited May 2010

    Wow, I have missed a few days reading and I do believe I would have saved myself some grief if I would have logged on and read all of this great wisdom.  Sounds like alot of us are learning how to deal with the new "normal"...along with the fears and joys of every day living.  I think it would be a bit easier if our bodies would know what to do...my body is trying to decide if it should be waltzing or doing the hip hop.  In December the doc told me I was postmenopausal and in March Aunt Flo came a visiting and continues to visit every 3 weeks, this last week was horrible with  PMS or menopausal sx's, don't know which...I guess I have been very lucky my whole life as I haven't ever had these issues. 

     BTH,  I did have TE's and radiation and my "new girls" placed in March....love them and so worth all the pain and discomfort!

     Hope you all have a great weekend!

    My 14 yr old daughter is having an improptu party at our house tonight...there are teens every where....and they keep multiplying....

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2010

    Hey Kim!  I'm in the same boat...just had my first period 2 weeks ago, and now today, I'm spotting again!  UGH!  this sucks.  I think I'll schedule an appt with my gyn to see what he has to say about this.  It's great that you got new foobs, I hope to follow suite soon...and you are very brave to have a teenage girl party, lol...I haven't had to deal with that in a very long time, and I don't miss that at all!  Too much noise, lol

  • living4today
    living4today Member Posts: 215
    edited May 2010

    Hopefully this isn't TMI, but I actually had a cycle or spotted 20 out of 26 days in March, now I am cycling every 21 days for 7 days with one really heavy day (like a tampon an hour--gross!)  The most challenging thing for me is the PMS or premenopausal symptoms.  Unfortunately, I haven't been able to find much out about postchemo menses.  (and I don't know if docs know much about it either.)

     Re: teen girl party--ummm, boys were invited too--I stopped counting kids after 25--they kept multiplying...but, we survived...now only three girls left to discuss the "drama".  They were actually all pretty good, so hopefully next time we can do a bon fire--(hopefully we won't have 35 mph winds. lol)

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2010

    I haven't seen much on post-chemopause either, I am definitely having another period, my first one just ended on May 7th, so it's only been 16 days!!!  No fair!  In the past my gyn has suggested the procedure where they freeze or laser (can't remember which) the lining of the uterus to reduce flow...I may look into that if this doesn't improve.

    I thought you were having a sleepover with all those teens, lol...not so bad if they were all gone by midnight I guess...I've not had a party that big with teens, except for graduation party.

    Hope everyone is having a great weekend!  It's gorgeous here this morning, got more outdoor work to do, so I'm off to cook breakfast.

  • MicheleS
    MicheleS Member Posts: 937
    edited May 2010

    Judy~ Have you considered having your ovaries out?  I think that your gyn could justify it:  premenopausal BC X2, TNBC, pelvic discomfort, heavy bleeding... Just a thought. 

    Kim~ Thanks for posting about your girls!  I'm less nervous now and am getting excited!

    I have a PET/ct tomorrow and a brain MRI Tues.  I'm trying to reduce the scanxiety but it seems ever-present.  <grumble> But, by Wed, I'll have my results and will be going to Bradley's graduation!  Then Fri is the big day!

    xxoo

  • living4today
    living4today Member Posts: 215
    edited May 2010

    Michele quick question for you as I know you research alot too...I was dead set against doing a hysto but since I have been having such issues, I questioned my oncologists about going this route and she said that if I can keep my ovaries that would be the best as it provides protection for my bones and heart.  If I remember right, you did have your ovaries removed?? Can you share your thoughts?  Thanks.

  • MicheleS
    MicheleS Member Posts: 937
    edited May 2010

    Kim~ My bloodwork indicates that I'm postmenopausal... I have very little estrogen.  'tho, I admit that I'm feeling PMS'y... Anywhoo, yes, estrogen protects your bones and heart.  But, I'm terrified of ovarian cancer so I'm willing to deal with the risk that I'm getting rid of estrogen that would help my heart or bones. It is a toss up...

    Sooooo, my ovaries are coming out Fri.

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2010

    Michele~ You are going to do fantastic on Friday !! 

    DO NOT LET ANYTHING THAT HAPPENED TO ME STOP YOU FROM RECONSTRUCTION!!!  DO YOU HEAR ME ???  (this goes for everyone....I have a list a mile long of allergies...and while my silicone foobies (boobies) looked fantastic....not kidding they are just not still with me because of my allergies). 

    So now that I have said this if anyone wants info on either I can help :)  Speaking of allergies I am having a reaction to disolvable stitches in my new nipples.  Didn't I tell you that I am a freak...lol...

    Baby's birthday party is today and I have some photography training that I am going to go to tomorrow in VA.  So if I am quiet that is why...... :)  Michele you will be in my thoughts this week while you are in the tube. ((hugs))

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2010

    Michele:  I don't know....I guess I figured since I am TN, it didn't really matter if I kept them.  I might have my gyn test my hormone level to see if I'm menopausal or not...could just be a few last periods before they're gone for good.  You have a crazy week ahead of you, hang in there...I'm glad you're getting excited about the foobs, it should be something to be happy about. 

    Kim:  one thing I've noticed since my period returned is that I'm not achy anymore...no more achy hands and ankles...I thought it was being off the coumadin at first, but I'm back on it for now, so it wasn't that. 

  • MicheleS
    MicheleS Member Posts: 937
    edited May 2010

    clean PET! whoo hoo!!

    Still waiting on the MRI results but my favorite tech gave me the "thumbs up"  :)

  • apple
    apple Member Posts: 7,799
    edited May 2010

    ok that's good

    apple's indicator node is rearing it's head.. we're waiting and watching,.. i expect to go on chemo sooner then I hoped..

    sigh

  • MicheleS
    MicheleS Member Posts: 937
    edited May 2010

    {{{apple}}} Have you had a biopsy of it?? What about a PET? Maybe it is just an angry node? I had a couple of those in my arm but the are gone now.  ;)  {{{more hugs}}}

  • Artemis
    Artemis Member Posts: 759
    edited May 2010
    Cheryl ~ I don't like that your counselor told you to stop dwelling on your SE's.  Feh.  I join Judy in being irked about this. Undecided  But I am so very glad that your biopsy was clear!  Yay!!

    Jamie ~ Is your back feeling better?  I'm not sleeping well, either, and that's another thing that makes me think it's time to get back on antidepressants.  (I was on Wellbutrin but had to quit because it interferes with Tamoxifen.  Effexor is supposed to be ok, so I guess I'll be asking for that.)

    Michele ~ Oh my gosh, as if the night thoughts aren't bad enough, you had a UTI on top of it?!  Yell Yikes!  Glad you're better now.  Getting TE's sounds like a great idea to me!!!

    L4T ~ if Aunt Flo dares to come visiting after all this time, I'll hunt her down and kill her, lol.  Seriously, I'll be asking for my ovaries to be taken out pronto!  I don't want that aggravation, plus I'm 100% ER positive which would make me extra nervous if it all cranked up again.  The teen party sounds fun!  Smile

    Michele ~ WooHoo for clean scans!!!  Now you can be (relatively!) relaxed for Friday ~ Yay!!!!

    (((apple)))  I really hope that node is nothing.  Really, really, really.  How long is the watchful waiting?

    Furies ~ I got a pedicure today for the first time since my dx, and I almost started to cry.  Doing "old normal" things in this "new normal" just overwhelms me at times.  ANYway, I never really cared what color polish they used, and I definitely never wanted any designs.  Today, I carefully chose a color, and when they asked if I wanted a design I said, "Yes!".  So now I have cute little flowers on my Midnight Blue toenails!  I feel a bit silly, but they are cute and make me smile, so I'm going with it.

    Much love and prayers to all my fellow Furies.  I love you!!
    Artemis
  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2010

    Apple...thinking of you. Let us know, OK. Remember you have all thought something was happening before and it wasn't. ((((hugs))))

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2010

    Mary:  it stinks not knowing what's going on....I'm sorry you have to go through this.  (((hugs)))

    Michele:  any word on your MRI yet?  Glad your PET was clear.

    Elaine:  nothing wrong with painting little flowers on your toes, lol, especially if it makes you smile.  I actually did my toenails this week, for the first time in ages (since they were so messed up last year) and it felt good to look down and see pretty color : )

    So Julia found out that she has a couple of clotting disorders, one is genetic, so I'm guessing she got that from me.  I haven't had my genetic tests yet, but now I'm even more nervous about going off the blood thinners in order to have the tests done.

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2010

    Michele~ Thrilled for you and your clean scans :)  BTW, I hope you have an uneventful surgery this week. 

    Apple~ I hope you indicator is once again, wrong....

    Judy~ hopefully they can help Julia. ((hugs))

    Artemis~ My back is feeling a little bit better but I went to a photography group session which was really a ton of fun.  My back is so weak that I think holding my camera (it's about 8lbs) to my face is not helping my back.  I really need to get to the gym and start getting back on the right track.  I have a wedding scheduled next month and I think that my back is going to not be happy with me after that day.

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