Peripheral Neuropathy - 18 months post treatment?

Moonchild -- I'm 22 months out from my last tx and I still have some tingling in my fingertips and my feet -- not all the time, but usually in the evening.  I've been taking 500mg of L-glutamine for almost as long, and at one time, when I ran out, I noticed the neuropathy was worse.  So, I don't think what's happening to you is unusual.  Did you have one of the taxanes?  I had taxotere -- UGH!

Wishing you well,    Linda

Count me as one still having neuropathy with taxotere.  Things I can't do with my hands, very clumsy. Takes me twice as long to type as it used to and I need to do a lot of that at work.   Feet hurt, I alternate heeting pad or cooling blanket depending on how they feel at night.  Limits how long I can be up an on them during the day.  Balance sucks, and they think its contributing to the residual muscle weakness.  Trying to get around on snow and ice this past winter was a nghtmare. I'm close to the 18 months out they said we'd have to see how much came back by to know how much of this I may be stuck with permanently. 

And the thing that just fries me was when I started complaining about these symptoms early on in treatment my Onc's NP looked at me and said "that's impossible, no one gets neuropathy from taxotere and certainly not at your very low dose."  I'd love to give her these feet and hands for just one day.  

Count me in on this--I sailed through 6 cycles of TCH without any neuropathy, only to have it kick in about 4-5 months post-treatment. Foot pain in the morning is very bad, tingling in hands and foot cramps at night, sharp pains in finger joints during the day, the works. Definitely L-Glutamine helps, as does B6 and B12, NOT drinking ANY alchohol, and exercise help too. I'm doing Jazzercise (lo-impact), but I've heard Tai Chi and Yoga can be very helpful too. Anyone have any experience with acupuncture for neuropathy?

jenbal, I think acupuncture helps a little with the pain from neuropathy, neurontin didn't really help at all. 

Amazing what they choose not to tell you, like you won't be able to lift your arms or your may get lymphedema or a big % of rad breast with implants might get capsular contracture. I could go on but my daughter need the computer.

Hi

It hasn't been past 18 months for me, so I probably shouldn't chime in as it has only been 2.5 months out since my last Taxol. Just last night I had a crying melt down on my husband because my neuropahy is getting WORSE (noticed this past 2 weeks-since stating my radation. Infact one foot has a "buzzing" sensation that goes "off and on". IT is such a constant annoyance and sometimes I feel like it's affecting my QOL.I know it's to early and maybe it may dissipate over time. As my mother always reminds me...I am ALIVE.

Frankie

i just started taxotere, carbo, perjeta and herceptin yesterday. I'm reading horrible stories about the taxotere. I was thinking about asking to switch to taxol due to the hair issues. Last night after first does, my forearms went intermittently numb..I called the doc and he was unconcerned. Ugh! What they don't tell you! I am still having debilitating pain from my sentinel lymph node removal. Er/PR -, her2+, 4/6 nodes positive. Any suggestions