I was attacked by a shark!

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Suzybelle
Suzybelle Member Posts: 920
edited June 2016 in Lymphedema

I am so sick of people asking me what happened to my arm...when I was a kid I wasn't allowed to ask ANYTHING.  Did these people not have moms that would whack them if they asked something impolite????  And complete strangers feel free to ask me this.  Geez, Louise.

I have thought up several good responses to the "What happened to your arm?" question....

1.  I was attacked by a great white shark.  Those fingers are fake. 

2.  Gonorreaha.  (I know that is horribly misspelled.  Thank God I don't know how it's SUPPOSED to be spelled.)

3.  Psoriasis.

4.  Kitchen accident.

Please feel free to add your own.  Tongue out  I had not planned on becoming Breast Cancer Girl, but apparently, God thinks I need to be educating the world on the side effects of breast cancer surgery.  I'm not really willing right now, to be honest.

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Comments

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited May 2010

    You ran into a burning building to save a litter of orphaned puppies.. You collected the puppies in a burlap sack you always carry for such emergencies and dashed outside.  Your speed was so great, and your adrenaline so high that you overran the sidewalk and ran into the street.  You thoughtfully flung the sack o'puppies to a bystander and dove out of the way of the oncoming fire truck RIGHT INTO THE PATH OF A SPEEDING BICYCLE!!  OMG!  The bicycle clipped you mid-dive and you landed on your hand.  Epilogue:  The puppies are now in training as seeing-eye dogs.

  • CherylG711
    CherylG711 Member Posts: 102
    edited May 2010

    I tell people exactly what the issues are until their eyes glaze over.  Most of the time no one asks me a thing and I am just not good at making up stories on the spur of the moment.

     You know, I flew with my Jovi quilted garment and not a single soul even looked my way.

  • Suzybelle
    Suzybelle Member Posts: 920
    edited May 2010

    Love the sack of puppies story...

    I get asked ALL THE TIME.  And it's worse when I wear my cute sleeves with patterns all over them.  I'm getting used to it, but it gets old.  I would rather wear the sassy sleeves and get asked than wear the dull beige one!

    I love it when some particularly nosy soul asks, and I get to say, "It's a side effect from breast cancer surgery.  I had both breasts removed in Feb."  They turn white and start stuttering.

    I feel that this answer is the best way to teach these folks not to ask impertinent questions. heh heh.

  • otter
    otter Member Posts: 6,099
    edited May 2010

    What I say depends on the mood I'm in and on my association with the person asking the question.  I figure it's none of their business, so it's my choice whether I want to be helpful or snarky.

    If I want to be helpful, I'll do what Cheryl does and explain the ins and outs of LE.

    If I am in a sour mood or feel irritated by the question, I'll use a classic old-South response:  "Hon, bless your heart ... what would make you go and ask me a personal question like that?".  I'd love to add, "Didn't your momma teach you better manners?", but that in itself is a display of bad manners.

    Actually, the only person who has ever asked me about my compression sleeve and glove was my father.  He has Alzheimer's Disease, so he's excused.  I just told him I'd hurt my arm and I had to wear a bandage for awhile.  He found that response acceptable.

    otter

  • flyingdutchess
    flyingdutchess Member Posts: 142
    edited May 2010
    Its not just breast cancer.  At my nephew's wedding several years ago my cousin came on crutches.  She got tired of people questioning her so she (age 64) started telling people she got it skydiving!  She really had everyone including yours truly convinced.  I actually asked her to promise me she wouldn't skydive anymore.  At the end of the evening she told us she tripped over her dog while walking him and broke her ankle, but she thought she might liven up the reception with a real whopper!!!
  • Binney4
    Binney4 Member Posts: 8,609
    edited May 2010

    enjoyful, I'm glad I wasn't sipping my hot cup of tea when I read your post or I'd have snorted it all over the keyboard!Laughing That's such a moving tale. I'll make sure to have my burlap sack with me after this -- you just never know! The epilogue is the frosting on the cake. Awwwwww!

    Suzybelle, I do have a LE friend in FL who routinely responds to nosy questions with, "You read about that shark attack last week, right?" My own all-time favorite came from the LympheDiva ladies, who used to have a whole list of great come-backs on their web site. It's short and simple: "Trapeze accident."

    As I've mentioned before when this subject comes up, never be tempted to say, "You should see the other guy!" I cleverly said that to a cranky older man who accosted me at the mall when I had my arm wrapped, and he looked me up and down and said, "Can't imagine anybody lookin' much worse-off than you do." Which did not do a lot for my self-confidence. Undecided

    Now I mostly just bore such nosy people to tears with a long explanation of LE. Not only do they learn everything they need to know about all types of LE, but they also learn never to ask anyone personal questions again. Win-win!Kiss

    Be well,
    Binney

  • faithandfifty
    faithandfifty Member Posts: 10,007
    edited May 2010

    You know this whole subject has been on my heart & mind.

    Apparently so, even whilest I sleep.

    Yesterday I was determined to go 'au natural' in my beige sleeve & gauntlet, as gently challenged here, to be in front of about 237 children over the course of the day.

    I'd asked here how to respond to their questions.

    Anyhow. I awoke yesterday with my response for preschoolers, freshly & clearly in my mind, following a good night's sleep:

    "I have a weak arm and this is my power sleeve. It makes me stronger."

    I seriously, honest-to-goodness practised saying it out loud the entire drive to the school. I thought they'd think that was sorta cool.

    I arrived. They had declared it Wacky Wednesday. Staff had painted their hair blue on my behalf, others had portions of Halloween costumes, mismatched shoes -- dental floss woven thru their hair....... anyhow, I felt a tad under-dressed just wearing my usual combination of polka dots plus stripes & went back out to my car to get my black & white striped 'arm cover' to add some more sizzle to my outfit.

    A bit of the gauntlet still showed, as did the top of my sleeve. In any case, 237 children and seriously. NOT ONE. Nary a single one, asked one question.

    And me with an answer!!

    It was an awesome day, and now I have an answer that I'm comfortable with for little ones.

    I realized later that saying my arm is 'weak' is educationally better than saying this is my 'bad' arm. So I'm happy my sleep came up with a response I can use.

    Maybe it will be useful to others.

    Twill keep the shark attack, trapeze, puppy/sack ideas for adults who should know better than to intrude. I was able to speak to two professionals on the phone today, inquiring about how I was doing, mentioning the unknowns I now navigate -- and had meaningful conversations without dissolving to tears either time. Progress.

  • apple
    apple Member Posts: 7,799
    edited May 2010

    i like the shark answer

  • GramE
    GramE Member Posts: 5,056
    edited May 2010

    I have to comment on the great answers.   Although I do not have lymphadema, I have trauma induced brachial plexopathy from a car wreck - over 30 years ago - and wear a splint.   Once I was asked "what is wrong" and I was in "one of those moods" and answered why do you ask?   Do I have spinach in my teeth?    

    Today a lady with a splint on her wrist asked me very gently, may I ask why you wear the splint?   This was at our second Tai Chi class at the senior center (all old folks)...    I told her I had brachial plexopathy which is basically nerve damage and I have had 9 reconstructive surgeries.   She got a bit red in the face and said she just has a sore wrist and bought the splint at the drug store.    And depending on my mood, I will go into a detailed description of my surgeries with a morphine drip for pain control, rehab therapy to be able to make a fist that took a year, etc.    You can picture the eyes rolling and total boredom...   

    Faith, I love your outfits and your answer will be useful in the future.    I might try using the shark attack next time.     

  • 3jaysmom
    3jaysmom Member Posts: 4,266
    edited May 2010

    am trying 2 reach Binney, if ur out there, please pm me..ican't figure out to get 2 pm on this site. need info on fray chek 4 new gloves..Anybody, can u tell me how to send a pm..thanks, 3jaysmom

  • Binney4
    Binney4 Member Posts: 8,609
    edited May 2010

    Faith, what a gift your dreaming gave you!Cool I love it! Power is so much better than any of the alternatives, and its a concept -- and  a dream -- little ones certainly share.

    All that, and it's honest too. We have weakened lymph systems in our arms, and our power sleeves definitely make us stronger -- in every way, as it turns out!Smile

    I'm not surprised they didn't notice -- and not just because of the assorted costume pieces that everyone was sporting, either (though wouldn't it be nice if the world was always so wacky?!) We had a young grandson living with us one summer a couple of years back, and after he'd been here a week, we were sitting around after dinner and I casually stripped off my sleeve. His eyes got huge, and he said, "Did you just peel off your skin?!" Hadn't noticed a thing in all that time.

    Thanks for sharing that, and for all you do!
    Binney

  • 3jaysmom
    3jaysmom Member Posts: 4,266
    edited May 2010

    thanks ladies, for all the good responses..my DH has one, he used at a buffet place awhile ago. i don't find sleeve, or gloves embarrassing.. ple been asking me why a young, healthy,HOW DARE THEY young woman (60) but then be4 bc.ooking youger..woman would possibly need awalker..or, i've had grown men WALK OVER my wheelchair,,and Murray just says excuse me, my mother taught me never 2 be rude to strangers, what did ur mother teach you?  his mother didn't find that funny, i however, peed my pants seeing this "early birder" spit and sputter. I've used it a couple of times, too. shuts them up!  i am used 2 unwanted att..either neg. OR positive,.. i don't share le story much, unless they r survivors, and i know them, or r obviously interested 4 a reason. i don't, cause i don't want 2 hear how Brave i am, either.i HATE that..it's not bravery, it's desperation.. anyway sigh..i love the sleeve cover, Faith, and love the puppy story,,am going 2 have to print it out and memorize it..    light and love,  cherie

  • Binney4
    Binney4 Member Posts: 8,609
    edited May 2010

    3jaysmom, hello!

    We were posting at the same time and I just now noticed your request. Let's see if I can explain the PM business. All you have to do is click on my name in red anywhere and it will take you to my home page, where on the right there's a place to click to send a private message. Click on it and it will open a box kinda like this one to write a message in.

    When you get a PM, just click on the black box near the top of this page that says "Private Messages" and it'll take you to them. You'll know if there's a message waiting for you because there will be a number in pink after the words "Private Messages," showing how many messages there are.

    Hope that makes sense. And I hope it works!Smile

    As for FrayChek, I don't usually use it on new gloves (except Bio-concepts brand if they're made out of a fabric called "Soft," because they run easily), but on older ones that are starting to look worn. Usually the stress points are at the webs of the fingers, where the stitching turns around. I just dab a tiny bit on any spots that look like they're starting to run. I usually do it when they're on me; doesn't seem to irritate my skin, but then I use very little. I buy it at JoAnn's or my Walmart's fabric section. (It's actually for sealing the ends of seams on a baby-lock sewing machine.) It doesn't stain, doesn't stiffen the fabric, and it's invisible on all but my black garments, where it shows just faintly.

    Be well!
    Binney

  • kcshreve
    kcshreve Member Posts: 1,148
    edited May 2010

    You have to be logged in to write a PM.

  • kcshreve
    kcshreve Member Posts: 1,148
    edited May 2010

    I watch the show "Chopped" often.  The response, "kitchen accident" really struck my funny bone.  I cannot imagine keeping a straight face with any of these responses.  I think I'd be doubled over laughing so hard, they'd not understand a single word I said..........Obviously, I'm a bad liar. :)

  • Suzybelle
    Suzybelle Member Posts: 920
    edited May 2010

    Oh, KC, I love that show!  I was watching it one time when this guy really did chop his hand...he had to put on a rubber glove and sterilize his work area, but he soldiered on and won! 

    The trapeze accident really cracks me up, too...I may have to try that one.

  • debbie6122
    debbie6122 Member Posts: 5,161
    edited May 2010

    Faith, loved your outfit, how cute!!!

    Enjoyful. Too funny, Have you thought about writing a book LOL!

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited May 2010

    Faith, I like the power sleeve to explain the garments. Wasn't it great that they had 'wacky day' and not one child felt uncomfortable seeing you with your power sleeve on.

    My great-nephew who is 4 went to hold my hand while walking together and when he saw my glove, he said 'sorry you hurt your hand, I will hold your other hand so it won't hurt anymore'. Other people at church who know about the LE keep asking if my hand will get better. I tell them it is like diabetes a chronic condition and I am managing it to the best of my ability.

    My husband suggests telling the people who ask 'x-games' with a shoulder shrug. or skateboarding accident.

    Sheila

  • Marple
    Marple Member Posts: 19,143
    edited May 2010

    The comments of children can be so sweet, so innocent.  I really like the power sleeve idea.  I wonder if that explanation will work with adults. Wink  I don't so much mind people asking but often it's the way they ask.  Are you asking out of concern or nosiness is what I'd LIKE to say sometimes.

    Gentle hugs all.

  • kane744
    kane744 Member Posts: 461
    edited May 2010

    A month and a half ago, when I was first diagnosed with le, I had this same question.  What do I say when people ask?  Now, though, as a full blown member of the Swell Belles Club, I'm starting to think why feel embarrassed about this?  It's nothing of my doing (well, it probably is but only through lack of proper education and preparation by my doctors).  Now I'm starting to think we all  should stand up and gently shout it loud what we have, why we have it, and why the medical profession, for the most part, knows or cares so little about it.  One tiny pamphlet in a "breast cancer kit" that I got when I was diagnosed didn't do crap to educate me.  Not when I was so freaked out about my cancer, having to make so many life altering decisions and filling myself with as much knowledge about breast cancer as my brain could hold.  No, one little pamphlet about lymphedema did not do it for me.  And when I did have questions about it, I was told it was no longer an issue.  Imagine!  Oh, sorry, getting on my soapbox here!  I should have been sent to a le therapist from the get-go, I should have had base measurements taken.  Anyway, I believe we are pioneers in lymphedemna awareness just as breast cancer awareness people once were.  We don't have to be ashamed or embarrassed.  We've just got to make people care about it and working to find a cure and properly preparing women before their breast cancer surgery.  Strangely enough, since I've adoped this attitude, not one person has asked questions about my sleeve and gauntlet.  Just yesterday a little neighbor boy quietly stroked my guantlet as his mom and I chatted but he didn't question it at all.  Amazing.  

  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited May 2010

    Sex injury.  Thats my line and I'm sticking with it.

  • kcshreve
    kcshreve Member Posts: 1,148
    edited May 2010

    When I suspected LE, I called my BS office and another BS's office to get recommendations for a possible LE consult.  Both offices told me they don't names, since it's not a problem anymore.........right.  

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited May 2010

    KC, when I went to my pcp with the swelling behind my thumb, she said it was probably bruised (I had raked the weekend before and this was 4 days later). I had my research (as well as a visit from our local LE therapist at the support group 2 months earlier) and told her I needed a referal and who I needed to see. She didn't even know about the clinic in our city. Isn't it crazy we have to teach the professionals.

    Sheila

  • kira66715
    kira66715 Member Posts: 4,681
    edited May 2010

    I'm loving the explanations--and totally agree with Suzybelle that it's RUDE to ask--thanks for the gentle rebuke, Otter.

     Okay, back to educating our health care professionals: I work for a rad onc who is very aware of Le and warns patients about it, and it's on our consent form, BUT--he has NO idea how to treat it (suggests ACE wraps) and never heard of LE therapy and completely ignores it when he's confronted with it. Our office nurse sends all the LE patients to me, and I have an entire desk drawer of therapists and DME suppliers. The other rad onc, knows what he doesn't know, and calls me in as a consult when his patients have any hint of LE.

    My surgeon was horrible to me about my LE, my oncologist was worthless as was my rad onc. In my current job, I copy them on my office notes, and I write volumes about our mutual patients' LE  and treatment. Try and ignore THAT...

    Saw two women yesterday who had histories of LE and both had little to find wrong on their exams, and both thought they got worse with the Livestrong Program at the YMCA. It would be easy to ignore/overlook their LE if you didn't ask.

    I had to kiss a lot of LE frogs before I found my LE princess therapist, and Binney held my hand on that horrible journey to get some care. Just came from my biweekly MLD session with her, and I'm so thankful I found her on the LANA site, after the therapist at the LE clinic at the Breast Health Center told me I had carpal tunnel syndrome. My surgeon said "Oh, it's LE, and it's only going to get worse and it's not my job to manage it." And she wonders why I have issues with her...

    Shark attack. Weak arm. Kitchen injury.

    "Hon, why would you ask such a personal question?"

    Sorry for the rant.

    Kira 

  • Binney4
    Binney4 Member Posts: 8,609
    edited May 2010

    Hear, hear, Kane!!!Kiss

    YES! We're in the same place the bc awareness pioneers were several decades ago. And we're definitely standing on their shoulders, because they paved the way to more and better bc treatments that have kept more of us alive (and consequently made LE more of a problem, since it's a "survivor" problem.) 

    Together, we can make a difference!Cool
    Binney, who's worn grooves in this particular soapbox!Laughing

  • smithlme
    smithlme Member Posts: 1,322
    edited May 2010

    When wearing my sleeve and glove I've been asked if I have a new tattoo or have I been seriously burned. One woman challenged me in a grocery store because she wore a glove for her carpal tunnel syndrome. Hers was "much worse" because she had pain and I was only swollen and in slight pain. Whatever lady!

    I tell people the truth and most just get that glazed over look and tune me out. Works for me!

  • Celtic_Spirit
    Celtic_Spirit Member Posts: 748
    edited May 2010

    Suzybelle, I've got some replies that are doozies:

    1. It's an old Civil War injury.

    2. Hurt my arm wrestling gators/bears.

    3. Got it stuck in the door of a flying saucer.

    4. Zapped myself with a phaser.

    5. It's all the rage in Paris this year.

    I don't wear the sleeve a lot (luckily, my case is mild), but I do wear it faithfully when I play racquetball or work out at the gym. Well, compression garments for athletics ARE all the rage right now, so no one questions me or looks twice at me at the gym!

    By the way, I quite agree, it's nobody's business why I'm wearing anything, and I find it extremely impolite when strangers ask, which is why I have no qualms about providing them with the craziest answer I can think of and the iciest stare they'll ever encounter!

  • Suzybelle
    Suzybelle Member Posts: 920
    edited May 2010
    I snorted so loudly when I read the 'sex injury' post from Member of the Club.  But my mother would DIE if I said something like that, so I think I'll try the flying saucer idea that Celtic Spirit posted...it's really not that far out there for those that know me.  Tongue out
  • faithandfifty
    faithandfifty Member Posts: 10,007
    edited May 2010

    Seriously. This JUST now happened. Today.

    Having lunch with a girlfriend @ TGIF's on TGIF. (There should be a discount.)

    We are having a marathon lunch, as I catch her up-to-date on all things BC/LE etc etc.

    At various times during our lunch I am speaking very low, so as not to intrude on anyone nearby who is having a nice day.

    The young stylish male waiter brings me the check. Interrupting for the 37th time. Of course I stop mid-word....... which he is quite aware of. He leans in quietly and says, "So what happened to your arm?"

    OMG! Seriously.

    I say, "Shark attack."

    (whoooooooooohoooooooo, I'm prepared!!!!!!!!!!!)

    To which he responds,

    "You're sure you're not a drug addict?"

    I have no clever retort what-so-ever and had not yet read about the sex-incident explanation or the Alien intrusion possibilities......

    So I mumble that, Yup, it's part of my rehab program. To which he raises his 'knowing' eyebrow and wanders off.

    I'm not quite ready for the soap box just yet, too early in my trajectory, but it may not take me long to get there.

    xx00xx00xx00xx

  • kira66715
    kira66715 Member Posts: 4,681
    edited May 2010

    Don't forget, Suzybelle started the snappy comebacks with "I think the glove is cool!"

    How do you get from shark attack to drug addict? I wear the garments to make my veins plump up and they're so much easier to inject? Don't you agree?

    Sex injury, he should be so lucky...

    Kira 

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