Stage III 15+ Years?
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I've been wondering if there are stage III who are 15 or more years out there?
Barb
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Yep. My mother. Diagnosed at age 64. Bilateral IDC with 17/19 nodes involved on the right breast. ER-/PR- and probably triple negative. 4.5cm on right side, 2.5 cm on left side. BMx and Chemo. And ------ She will be 85 at the end of this month. Celebrating 22 years of survival!!! And she is still a pistol!
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I have a facebook friend who is 11 years out at stage 3 ( 2 tumours one was bleeding cancer)..
I also have a family friend who had a grapefruit tumour and 11 plus nodes who was 12 years out and she had a local reoccurence then went another 10 years-so 22 years total. SHE decided to NOT take hormonals and feels strongly that is why it came back.
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I forgot I met a lady at the wig store who is 15 years out. She got diagnosed the day before her wedding. She looked about 45 or 50 so she had to be premenopausal when diagnosed.
REMEMBER-even if we go 5 or 10 years the disease will change. My BC consultant told me that they have 2-3 new tx coming out next year and about 5-8 that will follow. She feels they will have a controller of the disease soon....
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I will just second what Jen said - anyone dx 15 years ago had a very very different treatment than you did.
That being said, there are of course thousands and thousands of women dx Stage 3, 15, 20, 30 years ago who are still going strong. Thousands. I would also bet that not many of them are still frequenting BC message boards.....
You know, you have done your best. You have thrown everything you can at it. You fought for your life, now go live it.
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I know it's tough. I was in a dark place a few weeks ago and didn't have much hope for the future. My husband was asking me if I still wanted to proceed with plans for a new house which we started right before my dx. Then I read an inspiring post from someone on another thread who just bought a new car. I told my dh go ahead and build. It was in that moment that I truly decided to live as though I'm going to live. And doing so chased away the dark thoughts that were circling around.
I just realized those thoughts remind me of dementors. They suck the joy out of your life.
Maybe you can find something similar. Make a committment to be here in the next 5, 10, 20 years ... It's like staking a claim for your life and saying f*ck cancer.
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I know three people over twenty years that had lots of nodes positive....15 to 22 positive nodes.I know another that had a 5CM tumor and all her nodes were matted in a ball with cancer.....she will be 9 years out in Sept.As Kerry said......they are out there and didn't even get the treatment we got.Jacqueline
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OMG, keep all of these coming guys, it really helps me to stay positive!
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I love these stories. It really do give me a lot of hope. Thanks for sharing!
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My neighbor and the first survivor I found out about after diagnosis is now at 18 years, had 4 positive nodes. Back then they didn't classify her stage III, but she would be today.
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I have a friend who is over 10 years - she will be 11 in November - stage 3, huge tumor and 5 nodes. And my friends mom - 4 nodes is 8 or 9 years out.
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OMG, you are all awesome!! Thank you so much for all the hopeful experiences. I get into these dark places sometimes and this is just so encouraging. Love you all
Barb
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Back then they didn't classify her stage III, but she would be today.
Great point. Since the classification system has changed, it is another reason we can't rely on old statistics. We are the new generation of Stage III and we can beat it.
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Barb - I sure am glad you asked the question because I needed the answers right now!
Thank you to all who responded!
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Be sure and check out the new posts to the Stage III 5 years+ check in thread. Very encouraging!
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clariceak, thanks I definitely will. I haven't been over there because acutally I was so afraid I wouldn't see anyone talking about survival past 6 or 7 years. This is giving me some hope, that there are many years out from stage 3.
Christy, After reading what you've been going thru lately I so know you are totally in need of the encouraging answers right now.
I get to worrying about every little bone pain and ach, or every little headache and all of a sudden I'm in the deep dark place of going beyond this stage 3 diagnosis. Thanks for all the experiences and encouragement here.
Barb
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I think the most important point is that survival statistics measure the effectiveness of treatment 10-15 years ago, not what is available today.
I also believe that we will have very different treatments available in only a few years time. The only thing I can compare this to is infectious diseases before and after antibiotics. Based on what is going on here in Seattle with brain cancer, I believe that the treatments will be customized and based on genetic research. Right now, we need to poison any growing cells, and the rest of the body in the process. Or perhaps a vaccine such as what is becoming available for prostate cancer (also being developed in Seattle).
I have given this a lot of thought bacause, although not Stage 3, I am considered "high risk". Also odd that I don't think they will ever use that much of the information from the treatment protocol study I am participating in.
Because, by the time we will be using 10 year survival statistics, we will be well down the path of much more effective and less debilitating treatments.
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Barb
Here's a reason why you may not be seeing many 15+ survivors on this site. Breast cancer.org was only founded in 1999.
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Wow ladies,
I needed to read this today! I've been stressing lately and these posts REALLY helped.
Love you all!
Sharon -
my stage IV friend is 11 years out - almost. she was diagnosed on my son's 1st birthday which is July 5th.
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my mom is a 20 year survivor with stage III. she didn't have a stage back then. she didn't even have chemo (i am checking into that now). she had a mast, radiation and was on tamox for 10 yrs. she did have a recurrance 10 yrs later and went on xeloda then went back into remission had another recurrance 7 years after that and is currently on xeloda. her cancer is stable and she is doing fine. she is 79 and has other health problems (heart, etc) and the cancer is the least of her worries.
hugs,
diane
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Claire - I hope they do come up with less debilitating treatments down the line. I think that's why I feel so lousy all the time.
Sharon - I know what you mean girl! Everyone of these comments are giving me such a boost because I've been really stressed lately too. Hang in there, hon, I feel your pain also.
apple & Diane - Amazing how encouraged you both make me feel with your experiences. Thank you soooooo much!!!!
Barb
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What a great thread! I have to agree with clariceak~ we have to live and make plans! My mom was diagnosed in 1997 with stage IV lymphoma. It was in her bone marrow and several other places. She had to go through chemo (and losing her hair) twice. By the 2nd time a new drug was out that took care of everything and she is 75 and cancer free for over 10 years. they had been in the process of buying a vacation home in FL and she wondered if they should cancel.Good thing she didn't~ we've had years of good memories there. We often talk about what if she had just given up at her diagnosis? My husband and I just made plans to go with friends to Italy in Sept. I have had aches and pains lately due to gardening and of course the Arimidex. I had a moment of hesitation when I booked without travel insurance but no matter what I am going!At the onc office they always talk about looking ahead and making plans....that's my plan! Kathy
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What a wonderful and encouraging thread.
I have two neighbours who are in their mid 70's. They both had mastectomies 20 years ago with the removal of many nodes. They are both very fit and active and have never had a recurrence and of course, they had their B.C. before Arimidex was available.
Oh, yes, my aunt had a large tumour removed in 1962 and never had a reccurrence and died of natural causes at 87. and again no Arimidex back then.
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My stepmom is now 15 years out last month, she had chemo, lumpectomoy, rads, tamox, then Femara. My Stepaunt is 25 years out, stage 3 6-8 nodes and all she had was 6 months of chemo and mast. No hormone treatment back then.
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ktn-What a great great story! love it and so true. BC has sooo many new tx coming out over the next few years. We have a lot of hope!
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Pure - I know right! These stories just keep coming and what is so encouraging to me is the fact that these women had their treatments before the new ones came along.
ktn, painterly, mmm5, I love the stories coming in here too. They are so uplifting. Before this I thought there wasn't much more than 5 or so years, then a severe case of mets. But even so, I've hear wonderful outcomes on the stage IV board with those ladies, so keep them coming. My girlfriends mom had BC in her 40's with the radical treatment back then. Now she's 85. And very healthy.
Barb
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Kerry Mac --- I LOVE IT!!!! What an awesome mantra --- "You fought for your life, now go live it"
That's really beautiful, inspiring and gives me goosbumps and tears!!
Great thread ladies.
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My aunt had breast cancer in the mid 1960s - by my math that is almost 50 years ago. There was no talk of stages or chemo then, just radical mastectomy. She is the only one of 6 siblings still on the planet.
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apple, your stage IV friend is living in an awesome time for being able to treat this beast. So happy to hear that.
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