Mayo Clinic - any recommendations/experiences?

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iHEARTu
iHEARTu Member Posts: 213
edited June 2014 in Recommend Your Resources

I'd like to get a second opinion at the Mayo Clinic (Rochester MN) for treatment after surgery. Has anyone gone and/or give a recommendation or share your experiences?

Thanks much!

-catherine

Comments

  • yellowfarmhouse
    yellowfarmhouse Member Posts: 279
    edited May 2010

    HI.  I have two friends who did all their treatment at Mayo.  I had mine in Eau Claire, WI.  Mayo basically gave the same recommendations for my two friends who had similar diagnoses to me.  I went to Mayo to have reconstruction and am very pleased with the results.  I think it really helpful to go to Mayo-- they have top notch breast cancer research doctors. 

    My treatment was bilat MX, chemo,rads,Herceptin.

    Hope this helps,

    Wendy
     

  • kellyj
    kellyj Member Posts: 75
    edited May 2010

    I have had all of my treatment at Mayo and have been very happy.  They run a top notch facility and have excellent doctors. I drove 3 hours every other week for 4 months for chemo, and stayed at the ACS hope lodge for 6 weeks during radiation. I had a brain tumor also, so I have experience in the neurology department too. I liked that all of my physicians knew what was happening with all the different aspects of my care.  You would love Mayo if you chose to go.

  • ktym
    ktym Member Posts: 2,637
    edited May 2010

    Just sent a PM

  • Husband11
    Husband11 Member Posts: 2,264
    edited May 2010

    My wife and I went.  We were treated well and fairly, and it was good to get a second opinion, even if it simply confirms the first strategy.  Also got the cyp2d6 testing done there.

  • nowords
    nowords Member Posts: 423
    edited May 2010

    I had my second opinion at initial diagnosis at the Mayo Rochester and all of my treatment there. I liked the team approach and the rapid results to tests. I drove 2 hours each way for all of my appointments and for 25 rad treatments. I was offered a no cost stay at the HOPE Lodge during rads, but was more comfortable going home each time. I continue to go every six months for follow ups.

  • iHEARTu
    iHEARTu Member Posts: 213
    edited May 2010

    Hi Timothy

    What is the advantage to taking the cyp2d6 test?

    -catherine

  • mari65
    mari65 Member Posts: 131
    edited May 2010

    When I was diagnosed in February my husband asked our doctor what they would do if they had something like this and they said Mayo's that's what we did. It was fast also 4 days after meeting with our docs we had a Monday consult at Mayo's. It's funny I started with just one consult for that Monday morning and by the end of the day one turned into 5. Very pleased with doctor Sandu (BS) and her nurse. Actually everyone there. We had a seven hour drive from the UP.well worth it. Buy a Tom-Tom GPS and stay at the Best Western Soldier Field. WE liked the fact that we get to the hotel and park our car and use the free shuttle for everything. So everyone from the hotel staff to Mayo's GREAT..........

    Diagnosis Feb 8, 2010    IDC 1.8  Stage 1C  Grade 2  ER+/PR+  Her2-  0/2 SN 

  • Husband11
    Husband11 Member Posts: 2,264
    edited May 2010

    The cyp2d6 gene testing relates to using tamoxifen.  Its a somewhat controversial test that may give some guidance as to whether you metabolize tamoxifen fully, partly or not at all.  Its relevant to hormone receptor positive patients that are considering tamoxifen therapy.

  • gwerfil
    gwerfil Member Posts: 39
    edited July 2010

    I was diagnosed on Friday, March 13, 2009 at The Mayo Clinic in Rochestor while out there for their  executive health program where they basically check everything that's currently needed. My husband scheduled his colonoscopy, flight physical, dermatology and I also schedued a sleep study and thyroid study. I thought, might as well get my mammogram while I'm at it, so on my first day there I had my mammogram and got the shock of my lifetime. I had had no palpable lump. No family history.

    All of the staff--from the desk clerks, the nurses, the mammogram technicians, the radiologists, the highly skilled surgeon (Dr. Degnim) my counselor Dr. Lonnie and my oncologist were fantastic. I had an anesthesiologist, but my nurse anesthetist was an angel--a real one, I think. The time from diagnosis to core biopsy to surgery was one week. We had returned home to the east coast following my diagnosis on Friday the 13th and we were scheduled to go to Sloan Kettering, the University of Pennsylvania and Johns Hopkins for consultations after I made some calls on Monday morning. We then realized that plan would have involved about three more weeks of nerve-wracking waiting for all of the appointments and I knew in my heart that I wanted to go back to Mayo. Then a doctor friend suggested that we should return to Mayo, since I was already in the system and they are so good, so that did it for me. My husband and I called The Mayo Clinic that same day and they said that I could see the surgeon on Tuesday--the next day! We hastily packed our bags and got a flight out of Newark to Minnesota that evening. I was in the best of hands at Mayo. I had my surgery on Thursday, within a week from diagnosis. My surgical result was and still is amazing and I was reassured by my oncotype score. I returned home and did the radiation at Sloan Kettering in New Jersey (easy to get to) and my oncologist is at Penn (also not far and I liked him). Sounds complicated, but it works. If I could have done all of my treatment at Mayo I would have, but since I live on the east coast that wasn't practical. I am very lucky they found my tumor, because it was hiding really well and in the words of my oncologist at Penn, "Mayo had to look really hard to find it." Thank God they did. Mayo was a such positive experience for me, despite the diagnosis of breast cancer.  Though I was in shock from the diagnosis, I was supported so well. I highly recommend them. I intend to return for another bone scan. I had a clear mammogram at Sloan Kettering in April 2010.

  • Mouser
    Mouser Member Posts: 245
    edited July 2010

    Mayo is terrific.

    Went 2x, same summer, 2 different problems -- *everyone* treated me as an intelligent and responsible adult: with kindness and with respect. Beginning with the *all* the telephone receptionists, and including the nurses, the social worker (?), the surgeon and the onc.

    Sympathetic, kind, considerate -- and very efficient!  It was partly luck, i'm sure, but they managed to schedule a mx for the next day - Friday before Labor Day - because it would have been difficult for us to come back, given that the semester had started, my husband really couldn't take time off teaching *again*, and it's an 8 hr trip one way for us.

    I did have a friend who had a bad experience at Mayo -- but it was 15 years ago, and *not* cancer; i guess every institution has one bad apple.... As far as im concerned, they are super, and i will go there any time i need a 2nd opinion!!! On anything.

  • speech529
    speech529 Member Posts: 337
    edited October 2010

    I was treated at Mayo in Phoenix AZ.  Top notch, well-coordinated and compassionate care.  I wouldn't hesitate to go there.

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