PTSD

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  • shadow2356
    shadow2356 Member Posts: 393
    edited May 2010

    How do you know if you have post traumatic stress disorder? I feel like I got through things ok until this point. I had bilateral mast with DIEP. One side failed. All night long I was telling them there was a problem but they dismissed my concerns. In the morning more docs came in, freaked out, took me back to the OR and removed the flap. THen 2 weeks later I had a tissue expander put in. That third surgery was really bad for me because of the 2 previous ones on the same spot.

    It is now getting close to where they want to do the exchange. I am freaking out about it. Suddenly everything is getting to me. Having trouble parenting, no patience (single Mom), missing my MOM a lot who died of BC 28 years ago, My Dad has Dimentia and that is stressful, trying to work full time and do all the cancer treatment, money issues from this, etc, etc.

    How did you all get through everything? Also, how is it I held it all together and now suddenly unraveling?

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited May 2010

    MaryEllen:  Wow, you've been through so much and have a young child too.  I'm so sorry you are having to go through all of this.  I was diagnosed in August.  Had a lump in Sept and re-excission in Nov and then had to do a mx (left side) in January.  No chemo, no rads, so I'm fortunate that way.  I have TE in place now and will have exchange the 11th of June.

    I know everything I've been told by my docs is that getting depressed after surgery is a natural feeling.  You aren't strange and it doesn't mean anything is wrong with you.  It is just your body has been through so much and it is so overwhelming. 

    Plus, since you have a young child, you are probably spending a lot of energy being a mom to her.  Mine are grown (I'm 49 but had kids very early).  I can't imagine the energy I would have had to expend with a 2 year old!  I don't how you've gotten through this far!  I'm personally amazed!

    I put on the "brave face" with my kids, with my mom, at work, but cried in private, in the car, reading boards.  It is a big relief to be able to "let it out" sometimes.

    If you need to rant, vent, cry, you are in the right place.  You can PM me or anyone you want and they will get back to you.  Someone here will have your exact diagnosis and shared your exact experience.

    And I can tell you from reading the Exchange City board, the anxiety for most of us before exchange is definitely natural!  We are all so anxious to look "normal" or what will be the "new normal" and start to get on with our lives again....and worried it won't be right.

    I know you probably don't want to hear "relax" but please try to have a wonderful day with your daughter tomorrow.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2010

    Shadow, I encourage you to be honest with your doctors. Tell them you are panicking and feeling overwhelmed and everything is getting to you. You may need an evaluation and some medical intervention. I am an incredibly strong woman who came apart after chemo and my Mom dying in April. I have a psychiatrist who I see regularly because I do suffer from PTSD (longterm and chronic) but I had been stable for so long pre BC. Sometimes, our bodies just run out of gas and we cannot hold it together anymore-NOR SHOULD WE HAVE TO HOLD IT TOGETHER!! I believe there comes a time when we all need help. I had to get with my doc to get a correct diagnosis of PTSD and then I had to set up a treatment plan for that!!! All of my surgeries and treatments are on hold until I am feeling more stable-I had to slow everything down!  (I don't know if you have that option). You may want to google PTSD and take the test provided just to give you an idea of where you really might be and what might be going on. It may not be PTSD. I have lived with PTSD my whole life. When my PTSD is activated by trauma (like cancer) I really have to; get to my docs and tell them what is going on- my body, the surgeries and the fatigue just whacked me. MOST IMPORTANT, I also had to get full lab and blood workup even four months out of chemo. I was stunned to find out last week that; I am severely anemic; my body has no VIT D and I am now on 50000 Units a week; I am on B-12 shots; my blood pressure was off the charts and now I am on BP meds. I was not sleeping well at all, so I had to get help with that. I had to look at pain management and make sure my pain was truly being controlled.  Most important for me is that I 'journal" or write about my FEELINGS every day and process them with a therapist or counselor or pastor. When my PTSD is activated or triggered, I have to set aside QUIET TIME for me every single day-I either meditate or take a walk-ALONE!. I have to marshal the troops and ask my friends for help!!. I pamper myself with quiet bubble baths-no interruptions allowed-period. I have to watch what I eat and drink (no alcohol-I am in recovery 22 years); no caffeine-cokes, etc; no sugar. I am still having trouble eating so I am drinking a lot of high protein Ensure. I know that for me, I cannot do it alone-the anesthesia alone put my brain in a waking coma and I really could not do much. And truly there is what is called "Chemo Coma" I cannot remember if you had chemo. JOB-if you feel comfortable after you have seen your docs and gotten a diagnosis, go to your employer assist program and meet with them. I had to take a short leave and then I was placed in a less streesful job so I still made money while I was recovering. This is a requirement that employers must follow by federal law-you cannot be fired for temporary disability (scary words, I know). I will have 25 things on my daily list of things to d-I am only allowed to do two of those things-that is all, then rest and eat. AND AS BC WROTE, YOU CAN PM ME (US) ANYTIME. I worked as a licensed clinical social worker for many years and with a focus on women's issues. Be proactive in your care so this does not spin out of control. You WILL BE OK but it takes work and only you can do the work that you need to do!! But again, I could not do it without guidance and a kind ear and shoulder to cry on. I know for me, I was diagnosed with BC in Oct, 2009 and from there everything went so fast-I was passed from doc to doc and procedure to procedure and had no idea what was going on most of the time. YOU HAVE US!! And you have your docs. Ask for help!!!! You deserve all of the support and unconditional love you can get and it is time to ask for it now! ((((((BIG HUGS))))) SV

  • NatureGrrl
    NatureGrrl Member Posts: 1,367
    edited May 2010

    You've gotten lots of good advice, I don't have much to add but want to reinforce:  talk with your doctors.  Get a therapist that's appropriate for you (I was actually seeing two after my dx; an outside therapist and the staff therapist in my oncologist's office.  Like Still, I've had PTSD most of my life but didn't know it until I was dx in my 40's by a therapist; it's usually under control but there's nothing like cancer to bring out the beasties!).  I went back on meds after my cancer dx -- not to "fix" anything, but the meds help me "even out" so I'm better able to cope with everything.  Talking to a therapist has been essential for me as well.

    I was caregiving/living with my mother with dementia when I was dx with cancer and I know how really hard that is.... also was/am working but for pititful wages, also had no health insurance... in short, I know stress, anxiety, and freaking out.  It's hard. 

    How do you get through it?  One day -- one hour -- sometimes just one minute at a time.  It's hard to give your own needs priority when you have a parent/child/others who need you, too, but it's really critical that you give yourself some care.  Still had a lot of good suggestions:  meditation, exercise, walking, seeing a dr/therapist, talk with friends, go to a movie, read a book, take a bubble bath, eat as healthy as you can (for me taste and nausea had a big impact so I just ate what I could and am being healthier now that I'm through the worst), get rest. Don't be afraid to ask for help. Take a nap.  Give yourself time for you.    I know it's hard but it really is important.

    You can do this even though you feel like you can't.  Warm hug....

  • leaf
    leaf Member Posts: 8,188
    edited May 2010

    See above and below for great advice.

    Here's more info about diagnosis and 'official' criteria for PTSD http://www.mental-health-today.com/ptsd/dsm.htm

    PTSD is a lot more common than I imagined - 1-14% lifetime incidence.

    Whatever complicated way you are feeling is OK, even if you can't figure out why you feel that way right now.  Our brains do not always act linearly.  It doesn't mean you're 'nuts'.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2010

    I think from the second you get your diagnosis you are kept busy with doctor appointments with surgeons and plastic surgeons and oncologists, etc.  Then there's always more tests to be ordered and completed.  If you're like me you spend hours doing every kind of research on your type of cancer, treatment plans, where to go and what to do.  You're busy rearranging your life to fit all this in, scheduling surgeries and treatments, completing surgeries and treatments.   And then, finally, when you can take a little break and process it all-

    it hits you like a ton of bricks!!!  I have heard so many people say they were fine until after everything was done and then they got depressed.  It's like you're too focused on getting cured beforehand to allow yourself to feel all the emotions that come with BC.  It is all very normal and almost everyone goes through it.

    And I agree with bcincolorado, there is a lot of anxiety in that last surgery.  This is the one that's supposed to make it all better and we're supposed to feel so much more normal afterwards.  There is a lot riding on that last surgery.  And you have all those added stresses like single mom, money worries, sick parent, etc.  Anyone would be freaking out right now.  I would suggest counseling if you can fit it in your crazy schedule.  If you can't afford it go on to the American Cancer Society site.  They have a program called Reach for Recovery, I think, where they will connect you with a volunteer in your area that has had the same type of cancer you have.  Your volunteer will call or visit you and help you through all this.  Good luck! 

  • PattyG
    PattyG Member Posts: 4
    edited May 2010

    Hey Kate, glad I found you..

    I never gave it too much thought about PTSD coming into it with BC. 

    Makes sense I guess..... 

    Shadow, I cannot even imagine having to deal with a 2 year old and working a full time job at time like this. 

    A lot of times we push stuff aside thinking "we are ok" but only later to have it coming bubbling out all over the place. Think that is what is happening with you huh?

    I suffered with PSTD for other reason, the way i dealt with it is.. 1. I found someone to just listen and let me talk till I couldn't talk anymore. 2. I journal.. wrote all my feelings down. 2. I prayed.. a lot.

    Wish you well...hang in there. We are tough stuff.

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