Double mastectomy with NO diagnosis of cancer

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Suzanne3
Suzanne3 Member Posts: 3
edited June 2014 in High Risk for Breast Cancer

Hi. My daughter is attending NYU post graduate school in journalism.  She would like to write a report about women who are at high risk and undergo a double mastectomy for prevention.  Is there anyone out there who is willing to share their story with her?  If so, I will have her sign on with me to ask her questions.  Thank you so much.  This is such a delicate and frightening issue but at the same time, has great benefits in sharing.

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  • bschwa
    bschwa Member Posts: 6
    edited March 2010

    Hi, I would be happy to share my story with your daughter.  I am 5 days post op PBM, please Private Message.

    Beth

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  • Cherries58
    Cherries58 Member Posts: 17
    edited March 2010

    I too have had a dbl mast with no cancer and would be happy to talk to your daughter.

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  • Suzanne3
    Suzanne3 Member Posts: 3
    edited March 2010
    Dear Cherries58:  Thank you very much. My daughter's name is Vanessa DiMaggio. Her email address is vanessyd@aol.com.  You can google her name and see all of the articles she's written in her journalism world.  Please send her an email at your convenience to get things started. Again, thank you so very much for sharing your life story with my daughter.
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  • MistyJ
    MistyJ Member Posts: 113
    edited April 2010

    Not sure if your daughter has written her report or not, but I am pre PBM.  Planning for June.  I would be willing to share my story with her if she still needs it.

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  • m-star
    m-star Member Posts: 547
    edited May 2010

    i too had a PBM in feb this year.

    I was high risk due to mantle radiation i recieved for Hodgkins lymphoma when i was 17 (im now 36). Just undergoing reconstruction right now.

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  • vmudrow
    vmudrow Member Posts: 846
    edited May 2010

    I am having PBM tomorrow due to ALH and family history.   I didn't want to take tamoxifen and have the worry every time due to numerous biopsies.

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  • MistyJ
    MistyJ Member Posts: 113
    edited May 2010

    good luck vmudrow!!!  Thoughts to you tomorrow!!!  Misty

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  • angiekanak
    angiekanak Member Posts: 2
    edited August 2010

    Was your daughter's report ever published anywhere?  I just has preventative surgery because I am BRCA-2 +, and I love to read about others's stories.

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  • insideherstory
    insideherstory Member Posts: 2
    edited October 2010

    Hello everyone,

     I produce Jacque Reid's segment "Inside Her Story" on the Tom Joyner Morning Show. We are looking for an African American woman that had a Double mastectomy with NO diagnosis of cancer.

    Please email me  as soon as possible with your contact information (cell number and email). My email is pa4jacque@yahoo.com

    We are doing this story on October 26th or October 29th and will need you to be at a land line number between 9 and 9:30 AM EST. The interview can not be done on a cell phone.

    Thank you!

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