Hypothyroidism?
Hi everybody,
need input from those with Hypothyroidism.
What is the hormone level that warrants treatment?
My TSH is 6.03 (normal up to 4.8) and T4 is normal but super low, probably going somewhere....
I went in because of palpitations when I lay down and chest pain (this wakes me up from sleep), ekg was abnormal because of bradycardia (slow heart beat)....now we "wait" and I go back in December to test again...sounds normal?
What do you think?
Edit:
I should not that I was treated with radioactive iodine in 2001 and I was told that Hypothyroidism could to be possible.....but....should it go away again in 6 weeks when I retest?...the heart rate at night in the 30ies is scary and the chest pain and palpitations are as well.....
Comments
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Hi Calico,I'm so sorry to read your post, because you should not be having a pulse of 30 and chest pain at night or day and be anywhere but in the ER getting evaluated.A pulse of 30 is consistent with heart block, a rhythm conductance problem among other possibilities. Your heart is beating way to low to keep your blood flow to your vital organs sufficient, and is the most likely source for your chest pain. You may feel dizzy, weak, and if heart failure is present, have swelling and shortness of breath.I don't know if the hypothyroidism is the soul source, but certainly it may be a big source since you had radioactive iodine in the past to counter hyperthyroidism. On a repeat blood test, your TSH may be even higher, further suggesting you're having cardiac effects from hypothyroidism.May I suggest that you head over to the ER and have the full work up (EKG, blood oxygen measurement, workup for heart failure etc) today?If your own doctor isn't more on top of this, it's time to put yourself in the hands of emergency doctors who surely may help you at a time of need, and with speed and proper attention.Good luck,Tender
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Calico
I agree with Tender. I think you need to get the slow heart rate and "palpitations" checked out more thoroughly. The palpitations could be caused by the slow rate--your heart could be compensating for the slow rate by putting out ectopic beats. The slow rate could be a conduction block or some other primary cardiac problem, or it could be secondary to something else--like hypothyroidism. In any case, waiting until December to get it re-checked does not sound like a good idea. A heart rate that slow could cause you to pass out, as Tender said. My uncle had a heart rate around 30 or so, and he ended up needing a pacemaker. He is not allowed to drive until the pacemaker is implanted, because he could black out while driving. So, I would ask for a consult with a good cardiologist if I were you.
OTOH, both the bradycardia and the high TSH are consistent with hypothyroidism. I had a slow heart rate (generally below 50 bpm at rest, sometimes < 45 bpm), and I was eventually dx'd with Hashimoto's thyroiditis after seeing an endocrinologist for an unrelated problem. I did have a few other symptoms of hypothyroidism, but it was the thyroid function testing that revealed a high TSH, low thyroxine levels, and some other stuff showing it was immune-mediated (which yours isn't).
So, a consult with an endocrinologist would also be a good idea, especially considering your medical history. The question is, who should you see first? Maybe a good internal medicine doc, who could send you in the right direction.
otter
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Your TSH is 6.03... that is HYPOTHYROID. The labs haven't all accepted a NEW normal range, which is, I think, from .3 to 3.0.... The old range was considered HYPO for anything over FIVE, and you are even over 5.0.
Hope you will see your dr., because you may need to start treatment with thyroid hormone, JMO. My sister was also treated with radioactive iodine, and she is now taking thyroid hormone, and probably will for the rest of her life.
Good Luck! Please let us know how you get on.
HUGS
Harley -
Thank you girls,
I have a cardiology referal in the works (no need for asap, this was a week ago and I could be seen on Tuesday or Thursday, if in fact, that thing makes it through at the two week point).
I did not get a referal to endocrinology but was told to wait and see and re-test in December (after 6 weeks - despite the ekg and palpitations and history of radioactive).
I almost went to the ER last night but think what if they think it is related to bc anxiety or something? I would feel so foolish (since I don't feel "sick" until I lay down and there are real emergencies out there).
It does wake me up with what I thought was a gasp for air and I thought sleep apnea.
My CO2 went high and higher to 33 and I made sure to walk around before my blood work to see if "well ventilated" it goes down and it did.
I feel "old".
Guess I will put my foot down for endocrinology too.
Tender,
the heart block would probably not let my heart go up during exercise? I do walk and run a little daily (can't run all at once but try to speed as much as I can to keep heart rate up).
It reacts fine I think and it goes well up to 140 bpm when I run up the mountain (I am not as athletic as this sounds....more huff and puff ....and let it 'roll' on the way down.
Would that be an indication that it is not heart block? (Don't want a pacemaker omg).
Had a normal stress ekg in 2005 and TSH of 2.8 as well back in 2006......bummer....
You guys are the best.
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Otter,
do you tolerate the medicine well? Sorry about the Hashimoto dx!
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Calico,I guess you have "swings" in your pulse from what I hear you say. So, yes, if you're not constantly with a low pulse (and 33 is low) and in reality go high with exercise, a sustained block is not likely.Truly, a cardiac stress test and a 24 hour holter monitor could give the insight you need.I'm glad to hear you have a cardiologist visit next week.If your pulse drops so low again, and you have breathlessness, and certainly any chestpain, I don't see the advantage to waiting. I'd go to the ER and let them slap a monitor on after telling them about the chest pain. Don't worry about the whispers of anxiety and bc etc.., heart problems do indeed cause many an individual to visit the ER.Best to you,Tender
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Thank you so much Tender,
I sure hope it is "just" the thyroid, I'd be 'heart broken' if it was the heart. (meant to add I don't think I have edema - at least not in hands and feet....)
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Calico, I've been on Synthroid for about 7 years. After making the Hashimoto's dx, the endocrinologist put me on an escalating dose of Synthroid until my TSH went way down. Then he backed off until everything stabilized. My dose has been around 75 to 100 mcg ever since then.
I stopped seeing the endocrinologist in 2004 because he was putting enormous pressure on me to start taking HRT. (I was menopausal and I'd told him I was having very mild hot flashes.) Ironic, isn't it? I declined the HRT, he got nasty, I quit seeing him ... and 4 years later I was dx'd with ER+ BC.
I do want to mention that, although my TSH and Synthroid dose have been stable for several years, things changed during chemo. I needed to renew my Synthroid script in April, so I went to my PCP and he re-checked my TSH. It had been down below 2.0 (but above 0.3) for a long time, but this time it was just at 3.0. I was about 2-1/2 wks into my first round of Taxotere & Cytoxan at the time.
My PCP wanted to increase the Synthroid dose a bit, but I convinced him to wait and re-check my TSH after I finished chemo. I'd read that chemo could affect thyroid function (or dysfunction), and TSH levels might change as a result...and then change again, once the chemo was over. I have an appt for a re-check a couple of weeks from now.
And, yes, I've been tolerating Synthroid just fine. It's a nuisance to have to take it first thing in the morning, an hour before I eat anything. That could become a problem if I ever go on an oral bisphosphonate for osteoporosis. I'm mildly osteopenic now, and I'm taking Arimidex which will probably make that worse. I don't know if the Synthroid contributed to my bone-thinning. I don't think my dose has been too high, but my PCP doesn't always check T3 or T4 when he checks TSH.
I do know that I've felt a whole lot better since the Hashimoto's was dx'd and I started on Synthroid.
otter
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Good thing you declined HRT, you would have blamed yourself otherwise....and good thing for changing doc's too.
I read something about thyroid and osteopenia, got to go back and check....
So you take the Synthroid an hour before breakfast?? OMG, I just started Fosamax and all I want is have my coffee and food that morning, I swear I am like my cat - can't have it but must have it!
That would be a reason to go on Zometa IV . I want meds that you gobble down with food lol....
Get your annual Dexa scans, I couldn't believe my 2nd one (over 9% loss in the lumbar spine) but I am eating calcium like candy (okay, almost...) plus D plus magnesium (last two which I didn't the first time around).
Can you lose weight if you want to, did you have trouble before? (I have trouble, 12 lbs forever - I would do 10 - or any....)
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Calico
I also take 75 mcg of Levothyroxine (generic Synthroid). I take it when I first wake up, and the pharmacist told me that you should wait at least 1/2 hour to eat... I try to always wait at least 1 hour before eating.
I have GAINED weight, since my bc dx... Initially I lost alot of weight, but after chemo, I gained it back and then some. I've been taking the Synthroid for 10 years now, so no, it didn't help me to lose weight. I stayed the same for a long time.
Let us know how you make out, ok?
Harley
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Been in and got checked,
T 4 is 0.98 and TSH went down to 4.48.
EKG was fine, heart is still down (pretending to be sporty I think
)
Wonder what PCM will say.....
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Hi girls,
fast forward a year, the TSH is up again to 6.18, changed clinics to Internal, requested a retake again and they called right away with a prescription of synthroid (50mg for now, taking it for 3 weeks so far).....can't believe the old clinic didn't care....
Lots of symptoms are disappearing, had muscle pain in quadriceps back then already, pains like carpal tunnel syndrome in both wrists are getting all better.....but I am also hungry a lot lol....no weight gain but I'm trying to lose, so I am watching my food (go in my mouth lol)
I am going to see an endocrinologist next month too, but for other reasons, my estrogen seems to be up again...way up....so up it must be a lab error (278) but the progesterone? is 0.3 (definately post menopausal)...go figure...I will ask for that special estrogen assay again.
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